#medical mistreatment

[wither-is-suffering]

If one more fucking doctor looks at me and says starving is fine because I'm fat I'm going to kill someone

#I hereby state i will not kill anyone in the event this happens #or that because i have yet to receive diagnosis that my problems dont exist #tw medical #medical mistreatment #medical fatphobia

[phleb0tomist]

yep, i’m still ME-posting!

so another young woman with severe ME is being denied basic sensory accommodations in an NHS hospital. carla’s parents have been advocating tirelessly for her and even taking turns physically shielding her from the unnecessary light that is causing seizures, pain, and loss of consciousness. if carla’s symptoms were unexplained then maybe i would understand why the hospital keeps trying to expose her to lights, but she’s literally diagnosed with very severe ME, where the body cannot adjust to sensory input, so forgive me for finding it evil and pointless to do the thing that makes her illness worse. this is the norm for how hospitals treat people with ME and it’s inescapable if you want to receive any medical care at all like the feeding tube that carla needs

link to article and news video

#ok to reblog #highly triggering video #ive been through the same thing at nhs hospitals i thought the pain was going to kill me. my mom shielded me from the light too #the staff forced the curtains open when i was at hospital and refused to switch fluorescents off #txt #severe myalgic encephalomyelitis #myalgic encephalomyelitis #medical #medical mistreatment #medical misogyny #trigger warning #Youtube #negative

[textk4kira]

pcos as an intersex condition

I believe the reason why many people are resistant to the idea of PCOS (polycystic ovarian syndrome) as an intersex condition is because they would have to accept that many people who are AFAB (especially cis women) are in fact, intersex.

I was assigned female at birth and diagnosed with PCOS at the age of 19. It took me some time to come to understand my intersex condition, which includes elevated testosterone levels and irregular periods. I was prescribed birth control to manage my symptoms and received an ultrasound to check for cysts on my ovaries (it was during this ultrasound appointment that I first experienced an instance of medical malpractice.)

I'm also a nonbinary person who struggles with mental health issues.

Overall, I'm proud of being intersex And trans. I stand in solidarity with my trans and intersex friends and family 💗

#I love my intersex body 💗 #actually intersex #pcos #medical issues #medical mistreatment #trans issues #trans rights #trans #queer #lgbtq #mental health #panic disorder with agoraphobia #nonbinary #tme/tma users dni #transmeds dni #anti transmed #intersex positivity #intersex

[lifewithchronicpain]

Apparently rest is actively harmful for healing from a concussion. You actually heal better with targeted therapy. But many doctors have not updated the advice they give and continue to just recommend rest.

#concussion #brain injury #traumatic brain injury #ableism #medical bias #medical malpractice #medical mistreatment #disability #spoonies #article

[wakandama2]

JUST BECAUSE OZEMPIC CAN CAUSE WEIGHT LOSS DOES NOT MEAN IT IS A WEIGHT LOSS MEDICATION. PLS STOP USING IT IF YOU ARE NOT DIAGNOSED TYPE 2 DIABETIC 🗣️🗣️🗣️🗣️

#type 2 diabetes #diabetics #medical issues #medical mistreatment #chronic illness

[brvtvus]

Shoutout to the chronically ill!

You will find your way. Take the tube of your IVs and use them as a weapon against the very people who hurt you.

I’ve been sick since I was 14-15. Ignored by doctors and ultimately have gone through enough major surgeries, it’s affected my heart. But I keep going. I keep going not because I have to but because I choose to. I push back against the very people who have neglected and cursed me into this life just to show that no matter how much abuse I take from those with licenses to experiment on people, I stand strong. Punctured, stitched, poked, prodded.

#chronic illness #chronic pain #disability #disabled #pots #potsie #gastroparesis #chronically ill #chronic fatigue #medical malpractice #medical mistreatment #tw hospital #tw iv

[andiebomb]

Totally different than my regular posts but fuck u

(TW/ suicidal tendencies, chronic illness, vent)

No one understands type1 diabetes unless you actually have it, I was in the hospital (one time of many) for intentionally putting myself into DKA so that I could lose weight and then die (I’d look so hot in my casket) so the hospital called the crisis guy like how they normally would for an attempt,

but because it was a matter of me just giving up on having to CONSTANTLY monitor and be hyper vigilant of my body (WHICH REGULAR PEOPLE DONT HAVE TO DO) they were kinda clueless on how to effectively help me.

