#medical rant

[haydenthewitch]

The worst thing about having a chronic pain that isn't visible to others is feeling like your whining when you say, "i'm in pain right now."

i don't ever want the pain in my knees to be categorized as the same kind of complaint as "i don't want to go to work" or "its monday." I say "my knees and joints are hurting" every day because 1. my knees and joints do hurt everyday, and it fucking sucks and 2. i want to be heard by the pepole around me saying that i'm in pain so i can never be gaslit by myself, my family, or my doctor that i'm "not in enough pain".

but when i say "i'm in a lot of pain right now" and then continue to live my life (becuse i can't sit around all day, as much as i want to) pepole assume that i'm okay enough, so therfore it's not that bad. "i'm in a lot of pain" becomes just another mundane complaint.

the thing is; my pain tollerance is HIGH. i don't talk about it much on here, But i'm a type one diabetic and i have been that way since i was SIX YEARS OLD. i've been sticking myself with needles, pricking my fingers to draw blood, dealing with insulin and medical supplies since i was six. i know my body better than most 18 year olds do, so when i say that recently i've been a 9 on the 1-10 pain scale evry day for the past couple of months I KNOW WHAT I'M TALKING ABOUT.

When i say "my joints hurt", i mean that i can FEEL bones grinding and clicking against one another. When i say "i've been sitting for too long and now my hips are fucked" i mean that walking becomes diffucuclt for me and sometimes i have to hobble down the school halways like how my grandmother walks. when i say "my knees are in pain" i mean that it feels like a liquid hot, searing pain in my joints that feels like a poker melting my skin off. WHEN I SAY I'M IN PAIN, IT'S NOT A MUNDANITY, ITS EXCUTRIATING AND I WISH I WOULD BE TAKEN SEROUISLY.

I cant stand for a 10 minute conversation, my knees would buckle. I might need a bench in my shower, becuse for the past few weeks i've been sitting in my shower floor to shampoo and conditon my hair. I can't sit criss-cross anymore or it will fuck up my entire day. I've resorted to taking a bathroom break in every single class every day so i can stand up becuse if i sit for longer than 30 minutes in one of those school desks every joint in my lower back and spine and legs starts screaming at me. i only feel comfortable laying down, fully stretched out, on my back. If i sleep wrong, i'm in pain from the molment i wake up.

ITS NOT A FUCKING COMPLAINT OR EXCUSE WHEN I SAY I'M IN PAIN. ITS MY LIFE.

#type one diabetic #type one diabetes #cronic pain #chronic pain #chronic illness #chronic fatigue #chronically ill #joint pain #i'm fucking 18 i shouldn't have to feel this #i'm so tired of this #hayden speaks #rant #rant post #medical rant

[satansfavoritedyke]

Not to disability post on main or anything but I'm just about sick and fucking tired of so-called "medical professionals" who are supposedly "specialists" (i.e. rheumatologists, for example), thinking they can slap me with a myofascial pain syndrome/fibromyalgia/chronic fatigue/hypermobility diagnosis, tell me to stop eating gluten, and call that a done and dusted day on the job when those diagnoses don't even BEGIN to explain the majority of my symptoms.

What about the fact that I randomly run low-grade fevers with no evidence of other infections (flu/COVID/RSV), what about my positive ANA factor, what about my low igA levels, what about my chronic iron deficiency anemia, what about my MULTIPLE documented activated EBV infections that have damaged my spleen, what about the fact that I have no reflexes in my knees, I could literally keep fucking going.

I'm so fucking sorry that I'm a fat AFAB trans person with the kind of disabilities that land me in medical appointments multiple times a week, but a doctor who hasn't cracked a fucking textbook since 1997 does not know more about my condition than me, the person living with my symptoms 24/7. And quite frankly I'm not going to be jammed into a diagnosis like fibromyalgia which is the clinical equivalent of "fuck off and die" disorder and a classic excuse to just categorize and disregard patients with complex symptoms when doctors don't want to do their JOBS to figure out what's actually wrong. There is something wrong with my immune system and I need TREATMENT, not a convenient label to send me to my grave with. I refuse to be a docile "ideal patient" and I am not afraid to be a "doctor shopper" either, because what I think medical professionals forget is that Y'ALL work for ME and I CAN and WILL fire you if you're fucking useless.

DO. FUCKING. BETTER.

#cripplepunk #cripple punk #cripple problems #disabled vent #disability vent #disabled dyke #medical malpractice #medical maltreatment #ableism #medical ableism #medical fatphobia #medical rant #disabled liberation #immunocompromised #physically disabled #chronic illness #spoonie #you can call me al

[yoikami]

fucking stop giving disabled people healthy people expectations.

