#Ehlers danlos

[spookietrex]

I hate the look on able-bodied people's faces when you can't do a thing that you could do the day before. The look of disappointment, confusion, the "Oh but you could do it before. Are you SURE you can't do it?" Like yes, Brenda, I'm sure that I am in too much pain to function/move from my bed right now so going for a walk when I could move 50 feet yesterday without my cane IS too much.

#angry cripple #crip punk #cripple punk #cripple posting #disabilities #invisible disability #physically disabled #disabled #physical disabilities #this is about physical disabilities please don't derail this post #ehlers danlos type 3 #ehlers danlos #ehlers danlos problems #ehlers danlos zebra #ehlers danlos syndrome #hypermobile ehlers danlos #fuck you eds #eds zebra #living with pots #fuck you pots #potsie #pots #fibro #fibromyalgia #fibro problems #fibropain #chronic illness #chronic pain #chronically ill #ableism

[defiantcripple]

Using a mobility aid when you need one is an act of self love <3

#cripplepunk #angry cripple #cpunk #c punk #cripple punk #queer cripple #physically disabled #physical disability #mobility aid #wheelchair #rollator user #cane user #wheelchair user #hypermobile ehlers danlos #ehlers danlos syndrome #cripple posting #disability #cripple #heds #ehlers danlos #chronic pain

[aestheticofalifetime]

Me when my disability disables me

#heds #hsd #ehlers danlos #ehlers danlos syndrome #hypermobile eds #hypermobile ehlers danlos

[gayaest]

New oc based on the emojis: 🩵🎧🫧🌟🌈 Thabo!!! His special interest is meteorology

#disabled artist #disabled art #my art #rollator #ehlers danlos #autistic character #character design #ID in alt text #anime #sketch #disabled and cute

[crippledpunks]

this is your daily reminder to stop being abusive and mean toward people with bladder and bowel issues.

im tired of hearing people mock those who struggle with bladder/bowl control, for people who can't tell when they need to go until it's too late or at all, for people who have uncontrollable voidings and leaking, for people who need to wear incontinence products around the clock, for people who need them influctuating amounts and need different kinds of products, for those who bedwet, for those who can't afford incontinence products so their clothes get dirty- to everyone with bowel and bladder issues.

we are human. we are still people. we are not gross, we are disabled. we are struggling with a disability. if you make cutesy posts about canes and wheelchairs, you need to include people who wear diapers, people who need plastic pants, plastic bedsheets and absorbent bed pads. you need to include people who can't tell when they need to go. people who need/use catheters. people who have colostomy bags. people with stained and dirty clothing. people who have to change their incontinence products in public.

you need to include autistic and ADHD and ND and disabled people who feel unsafe without diapers. you need to include people with spinal injuries and ehlers danlos syndrome and muscular control disorders with need incontinence products and feel safe with them. you need to include people who like their diapers and not just tragic stories where it's never discussed or doesn't negatively impact their life and livelihood.

please include all disabilities in your disability positivity posts, and please be kind and treat all disabled people with respect and humility, including those of us with symptoms you may find "gross".

#disabled #actually disabled #disability #physical disability #physdis #phys dis #autistic #actually autistic #heds #eds #hypermobile ehlers danlos syndrome #hypermobile ehlers danlos #adhd #actually adhd #ehlers danlos #fibromyalgia #chronic pain #cripple punk #cripplepunk #crip punk #back pain #chronic illness #chronically ill #incontinence #incontinent #disability rights #disability advocacy #disability awareness #disability pride #disabilities

[cozycoffeereads]

Today’s disability topic is how America forces disabled people into poverty.

Today’s particular topic is how SSI keeps disabled people poor.

Let’s first go over what SSI is. Supplemental Security Income is a program that provides monthly payments to disabled people and elderly people who meet the financial qualifications.

SSDI stands for Social Security Disability and eligibility is based on work credits. This is for people who used to work before becoming disabled. We will not be discussing this today.

Here are the facts:

The average SSI payment in January of 2023 is $553 per month.

Disabled people on SSI also cannot have more than $2000 in savings and assets. This is severely limiting.

This is not enough to even cover basic needs. How can someone live based off those payments? Disabled people who live with someone such as a caregiver, family member, or partner receive reduced payments and risk losing their benefits.

Disabled people cannot marry without losing their SSI or losing financial assets.

Here is an eye opening article about forced poverty:

https://brownpoliticalreview.org/2022/01/government-mandated-poverty/

Also check this article by The Hill called “Lifeline for people with disabilities forces them to live in poverty”

https://thehill.com/opinion/congress-blog/3702528-lifeline-for-people-with-disabilities-forces-them-to-live-in-poverty/

#disability pride month #disability community #disabled #spoonie #Ehlers Danlos #cripple punk #disability awareness

[murruspins]

#chronic pain syndrome #chronically ill #chronic illness #chronic pain #chronic fatigue #ehlers danlos #hypermobile ehlers danlos #ehlers danlos life #ehlers danlos awareness #ehlers danlos problems

[violet-phoenix-nebula]

Reblog if the word psychosomatic or synonyms of it trigger instant, burning rage.

psy·cho·so·mat·ic adjective (of a physical illness or other condition) caused or aggravated by a mental factor such as internal conflict or stress.

