#trigeminal neuralgia

[chroniclesofchronicillness]

This makes so much sense

#chronic illness #chronically ill #chroniclesofchronicillness #chronic pain #invisible illness #invisible disability #spoonie #mental health #pots #svt #trigeminal neuralgia #potsandspoonies #100 percent

[hell-is-a-teenage-girll]

Thought I'd show y'all my night face. It's been a while. So yeah this is the current state I'm in ✨

and then there's my cat becoming a demon.

#Selfie #actually disabled #Disabled #nerve pain #trigeminal neuralgia #Anesthesia dolorosa #mileyinthemirror #Chronically ill #Cats #Marlow

[thebibliosphere]

I'm going to remove my face with a spoon.

#chronic health tag #trigeminal neuralgia

[bedbugbiting]

I happened to notice the date today and I realized that it was 9 years ago that I woke up suddenly with horrific stabbing face/head pain that never stopped. Happy birthday to the demon in my face, I guess.

#trigeminal neuralgia

[kindajd]

#multiple sclerosis #ms #em #esclerose múltipla #multiple sclerosis warrior #autoimmune disease #chronic disease #chronic illness #chronically ill #chronic fatigue #chronic pain #chronic disability #actually disabled #disability #multiplesclerosis #disabled #invisible illness #TN #trigeminal neuralgia #iconic #invisible disability #disabilities #multiple sclerosis awareness #disability awareness

[awbrainno]

i want a refund on this fucked up, pathetic, torture chamber of a flesh prison

#actuallydisabled #cripple punk #trigeminal neuralgia #chronic migraine #disability #internalized ableism #caw caw

[chronicallycouchbound]

If you have chronic nerve pain (trigeminal neuralgia) due to your broken wisdom tooth like I do, here’s my list of things to try for pain management. These things might help for other chronic or acute facial nerve pain issues, jaw pain, broken teeth, wisdom tooth pain, toothache, etc.

• Ibuprofen, Tylenol and most medications severely interact with my other conditions, especially my stomach conditions, so I avoid them as much as possible. Liquid versions aren’t as bad if I can find dye free, citric acid free, versions in flavors I’m not allergic to. These can help for a lot of people though, just ask your dr if you’re unsure.

• Brushing the broken area, gently, to clean out any food particles that might be stuck in it is hit or miss but can make a difference. It’s always sore for a while after brushing so that’s a con

• I make homemade clove tinctures with vodka and whole and ground cloves. I let it sit in a glass container in a cool,dark place for as long as possible and shake it when I see it (keep it with your spices you’ll remember it more). Then I take a gauze pad and get a dropper full and put it on it. Both cloves and vodka have anesthetic properties and can numb it for a bit. It’s a very temporary solution, also can cause soreness from pressure on the tooth.

• Hot pad on the cheek can cause soreness too (a running theme) BUT it helps a lot especially with cold sensitivity. After you remove the hot pad you can be extra sensitive to the cold or drafts in the air so that sucks too but it passes after a couple mins usually.

• Waterpik flossers are great for sensitive mouth issues, and clean out the tooth area with minimal soreness. Great but takes more spoons to do than toothbrushing and is less portable.

• CBD oil is hit or miss. I have other serious chronic pain disorders and just like many generalized pain management options, it can sometimes get rid of the headache I didn’t notice anymore or the joint pain I dissociate out of existence. Like yeah, glad thats gone but it just makes me focus on the other pain more. Some CBD options aren’t strong enough to do shit for me.

• Warm salt water gargle/rinse is helpful for me most of the time, and it is really important to keep any broken teeth very, very clean due to infection risk. The warmth and salt can help with the pain overall though and so far doesn’t have negative effects for me. It’s very mild in terms of managing the pain though, it’s like a soft gentle kiss on a boo-boo. Feels nice in the moment but when you’re done it usually just goes back to the pain your had.

• TENS units might work for you. I have several electrical abnormalities in my heart so I’m not allowed to use TENS but I’ve heard they can help. Definitely ask a dr first for this one though because I don’t know all the safety risks especially with facial pain

• Warm environments with no drafts or wind, ideal for this pain, for me is not ideal bc of my cardiac issues.

• Medical ultrasound machine, I’ve used these for other conditions in PT and they help a lot!! I don’t know if you can get these outside of a medical setting, especially for a reasonable price, but a provider might be able to help with this. There is the ultrasound goop they put on wherever they do it though so like, might not be fun and also might be a bit sore after?