Stop telling us more sport will make us lose weight or be healthier, our bodies do not function regularly anymore and should not be treated without accomodations, moderations and care.

Stop fantasizing that efforts always bring good results, learn about listening to your body.

We function differently and should receive different care methods, and none of your half-assed misinformed ideas that mostly apply to able bodied people.

Our progress is never enough for you, our happiness is less important than your views on what's best for us. Stop ignoring our limitations only to complain our health is stagnating when we push harder.

Stop thinking less struggles or improvements mean we can go back to a trouble-free or pain-free life. We'll just step back again if we get treated "normally" in your invalidating sense of normal.

Accept that our normal is different and deserves to be acknowledged and treated as such.

We shouldn't be held to the same standards as someone who's able to live their life without needing to slow down, stop, recover and crash down or full on break down when it's too much.

#chronic pain #chronic illness #fibromyalgia #sjögren syndrome #sjogrens #chronically ill #disabled #disability #doctors #rant #medical rant #fuck doctors #swearing tw #doctors ain't shit #venting #ranting #disabled rant #neisvoid

[mindrottinglystupid]

Rant about bad doctor's incoming

I can talk about how shitty almost every doctor is. I can tell you how infuriating they are, how they dismiss their patients. I can tell you how they tell their patient's it's all in their head.

They say that they can help and that they want to, but as soon as things get just slightly inconvenient for them, they drop everything they say and shove you out the door.

Too many doctors say that they want to help but then run needless tests that they know aren't doing anything, that take months to get the results back from, and let the patient worsen for no reason.

Too many doctors tell chronic patients that since their results came back fine, then nothing is wrong. That everyhing is in their heads. Then stop helpingt them completely.

It's bullshit. You're leaving people that still need help out to dry. These people aren't going to get better just because you've stopped seeing then.

And I know that sometimes they do that they can (no they dont), but even them refer them to someplace else that can. It's so much worse to just stop helping them. If you just tell them where you think they need to go next or offer something, anything. It is so much better than just being left out to dry.

When doctors give you things, places that will help you, outside resorces, it means the absolute world to me. Because everyone else has left me out to dry and fend for my own.

It's not that big of an ask I dont feel like, to give resorces to people that need it. Expecially if you're dealing with a lot of people who need the same resorces.

But no. Most doctors offices (the ones I've been to) won't do that because the money is not going towards them.

And don't get me started on the insurance sides of things. They won't pay for any of that. I would be so fucking surpised if they paid for anything that was actually useful.

#medical rant #health #chronic pain #chronic illness #chronically ill #disabilities #disabled #hospital #doctors #doctors suck #rant post #rant #doctor rant

[sillygeeseys]

Not knowing what's wrong with you physically sucks because it's like: (TW, medical talk, potential death mention)

"No best friend, I'm not going to die I promise, I'll always be here, and once the doctors figure out what's wrong I'll be perfectly ok, never worry about me dying, I'm ok I promise. "

And then you have to go

"but here's what to do if I fall completely unconscious, and limp in front of you, and no buddy the doctors don't know yet, yeah I'm going to have to go get more bloodwork so I'll miss that class tomorrow so sorry, yeah they need me to do the heart monitor again, no buddy I'm so sorry they haven't found anything., no they can't give me that medication I need yet either until they're sure"

Or it's

"Hi teacher, yeah I can't do that fun/physically exerting thing because I'm scared for my health. No I can't just 'get a doctor's note' because the doctor I need to see is booked for the next 6 months. No I can't tell you what's wrong because they don't know, but I'm scared doing this thing will end in me getting hurt, which I can't risk "

Or you do the thing, and get hurt, and it's like

"No teacher I didn't tell you about this beforehand, because I was scared of how you'd treat me/I've told you multiple times/ was ignored, yeah I'm just as scared as you are, no I'm not doing this for attention because why would I want my peers to think of me as weak? No the advice from your 3rd cousin twice removed that has no medical experience will not remove whatever is wrong with me "

#fucking stupid #medical rant #what is going on #what is wrong with me #tw vent #cw vent #vent post #cw death #cw medical

[ineffectualdemon]

The bullshit to get my injections if methotrexate is stupid

I was prescribed this at the beginning of August but had to wait for an email where I could consent to it (even though I did in the appointment) which took over a week and a reminder from me to arrive

Mid August the rheumatology nurses had to chase the prescription with the pharmacy

Beginning of the last week of August I got an letter in the post saying I would be contacted for delivery

