#Chronic illness problems

[chronicallyillandcoping]

Sometimes i find myself putting off taking pain killers usually with the mental reasoning that I'm not in a really really high amount of pain so I dont need it yet.

This is a reminder to myself and anyone out there that needs it that you dont have to wait to be in a really high amount of pain before you take pain relief or do things that will make you feel better.

#disabled #chronically ill #chronic fatigue #chronic pain #disability #actually disabled #chronic disability #disabled community #disablity #spoonie problems #disabled life #chronic illness #chronic illness problems

[akindplace]

The sky looked so beautiful, so blue with some clouds, a sign of rain that might come at night. I twisted my ankle and fell a while after taking these pics, but at least I got to enjoy a little walk, hopefully my ankle heals soon cause not being able to walk sucks

#I have twisted my ankles so many times #having eds makes my ankles very unstable and they have been through hell and back #but I’m safe at home and bandaged up #BUT AT LEAST THE SKY WAS SO PRETTY #makes me think of sky full of song by Florence and the machine #me #myself and I #and the sky #and a sprained ankle #chronic illness problems #living with eds

[chronicsymptomsyndrome]

Canceling plans with the same person twice in three days because of pain and honestly, I’m just so tired. I’m tired of pain running my life. Tired and angry

#chronic pain #chronic illness #neurological disability #physical disability #invisible disability #invisible illness #craniocervical instability #migraine #cluster headaches #head pain #neck pain #headache #headaches #chronic pain problems #chronic illness problems

[98lindsey]

Me sitting here wondering what this squeaking sound is only to realize it’s me wheezing. 🤦‍♀️

#disabled #chronic illness #disability #pots #chronically ill #chronic pain #mcas #mast cell activation syndrome #postural orthostatic tachycardia syndrome #spoonie #chronic illness problems #allergy problems #me/cfs

[asphyxiatedredherring]

Fuck the having fun to having a flair pipeline

#i just want to enjoy life without being out of commission for a week afterward #chronic pain #fibromyagia #fibro flare #ehlers danlos syndrome #postural orthostatic tachycardia syndrome #dysautonomia #chronic illness problems #chronically ill #actually disabled

[ichabodjane]

Writing fanfiction as a chronically ill person like if I can't fix my fucked up body, at least I can fix the problems of my favorite fictional characters.

#fluff fanfiction keeps me sane #fanfiction #fandom #whats your diagnosis and whats your otp #chronic illness #spoonie #chronic illness problems #dysautonomia #crohn's disease #pots #mast cell diseases #asthma #heds #ehlers danlos zebra #you name it i got it

[septembersghost]

the level of physical pain i am in is so extreme

#a normal person would go to the hospital but for me it's just a flare on a tuesday #it's so bad i stood up wrong and almost passed out #chronic illness problems #jess.mess

[pastafossa]

Test run today of my makeup for my Jessica Jones cosplay. I've realized I haven't actually every tried to wear a mask when also wearing foundation so figured I'd see what happens while I'm at meetup tonight. I'm hoping it doesn't leave weird smear lines or anything since I want to take the mask off briefly for my pic with Charlie before putting it back on. We'll see.

#chronic illness problems #i would love to skip the mask entirely but not with my health issues in a packed con center #i'm just glad jj doesn't do contouring or anything that would make this more complicated

[chronicallyillandcoping]

My life is exhausting in a way that an abled bodied person wouldnt understand and thats okay. I dont need them to understand. However, i do need them to realise them being "tired sometimes" or "having an aching leg after running" doesnt equate to them understaning my experience. You dont need to understand my pain to be supportive.

#disabled #chronically ill #chronic fatigue #chronic pain #disability #actually disabled #chronic disability #disabled community #spoonie problems #disablity #disabled life #chronic illness #chronic illness problems

[mandana-the-service-pup]

Take it from someone who is chronically ill…

I will try to hear you out when you are offering me health advice. I know it’s probably coming from a place of concern and you think this advice would help. But take it from someone who’s been through this for years. There are some things that just don’t fly well with many chronically ill people. Here is my short list but I’d like to hear from others in the community.

Please don’t recommend:

Exceptions made if the disabled person is asking you for a particular type of recommendation.

Anything ingestible. Supplements & diet changes are really difficult to talk about for a lot of people with chronic illness. Most of us have trialed handfuls of supplements a day and extreme diet changes. It’s often a phase we go through when undiagnosed or newly diagnosed because we don’t feel like we are getting enough support from doctors but we need to try something (ANYTHING) that might help us. Most of us also have GI issues and/or eating disorders. We have learned the hard way what works for our broken bodies. It’s a really sensitive topic for a variety of reasons and chances are the person has done the research and already knows more about them than you do.

Exercise. Disabilities are not all equal and this is especially true when it comes to exercise. Someone who is an amputee or paralyzed might not have the same issues as someone who has migraines or chronic fatigue. Exercise intolerance is real and many disorders are exacerbated by physical exertion. Even things like stretching and physical therapy can be too much or easily done in the wrong way. It’s a sensitive topic with heavy implications that the disabled person is lazy and/or wants to remain sick. Unless someone is specifically asking you for recommendations, this really should be off limits in conversation.

Mind over matter. The mind is capable of amazing things. We are aware of this. Our disabilities are not cured by positive thinking. Some of us may have already adopted our own strategies for being happy while dealing with chronic illness. It is a very individual experience and having an abelist tell us we are “choosing to be sick” is not as helpful as you think it is. Just don’t.