• Last resort: adult beverages so I’m not paying attention to the pain. Works best for sleeping for me, but obviously has it’s drawbacks.

I avoid:

- Cold environments

- Drafts and wind on my face

- Cold foods

- Hard foods

- Sleeping on the side that hurts

- Chewing on that side

- Talking too much, chewing gum, etc.

- Going anywhere without at least one pain management option available

- Trying to sleep without a pain management option or plan ready to go

- Not brushing my teeth, at minimum I use mouthwash after meals

And some important reminders:

• Watch out for signs of infection and get treatment ASAP. Dental infections are no joke and can be life threatening quickly, especially if you have certain medical conditions such as heart valve disorders (like me).

• These recommendations are from personal experience, talk to your medical providers to see if they’re right for you. I am not a doctor just a humble chronically ill person.

• These are not a replacement for actual medical treatments for your condition, you should still see a professional if you can.

• Many insurances don’t cover dental, dental issues are more common amongst poor people, rooted in the idea that you can still work with fucked up teeth or without teeth . Hence why they’re called “luxury bones”

#chronically couchbound #disability #disabled #dental care is health care #dental #dentist #dental rights #dental care #trigeminal neuralgia #health insurance #american healthcare #wisdom tooth pain #wisdom tooth removal #wisdom tooth extraction #wisdom tooth surgery #tooth pain #gum disease #dental issues #toothloss #toothache #tooth ache #toothbrush #toothpaste #teeth #crooked teeth #wisdom teeth #teeth pain #teeth problems #dental insurance #dental industry

[padawansuggest]

Guys someone praise me I’m on the very tail end of a trigeminal neuralgia flare up (four fucking days straight I didn’t sleep more than a few hours the whole time it was that bad and my fare ups happen across the entire right side of my face not just long one section of it) and I didn’t 1: plan my will once, 2: seriously consider offing myself 3: I only scratched myself up a few times to think of something else and 4: I am here today knowing that it’s the tail end because I was able to sleep half of today in large chunks at a time because the pain is getting less and less the longer today goes on.

I made it this far. This is possibly one of the worst flare ups I’ve had for TN, it’s by far something I never want to happen again. Something I will do anything not to feel again. Anyways, celebrating with some ramen and maybe another nap.

#trigeminal neuralgia #if ur wondering what I mean this is literally nicknamed the suicide disease because people would rather die

[hannahcrazyhawk]

Me: “You’re a good heating pad! Yes, you are!!”

Also me: Crying because I talk to inanimate objects - my only company.

#spoonie #chemotherapy #chronic illness #lonely #potsawareness #crohn's disease #dysautonomia #autoimmune disease #trigeminal neuralgia #hidradenitis suppurativa #vulvar Crohn’s #rheumatoid arthritis #fibromyalgia #spoonie strong #neisvoid

[chaoticsweetiee]

I’m raising funds for an autism service dog 🐺🥄 I’m 25 and I have debilitating chronic pain & illness, on top of which my autism makes everything worse. I’m autistic and I’ve tried to end my life multiple times because of it. It also gets in the way of getting the medical care that I need. I’m bedridden, little to no support and in chronic isolation. I’m at the end of my rope, I’m asking for help because I cannot do this anymore. Any share, reblog or donation helps ❤️‍🩹

#chaoticsweetheart #autism awareness #autism #actually autistic #chronic pain #chronic illness #disabled #disability #service dog #gofundme #disability advocacy #chronic pain problems #trigeminal neuralgia #fibromyalgia #cptsd #ptsd #adhd #chronic migraine #learning disabled #hope #cognitive dysfunction #idiopathic intracranial hypertension #rare disease #grief #prolonged grief disorder #complicated grief #mental health #thejournalclub #self care #love

[chroniclesofchronicillness]

Sometimes best isn’t always possible

#chronic illness #chronically ill #chroniclesofchronicillness #chronic pain #invisible illness #invisible disability #spoonie #mental health #pots #svt #trigeminal neuralgia #just try

[hell-is-a-teenage-girll]

I saw someone reblog a post about me talking about my struggle with trigeminal neuralgia. And it started to get me thinking, would anyone be interested in sharing more chronic pain tips? Or meds we like to share?

Or talk about facial nerve issues like trigeminal neuralgia and anesthesia dolorosa. And either just share experiences, vent,.. Idk. Since it's a pretty unknown thing.