Over a week later (yesterday) I have to contact them to get it actually delivered today

I am told repeatedly that I will get a text before they arrive

They arrive without a text

It took over a month from prescription to delivery and they didn't even send me a text like they're supposed to

So annoyed

At least I have them now and a month is less then the 7 months it took me to get permission to come off my anti-psychotics

#medical rant #medical #personal

[hotchocolateandpillowforts]

I understand that your doctor wants to see you before renewing prescriptions, but I put in a request for a refill on Monday and it was denied on Tuesday. I talked to a nurse this morning who set up an appointment for next Thursday. When I told her my nightly medication that I take to prevent migraines will run out before then and asked for a few days worth of meds to be filled to get me to the appointment, they just said 'nope.' Apparently, people are asking for one month to hold them over until their appointments and then after filling the prescription canceling the appointment. So, my neurologist's new policy is to just have her patients go without until she sees them. I really wish I had known that two weeks ago when I probably could have been squeezed in before I run out of meds.

I know that making an appointment was just one of the many balls that got dropped this Fall thanks to buying a house and moving and transferring my job. But it really feels shitty that I'm going to be without my preventative meds for four days just because some people go against the office policy. I'm already so stressed about possibly having a migraine for four days straight and possibly having to call out of work (where I've only been for about a month at this point).

#rant #medical rant #I fucking hate it here #U.S. medical system fucking sucks #like. obviously I wouldn't be one of those people who cancels the appointment because you would only be filling a four day prescription #that would only get me TO the appointment day #obviously I need more than that before I just brush off my appointment #shit #chronic illness problems #chronic migraines #migraines #personal #spoonie

[pokewatcher20]

Sorry, this isn’t something I ever want to post about, but if anyone can give me any kind of medical advice I’d really appreciate it. Bit of a vent for warning, so I’m putting it under the cut.

So for the past two years I’ve had incredible fatigue, joint pain (no swelling), digestion issues, constant low-grade fevers, brain fog, the works. It started after I switched meds and gained some weight, which I thought was just the problem at first, but the symptoms are getting so overwhelming it’s ridiculous.

I’ve tested negative for rheumatoid arthritis, but DID have “chronic inflammation” according to the results. We’ve also ruled out diabetes from some other tests. The leading theory from my parents is fibromyalgia because I fit 98% of the symptoms, but we need more tests to make sure. So I get referred to the rheumatologist, right? Maybe they’d be able to help?

…Six months later, we’ve only JUST gotten the referral after multiple back and forth phone calls and being left on hold for hours. And you KNOW what they told us?

“Sorry, we don’t treat that kind of diagnosis.”

And it’s like, WHAT DIAGNOSIS??? We weren’t TOLD a diagnosis! The doctor said they were going to figure out what diagnosis I had! When did he make this decision??

So we finally, FINALLY get to hear my diagnosis:

…“Arthralgia/arthritis”

…Okay? According to Google, arthralgia means anything from “uh oh your joint hurts owie” to an actual, literal chronic illness. Maybe? But I have symptoms that still aren’t explained, and one type of arthritis is completely off the table. I could benefit from an explanation or something??

If my doctor said the rheumatologist would help diagnose me, why do I already have a diagnosis? If they don’t treat arthritis, why would he refer me to them in the first place?

Is “arthralgia/arthritis” even what I have, or did he choose something random because he realized he NEVER sent the referral back then in the first place, and needed to put down something once we asked about it???

What’s the DISCONNECT here that I’m not getting??? I just want to know what’s going on with me before I have to leave for college :(

If anyone has ANY idea what’s going on, or wants to share their experiences or needs clarification on some stuff I wrote, PLEASE let me know, because apparently the doctors won’t 😭

Sorry if this isn’t worded well or doesn’t make any sense, I’m writing this both in pain and distressed

#chronic pain #fibromyalgia #arthritis #arthralgia #medical advice #sorry for tagging this stuff but i really don’t know what to do from here #personal #medical rant #rant #vent post #ask to tag

[haydenthewitch]

I'm so tired of being brave.