So what CAN you recommend?

Mobility aids and assistive devices. Not only is it actually helpful advice but it’s validating our experiences and shows us that you are comfortable with us showing our disabilities around you. Bonus points for really obscure, new or cool looking mobility aids especially if they are affordable!

Pain relief. Topical creams, ice packs, heating pads, braces, wraps, TENS, etc. Chances are we have already tried it but it shows us that you’re thinking about our pain and on the off chance it’s actually a good recommendation it could be a lifesaver and we will be forever grateful!

Small businesses run by people who belong to our communities (disabled, POC, LGBTQIA+, etc) Don’t try to compare our abilities to disabled business owners but it shows us you recognize we are a part of a community and that you might not be but that you are conscious of it and supportive. Buy from these shops for yourself to show your support or shop gifts for your chronically ill besties. Just be cautious about things that might be triggering to some. Some disabled people appreciate affirmations, “warrior” mentality, etc but others really don’t so choose wisely.

Accessible hobbies. Chronic illness makes it hard to commit to things. Period. We don’t know if we will have the physical ability to do an activity, the resources to do it or if our body will support scheduled activities when the time comes. It’s a huge challenge but that unpredictability can also be super conducive to picking up hobbies. Things that don’t require a ton of energy or scheduled classes. Things that can be picked up for a little bit when we are having a good day and put down when we aren’t feeling well. Most of us love to hear about your hobbies. It’s great to feel included in things when we are often cut off from people because we’ve been deemed “unreliable”. We are itching to talk about something fun with someone we care about. Something that isn’t related to our health or unmet expectations of us. So share your hobby. Share your second cousins neighbors hobby. Google some hobbies that could be fun for disabled people. It’s sure to be a fun conversation.

#chronic illness community #disabled community #disability awareness #PSA #service dogblr #chronic illness problems #advice #advice welcome #feedback welcome

[chronicsymptomsyndrome]

Me: Your place is so much nicer than mine I’m so dysfunctional lmao

Friend: no my house is such a mess I have adhd too dude

Me: Sure but your place is still way better than mine

Friend: stfu everyone always says that

…

Friend entering my home: oh dang. fair enough. how are you living like this

Me: lol dissociation

#adhd life #doom pile but make it a whole room #adhd cleaning #chronic illness vent #audhd problems #adhd autistic #adhd brain #executive dysfunction #living with adhd #neurodiversity #adhd problems #adhd struggles #adhd things #adhd stuff #comorbidities #neurological disability #chronic illness problems #chronic pain problems #dissociative disorders #dissociation #dpdr #depersonalization #derealization #late diagnosed autistic #did osdd #adhd system #audhd system #living with depression #undiagnosed chronic illness #undiagnosed disability

[fibrospoons]

I'm burnt out - I kept pushing through to do as much as possible at work, and now my resilience is at it's lowest.

I can't tolerate work as it is, I need more room to breathe and to be allowed do tasks within a reasonable time frame.

I keep pushing back and trying to set boundaries, but all it does is buy me time for a day or two and then they pile it all back on.

Then I get stressed, then I get sick, then I'm off work, when I go back there's even more work than before, then I get stressed, then I get sick, etc, etc, the cycle repeats...

#chronic illness #spoonie #fibromyalgia #endometriosis #fibrospoons #spoonie problems #chronic pain #migraines #rant #spoonie life #chronic illness problems #office spoonie #work and chronic illness

[philosovie]

bed bound & living through tumblr. 🫠

#chronic illness #autoimmine disease #rheumatoid arthritis #fibromyalgia #philosovie #chronic illness problems #invisible illness #spoonie #spoonie life #spoonie problems #immunosuppressed

[foe-of-fate]

Constantly torn between wanting to be seen as more than my symptoms, more than a problem that needs to be solved. More than someone who’s life is only pain and misery.

And also wanting to be taken seriously. Wanting it to be recognized that my pain affects my life and limits some things I can do.

#i don’t know if this makes sense #random thoughts with rowan #chronic pain #chronic illness #chronic pain rant #chronic pain problems #chronic illness rant #chronic illness problems

[monachopsis-11]

I burned my knee on my heating pad 😐

#undiagnosed chronic illness #chronic illness problems #chronic pain problems #physically disabled #physical disability #fibromyalgia #joint pain

[septembersghost]

your tag “haunted by the unlived life” because of chronic illness hits so hard. like that’s it exactly for me everyday so sorry you go through it too 🖤

it's so hard and disorienting and strange, because you can never actually get used to it - you'd think eventually, somehow, a day would come where your brain would accept it, realize it's your normal, but it really never happens, because there's always something new you're missing, some milestone you're never reaching, some dream you're letting go. it's a constant grief cycle, mourning the life that goes unlived, mourning that person and who they could've been (hence where i talk about being the ghost of her a lot, the remnant of what's left behind). my illness started before it totally consumed my life and i can look back and chart those moments like stepping stones, even though i can't change it, and it's consumed half of my years, some of my teenagehood, all of my adulthood. people who don't go through this have trouble conceptualizing what that's like, to lose time and a certain sense of reality to the limitations of your own body, to lose a sense of existence. that haunted unlived life gets to be bigger and bigger as that time wears on, and it's like continuing to go along under the shadow of it. i'm so sorry you know that feeling and have to go through it too, i'd heal it for you if i could. sending you so many hugs, darling 💙

#jennifersbod #chronic illness problems #letterbox #she herself is a haunted house