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#medical humanities
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Portrait of a child with Buruli ulcer by @claire_carswell
This is caused by an infection with mycobacterium ulcerans.
Buruli ulcer often starts as a painless swelling (nodule), a large painless area of induration (plaque) or a diffuse painless swelling of the legs, arms or face (oedema). The disease may progress with no pain and fever. Without treatment or sometimes during antibiotics treatment, the nodule, plaque or oedema will ulcerate within 4 weeks. Bone is occasionally affected, causing deformities.
This neglected tropical disease has been reported in 33 countries but transmission (and prevention) is poorly understood, and it is a very under-researched disease
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brandyschillace · 6 months
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The invisible work of accessibility
Greetings, #medicalhumanities, #socialjustice, #accessibility #diversity and #disability folks. I was recently interviewed about the often invisible and thankless work that goes into real equity & ethics + why academic and medical systems struggle to own up to #racism. youtu.be/Ptf99gSfJKQ?... ♿️🗃️🧪🩺
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phdpedestrian · 1 year
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My autoimmunity is in full swing and so is “Malady Magnet”
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intrainingdoc · 9 months
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New on in-House, a captivating piece exploring the interconnectivity of dance and non-verbal communication in the ICU. The piece is authored by The Aseemkala Initiative - a group of brilliant activists presenting diverse dance-based narrative medicine.
https://in-housestaff.org/chinnamastas-do-not-resuscitate-order-using-classical-indian-dance-to-improve-intensive-care-unit-non-verbal-communication-2057
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melodioustear · 1 year
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On Radical Disclosure
This week, as term ended, I was at a two day workshop/conference on research ethics with regards to illness narratives. It was one of the most varied collections of people I've seen - from my fanfiction work to someone studying human remains - and yet we all had so much in common and so much to discuss.
Something that got talked about quite a bit was the issue of disclosure and positionality. For many of us in the medical humanities, our positionality in relation to the illness(es) we're studying is considered important. It's integral to my thesis. But other researchers expressed that this was hard for them, because they actively did not want to disclose their health status. It's especially awkward with some illnesses - consider those dealing with things like infertility, with STDs, with something like urinary or digestive issues.
I completely agree that no one should be forced to disclose their health status as part of their research, even though my positionality is a fundamental part of my own. There's parts of my health I don't talk about! Even still, I had an instinctual feeling of defensiveness when it was brought up, and I spent quite a lot of time thinking about why that is.
My conclusion was this: for me, disclosure is a radical act. I have two sides to my disability, the chronic pain/fatigue side and the mental/neurodivergent side. Both sides are things that I have been taught (primarily by ableism) to repress. I'm a woman, so my pain is dismissed. I've had instances in the past where people have told me to stop sharing my emotional distress, because I was being too depressing and no one wanted to hear that much of it. There is a near constant voice in my head saying that I should not take up space, be seen, express my pain.
By centering my experience, by talking about that experience, by allowing it to exist out in the world, I am - essentially - giving a giant fuck you to that voice. To the ableist world that thinks that I should vanish into nothing, and the parts of my Madness that parrot that. In a way, it's the very thing I did in response to the chronic and traumatic bullying I experienced as a child: being more loudly, more proudly the very thing that they said I was.
People should absolutely choose whether to disclose things or not, be that in research or in general. I believe this wholeheartedly. But we need, also, to recognise the rebellion inherent in disclosure for many disabled and Mad people. To acknowledge how brave it is to shout your existence into a world that tries to eradicate it. To hold space for both disclosure and non-disclosure, and everywhere inbetween.
Grateful for the workshop & participants giving me the thinking space to process this, the inspiration for the realisation, and also Alice Wong for Year of the Tiger, which I was reading alongside this and helped me process it a lot too.