[Basically, the fancy word for "it's all in your head"]

#chronic illness #chronic life #chronic pain #chronically ill #chronic fatigue syndrome #chronic fatigue #invisible disability #disabilities #disabled #disability #disabilties #cfs (chronic fatigue syndrome) #me cfs #cfs/me #myalgic encephalomyelitis #fibromyalgia #ehlers danlos #ehlers danlos syndrome #invisible illness

[rainbowchihuahuabunny]

I hate being in this disability grey space. I'm well enough to work most of the time but that means I can't do anything else in my life. Disabled enough not to be able to keep up with others my age.

I'm constantly in pain and exhausted but well enough to have to push through to keep a job so I can afford to live and afford pain medicine and braces. I just subluxed my hip and am stuck in my wheelchair but I know I can't use my wheelchair at work cause I need my hands free. So, here I sit with a heating pad on my hip, sobbing and begging for the pain meds to help.

Just wish I were either fully abled or disabled enough to get help. Instead I'm stuck here. In the disabled grey space

#cripplepunk #chronic illness #chronic pain #chronic fatigue #chronically ill #ehlers danlos syndrome #pots #potsie #spoonie #fibromyalgia #actuallyautistic #autipunk #actually disabled #invisible disabilities #part time wheelchair user #ehlers danlos #ehlers danlos problems #ehlers danlos zebra #hypermobile ehlers danlos

[figuring-myself-out-url]

The traumatised urge to have someone say "I'm proud of you for taking care of yourself" because everyone always pushed you too hard.

#chronic illness #chronic pain #actually disabled #disability #ehlers danlos #chronically ill #neon vents #disabled #chronic fatigue #on another note i took my pain meds #woooo

[crippleculture]

Hot take but the "hypermobile EDS isn't rare so you can't call yourself a zebra!!" Argument falls apart when you consider just how underdiagnosed hEDS is and how when you go to the doctor with the symptoms of it, they generally suspect horses first lol

#cripplepunk #actuallydisabled #disability #heds #eds #ehlers danlos #hypermobile ehlers danlos

[spookietrex]

#disabled and proud #physically disabled #disabled #disability advocacy #disabilities #physical disability #invisible disability #disabilties #out of spoons #spoonies #spoon theory #spoons #spoonie #low spoons #fibro #fibromyalgia #autistic adult #autistic and proud #autistic #autism #actually autistic #autistic things #living with pots #fuck you pots #potsie #pots #pots syndrome #eds zebra #ehlers danlos #ehlers danlos zebra

[defiantcripple]

Nothing happened, I'm just disabled.

And if something did happen, it's not your business.

You are not owed an explanation for my disability.

My cane is not an open door for interrogation.

Let me exist.

#cpunk #cripple punk #c punk #cripple #angry cripple #queer cripple #disabled #disability #physically disabled #hypermobile ehlers danlos #ehlers danlos syndrome #cripple posting #heds #ehlers danlos #cripplepunk

[abitofajournal]

the “I have a tummy ache but I’m being brave” meme hits different when you’re chronically ill

#hEDS #hypermobile eds #hypermobile ehlers danlos #ehlers danlos #actually disabled #disability #chronic illness #chronic disability #autism #actually autistic #disabled

[gayaest]

If anyone is interested in a reference for Thabo! 🌈🎧🫧🌟🩵

He uses a lot of different braces : wrist brace, ankle brace, neck brace, KT tape for shoulders, Forearm crutches, Rollator, etc, all to help him with his EDS.

#my art #art #disabled artist #eds #ehlers danlos syndrome #ehlers danlos #character design #illustration #illust #character reference sheet #rollator #forearm crutches #disabled and cute #alt text in ID

[crippledpunks]

maybe i like the way that my ehlers danlos syndrome makes my skin abnormally soft. maybe i like the way it makes my skin fold and hang in ways that i don't see on most other people. maybe i like that my body is unique and one of a kind. maybe i like that i have been told by previous partners that i'm a luxury to hold and that i feel great to touch and am great to look at.

my disabilities suck ass, yeah, no shit. i hurt myself and sublux my joints often. but i'm also allowed to like the parts of it that aren't all bad. i have an extremely unique skin texture, and i think that's pretty fuckin cool. maybe i'm allowed to like that part of it. maybe cripples are allowed to try to feel at home in our own bodies, as they are, without needing to feel like they'd only be happy if they were 'cured'.

#cripple punk #cripplepunk #hypermobile ehlers danlos #ehlers danlos #actually disabled #physical disability #disability rights #disability #disabled #crip punk #disability culture #chronic pain #physically disabled #hypermobile #hypermobile eds #hypermobile spectrum disorder #hypermobile joints #heds #actually hypermobile #ehlers danlos syndrome #our writing