Normally when someone “gives up” it’s on their basic needs like eating, self care and shit like that but for me it was just stopping putting needles in myself, doing math to be able to eat and stabbing the tips of my fingers 20 times a day

I was exhausted, my life is basically being a 24 hour nurse for myself.

Plus I’m fat so having diabetes just means everyone blames my illness on myself, which isn’t how type 1 diabetes works! I didn’t do anything, I never drank soda, I rarely ate sugar but that’s how the general public thinks how people get diabetes! When actually my pancreas is just a little BITCH WHO CANT FIGHT BACK AT MY AMMUNE SYSTEM!

This crisis guy came into my hospital room and started giving a lecture on TYPE 2 DIABETES! I AM TYPE 1 THEY ARE VERY DIFFERENT! And even his lecture on type 2 was bullshit!

His man looks me in my eyes and says “if you wanna be happy lose weight by eating healthy and exercising. Your never going to be normal so stop acting like you are.”

…I am also autistic so I’ve struggled with feeling like a foreign creature, unhuman my whole life.

This man just reinforced every. Single. Reason. Why I wanted to kill myself.

And honestly after he said that I started sobbing. He left the room without guilt and said I was free to discharge.

Hearing that I fully started to laugh my ass off at the absurdity of the situation, this man WHOS JOB IS TO STOP ME FROM KILLING MYSELF just signed my death certificate.

I didn’t end up killing myself purely because… FUCK THAT GUY IM GONNA BE FAT AND HATE MYSELF AND BE THE MOST NORMAL PERSON EVER! HE CAN GO EAT A DICK!

Anywayyyyy hideduo is so cute!

#actually autistic #tw ed vent #ventcore #personal vent #type 1 diabetic #type 1 diabetes #actually type 1 #medical mistreatment

[aibidil]

I met a new doctor the other day and he asked me if I'd ever been active on patient support groups. I was like, "Actually, no. I have for other conditions, but not for this, because I never felt I needed support."

For my pituitary issue,

there are objective metrics for diagnosis and management

no doctor has ever dismissed or downplayed a concern I've raised

doctors have almost always given good advice

the one time I had a bad doctor, I was able to navigate the situation easily with basic medical research ("From what I've found, the best practice is...")

No one (myself, doctors, family members) has ever second-guessed my diagnosis

Why would I need a online support group?

Contrast that with ADHD, POTS, hEDS, low ferritin, dyslexia (slightly different bc it's educators not doctors, but same thing otherwise), and encopresis (all of which I've figured out largely through internet support groups as patient or parent-of-patient):

doctors know very little, were taught incorrect information in medical school, or are bizarrely resistant to certain treatments (eg enemas: I have a lot of thoughts on the homophobia of that one, but that's another post)

my concerns are routinely dismissed

my concerns are brushed off as being caused by something else (anxiety, overweight, etc)

I'm told symptoms will resolve on their own if I'm patient

doctors' advice is either unhelpful or harmful, so I have to turn to peer advice that is helpful and, to protect their egos, lie to my doctors about what action I'm taking

doctors either push pharmaceutical solutions when they're not yet indicated (ie prescribing PPIs before trying nutrition changes to manage pediatric reflux) or resist pharmaceutical solutions when they are indicated (ADHD meds are some of the most researched and evidence-supported prescription drugs)

doctors misinterpret the significance of "normal" ranges of bloodwork results where normal is population average not a range to indicate health (this is common with ferritin, thyroid)

So yeah, it was nice to remember that I truly don't turn to online peer medical support if I don't have to. If I have a medical condition that they actually take seriously and manage well, I am more than happy to hand over the reins, trust what they say, and literally never think about it at all.