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ruporas · 1 month
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dragon meat, you, and me
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biomedres · 11 months
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Current Research Progress on Pharmacological Activities and Clinical Application of Guhan Yangshengjing
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Current Research Progress on Pharmacological Activities and Clinical Application of Guhan Yangshengjing in Biomedical Journal of Scientific & Technical Research
https://biomedres.us/fulltexts/BJSTR.MS.ID.006072.php
Guhan Yangshengjing (GHYSJ) is based on the essence of the bamboo slips “Healthcare Prescriptions” and “Endo-meridians” from the ancient tombs of the Western Han Dynasty in Mawangdui, Li Congfu, Liu Bingfan, and Ouyang Qi of the Hunan Academy of Traditional Chinese Medicine, condensed a compound recipe with their decades of clinical experience. GHYSJ,, composed of a variety of Chinese herbal medicines, has the efficacy of invigorating the kidney for strengthening the spleen, tonifying qi for benefitting essence, which is used for dizziness, palpitations, dizziness, tinnitus, forgetfulness, insomnia, impotence and spermatorrhea and fatigue and weakness caused by deficiency of qi and yin and insufficient kidney essence [1]. GHYSJ has been put into production since 1986,of which two dosage forms, oral liquid and tablets are developed with multiple specifications and models, which can meet the purchasing needs of different groups. In the process of longterm clinical application, it has been found that GHYSJ also has a good effect on many other diseases, such as atrophic gastritis, coronary heart disease, alopecia areata, chloasma, hypotension, Meniere’s syndrome, senile habitual constipation and menopausal syndrome [2].
For more articles in Journals on Biomedical Sciences click here bjstr
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teachingrounds · 1 year
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We'll end this week of #poetryinmedicine with a meditation on the body as an archive of the past.
"Ash," by Tracy K. Smith
Strange house we must keep and fill.
House that eats and pleads and kills.
House on legs. House on fire. House infested
With desire. Haunted house. Lonely house.
House of trick and suck and shrug.
Give-it-to-me house. I-need-you-baby house.
House whose rooms are pooled with blood.
House with hands. House of guilt. House
That other houses built. House of lies
And pride and bone. House afraid to be alone.
House like an engine that churns and stalls.
House with skin and hair for walls.
House the seasons singe and douse.
House that believes it is not a house.
Tracy K. Smith was a United States Poet Laureate. Image credit: Toby Alter, An abandoned farm house in White Marsh, Virginia (1983)
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wackarat · 1 month
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-and the doctor was never heard from again!
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intersectionalpraxis · 4 months
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This is what Farouq looks like after severe medical neglect. This is when he reunited with his family. He is severely ill:
Palestine Captives on X, shared some of his story.
⚠️tw: torture, medical abuse and neglect, solitary confinement⚠️
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As someone pointed this out already -Western media will STILL paint the IOF as a 'democracy.' This is beyond evil and inhumane. I hope for Farouk's recovery, and for ALL Palestinian prisoners to be released.
UPDATE! For those reading this on or after January 6th, -Farouk received his first round of chemotherapy. I hope the best for Farouk ❤️
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inkskinned · 3 months
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you have to go to work so you can pay for your doctor, who is not taking your insurance right now, and if you say i can't afford the doctor's you are told - get a better job. it is very sad that you are unwell, yes, but maybe you should have thought about that before not having a better job.
(where is the better job? who is giving out these better jobs? you are sick, you are hurting - how the hell are you supposed to be well enough for this better job?)
but you go to the doctor because you had the nerve to be hurt or sick or whatever else. and they tell you that it is because you have anxiety. you try your best. you are a self-advocate. you've done the reading (which sometimes pisses them off worse, honestly). you say it is actually adding to my anxiety, it is effecting my quality of life. so they say that you are fat. they say that all young people have this happen to them, isn't it a medical marvel! they say that you should eat more vegetables. they say that you probably just need to lose a little more weight, and that you are faking it for attention.
(what attention could this doctor possibly give? what validation? that's their fucking job, isn't it?)
there is always a hypochondriac, right. someone always tells you about a hypochondriac. or someone who is unnecessarily aggressive during the worst days of their life. or someone looking "for a quick fix". or some idiot who wasn't educated about how to properly care for themselves who just abandons their treatment. and again, the hypochondriac, the overly-cautious hysteric. these people don't deserve to be treated like humans (right), and since you might be one of these people, you also don't get treated like a human. because those people can really fuck with the system, you now have to pay for it. and besides. you're actually probably faking it.
