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I found an extremely dope disability survival guide for those who are homebound, bedbound, in need of disability accommodations, or would otherwise like resources for how to manage your life as a disabled person. (Link is safe)

It has some great articles and resources and while written by people with ME/CFS, it keeps all disabilities in mind. A lot of it is specific to the USA but even if you're from somewhere else, there are many guides that can still help you. Some really good ones are:

How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.

Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned down in writing, you have not been turned down. Period."

How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills

How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud

Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides

Special Laws to Help Domestic Violence Survivors (Vouchers & Low Income Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance

Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!

There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.

Please boost!

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Public service announcement.

Blue/purple lips and fingernails is a symptom of low oxygen in lighter skin tones.

In darker skin tones you're looking for grey or white lips and fingernails. Other places where this may be not evidence is the tongue and gums.

Figured since everyone gets taught what low oxygen looks like on lighter skin. Everyone should know what it looks like on dark skin too.

-fae

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The fact that Microsoft Word has to be a subscription is upsetting. I already paid for it why do I have to pay again

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patience is such a compelling dynamic in relationships sorryyy it’s the peak of romance to me

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(uses the “make your character say something while not actually saying it” writing advice i saw on here once)

(character interactions are now 200% more fun to write)

holy shit what

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creemore, ontario david herzog + should have known better, sufjan stevens

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I will always love you but I cannot look at you

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Mary Oliver, "From The Book of Time." Devotions

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Saw this advice on Twitter today, and I think it's going to end up being useful for me. 🥹 Thought I'd share it with y'all, too.

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I don't like when able-bodied people refer to disabled people in positions of power and they say something along the lines of "this person has a disability, but they still can do this" or "this person may be disabled, but they never let that stop them". Like, I understand that people have good intentions when they say that, but phrasing it like that enforces the narrative that people with disabilities need to live in spite of what makes them "different" and they don't have to. Of course, everyone's experience is different, but I live alongside my disability and I'm not ashamed of that.

"Your disability doesn't define you" Okay but what if it does? What if my disability is inherently entangled in who I am and how I experience my life? Would that dehumanize me in your eyes? Because then that's a you problem you shouldn't project onto me

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I'd care if the person I reblogged this from committed suicide.

Reblog this from anybody. literally. ANYBODY. even if you dont like them or even know them that well. YOU COULD SAVE THEIR LIFE.

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“Also, I’m angry. I know life is hard, I think everyone knows that in their hearts, but why does it have to be cruel, as well? Why does it have to bite?”

— Stephen King, 11/22/63

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"Are you letting yourself be led by fear or by love?"

In a 2021 musical film called Tick Tick Boom, Michael asks his friend Jonathan this question. Two years later, in the early hours of the morning, I ask myself the same thing and the answer is always the same: fear.

I think that for a long time, I lived out of fear for my emotional well-being, my mental health, and my physical safety. I've come to realize that I am no longer in danger. I've come to realize that I cannot dwell on what I cannot control. I've come to realize that I have more power than I thought, but my answering isn't changing.

I thought that if I healed, then I would be fine. But I am not fine. I am directionless.

- @annetries-towrite

Tags:

#writers on tumblr #writer #writers #writing #write #writes #spilled thoughts #spilled guts #spilled feelings #spilled tears #spilled ink #spilled truth

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And i know it is a silly reason and many people like me do end up surviving but those "people like me" are barely thriving, barely breathing because there is no other way, because they havent caught a deadly disease yet, because killing yourself is a disgrace, because they had a responsibility to bear they didnt ask for but was born for.

And yes my very self cant end my own life too because the hope strangles my throat, loosening its grip just to let me breathe oxygen enough to survive, so ironic how the very "hope" which is keeping me alive will eventually be the murderer of what I visualised myself to be, living but not living enough, yet I have no choice but to keep breathing, because that is what my body knows to do, but this conscience demands meaning, humanity, and this heart can beat if it is supplied with love, affection and appreciation.

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I think that once you've hurt someone enough times, you don't deserve to come back into their lives, apologizing for your actions over and over again. At some point, it stops being them and it starts being about you. At some point, you owe it to them to stay gone.

- @annetries-towrite

Tags:

#writers on tumblr #writer #writers #writing #write #writes #writerslife #writerscommunity #spilled guts #spilled thoughts #spilled feelings #spilled tears #spilled ink #spilled pages #spilled journal #writer things #i only post when I think it matters to

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I'm afraid if I go too far, I'll circle back to your name. It will be then that I must confront the intensity underneath my anger. Until then, I shall sit still and watch the world move on without me.

- @annetries-towrite

Tags:

#poet #poets #poem #poems #poetry #young poets #poets corner #poets on tumblr #spilled poetry #journaling #journal excerpts #journalism #spilled ink

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By nurture, I think I will always crawl back, begging, bleeding, and pleading for someone to tend to the wounds they didn't make. By nature, I believe I deserved someone to be there in the first place.

- @annetries-towrite

Tags:

#poem #poems #poet #poets #poetry #young poets #poets on tumblr #poets corner #spilled poetry #spilled guts #journal excerpts #journaling #journalism #spilled ink