chronically ill/physically disabled people, how do you deal with doctors appointments? what do you say/do to advocate for yourself? im autistic and not diagnosed with a chronic illness yet and i really struggle to know what to say to get them to listen to me and understand so that i can get the help and care i need. even if i bring someone with me, they also need to know what to say and i don't know anyone who understands well enough to explain to the doctor for me, which means that i have to tell them what to say before going. but that's the problem since i just don't know.
i have chronic joint pain that ive had for years but has only gotten worse over time. i also have hypermobile knees which are the worse they've ever been right now. i'm chronically fatigued and barely have the energy to eat and do basic hygiene. i have a few friends that i talk to fairly regularly and im very thankful for them but i still struggle so much with maintaining a social life when i cant even maintain my own physical wellbeing. i only go outside when i absolutely have to/when my pain is low enough and i have enough energy. on average i probably leave my house about once or twice a week, usually to go to medical appointments, to an internship i have once a week or to go grocery shopping. i usually try to do both at the same time if i can (like going grocery shopping after my internship) but most of the time i have to ask my parents to get me groceries since i dont have enough energy to. all i want is to be able to go outside just to take short walks and enjoy nature and the fresh air but i can't do so without the right treatment/a mobility aid. everything im doing right now is bordering the line of too much. im constantly tired and overwhelmed and everything feels like a struggle, even the smallest tasks most people do everyday without thinking twice about it.
i have almost only had bad experiences with doctors and other medical professionals like physiotherapists, which has given me a lot of extra anxiety on top of my already pretty bad social anxiety. i really struggle to make appointments and even more so to go to them, and when i bring myself to do so i really struggle to express myself and explain how i feel and how i want them to help me. i almost always get shut down and offered no actual help with any of my problems. i just don't know what to do anymore.
if anyone has any advice i'd really appreciate it. i know that i can't give up because my life right now without accommodations is too miserable, but i also don't know how to move forward.
sorry if this was hard to understand. i really tried my best to explain but im having a bit of a hard time expressing myself right now due to feeling worse than usual.
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hey
Tw: toxic perceptions ig
So i've been figuring my gender out lately and it's a soup, to put it that way
I mostly feel neutral, usually, like I don't think of myself as anything.
But then the way others perceive me shows up (im afab) and ohhh holy crap
I have a rather androgynous presentation and... yeah people get judgy( 'come on you're a girl!! Act like it!') And thats when I realise: no im not a girl
But there are also days when i dont care and just go "yeah i could"
And then there are days when I snap, hearing that.
And then there's also genderfuck culture and me loving to play around with my presentation and sometimes I just dunno anymore
I want to be able to show up like a freaking masc vagabond one day, all overshirts and layers and cargo loose jeans and stubble
Then I want a nice tight classy red dress and makeup and roses and dancing and stuff
The problem here might be with gender roles i learned/ i could be nonconforming cis and thats it
It's so confusing idk anymore
Identity basis: im fucked up I dunno
Now, ik this is messy and im sorry if it's triggering and I didn't mark it correctly
But opinions?
Also some fashion tips plssss
Tyssm
I feel you match the label genderfluid pretty well, but if that doesn't feel comfortable to you, my look into genderflux, or identities along that nature.
Some fashion tips: Sports bras if you can't get binders. I only recommend wearing two at once if you're going to wear more than one, but they make your chest look smaller. Also BAGGY SHIRTS. Baggy shirts are your best friend for chest dysphoria. You can also look up some makeup tutorials to look more masculine if you do makeup. I don't really get bottom dysphoria, so I don't know how to help there, but I hope the rest of the post was helpful
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dude my billy brainrot is so bad rn!
anyways, ok so the band and muse go to a party, and this time billy is in a good mood and is obsessed with her. hes being really clingy and is just so in love with her. but then eddie starts flirting with her and says "you could do so much better than him". billy finds out and him and eddie almost get in a fist fight. but after eddie and billy almost fight billy goes to his muse and is all like "im sorry baby, i couldnt handle what he was saying, i really hope you know that i love you" and they fuck. but then the next day he is avoiding her a bunch and getting touchy with the other groupies and she is like "should i have listened to eddie?" i feel like this would happen earlier in their relationship before muse knows the cycle her and billy always go through
-🦋
billy dunne is literally my life
you're basically wrapped around billy the entire night, you both do a line off of each other, share drinks, it's like he's in a haze of just being entranced by you. he cannot stop kissing you, his arms wrapped securely around you, you're basically on his lap all night.
