Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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the thing about "callout/cancel culture" that convinced me it's rotten to the core is the dehumanisation you face once you become the subject of a campaign like that. a lot of criticisms of callout/cancellation attempts appeal to the humanity of the subject, pointing out that it's unfair and unproductive to treat a person, a fellow human being, regardless of how much harm they've caused and how genuinely unlikable they are, like that. but unfortunately the reality of being the target of a mob mentality often means facing the very isolating and traumatising experience of realising that you've ceased to exist as a person in their eyes. you're a representation of your transgressions, an embodiment of harm that needs to be erased like a blemish, a spectacle for entertainment, a means of earning social approval by publicly condemning and humiliating you in what quickly becomes a competition to see who can strike the blow that knocks you down so you never get up again. nobody cares about who you are outside of what you did. people make mistakes and hurt one another, but there is always the capacity for change, for regret and reparations. you are an irredeemable monster. you can't change. the only way to make sure you can't cause harm ever again is to neutralise you entirely. to drive you off and hurt you so badly that you never consider coming back. and it often succeeds. but it doesn't make the world a better or safer place. it just tells everyone that certain behaviours will be punished, so you should conceal them, and harshly condemn them in others so that everyone knows where you stand; nobody will stand up for you if you're accused and brought out for judgement, so you shouldn't trust anyone, and always be on the lookout to take them down before they can do the same to you. you're not creating a safe, welcoming community. you're creating a panopticon built on fear and punishment.
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a comic about love and friendship and the power of communication, inspired by that time i heard ask by the smiths on my run and was somehow moved to tears
(i misheard 'the bomb' as 'the bond' but i stand by it. i don't value morrissey enough to respect his authorial intent)
(sensitive wolf fans smash that mf like button!!!!)
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I think when people think of mental illness and what helps, especially with things like anxiety and depression, the treatment involves pushing yourself. Pushing yourself to get out of bed, to exercise, to take a shower, to go out in public, to order your own food from the cashier, etc.
And because the mental health movement has grown so much, people think that's the default of ALL illnesses. That the only way someone will get better is if they push themselves. That practice makes perfect. That you'll become more comfortable or strong over time the more you do something.
But what people need to realize is, with physical disabilities and chronic illnesses, pushing yourself in most cases is DETRIMENTAL. Pushing yourself past your limits can lead to flare ups or further injury. That's why it's important to know your limits, how certain activities may affect your condition, and learn how to either adapt or get help to complete the activity in question.
Also, most of us are already pushing ourselves. Most of us don't have access to the help or equipment we need. Most of us live in places where we frequently encounter inaccessible obstacles. Most of us NEED to rest.
So please don't try to be our physical therapists or doctors. There are people specifically trained to help us navigate our own conditions and limitations. There are people trained to help us strengthen our body's resilience without causing flare-ups or injury. Do not tell us "it'll be good for you" or "you need the exercise" when we say something is too heavy or too far or when we say we need our mobility aid(s). Your friend with depression may need to be encouraged to get out of bed, but your friend with chronic illness definitely doesn't.
Respect our rest.
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she says he won't let her get a dog, which is fine, because they're in an apartment, and that's the kind of thing people say about their partners. he won't let me get a dog. and you're at a dinner party and you tilt your head a little to the side just like that dog he won't let her get, because is this the thing that's going to upset you? you don't know every corner of their relationship, she could be joking, they could have had so many healthy conversations about the dog, right, and maybe she's not letting herself get the dog because of money and time and whatever. but, like, she did say let
and she wants to move away from his hometown and he wants to stay and then he tells you with a wink and a conspiratorial stage whisper don't worry i'll convince her and she laughs about it - so clearly this is something they laugh about. but you do just stand there and stare at him like what the fuck, man. you can't say what you want to say which is why do you get the final say on everything because they're both obviously aware of the other person's stance on this and have obviously had private conversations about it and what are you going to do about it except make a scene and then he'll be mad at you and call you one of those bitches behind your back and she'll cut you off, which is a loss that doesn't feel worth it just because he makes you a little skeeved out every 3rd comment
and they both agree he just isn't the type to get flowers which is fine because everyone shows love differently, and are you really gonna judge someone based on their sense of individual relationship responsibility? maybe he's constantly cleaning her car and writing her poems and making her furniture or something. maybe she doesn't even like flowers and this is perfect, actually. and no you couldn't date him, obviously, ew; but like, she tells you she's happy. you almost send her a tiktok that says don't be 25 and the cool girl that doesn't need anything, you'll hate not getting flowers at 30, but that's like, starting drama & you shouldn't start drama needlessly.
and you're a little older than her but not so much older you can pull the whole trust me on this one babe thing and besides that wouldn't have worked anyway (when does it ever) and besides you have trauma so you and your therapist both agree that you're always looking for a problem even when there isn't one. and you tell yourself that just because you see them for 15 minutes every month does not mean you can identify every single red flag based on a single shitty half-joking(?) comment
and besides, what are you going to do? she says i actually wanted another stand mixer but thankfully he stops me when i'm about to spend too much money and you're standing there like are you okay? is this normal? is this just something people say? and again - what are you going to do?
to your therapist you try to language it - it's not, like, any of my business. but sometimes, doesn't it feel like - you should do something. there's got to be something, right? you've tried dropping little hints but they sail right through and you've tried having a single serious conversation and she got upset because why does it matter to you, yes it's different but we're happy, it doesn't need to make sense to you and you're like. really unwilling to push a boundary about it anymore; because the truth is that you know logically it shouldn't matter to you, as long as both parties are happy.
and besides, you've been wrong before. it's just... like, every time you see them both, something else happens, some kind of shiver down your spine like do you even hear each other when you talk. it's their strange, bickering orbit. just the way he's on his phone through dinner or watching sports instead of helping in the kitchen or, fuck, another one of these little throwaway comments he makes about we'll see about that, babe. she laughs when he calls her passions stupid shit and meanwhile she gets him tickets to see the knicks and he tells you well at least she's smart about something and still! it's none of your business.
you say get the dog anyway and she laughs. like, this is is you being funny. and not you saying - no really. get the dog. get the dog and get out of here. pack up and start running.
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