Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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task: answer the following question. do you believe in curses? respond as completely with relevant information as possible.
Grian: Well, that's a lie. This isn't a task. I know it's not a task, I set the things up! Not sure why we're getting a question as pointless as this one, but sure, mysterious scroll, I'll answer. There's no such thing as curses, unless you're Timmy, in which case it's funny, yeah? Besides, I didn't actually kill Etho. Even if that did count, self-fulfilling prophecies aren't the same thing as curses, and I know which one I fall under.
Joel: Do I believe in bloody curses what kind of question is that? Do I really get hearts just for answering this? This feels like a prank or something... well, whatever. There are no such thing as curses, except the Boogeyman curse, which I sort of had today, but it wasn't actually the same at all. A lot of the bloodlust, sure, but a lot more... Etho had to be the one to do it, huh? And it's not the same. Not comforting. That's a stupid thing to say actually. Take it out of wherever you're putting this. Cut it out of the recording. Comforting. Please. As if it were ever... Yeah, I'm done actually. Don't have a good answer. Go away.
Scott: What, other than Jimmy? Bless that man, he may not have died first, but he sure tried his best. Sure, I'll believe Jimmy is cursed. I mean, mostly he's just kind of stupid. Lovingly so. I mean, despite him being stupid, I put up with him, right? That seems like a complete answer to this question. Jimmy's an omen but we put up with him anyway. That's all.
Mumbo: NO RESPONSE GIVEN.
Pearl: Oh, I mean, I'm probably cursed. That's what everyone liked to say at one point. I think... I mean, I think this time I have good friends, which is nice. They don't think I'm cursed. And it's not like I--I mean, it's surprisingly fun, acting cursed! And I am just acting. Acting scary, blowing up dance floors, all of that. And I don't really have to this time, so... Maybe I'm not cursed? And since it's acting, it's not real? This is a weird question.
Etho: Oh, man, that's a question. Um, do I have to answer? Because I feel like if I say no, that's really just asking for it, but if I say yes, I have to explain myself. Uh, I think I'm abstaining, unless the zombie thing from earlier counts. That was scary and I hated it. Curses are scary and I hate them in general, but apparently I'm good at them, if you ask everyone else. Um, it's not the only thing I find scary that apparently I'm good at.
Scar: Why, of course I believe in curses! Look at poor, poor... Timbert? Timmy? Jim? Gosh, sorry, I'm very tired right now. That's more proof of curses, by the way! That I'm tired. I've been tired straight since the desert, let me tell you what. And that, my friends, is a curse like no other. What a terrible beast, loneliness is. Wish me luck breaking it, because it's not happening this season!
Cleo: Oh, you mean the thing people like to blame instead of their own actions? Nah. My soulbond was kind of a curse, I guess, but even that's at least half just... bad people. Bad relationships. Good ones, too. We're all just doing what you can, you know? No script, no curses, no characters, just... Oh, I hope everything turns out tomorrow. Sorry, that's unrelated. It's just nicer to hope than to preemptively blame things on curses that don't exist.
Impulse: Well, I mean, I didn't until you just asked me that, but now I feel like I should. Wouldn't that be nice? Being cursed instead of just sort of unlovable? Sorry, no, that's mean to Gem. I shouldn't say that about Gem, she's been good this season. Super, super cursed, mind you, in the like, game mechanic sense? But she's been good, no backstabbing or inability to get love involved. Um, and I guess that's not fair to Bdubs, kind of, except it also totally is and I haven't forgiven him. So I guess if they ask I said I believed in curses, and that's why my life keeps circling clocks? Don't put any of that other stuff down, I'm trying to work on that.
Lizzie: NO RESPONSE GIVEN.
Gem: I was just cursed for a task, but that probably isn't what you're asking about, right? I'm new, so I don't know! A task is a concrete thing to believe in, like bloodshed or victory or fun and games. You don't have to believe in those to know they're real, either! They just are, whether you like it or not. I understand that much!
Tango: Gah, don't talk to me about... Deep breaths. Look, I don't care if it's a curse, or if it's just me being really bad, or what, I'm not going out pointlessly this time. Jimmy managed not to die first, I can manage to not go out to a stray arrow or my own bomb or a misstep this time, right? Is that so much to ask?
Skizz: Huh? Curses? I mean, I don't think so, and to be totally honest I think it's kind of mean the way people sometimes rag on people about them. Everyone's got so many good things about them! Why do people like to focus on the unfortunate luck, huh?
Bdubs: Hah! Curses! Let me tell you about curses. When I see curses, I eat them for breakfast. I don't got curses, I've got better things to do! I've got my buddies with the Mounders, and I've got-well, I'd say keeping Etho safe, but he's being weird at me again this season. Not that it matters. It never matters. Etho and I, we're... The point is, that doesn't matter anyway, because I have the Mounders, and they're the ones who matter here. And because I'm a strong, independent Bdubs, who doesn't need anyone but my bow and my perfect, flawless fighting prowess! Sorry, what was the question? I've been thinking so much lately that it's just sort of made everything else pop out of my head, so it's hard to keep track. I'm sure I answered it flawlessly, though.
Martyn: Of course there are curses. That's half the fun for you lot, isn't it? Putting your little curses on us and watching us rail against them. Bet you think it's real cute to ask us what we think of the things, too. "Oh, what do you think of curses," like we have any control over them. Please. If I had any control over curses, Jimmy--or, well, no, I guess that one was technically broken, wasn't it? Sure doesn't feel like it. Point is, curses are bad, and they're definitely real, and I hate you for them, got it?
BigB: Look, man, if you're trying to get me to write my character out for you, just say so! I won't tell anyone. We can come up with a hole thing about holes and red tasks and the Backrooms together! It'll be fun! After all, you probably don't know what kind of curse to say I have, right? Haha, just kidding. I have no idea what I'm talking about. Luckily, neither does anyone else, so I think that evens out between the lot of us.
Jimmy: NO RESPONSE GIVEN.
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