I have NO desire to make medical conditions part of my life's work and identity. This only ends up happening because doing the deep dive and figuring it all out myself is often the only way any solutions are found. So when doctors get pissy because patients are learning about things on tiktok or on Facebook support groups, what they should really be doing is asking why on earth people would need to resort to getting their medical information through these channels instead of by asking their doctors.

#chronic illness #healthcare #medical mistreatment #disability

[pale-plant-bones]

Vent. TW: medical trauma, negligence, mistreatment

With undiagnosed POTS you’re constantly told “You’re just dehydrated” by medical professionals.

I’ve had symptoms for over a decade and still yet a few weeks ago a cardiologist told me it’s just dehydration, both before and after doing a poor man’s tilt table test (at my request) and telling me I met the criteria for POTS. Of course, he refused to do anything with that.

A few days ago I went through the results of some lab tests I had done with my new primary care doctor. One of the results showed I have higher than normal fluid level. I am the opposite of dehydrated. And I probably have been for years, because I have been loading up on salt and water for around the last 6 years at least.

So to every nurse and doctor who minimized my experiences, blamed me for my symptoms, threw on the ‘dehydration’ diagnosis with no effort, and used ‘dehydration’ as an excuse to medically neglect me, fuck. you. Especially to those who forced an IV on me even while I was screaming and begging not again. I hope you all lose your medical licenses.

#disabled #disability #disabled community #spoonie #pots #potsyndrome #postural orthostatic tachycardia syndrome #dysautonomia #medical trauma #medical neglect #medical negligence #medical mistreatment #angry vent #disabled vent #angry cripple #mistreatment #orthostatic intolerance #undiagnosed chronic illness #undiagnosed disability #undiagnosed #doctors suck

[the-withering-system]

When you talk too loudly about how incompetent your partners nuerologist is and a nurse comes and closes the door... Oops

#medical mistreatment #fuck doctors

[phleb0tomist]

What does one genuinely do if they have both fibromyalgia and me/cfs. its an actual comorbidity that exists, and Im curious whether one is supposed to undergo graded exercise therapy or do pacing if thats the case, wouldn't either just worsen one of the conditions?

hello! good question. it’s a sticky situation for sure. i may go on an extended ramble now.

i’m not a professional but from what i’ve seen, the way overexertion impacts ME seems to be riskier than the way inactivity impacts fibro. yes, inactivity may make fibro worse, but the effects are usually proportionate and logical (and often reversible), meanwhile a few days of overexertion beyond a person with ME’s limits can sometimes cause an astronomical worsening for years afterward, which sounds nuts, but is a legit risk. there are reports of people with ME walking into exercise programs and leaving in a wheelchair and never recovering. personally i went from mild to severe after a school trip that involved a lot of walking. before the trip i was technically able bodied and after the trip I was bedbound. I have both fibro & ME and atp my docs say the risk of pushing is not worth it lol. public health guidelines are gradually changing to reflect the reality that it’s not safe for people with ME to increase activity beyond their individual limits, regardless of any comorbid diagnoses they might have.

luckily, pacing isn’t necessarily total rest—it’s doing the maximum activity possible without triggering post-exertional malaise, aka staying within your ‘energy envelope’. you can still preserve muscle while staying in your limits :) people with mild ME may even be able to exercise, especially stuff like very gentle swimming and yoga, as long as it doesn’t trigger PEM.

in my personal experience, when i do pacing, the resting seems to allow some degree of repair and i actually end up with slightly more ability/mobility. long term, i lose function when i push myself (even if i only push gradually in tiny increments) and i gain function when i rest. it’s almost paradoxical. the less i do, the more i become able to do. obvi I’m not recovered but pacing is the only approach that stopped me deteriorating and gave some improvement, which lets me be more active without breaching my limits, which is good for my fibro! yayyy

footnote 1: in case it wasn’t clear, graded exercise usually DOES help people whose sole diagnosis is fibromyalgia. it only seems to be risky if you also have ME. i know people with fibro or POTS/EDS who found improvement from graded exercise :)

footnote 2: almost every doctor i’ve met has a different opinion on how to treat ME & fibro. medical professionals are individuals with varying views depending on where and how long ago they were educated, their personal biases, how up to date on research they are, etc, and your doctor may not agree with my doctors!