"I'm gonna write you a whole album, baby." and the feeling of his voice so near your neck makes you giggle which just makes him smile, "what?"
you shake your head smiling, "nothing." he keeps looking at you expectantly which makes you laugh again, "nothing! billy, I just-"
"you don't believe me? oh, that's what this is, you don't think I'm telling the truth!" somehow he's holding you tighter, his smile, the way he jokes makes your head fuzzy, well so does the drinks, but he does a number on you. the way he laughs, smiles, it's addictive.
"no, no, no, I do, I swear, scout's honor!"
"I think that only applies to actual boy scouts, baby."
"shut up" you kiss him and his lips make you dizzy, just as yours make him. when you finally pull apart he's just holding your face for a while.
"god, you're stunning, do I tell you that a lot? because you're so pretty. can I do another line off of you?"
you just rasp out a, "yes" and you've forgotten how public you are really at a party when you let him adjust you enough to do a line of your cleavage.
"let me go get us another drink, baby, I'll be right back."
"okay." you're smiling, adjusting your shirt as he squeezes your hand before he's off. no sooner is he gone then eddie is appearing
"he's only being that way for now, you know" he's drunk, you know he is to be so openly digging at billy like that.
"eddie-"
"two weeks ago he was doing lines off of some other chick's rack-"
"he didn't mean that eddie."
"he didn't mean what he did?"
"he fucked up, it was a mistake, eddie, it doesn't change anything."
"you don't deserve that." eddie is leaning closer over the couch rest, "you deserve better than him, the first guy you saw at the concert."
you stare back at him for a while, "eddie, if you think you could treat me so much better, you'd let me enjoy my night. which I was."
"one night is all he'll give you before he decides you're not that special anymore-"
"what the hell are you talking about, man?" billy is making his reappearance and you know eddie must be even more drunk when you thought when he doesn't even really try to cover.
"use your imagination." and eddie's words have barely escaped his mouth when billy's punched him in the face. eddie stumbles back for a second, but punches billy back and you've leapt up to get between them. and eddie's looking at you, shaking his head like he's done, and walking out. "whatever, man"
"eddie!" you're shouting, but he's gone, and you have other things to worry about. "billy, oh my god are you okay?"
"I'm fine, god, we need to find a new fucking bassist"
"don't do that, gimme your hand." you're looking at his knuckles and he's entranced by the way your brows furrow. "you can't just punch someone everytime they bruise your ego." his hand is suddenly moving to tilt your chin up, where he's smiling in disbelief.
"baby, that's not why I punched him." you're unamused by this. "I'm serious! baby, I did it because he was talking about you. acting like I didn't care about my girl. the girl I love."
"you love me?"
he looks dumbfounded by the question, "I just write all my songs about you, you basically live with me, I need you like air, so yeah, I do."
"that's good because I am so in love with you."
"this would be pretty awkward if you didn't." and next thing you know he's got you back at the house, laying on his bed as he proves it to you, it's really not fucking, it's raw, it's love making, and he makes you feel so appreciated.
that's until you wake up, and he pulls himself away just when you try to put an arm on him when you've woken up. he gets up, showers without a word, gets dressed, only says morning back when you say it, and walks out of the room. suddenly you feel like a one night stand, someone he never wants to see again, and there's a pit in your stomach. he knows it's because saying love has scared him, but he can't communicate that, he's just got to be destructive.
breakfast is him laying out instructions for everyone, moving away every time you try to get close, at some point you try to take a drag off his cigarette and he looks unbelievably annoyed which just shuts you down. and the ride to the studio is unbearably quiet, it makes you want to cry the way he doesn't acknowledge you.
it's gets worse at the studio when he doesn't acknowledge you at all and during a break is talking to the groupies, laughing, doing lines, having a drink, hands on them, and you do a line to deal with it before sitting back in the emoti studio so you don't have to deal with it. it's so fucking confusing. you're laying on the studio carpet when eddie walks in, looks at you, and lays down too.
you feel the energy of 'i told you so' radiating off of him, "eddie-"
"are you okay?"
there's a beat, "he told me loved me last night." another beat, "is this what it feels like to be loved?"
and he's rolling onto his side to look at you, "no."
you wish you didn't start crying, "then what did I do wrong since then? why is he doing this to me, I don't know why I'm not good enough."
"you are, he's too fucking stupid to notice what he's got right if front of him." and he's lighting a cigarette, handing it to you, "let's go to the record store, find something to listen to later. we can use my record player, you know it sounds better on mine."
and you do exactly that and wonder if maybe this is what it feels like to be loved, but it doesn't take away the desire your soul has for billy dunne. even if it makes you think that eddie could love you better.
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