Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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I'm seeing some frustration over fandom creatives expressing anger or distress over people feeding their work into ChatGPT. I'm not responding to OP directly because I don't want to derail their post (their intent was to provide perspective on how these models actually work, and reduce undue panic, which is all coming from a good place!), but reassurances that the addition of our work will have a negligible impact on the model (which is true at this point) does kind of miss the point? Speaking for myself, my distress is less about the practical ramifications of feeding my fic into ChatGPT, and more about the principle of someone taking my work and deliberately adding it to the dataset.
Like, I fully realize that my work is a drop in the bucket of ChatGPT's several-billion-token training set! It will not make a demonstrable practical difference in the output of the model! That doesn't change the fact that I do not want my work to be part of the set of data that the ChatGPT devs use for training.
According to their FAQ, ChatGPT can and will use user input to train itself. The terms and conditions explicitly state that they save your chats to help train and improve their models. (You can opt-out, but sharing is the default.) So if you're feeding a fic into ChatGPT, unless you've explicitly opted out, you are handing it to the ChatGPT team and giving them permission to use it for training, whether or not that was your intent.
Now, will one fic make a demonstrable difference in the output of the model? No! But as the person who spent a year and a handful of months laboring over my fic, it makes a difference to me whether my fic, specifically, is being used in the dataset. If authors are allowed to have a problem with the ChatGPT devs for scraping millions of fics without permission, they're also allowed to have a problem with folks handing their individual fics over via the chat interface.
I do want to add that if you've done this to a fic, please don't take this as me being upset with you personally! Folks are still learning new information and puzzling out what "good" vs. "bad" use is, from an ethical standpoint. (Heck, my own perspective on this is deeply based on my own subjective feelings!) And we certainly shouldn't act like one person feeding a fic into ChatGPT has the same practical negative impact, on a broad societal scale, as a team using a web crawler to scrape five billion pieces of artwork for Stable Diffusion.
The point is that fundamentally, an ethical dataset should be obtained with the consent of those providing the data. Just because it's normalized for our data to be scraped without consent doesn't make it ethical, and this is why ChatGPT gives users the option to not share data— there is actually a standardized way (robots.txt) for website servers to set policies for how bots/crawlers can interact with them, for exactly this reason— and I think fandom artists and authors are well within their rights to express a desire for opting out to be the socially-respected default within the fandom community.
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all the rise boys get done dirty on characterization by fandom in different ways i think. (not ALL the time every fanwork etc etc these are just like, trends i tend to notice?) every fandom suffers from losing character nuance.
- leo i’ve talked about plenty on this blog, how some of his canon traits (genuine belief in his skill and cockiness, capacity for joy, his manipulativeness whether for good or ill) seem to get watered down or wiped off the board and supplemented with generic sad boy. his struggles with purpose and identity and not wanting to fail somehow morph into “he hates and completely holds no value for himself”
- donnie’s canon personality gets blurred out and largely replaced with whatever list of Neurodivergent Traits. and i think there’s such a fine line to walk between exploring a character that’s been word of god confirmed as on the spectrum and overwriting what’s canonically there. it’s a hard needle to thread. it also feels like a lot of his canon emotiveness gets left off the table for some reason. bc he does have his moments of flat/deadpan delivery, but a lot of the time he’s honestly very emotive. he has the passion of a theatre kid and the vindictiveness of... also a theatre kid. and the mind of a scientist.
- raph loses so much of his rowdy teen boy energy it’s kind of wild? like interpretations sand off that he’s also impulsive and can be reckless and dumb and LOVES fighting and roughhousing and isn’t the most eloquent person. suddenly there’s this pitch perfect soft boy big bro who would never hurt a fly and always says the exact right supportive thing and singlehandedly raised his 3 brothers (which simultaneously sands off all the nuance of splinter’s issues emotionally connecting with his sons and how that affected all of them). and like i LOVE raph, he’s so full of love and care and anxiety, he clearly has learned to put a lot of work into being aware of his strength and size. but there’s a difference you know?
- mikey is like. where raph gets overparentified by fanon, mikey gets over “family therapist”-ed IMO. the impulsiveness, the goofiness, the powerful emotions including a VERY powerful temper, the flat-out dumb teen boy choices... they get ignored. suddenly there’s this only very sweet and earnest boy who has read a hundred psychology books and runs group family therapy weekly or something. he is crying in his room bc leo and raph are arguing about something. which is so. he IS very sweet and can be very earnest and is full of love! he HAS come in with his opinions and unsolicited advice a couple of times and life coached for the greater good. but there’s a difference between what he does in canon and the role he gets in fanon.
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