#Down syndrome is an illness

[theexodvs]

Given the (warranted) suspicion given towards the disease denialism found in both Christian Science and Scientology, it can be said that if the claims of the neurodiversity movement were attached to organized religion, they too would be constantly lambasted.

#Christian Science #scientology #church of Christ scientist #Mary Baker Eddy #l ron hubbard #church of scientology #neurodiversity #neurodiversity movement #Just because a movement does not claim to be religious does not mean it isn’t cultic. #Scientific denialism #Denialism #autism is an illness #ADHD is an illness #Dyslexia is an illness #Down syndrome is an illness #Schizophrenia is an illness #Not all victims of a given illness will have an equally easy or difficult time #Not all illnesses have viral or environmental postnatal causes #I know most of the conditions the ND crowd champions are inborn #That still doesn’t mean they aren’t illnesses

[chaoticautie]

As someone who is somewhat of a “veteran” of the online ND community, I’m disappointed in the lack of positivity and love for lesser known diverse cognitive conditions, and the opposing abundance of posts about “cures” or outdated criteria or treatments for those conditions. So, without further ado, I want to say hello to anyone with any of the disorders I’m listing, and give them the love and support that hardly anyone else in our community has… Shoutout to:

People with Down syndrome

People with Fragile X

People with William’s syndrome

People with dyslexia

People with dyspraxia

People with dyscalculia

People with dysgraphia

People with Prader-Willi syndrome

People with PANS or PANDAS

People with aphasia

People with a TBI (traumatic brain injury)

People with chronic/early onset mental illnesses

People with cerebral palsy

People with FASD or were otherwise disabled via other substances in utero

And many, many more I may have forgotten to list (but still support and love, I will add more to my list)

You are all beautiful and wonderful, and you all deserve so more love, appreciation, acceptance and support. You are just as neurodiverse as the rest of us, and your voices deserve to be heard and amplified.

I love you all ❤️

#autism #autistic #actually autistic #neurodivergent #actually neurodiverse #audhd #sensory processing disorder #down syndrome #fragile x #fragile x syndrome #williams syndrome #dyslexia #dyspraxia #dyscalculia #prader willi #aphasia #tbi #traumatic brain injury #chronically ill #chronic mental illness #cerebral palsy #fasd #neurodivergent love #dysgraphia #pans #pandas

[madpunks]

shoutout to slow learners. shoutout to people who take a very long time to parse and grasp new concepts. shoutout to people who struggle to follow directions. shoutout to people who can't perform a task just after watching someone else do it. shoutout to everyone who needs learning aids, needs to take notes, needs to try multiple times, and needs to be told the explanation repeatedly.

you're not dumb. you're not lesser. you're not doing it on purpose. everyone learns at their own pace, and people forcing you to learn faster than you can are the ones causing a disruption in your ability to learn. it's not your fault.

#autism #adhd #schizophrenia #ocd #dyslexia #mental illness #neurodivergence #neurodivergent #neurodiverse #disabled #disability #schizospec #schizospectrum #developmental disorders #downs syndrome #learning disorders #mad punk #mad pride #madpunk

[chronicallyuniconic]

"6 out of 10 people who died from Covid between March and July 2020 were disabled"

As part of the UK covid inquiry, evidence has now been brought to light which shows that "Do Not Attempt Resuscitation" notices, were put on the files of patients with Down's Syndrome, Autism & other learning disabilities.

These people were healthy, before contracting Covid19.

The NHS watchdog we know as NICE, (the National Institute for Health and Care Excellence), issued guidance for trusts and hospitals advising them to apply a “clinical frailty scale” to decide whether patients should be admitted to intensive care.

Older and more frail patients were viewed as being less likely to survive even with critical care treatment.

The original NICE guidance also suggested that those who could not do everyday tasks like cooking, managing money and personal care independently, would be considered frail & not receive intensive care treatment.

This original guidance has since been removed....

Which leads us to the Do not attempt Resuscitation notices...

The DNAR notices were often placed on the files of the patients without their consent, or with limited understanding of its meaning.