I'm so tired of putting on a face so that my pain isn't hurtful to others. I rember being six, sitting in a hospital room, smiling instead of crying becuse i didn't want my mom, or my grandparents, or my little sister who was only five at the time, to be sad. i was staring down a lifelong incurable inconvenience and smiling because i didn't know how hard it was gonna be.

and ever since then, i've been labeled "the brave little girl."

i'm so tired. I'm so sick of smiling. I'm so sick of telling everyone around me that i'm going to be okay. i'm so sick of pretending that diabeties and unknown pains aren't wearing me down. i'm so sick of pleasantries, of saying "i'm doing great!", of the presure not to bring down the mood. i'm so sick of college essays where i've claimed i'm perservering. I'm so sick of pressure to assure everyone else in the room while sitting in the hospital bed.

and it's not their fault tiny six year old me was repressing my true feelings and putting other people first. It's not their fault that they assume i'm naturally brave, naturally staring into a lifelong ailment and smiling down the barrel. i did that.

But i did that as a kid.

adult me is more tired. adult me is more honest. adult me understands that while i do not want others to be sad, their sadness about my circumstances is their problem to deal with and overcome. adult me knows that it's okay to be in pain, and their feelings on the matter is not my fault. if they are sad, it is not my fault.

i am a lot diffrent than the six year old "brave little girl" in the hospital bed. (for one, i'm not a girl, but gender issues aside for this post.) I am not little anymore, i don't have the energy to smile through the pain, and i am tired of being called "brave." it is no longer a complement, to me, to be called brave.

Because i wasn't ever brave. I wasn't facing my fears, I was just hiding how afraid i was because little me was a martar who believed the biggest form of love was hidden pain. I know NOW how unhelpful that is, and if nobody ever calls me brave again, i'll be happy.

#i'm so tired #and i hate being called brave #diabetes #type one diabetic #medical rant #rant #rant post #joint pain #disabled #type one diabetes #tw: hospital #chronic fatigue #chronically ill #chronic illness #chronic pain

[miserykite]

when ur heart rate is up and u've got opacified sinuses and ur nauseous and dizzy and they say you have an infection. which one? find out in next month's episode! (the earliest a specialist can see you 🙂)

#honourable mention to the newly developed asthama #and more recent intermittent rash #not to mention intermittent chest pain :3 #medical rant

[ashtraysystem]

I've been ticcing like hell all day to the point of frustrated tears, so i asked my mom if i could take some of her gabapentin (which ive taken before)

im probably gonna ask my doc if they can perscribe me some so that i actually have some whenever i need it or something. idk yet i just know it helps a lot with my chronic pain and my tics.

im working on getting a new doc bc i dont trust my current doc, so the earliest i can do anything is february 22nd or something.

i just get so done and frustrated with being in pain and being so ticcy that i cant breathe. i literally couldnt even give a nonverbal hello to my friend across the room bc i was ticcing so bad. aarrghh its just *strangles my tourettes*

existence has been extremely frustrating lately, and not in the ways im used to. im used to the every day bullshit of life, but when its shit like this thats very internal, very much like "there is no physical evidence of your experience" and its so unique to me that i cant complain about it and have people understand, i dont know how to handle that.

#i need a hug man #it feels like my body is trying its hardest to work against me lately #vent #rant #medical vent #medical rant #chronic pain #eli📓 #cole🥾

[queerpossums]

hot take, you shouldn’t make someone travel if you know that it could cause a medical emergency

#i love my mother #hot enbys have chronic illnesses #medical rant #bpd rant #bpd vent #chronic illness #chronic fatigue #pots #hypermobile ehlers danlos #hypermobile eds #sfn #small fiber neuropathy #chronic migraine #family bullshit

[doctoraxiom]

To all my medical followers: Top Doctor is a scam. Never give them money. I know you've seen the plaques on other doctor's walls. They're lies. They aren't real.

And if you fall for it once they'll keep hounding you and their calls are downright predatory they make it sound like it's just part of what they've already done for you until the very end where they sneakily mention they'll bill you.

Source: I fell for it.

See Also:

#rant #medical rant #ugh

[gallifreystands]

I got a toradol shot today because it’s day 14 of ever present low grade migraine and my arm hurts in that really sore way IM injections can be, I’m really drowsy and vaguely dizzy (common side effect for me) and just. So tired of being in constant pain, even if its low grade this time. Really hoping this breaks this headache 🤞 so tired of functioning with chronic pain. The RN today who gave me the shot was new and was like “Damn it’s been *fourteen* days?!” And I just kind of smiled weakly at her like yeah. It’s been worse than that before ma’am please just jab the needle in my arm. Then my PCP dropped in and checked on me and was the sweetest. Gently reminded me that yes this fucking sucks, but we’ve gotten my migraines so far down in frequency and intensity since starting the topamax a couple months ago so. We’re getting somewhere just. Gotta keep pushing through.

#holly speaks #personal #medical rant #injection mention #migraines #no one asked for this I just needed a place to get words out

[chronically-online-anime-enjoyer]

long post sorry

CW: Talk of weight loss and chronic illness. Brief mention of ED. Medical professionals are stupid sometimes.

