#crohn's problems

[longreads]

A Life Without Eating 

“Inflammation from Crohn’s disease had connected the tissues of my small intestine and my bladder together via fistula, and I did not want to pee out a roast chicken.”

Eating is about more than just nutrition. Eating makes us human. Read Andrew Chapman’s powerful new essay on living without food here. 

#longreads #crohn's disease #crohn's problems #autoimmine disease #autoimmune #writing #food #starvation #nonfiction

[liberaljane]

Your health may change, but your worth does not.

Digital illustration of a woman with long blonde hair. She's standing with her armpit hair showing in a rust red tank top, green skirt and an ostomy bag. Text reads, 'health is not an indicator of worth.'

#artist #art #Healthcare #disability justice #chronic illness #disability #disabled #ostomy #crohn's problems #gastroenterology #feminist #feminism

[jerirose]

9 months. 9 fucking months. Almost 10... ha And I finally have an appointment with my specialist 😭 This may be it. This may be the start of my recovery journey. I suspect a hospital stay, or at the very least extremely strong steroids, but honestly - anything to stop this 😭 My body and mind are so, so tired of fighting. I just want to rest. I want to be able to eat without pain or sickness, gain weight again, walk without feeling like my legs are going to buckle, or that I'm going to fall flat on my face, talk without feeling like the words are caught in my throat making me nauseous. Sleep a semi-normal sleep schedule and not have to nap several times a day just to function, because if I don't my brain feels like it's going to crash. I'm so incredibly overwhelmed.

Friday next week... I just have to push through til then 😤

#cw health #👽 stop speaking nonsense #cw eating problems #crohn's problems #crohn's disease #fibro problems #fibromyalgia #long covid

[hatterstea]

I have beem informed that the hot girls have stomach problems. I think I'd rather be able to eat a burger, honestly

#crohn's disease #chronic illness #ibd #crohn's #crohn's problems #i think I'm funny

[david-goldrock]

Me: having stomachache

is this something I ate, the way I slept, my disease or a fatal wound?

#crohn's problems #crohn&039;s #crohnie #crohn's disease

[guyonrye]

small rant, but being disabled and chronically ill sucks. it just does. I feel like I SHOULD be fine. I'm 20. I should be exercising, eating whatever, working... but I can't really. My body gets so exhausted and shaky, I collapse often, my digestion is so sensitive to SO MANY foods, I'm dehydrated 24/7, and the soul deep fatigue I feel means oftentimes the most I can do for the day is get myself water and snacks. it just... it sucks. it truly does.

I want to feel physically strong, independent, and functional again, but I never will to the extent I could before my health was taken.

#vent #tw vent #crohn's disease #crohn's problems #pots syndrome #potsie #disability #disabled

[hannahcrazyhawk]

“There is no greater agony than bearing an untold story inside you.” 🥀

— Maya Angelou

#quoteoftheday #quotes #quote #maya angelou #story #disabilties #chronically ill #cancer #pain #spoonie #suffering #sick and tired #stories #trigeminal neuralgia #hidradenitis suppurativa #lichen sclerosus #vulvar cancer #crohn's problems #potsawareness #dysautonomia

[lillypadcrochet]

I loooove having a chronic illness 🤪 I was talking to my GI about some symptoms I was having and I showed her my log and she was like “Lilly this is happening a lot!” In like a really shocked and concerned voice 😑 gotta love it when an expert in your illness finds your symptoms concerning

… at least we’ve got a testing and possible referrals planned out

#lilly chit chats #chronic illness #crohn's disease #crohn's problems #IBD

[pernlover]

Being disabled and or simply chronically ill sucks. Most doctor visits end with the doctor saying we know you are in lots of pain and uncomfortable but there is nothing we can or will do about it. Just do your best to survive.

#me #living with cptsd #disabled #chronic nausea #beals syndrome #diabetic #chronic pain #crohn's problems #gastroparesis

[pelipper]

My surgeon called me up to let me know my pathology results came back normal, no colon cancer here! Ya girl lives to see another day. 😎

#personal #finally some good news #tw: medical #crohn's disease #crohn's problems #the findings did show lesions from crohn's but we already knew i had that lmao

[jerirose]

So after a month of being extremely ill, I've been given medication that may help me, if they don't, I'll be put on the dreaded steroids. Which I've not had to go on since 2016? I think 🤔 it's been a long ass time since I was so bad I needed steroids to help me push through a health dip.