Patients with learning disabilities were classed as 'clinically frail'

NHS England have of course denied this, yet the evidence shows they let them die, as to not overwhelm the NHS in the early days of a pandemic.

Yet many specialist nurses have come forward to say that they were constantly put in place for people with learning disabilities and often "inappropriately."

_____

I feel utterly sick. I remember at the start of the pandemic, talking about how disabled people will become a target, that we will be killed off, and people looked at me like I was purple.

4 years later we're here. In case you need to read it again, 6 in 10 people with covid that died during March to June 2020, were disabled. 6 in 10. I can't stop repeating that number.

Read more here:

https://archive.ph/4BQ3s

#covid 19 #covid pandemic #long covid #disability #covid inquiry #chronic illness #chronic life #chronically ill #spoonie problems #Disabled not disposable #learning disability #vulnerable #down syndrome #nhs #nhs england #aneurin bevan #Would be spinning in his grave

[neuroticboyfriend]

do you have POTS and feel sick and fatigued in the morning? if you can, try allowing yourself more lay down time. don't get out of bed right away. give your body time to adjust to wakefulness. give your meds time to kick in. when you start moving, take it slow. stretch while laying down, change positions slightly, etc.

i'd also keep something to drink and maybe a snack next to your bed for when you wake up enough. or you can hydrate and eat when you get out of bed. all of this is especially true if you slept too long/little, or took something sedating the night before. and if you have a pulse ox or bp machine, keep it by your bed - sometimes we think we're okay when we're not!

this isn't Medical Advice, just stuff I noticed helps me as a POTSie. if anyone has other morning tips, feel free to add on <3

#currently getting my lay down time #softspoonie #disabled #disability #dysautonomia #potsie #pots syndrome #postural orthostatic tachycardia syndrome #pots #chronic illness #orthostatic intolerance #chronically ill #spoonie #spoonie tips

[svampira]

normalest friend group

#wrong they all hate each other #except for elias only eden hates him rightfully so #he got his bestie dante exhiled anyways thats for when i design kat which might be never back to the line up #brooke looks so cute shes eliciting a omg puppy response from me. never slimming her face down again her cheeeks #the more adorable they look the eviller they are. in order brooke elias diamila eden #diamila will stab you in the back for fun and she probably has the highest vampire bodycount in the us BUT she doesnt kill humans #so that basically makes her a good person #elias and brooke would literally kill a kid the only difference is elias would only do it if he was pissed brooklyn would do it for fun😭 #shes so cute #wip #ill draw a full body line up later shivers #elias and brooke are the only ones where same face syndrome kicked in but i dont mind that much there is literally no way theyd get mixed u #wait let me go back on what i didnt mention #eden is off the evil scale hes a relatively good guy.... by kindred standards tho hes still a hypocrite kind of nines style but worse #he did the most to become baron and rallies the anarchs into going to war w the camarilla basically but he cant stomach violence #back to how much they all hate each other diamila and eden used to be friends but she did her usual backstabbing when chose the vt m b #camarilla ending diamila hates brooke and brooke just dislikes her but has no reason to hate her and eden and brooke hate love each other #mostly hate by 2021 honestly #his bestie wasnt named dante i meant it dante exhiled. you know

[pleastrop]

so everytime i feel a faint coming i have the instinct to sit down instead of lying down even tho i know that's what i gotta do, but it's like i can't? i feel worse when laying down and i also feel the NEED to stay sitting, and I don't know if it's just me or if this has happened to someone else?

like im SO tired of everyone telling me i just want to get attention and that's why i sit and make my symptoms worse instead of lying down and feeling better (which doesn't happen to me but since when does others care about how someone with a chronic illness is feeling right)

#pots #pots syndrome #postural orthostatic tachycardia syndrome #chronic illness #chronically ill #chronic pain #chronic fatigue #dysautonomia #disabled #also its not that i can't lay down because of the brain fog #i physically can #but it just feels so much worse

[okkennymay]

This time around I thought I would make a comic relaying the events after the last time I posted, because my gosh is it easier to explain with pretty pictures than upsetting words >vO I prefer to make jokes about my situation than anything, ‘cause honestly it’s a solid way of dealing with it and I take so many medications as it is, why not add laughter to it I say! ( •̀ ω •́ )✧