#answered #long post #medical #medical mistreatment #< for the exercise program thing #chronic illness #txt

[agayconcept]

GOF*NDME LINK HERE

P*YPAL LINK HERE

E-TR*NSFERS & other options can work too - just message me!

🏳️‍⚧️💸🏳️‍⚧️

please reblog / boost / share if u can !!

& if u have a few dollars to spare, it will go a long way - this is life-saving treatment & support. tysm to everyone who helps in any way! ♡

#trans help #lgbtq help #lgbt help #trans healthcare #transgender healthcare #HRT #gender affirming healthcare #transphobia #medical mistreatment #boost #signal boost #emergency help #ask to tag

[naidje]

Partner just got absolutely steamrolled by our new psychopath of a doctor. We barely managed to get a word in and he'd basically already decided she wasn't worth his time before we even walked in.

"Ah well, half the country has had covid, and none of them have muscle weakness." "We all get a little tired sometimes." "You know chronic illness means you have long-term persistent issues right?"

My dude, she's 90% bedridden. Just getting to this appointment is going to knock her out for the next two weeks. What is wrong with you?

At least Amy somehow managed to manipulate him into ordering the tests she wanted and getting a PT referral. And now we know what to expect from him, which is fuck all.

Ah, the joys of trying to get healthcare as a chronically ill queer person...

#medical mistreatment #partner was prepared and seems to be laughing about it #I'm just angry and upset #I wanted to scream in his face

[manriah]

Stop telling disabled people to report every single receptionist/doctor every time we mention having a bad experience! I promise you we have already weighed the pros/cons, are already have/are already in the process of reporting someone, or don't have the energy since we are dealing with medical issues. It is isolating and it is victim blaming to put the burden of educating these people on the ones being subjected to the treatment.

#Me #Medical rant #Ableism #Medical mistreatment #Specifically abt ppl telling everyone in disability threads to report anyone/everyone with no regard for if it'd help anyone involved

[maternalmistreatment]

#4 In the TikTok above, the news agency CBC interviews an Indigenous nurse (Tania Dick) as she discusses her personal experiences working in the Canadian healthcare system. Some key points made in the video were:

Tania's aunt was taken to the emergency room acting differently. Doctors and nurses did little examinations and ruled her to be a "drunk Indian". Eventually, her aunt was thrown into a cell and was told to just sleep it off. After an investigation, it was found that Tania's aunt had a major head injury, which sadly killed her due to the lack of treatment from healthcare professionals.

Hospital staff to this day deny the head injury and persist that Tania's aunt died because of alcohol intake.

Tania Dick's story showcases the racist ideology that the Canadian healthcare system still follows today. As seen in the TikTok video along with the other blog posts, Indigenous people are constantly mistreated. While Tania's story does not deal with maternal care, the treatment remains the same. Expecting Indigenous women are much more likely to experience illness, miscarriages, etc. Along with this, they are also more likely to develop conditions like Fetal alcohol spectrum disorder, HIV, obesity, post-partum depression, etc (Bacciaglia et al, 2023). While the reasoning for this differs from person to person, the general consensus is a result of colonization and residential schools (Bacciaglia et al, 2023). These experiences continue to negatively shape the lives of Indigenous communities due to the lack of support from both the government and the healthcare system.

References

Bacciaglia, M., Neufeld, H. T., Neiterman, E., Krishnan, A., Johnston, S., & Wright, K. (2023). Indigenous maternal health and health services within Canada: A scoping review. BMC Pregnancy and Childbirth, 23(1). https://doi.org/10.1186/s12884-023-05645-y

#canada #maternal #health #maternalhealth #indegenous #medicine #medical mistreatment #medical discrimination

[thefeistydragon]

Hate doctors. It's not hard not to traumatize a patient during a painful procedure but no you can't take two seconds to let them catch their breath and tell you when they're ready to be put in pain again.

#medical mistreatment