(more often than not, you find a 2:1 ratio of these stories. for every "hypochondriac", there are 2 people who knew something was wrong, and yet nobody could fucking find it. the story often ends with pointless suffering. the story often ends with and now it's too late, and it's going to kill me.)
you are actually just making excuses. someone else got that procedure or that diagnosis and he's fine, you should be fine too. someone else said they watched a documentary about other inspirational people with your exact same condition, maybe you should be inspirational, too. you're just too morbid. your pain and your experience is probably just not statistically concerning. it is all self-reported anyway, and you're just being a baby.
(once, while sitting down in the middle of making coffee, you had the sudden, horrible thought - i could kill myself to make the pain stop. you had to call your best friend after that. had to pet your dog. had to cry about it in the shower. you won't, but that moment - god, fuck. the pain just goes on and on.)
you know someone who went in for routine surgery and said i still feel everything. they told her to just relax. it took her kicking and screaming before they figured out she wasn't lying - the anesthetic drip hadn't been working. you know someone who went in for severe migraines who was told drink water and lose weight. you know someone who was actively bleeding out and throwing up in the ER and was told you're just having a bad period.
in the ER there are always these little posters saying things like "don't wait! get checked today!" and you think about how often you do wait. how often the days spool out. you once waited a full week before seeing the doctor for what you thought was a sprained wrist. it had actually been broken - they had to rebreak it to set it.
but you go into the doctor. the problem you're having is immediate. the person behind the counter frowns and says we're not taking your insurance. you will be paying for this out-of-pocket.
they send you home with tylenol and a little health packet about weight loss or anxiety or attention deficit. on the front it has your birthday and diagnosis. you think about crying, and the words swim. it might as well say go fuck yourself. it might as well say you're a fucking idiot. it might as well say light your money on fire and lie down in it. and the entire fucking time - the problem persists.
it's okay. it's okay, it's just another thing, you think. it's just another thing i have to learn to live with.
#spilled ink#warm up#can you tell what i'm mad about today specifically#i will say that there are a LOT of things that go into this. like a lot. this is ungendered and unspecific for a reason#it isn't just sexism. it's also racism. and ableism. and honestly classism.#and before a healthcare professional reads this as a personal attack: i understand ur burnt out#we are ALSO burnt out. your situation is also dire. this is not an attack on you.#this is a commentary on the incredible amounts of bigotry that lie at the heart of capitalism#where people have to pay money out of pocket to be told to fuck off.#your job is important. so is our humanity. and if you cannot accept that people are fucking mad as hell#at the industry - you are probably not listening .#anyway at some point im gonna write a piece about sexism specifically in medical shit#but i don't want terfs clowning in it bc they can't understand nuance#> it is true that ppl w/a uterus are more likely to experience medical malpractice & dismissal globally#> it is also true that trans people experience an equally fucked up and bad time in the medical field#> great news! the medical industrial complex is an equal opportunity life ruiner :)#(if you find it necessary to go into a debate about biology while discussing medical malpractice#i want to warn you that you're misunderstanding the issue. because guess what.#cis MEN might experience this. particularly black men. particularly disabled men.#so YES having a uterus can lead to more trouble for you. but this happens a LOT.#instead of fighting those ALSO experiencing your pain.... try working WITH them.#which btw. is like. actual feminism.)
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Illustration of Hansen’s disease, better known as #leprosy by @claire_carswell
It is caused by a long-term infection with mycobacterium leprae.
Hansen’s disease causes nerve damage, meaning that people experience repeated injury and infection to their extremities, leading to reabsorption - marked by shortening or loss - of their fingers and toes.
Hansen’s disease has a horrible history of stigmatisation, despite not being a very contagious disease, and is easily treated today. Unsurprisingly it is a #neglectedtropicaldisease - and predominantly impacts people in India, Brazil and Indonesia.
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nerdpoe · 3 months
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Superboy wakes up in a prison. In the cell, sitting across from him, there's a teen that looks like another offshoot clone of Clark.
He learns in bits and pieces that he's been captures by a shadow government organization hellbent on ridding the world of anyone "ecto-contaminated", or anyone who has ever been dead.