Despite my condition’s best efforts I still managed to organise and complete a commission with someone through emails! Thank you @waezi2 you were so patient as I arose from my grave every other day to get things done (❁´◡`❁) Fighting my body and winning to complete it was the victory I needed! The sheer satisfaction I get from a commission well received by someone is like pure nectar to me~ Sweet sustenance I just can’t get enough of! The money don’t hurt either, Disability Support Pensions do not go far in this economy 👀 This is as close as I can get to having a job and I wont let C.V.S (Cyclic vomiting Syndrome) or Chrohns take that from me! 

I’m raring to dive into more if anyone’s interested ♪(´▽｀) I’m just about to post a new “commissions sheet” to broadcast that very fact >vO I do love having something to draw between Ectober pages~

#OKKennyMay #chronically ill #chrohns disease #Comic #cyclic vomiting syndrome #If you're wondering about the fire #long story short my body has little to no control over it's temperature and sometimes it tries to overheat me to death during my episodes #it makes it such a hassle constantly changing out ice packs and devouring ice only to vomit it out trying to cool it myself down physically #In a room that's colder than ice but feels like a furnace to me #all the while in a desperate and delirious haze #needless to say it's a bit of a wild time but i've got a really awesome mum who keeps me alive during these moments #I'm determined to be more honest about what's going to in my life for my own sake #i'm tired of having nightmares about people knowing details about my illness so i'm just going to rip the damn bandaid off #no matter how embarrassing or horrifying it is to relay at times I gotta do it #because i'm tired of being ashamed for things I have no control over dang it! It's not my fault my body doesn't work right >:V #hey if you read all these tags thank you #I appreciate you

[consider-your-potatoes-mashed]

Ya know I really wish sitting didn’t feel like I was fucking sprinting. Why for the love of everything does my heart rate decide to be 140 when all I’ve been doing for the last 20(? probably more) minutes is be sitting down. Fuck I hate disautonomia

#disabled #disability #actually disabled #chronic illness #physical disability #pots #pots syndrome #disautonomia #high heart rate #heart rate #postural orthostatic tachycardia syndrome #I’m not even doing anything #I’m literally just sitting here #well now I’m laying down because sitting was too uncomfortable #but anyway fuck this shit

[void-galaxy-shenanigans]

¿feeling disabled by my own disabilities? a tragedy. never could've seen this coming.

#(this is sarcastic) #(a little lighthearted too) #but also #yeah I keep forgetting I'm disabled until I get knocked down & *feel* disabled/limited/unable to do things #and then I get upset at running myself directly into the ground despite knowing better 😭 #disabled #mentally ill #actually mentally ill #autistic #actually autistic #healing from trauma #healing #actually adhd #did system #it's also because I got hurt as a kid for “acting disabled” in any way #and unlearning that + societal ableism is a pain #I'm healing but it hurts #but ✨bandaids don't fix bullet holes✨ #as Morgan (one of our headmates) said....‘bandaids don't fix bullet holes...so into the future we grow’ #~Nico #pots syndrome #chronic pain #traumatic brain injury

[body-of-ouches]

IT’S GETTING TO FLU SEASON GO BOOK YOUR FLU VACCINES 💉

#just got mine and now I want to Lie Down #ehlers danlos syndrome #chronic pain #chronic illness #postural orthostatic tachycardia syndrome #disability

[weaponizedhorse]

Okay y'all please don't be fucking degenerates.

my foot has been causing me so much fucking pain lately it is not even funny.

I hurt it again around New Years, I was supposed to go see my podiatrist the week of Jan 15th but then we had that huge fuck off snow storm. I already have an issue going to that doctor normally by myself there was no way I could make it there safely in the ice store. Then I tripped and hurt it again last weekend. I have no words to explain or communicate the fuckin mammoth amount of pain I am in right now. It is excruciating every time I walk. I have been able to deal with it okay-ish the past like 5-6 weeks but I have not slept, minus 10 minutes of sleep I got this morning, in like 2 and half or 3 and a half days? So I feel like I am at the end of my rope.