I wish doctors didn’t treat being fat as the root of the problem. There are many reasons why I am fat and most of them are out of my control.

My RA causes joint pain. It hurts to walk or jog for long periods of time, and it hurts to ride a bike for too long. My PCOS causes an increase in hormones that cause hunger, and increased insulin which causes the body to store more fat. PCOS can cause diabetes later in life if not managed. I’m basically genetically set up to be fat.

The point is, doctors need to come up with better ideas on how to lose weight healthily. I swear to god, if one more doctor says “just lose a bit of weight and you’ll be in a lot less pain” I will scream. How can I lose weight when it HURTS TO WALK??? I don’t want to have to starve myself. I need medical professionals to give actual advice, to actually care, not to just look at my chart and say the first thing that comes to mind and then leave.

I understand that I don’t need to lose weight to be confident, or beautiful, or whatever else. I’m talking about this purely from a health perspective. Not all fat people are unhealthy and I’m not implying that they are. I’m saying I am unhealthy, and I need to lose weight if I want to live a long life. I just don’t know how to go about this.

Here’s Miku to lighten the mood 🌈

#rant #rheumatoid arthritis #pcos #chronic illness #chronic pain #autoimmine disease #pcoscommunity #inflammatory arthritis #arthritis #rant post #medical rant #weight loss #chronically ill #sorry for ranting #advice? #autistic #actually autistic

[house-of-slayterr]

Medical Rant!

Bruh, you’re telling me instead of just giving me the medication I was previously on for 3 years with my last insurance, my new insurance decides I need to try other things first (if they bothered to read my chart, I’ve tried everything else already and half of them made me violently I’ll, which is why I was on the fancy expensive medication in the first place), and charges me fucking $85… for a god damn partial perscription!!!

They didn’t even give me a full dose of this medication that I already know doesn’t fucking work (so I’m not even gonna take it), for $85… that like an entire days of work at my job before they take away tax… this is bullshit.

To people who think disabled people are “lazy” and “leeching off the government” no the fuck we aren’t! They continuously punish us for not being able bodied, and then call us sensitive snowflakes for being upset about shit like this.

This is the 9th month in a row they’ve denied me my migraine medications. I get migraines so bad I have seizures and partial paralysis (this can last a few hours, or the worst one, a few fucking months). The reason for them denying it “you need to have more than 3 migraines a week” wanna take a guess as to why I don’t meet the requirement? Because when I was on the fucking medication, it was working. I’m being punished because my medication was “working too well” so now I don’t get to have it.

I fucking hate the medical system in America, it’s a god damn joke: I say this with confidence having been in medical school and worked in a hospital. This is literally the main reason I’m moving out of state and just upending my life right now. (Hence not writing as much, but once I’m settled I’m bring back all my old series and a few new ones, don’t worry 🥰)

The hospitals have just decided I must be faking everything (even though you physically cannot fake symptoms like seizures, low oxygen, bleeding in the intestines, ect…) and they want me to go to a specialty hospital because they’re too lazy to just test for rare disorders. But the specialty hospital has been ghosting me for 3 years. And I decided I’m sick of just waiting around to die since apparently no one’s gonna take my health seriously but me.

I can’t wait to start feeling better, and Hopefully when I move and get new state insurance and reapply for disability, I won’t have to work myself to the bone just to afford to function and live like a normal human. I’m done being a pushover, next health official to ignore or gaslight me, is getting fired off my medical team, and I’m going to report them. I don’t care if I’m “ruining their job” maybe they should treat patients like fucking people, they’re doing it to themselves and I no longer have any sympathy.

I promise, most people aren’t trying to swindle the system or trick you. Disabled people just want to feel better and not be in pain and constantly on the brink of death all the time. That shouldn’t be too much of an ask. Yet everyone still treats us like we’re in their way and making the world worse somehow.

If this racist as hospital treats me like I’m “drug seeking” one more time, when I’ve never asked for pain meds, and have literally denied them before so I wouldn’t be seen as a “pill junkie” and hopefully get real help. Also if they give me one of the medications I’m fucking allergic to one more time, despite it literally being AT THE TOP OF MY FUCKING CHART!!! I’m gonna scream. Stop trying to murder me!

Fuck the government!

Fuck the health care system!

And more importantly, fuck ableism and inaccessibility!

#medical rant #disbaled #disability rant #chronic illness #I’m broke as hell #I have no money #I hate it here #fang rants #ableism #racism