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#chronicallyfabulous
sexyandsymptomatic · 2 years
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It’s the not knowing when it’ll stop. The unpredictability. Wondering “will this ever get any better?” It’s the people close to you just accepting that this is how you are now. It’s the 24/7 nature of it all. It’s the not having a choice. It’s the not having a break from it. It’s the people around you thinking you chose this. As if you enjoy it. As if you actually chose this life. Nobody would ever choose this. It’s the having to play symptoms down. It’s having to pretend it isn’t as bad as what it is. It’s having people judge you, even the people closest to you. It’s having to live with symptoms that most people wouldn’t know how to even begin to cope with. It’s a lack of self confidence and self purpose. It’s staying hopeful when it doesn’t seem like there’s anything to be hopeful for. It’s a lot of things.
You might not feel it, but you’re one of the strongest people EVER. You put up an invisible fight daily. You do all that you can. You often survive second to second, minute to minute, hour to hour. You get through the day. You do your best no matter what obstacles are in your way. And it’s important to remember that even on the really bad days that you’re amazing. You’re strong. You’re tough. You’re fabulous. Lots of love xxxxxx
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frillability · 1 year
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11.04.23
Today's outfit was inspired by @beeandpuppycat ! 💖🌸✨ @dreams-in-inks and I celebrated our anniversary properly and really enjoyed the weather. 🌞
My new, official Puppycat plush arrived today as well! I feel so lucky to have one of the original, official Puppycat plushes, (the talking one,) fan-made plushes, and now this one. Bee and Puppycat is tied for my favourite animation/comics. It's particularly emotional for me, and I'll always hold it so close to my heart.
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crazycatsiren · 2 years
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Jazzy mobility aids are like potato chips. 💖💙💚 @neowalksticks is the best! #babewithamobilityaid, #differentaidsfordifferentdays, #hotdisabledsummer, #disabledandproud, #disabledandcute, #disabilitypride, #neowalksticks, #mobilityaids, #chronicallyfabulous https://www.instagram.com/p/ChAiFlqMQAv/?igshid=NGJjMDIxMWI=
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lovesick-art · 1 year
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Next appointment for chronic illness stuff is tomorrow, pretty stressed about it.
He's very nice so far, but I find most doctors are NOT happy about me being a scientist, and even less happy about how good I've become at tracking symptoms and researching them. But after over 10 years of medical gaslighting like what else was I going to do...
Still pretty sure my second chronic illness is a lupus.
Tomorrow I hope when I tell him that he actually listens😅. Wish me luck💘
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jaythebimboy · 1 year
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An actual interaction I had at the doctors office the other day:
Nurse: and what would you rate your pain?
Me: uh.. probably a 7/10? But I also took ibuprofen before I got here.
Nurse: okay.. that’s all, the doctor will be here in a few minutes.
[in walks doctor old white man]
Dr. Old white man: I think it’s getting better. Come back in 6 months.
How the fuck did he come to that conclusion?
“I think it’s getting better” my ass!
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vix-the-star · 1 year
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Happy #IDPD #InternationalDayOfDisabledPeople to all my disabled friends. I enjoyed a day celebrating my wife’s geekiness. @sciencemuseum science fiction exhibition, followed by @bttfmusical which was amazing! #CelebrateYourGeeks #DisabledAndCute #CrippingQueer #ChronicallyFabulous #WheelyAdventures #TheySeeMeRollin https://www.instagram.com/p/CluZb1NjTTa/?igshid=NGJjMDIxMWI=
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This bivalent booster is really kicking my ass with this chronic pain flare
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scuttlefish3001 · 2 years
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why do i feel like my symptoms (and my illness) are all in my head even though i know that they’re real and that i have an illness. every time i go to the doctors i feel like i’m lying through my teeth even though i’m not. i have this irrational fear that i am a hypochondriac and that i’m just wasting everyone’s time. i hate this. i’m so tired of this. i feel like because my symptoms are manageable and i’m not living in pain every waking minute that i shouldn’t be wasting doctors time and attention on me when there are worse off people that need it more.