Since he'd died before, even though he came back, he set off their sensors.
He doesn't remember how he got caught, doesn't remember what he was doing prior, but the walls are made of a weird material that glows green and cancels out his powers. It also doesn't hurt him.
Diluted kryptonite? He'll have to steal some and give it to Tim.
According to the kid, they've been forcibly detained to "serve their sentence for illegal immigration from the Realm of the Dead to the Realm of the Living" by way of routinely allowing themselves to be subjected to medical procedures. They are always being watched, they aren't the only ones captive, that apparently his entire high school had been condemned to it as well as some literal ghosts, and if he struggles then they won't give him the mercy of sedation while they do their experiments.
And Kon can't use his power to escape, or free this kid, or free any of the other prisoners. It's the worst case scenario.
Thank fuck he's best friends with a paranoid Bat that might have more contingencies than the Big Bat Himself.
Kon activates the only subdermal tracker he'd allowed Tim to place under his skin, and settles down to wait.
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A prison of this design, but more high tech and with less privacy. Apparently the idea behind it was that you couldn't see the guards, but they could see you, and the lights would move at random to make you think they were paying attention all the time.
So psychological torture on top of imprisonment.
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thoughtportal · 1 year
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stop telling people to ‘just move’
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intrainingdoc · 11 months
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We are proud to announce the publication of the next Pager Publications, Inc. print book, Girl In A Bowtie: Lessons of a Pediatric Resident, by Dr. Ogie M. Ezeoke.
The book is currently on sale: https://tinyurl.com/girlinabowtie
Join pediatric cardiology fellow Dr. Ezeoke, the Girl In A Bowtie, in her residency adventures in the big hospital by the sea. From pages to potassium to the angry airway, each chapter is a lesson in the art of medicine and the wonder of pediatrics.
All members of Pager Publications, Inc. are unpaid volunteers, and all book proceeds go to support the website hosting costs of our fellow online peer-managed publications, including in-Training.
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melodioustear · 1 year
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Hello Rebecca! My name is Hana and I'm interested in pursuing a PhD involving fan studies and would love to know more about how you started your research! It's so inspiring seeing other people academically working in a field I'm passionate about! I would love to see how your research has been going with madness and fandom as well!
Hi Hana! Thank you so much for your ask <3
My BA was in English Language and Literature where I focused on Shakespeare and gender studies with my electives. My dissertation for it was on Madness in Shakespeare's women characters (Ophelia, Lady Macbeth etc). No hint of fan studies in it at all.
My MA, which I had the misfortune to start in 2019 (not knowing how 2020 would go), was actually in Creative Writing. But what ended up securing my deviation back into research was the electives I took in the Medical Humanities and Disability Studies. I also developed a physical disability whilst doing my MA, so my interests cemented themselves very rapidly.
I applied for my PhD very early on in that MA. Here in the UK, humanities PhDs are generally three years long and involve you writing a single thesis. Mine is a max of 90k words, and as I'm part-time I'm doing it over six years. To apply for a PhD place I applied specifically for my project, so the bulk of the application process was creating a thesis proposal.
I did this over Christmas 2019, alongside doing two major assignments for my MA, which I definitely don't recommend. I secured a supervisor in the form of my Medical Humanities lecturer - this is the most important step, in my opinion. You need to be able to work really well with your supervisor and be comfortable with them. Mine is absolutely amazing. She helped me a lot with the application process too.
This application that I did included stating that I was going to study fanfiction as part of it. I was initially reticent to include it because I've been in English departments before where you mention the word fanfiction and suddenly everyone wrinkles their nose up. But my supervisor has been nothing but enthusiastic about it. It definitely helps that my field (Med Hums) is very transdisciplinary and open to 'weird things'.
Once I had a place I then started applying for funding - some apps are done concurrently, others after the fact. I ended up not getting funding at all initially, but I was very lucky to be able to self-fund thanks to my husband's income & support. I have since had government funding open up to me, which does not pay me a wage, but does at least pay my fees.
I hope that helps answer your question! Thank you again for the ask, it means so much to me to have people engage with my work.
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