Since it's an illness not very common but one that should be spoken about more often. It's called the suicide disease for a reason and I think we should speak more about it instead of making it taboo. I also think just putting it out there exactly how heavy this pain is and what it does to a human, feels a comforting to the people who go through it, to realise they aren't over reacting and they aren't alone in this feeling of powerlessness.

Many people might think oh that sounds bad must hurt alot.

But it's actually been described as one of the most excruciating pain to humanity.

Yet plenty people don't know what it is, and others who do and who have it feel very lonely in it.

And I'd like to change that.

If you have it, or know someone, or idk, and want to talk about it, feel free to send me an ask and vent or ask questions.

Also about other health problems ofcourse, if I know things about it, I will definitely try and maybe give tips or just listen. Or ask if other followers maybe know more.

I would like my blog to, besides an lgbtq+ safe zone, to also become a safe zone for people with chronic pains/chronic illnesses.

So yeah, if you are interested, feel like you need to rant, feel to just tell me how you're doing, ask for tips or anything else. Send me an ask, anonymous or not, I don't care, all are welcome

#chronic pain #chronic illness #trigeminal neuralgia #Anesthesia dolorosa #nerve pain #nerve damage #chronically ill #Disabled #disabled and proud #disability

[brightlotusmoon]

On Facebook!

_

Me: Okay, someone with TMJ, trigeminal nerve pain, and sinus pain help walk me through the differences so I can figure out what's happening in my face.

My good friend Becca: OMG SOMEONE FINALLY NEEDS ME!!!!

TMJ is an achy, muscular pain. If you press on the hinge of your jaw and/or the back of your skull where it meets your neck, you will feel intense pain followed by release. Causes headaches on one side, usually in the back. Opening your mouth wide while touching your jaw will produce a “pop” on one side and a feeling of sliding sideways on the other. Helped by: NSAIDS, muscle relaxants, heat. Hurt by: crunchy food, chewy food, jaw clenching.

Trigeminal neuralgia feels like random electrical shocks at the base of your teeth, radiating up into your cheek. One side. No headache. Pain can also be sharp or burning (when mine was at its worst it felt like someone put a flaming fireplace poker between my teeth and slammed my jaw shut), but the hallmark is that “shocky” pain. Helped by: medication that is specifically for nerve pain (like gabapentin). Absolutely nothing else helps. Hurt by: ??? (Mine is kind of related to the cold but…???)

Sinus pain is usually heavy pressure and an ache or occasional sharp pain in the jaw. Headaches bilateral and in the front of the head, in a “mask” around the eyes. Trigger points are at the inside corner of the eyebrow and the outer corner of the nostrils, applying firm pressure there will cause SEVERE pain that will lessen over time. Cheeks and forehead may also be sensitive to touch. Also might present as a sore throat. Helped by: sudafed, antihistamines, NSAIDS, cold. Hurt by: that depends on the person. If it’s unrelenting and doesn’t respond well to meds you should see a doctor to check for infection.

Oh my goodness I feel so useful 🖤

_

#headaches #migraines #trigeminal neuralgia #cervicogenic headache

[bedbugbiting]

I talked to a friend I haven't spoken to in three years and she asked if I still got "those headaches."

I try to avoid the word "headache" because I get questions like this. It's not a headache even though it is a pain in my head.

People just don't get it. It doesn't matter how many times I explain. I feel like I'm being stabbed in the face around the clock, every day. It has persisted since 2015. It will not stop. That is all.

#Trigeminal neuralgia

[kindajd]

#multiple sclerosis #ms #esclerose múltipla #em #multiple sclerosis warrior #autoimmune disease #chronic disease #chronic illness #ms flare up #ms relapse #multiplse sclerosis flare #multiplesclerosis #chronically ill #chronic fatigue #chronic pain #multiplesclerosisawareness #multiple sclerosis awareness #TN #trigeminal neuralgia #pins and needles #trigeminalneuralgiaawareness #trigeminalneuralgia #pain #invisible illness #chronic ill #illness and disability #illness #invisible disability #disabled #fatigue

[ribbitflings]

the stabby stabbies has struck my brain again

#chronic illness #chronic pain #trigeminal neuralgia #occipital neuralgia #actually epileptic #epilepsy #epileptic problems #migraine #vestibular migraine #headache #headaches #head pain #seizures #nerve pain