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wildenlondon · 2 years
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If you want to see how the pleated fabric for this was made, check out my sorry highlight for Pleats. Joelle married Davide in Rome overlooking St Peter’s Basilica. Joelle wore a soft pink chiffon dress with beaded Chantilly lace overlay and pleated chiffon waterfall. #pleatedchiffon #cimentpleats #treebarkpleats #pinkweddingdress #romewedding #stpetersbasilica #chantillylace #londoncouture #bespokebride #antibridetribe #romanticbride #londondressmaker #artisanmade #stylemepretty #dreamyaesthetic #disabledbride #italianwedding #londonatelier #relaxedluxury #chronicallyfabulous #londondressdesigner #happilyeverafter #blushweddingdress #luxurybridal (at St. Peter’s Basilica) https://www.instagram.com/p/ChUN69jsA9z/?igshid=NGJjMDIxMWI=
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sexyandsymptomatic · 2 years
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I feel like the mental impact of being chronically ill is not talked about as near enough as it should be. Our lives are turned completely upside down by something beyond our own control. We constantly wonder “is this it?” “Will it ever get better?” “Is it going to get worse?” On the bad days, we survive from moment to moment. We wonder whether we’ll actually get through the day. We grieve for our old lives & who we used to be. We feel like a completely different person. Our confidence is impacted. We can often feel worthless & like we’ve failed. We feel like giving up. Every single day is a massive struggle.
But because this is our life & this is our normal, or new normal, we’re expected to just “get on with it.”
So based on all of that, I just wanted to say that you are NOT worthless. You are not a failure. You are extremely strong. You’re actually stronger than most. Most people wouldn’t be able to deal with all that you do on a daily basis. You wake up every single day & put up a fight. An endless fight. An unpredictable fight. A never ending fight. But you still do it. You’re amazing, you’re beyond strong & you should be very proud of yourself xxxxx
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frillability · 1 year
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10 January 2023
Dress: DÔEN
Bodice: El Costurero Real
Being able to dress adaptively and in a way that makes me feel happy, aesthetically, is a constant battle as a disabled person. When I'm able to achieve both at the same time, I feel at ease, like I can breathe again. 🌸
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bpdmummyto1 · 2 years
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💙💙 Having a chronic illness or more than one not only feels like someone stole your identity, it feels like they stole everything from you as nothing is the same anymore and that is hard to come to terms with! 💙💙 . . Photo credit to @itsmychroniclife . . 💙💙 . . . . . . . . . #relatablecontent #chronicillnesshumor #chronicallyfabulous #sickchick #sickaf #chronicbadass #chronicallyawsome #invisbleillnessawareness #healthmemes #symptoms #spoonielife #chroniclife #sicklife #disabledlife #endometriosis #invisbleillnesswarrior #endometriosisawareness #endometriosisuk #millionsmissing #chronicpainwarrior #chronicfatiguesyndrome #chronicillnesslife #chronicillnesscommunity #spooniecommunity #endocommunity #addisonsdisease #endosisters #addisonsdiseaseawareness #mentalhealthawareness #bpdwarrior (at United Kingdom) https://www.instagram.com/p/Cg2UPJVreO_/?igshid=NGJjMDIxMWI=
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lovesick-art · 1 year
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Been working really hard this month to be in the top 1% of alt model creators by Christmas!
Hopefully this week I'll get blessed with a few low back pain days so I can work extra hard and take loads of photos!
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tanyx-india · 2 years
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Wireless and Portable Pain Relief Device for chronic pain
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Pain is very common in all age groups. To get rid of pains, Tanyx is best for you because It is Wireless and Portable pain relief device based on TENS technology. It is easy to use, easy to carry, and easily available in the market. Tanyx will help in acute and chronic pain, joint pain, all types of muscle pain, back and neck pain, and complete body pain.
Visit: - https://www.tanyx.in/collections/pain-therapy
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jaythebimboy · 2 years
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I am deciding that the next doctor to say something along the lines of “are you sure it’s not just *insert thing*?” Will be punched.
That is all I had to say thank you.
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vix-the-star · 1 year
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Well that was lots of fun! @clued_upp Alice in Wonderland game. Thoroughly recommend for a fun game. Loved dressing up. #QueenOfHearts #MadHatter #MyJaberwocky #OffWithTheirHeads #CluedUppAlice #DisabledAndCute #DressingUp #WheelyFun #CoupleGoals #CrippingQueer #ChronicallyFabulous #WheelyGoodLife https://www.instagram.com/p/ClbaDO1MXyE/?igshid=NGJjMDIxMWI=
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