My chest is still swollen from my Long Covid, and my doctor believes that my body has basically gone through a domino effect, and my whole body has just shut down (aka everything is flaring and fighting each other and my body can't deal with it). It's now just finding the root of the problem, which he hopes these tablets will help! I'm really hoping that what I'm getting put on helps though 😓 (though I've to just continue to wait out my LC, it should be clear by now but my other health issues are delaying it)

I miss streaming 😔 I've tried a few times few months but everytime I try to go back my health tanks and I just end up pushing myself past my limits so I've taken another hiatus until I'm fully in the clear 🥲 however long that'll be.

And of course, art is going to continue being somewhat slower than usual because my brain and body are fried atm 😮‍💨

#👽 stop speaking nonsense #cw health #long covid can suck a dick #crohn's problems #fibro problems

[mypokemonranch]

It feels so good to be back home after surgery! ❤️‍🩹

I had a bowel resection and end ileostomy last week after dealing with an obstruction earlier this year. I started on biologics back in 2021, but unfortunately Humira wasn't enough to keep my Crohn's in remission because I started producing antibodies against it. Since my insurance took their sweet time approving Entyvio, I ended up with a bowel obstruction in March which almost resulted in an emergency surgery.

Thankfully, I was able to recover at home after narrowly avoiding emergency surgery. I was on TPN and a full liquid diet for a month and a half until my body was ready for surgery. I was told that I had to have a temporary ileostomy, but to me that was a small price to pay if it meant I could achieve remission for the first time in years.

Surgery went well, and although my in-patient stay was bumpy at times due to some nausea and vomiting, I'm feeling a lot better than I felt before surgery. My pain is controlled pretty well right now, and I have a follow-up appointment with my surgeon and my regular gastroenterologist in a few weeks. I should be having my ileostomy reversal surgery by the end of summer!

I'm hoping that by the end of this ordeal I'll be able to have a good few years of remission from Crohn's Disease. This disease sucks so much and has taken so much out of me. But no matter what life throws at me, I'm not going to give up without a fight. 💪✨

#crohn's disease #crohn's problems #ostomy #bowel resection #disabled #personal #tw: medical

[david-goldrock]

Being In McDonald's as a crohn's diseased person is like being a Haredi man in the middle of a brothell

#ישראל #ישראלבלר #ישראלים #טמבלר ישראלי #i stand with israel #israel #israeli #pro israel #haredim #crohn's problems #crohn's disease #crohnie

[ostomyeducation]

Hi Sky, I saw that you recommend maybe watching videos about ostomies for people who have just gotten them. Are there any particular videos you recommend for info?

Absolutely!

This is a super helpful video from a YouTube vlogger, LetsTalkIBD, who is both a person with an ostomy and a registered nurse. This is one of the best demonstrations and explanations for the placement of a new ostomy bag I have seen!

The same vlogger has a super considerate and insightful video on intimacy with an ostomy. It is helpful hearing these thoughts from a young person with a good sense of humor.

A YouTube channel, Truly, shares the story of Paula who went from dying of a bowel infection to being a fashion designer - for ostomy bags! - and content creator on TikTok. She describes her grieving process and how she discovered her love of sewing by making ostomy bag covers that match her outfits.

Truly also shares the story of a young man named Joel who learned about his condition through intense flares. He describes his battle of coping and grieving his condition and learning to love himself despite his ostomy and autoimmune condition. He says that his ostomy saved his life.

Shield HealthCare shares the story of Laura Cox's decision to have her ostomy surgery before her disease process progressed to an emergent state. She discusses the things she wishes that someone told her before her surgery; all of her points are inspiring and informative to a person considering an ostomy placement. Laura shares a similar video regarding top concerns with ostomies on the same channel.

To pair with LetsTalkIBD's video on new ostomy bag placement, Mr. ColitisCrohns shows both how to remove an old bag and place a new one. This video is particularly helpful for men or those who have extra body hair on their abdomen.

I am so thankful that the Internet has brought so many people with "invisible" illnesses together! The resources are truly abundant when you know what to look for.

#crohns #crohn's problems #crohn's disease #ostomy #patient education #ostomate #coping #grieving #illness #wellness #surgery #colon cancer #colitis #ulcerative colitis #ileostomy #colostomy

[pose4photoml]

#crohn's problems #new meds #humira #injections #nervous #I have to inject myself 🤔 #tired of being in pain so I’m going to try it #🙃

[unusual-legume]

It’s World IBD Day or IBD Awareness day ( if you prefer )May 19th!! This year I made a one page comic about what is in my go bag. This is the bag I bring on trips for fun as well as to the hospital(because I usually end up staying for a long time when I go). What’s in your bag?

(also I am posting this now because I wont be able to tomorrow). 

#Graphic Medicine #IBDcomics #comics #crohn's problems #crohn's disease #crohns #fuckcrohns #ibd #ibdawareness #world ibd day #hospital #chronic illness #autoimmine disease #art #Illustration