And remember I am on a bunch of opioids all the time. And I am still in this much pain.

Do not be degens. This is a medical photo. If you are weird about it I will start blacking out my toes in photos again. The K-Tape is legitimately the only thing helping right now. If it's not on I want to bash my head into the wall.

#ehlers danlos syndrome #chronic illness #chonic pain #chronically ill #I probably shouldnt even be walking #but I am so tired I wouldnt have the strength to move my self around in the wheelchair and crutches #I legitimately do not know the last time I felt so broken down and like defeated

[creepyscritches]

Getting an adulthood diagnosis for something that's been present since early childhood is sooooo fucking 👁️👁️ there's catharsis sure yeah but the struggle comes from trying to forgive your child self for failures you weren't really having.

Anyway shout out to my autoimmune girlies. Who else got shamed for early childhood cavities and expensive adolescent surgeries only to find out as an adult you are full of mouth-ruining antibodies lol. Girlies who else is unpacking their "chronic illness bad teeth = shameful moral failing" buuuullshit? Anyway I'm still trying to save $16,000 to fix fucked teeth I thought I brought on myself, but only discovered in 2023 were due to medical study candidate levels of sjogrens antibodies and severely medically mismanaged sle 🤪

#Creepy chatter #The thing about finally getting to a doctor that immediately knows what is going on is like #Lol they rapidly answer so many questions + fix so many problems that it takes awhile to register what the fuck happened to you previously #Vanderbilt diagnosing me correctly in one visit was insane but the rest of the things they discovered very quickly after??? #That should have been patently obvious to previous doctors?? #They screened me for a brain fog study bc my age and dxes are so unusual to the rest of their sample pop #I turned down another study not too long ago since they were studying a sjogrens sx I don't have but? #So wild to have a medical authority definitively dx + treat me + have serious interest in studying my conditions further #That imposter syndrome gets. Nervous. #Either I'm a genius who has duped one of the leading medical research universities or perhaps I am actually ill for not attention #Medical cw

[chronic-chronic]

Apparently reacting badly to being fatigued to the point walking is torture and moving feels like wading through water is "OVERREACTING" and "YOU NEED TO TAKE A XANAX" according to the staff at my living space.

Not to matter that they decided to move up a hill that's barely accessible to even abled people (it's such a steep hill everyone struggles) and when I express how it's difficult to me, a multiply disabled person with chronic and constant pain to get up it, I'm "IN THE SAME BOAT AS EVERYONE" and "EVERYONE HAS DIFFICULTIES"

#it’s ableism all the way down #chronic illness #chronic pain #hypermobile spectrum disorder #chronic fatigue #me/cfs #postural orthostatic tachycardia syndrome #ableism

[primrosebitch]

I hate that so many resting positions that are initially comfortable or that feel natural start hurting after a while, like i'd be all comfy and then my arm starts to fall asleep, or i start to feel one of my joints stretching and then that joint will feel off for a while, or if say i'm on my side the side of my hip that i'm resting on might start hurting cause of the pressure of my weight, or sometimes the position i'm in feels fine until i move and something hurts now. It's so hard to find a comfortable position to rest in for me nowadays, like i used to never have this issue a few years ago and now it's unavoidable

#chronic illness #hEDS #eds #ehlers danlos syndrome #hypermobile ehlers danlos #chronic pain #hypermobility #i blame this problem on my hypermobility #and my poor circulation #like really poor circulation #it's so bad that when i'm lying down with a thick blanket wrapped around me fully my feet will sometimes be ice cold #like freezing #even if i have my blanket wrapped around my feet #even if i'm wearing thick socks and have the blanket #it's awful

[my-person-suit-is-defective]

Had my 1st appointment with a top surgeon and he said he might not operate bc of my EDS and he wants to talk to my (none existent) rheumatologist before going any further. So I travelled 8 hours for basically nothing.

#just like wow #also why dont you ask me the fucking questions #its my body #i know how it does #i have had surgery before #instead he basically just shut down the entire consultation #i wonder why i suddenly feel the urge to throw myself off a bridge #top surgery #EDS #trans #ftm #chronic illness #ehlers danlos syndrome #connective tissue disorder