#als

[caramello-styles]

actually I’m gonna combust

#don’t ask me how I’m doing #delish #als

[whumperer-86]

Angels fall sometimes ep16

He fell down because of his ALS disease and his best friend rushed him to the hospital

#whump #whumper #asian whump #emotional whump #suffering #drama #whumpee #asian whumper #bromance #chinese drama #Angels fall sometimes #lin yi #injured #hurt #sick male lead #illness #ALS #disease #brothers #best friends #whump community #whump comfort #whump concept #whump compilation

[coolerthancats]

My Little Brother Got Diagnosed With ALS

Please donate if you can, right now he's trying to get a wheelchair

👍👍

#Rory Hart #ALS #JALS #juvenile ALS #fundraiser #donations #gofundme

[eretzyisrael]

Good News From Israel

In the 25th Feb 24 edition of Israel’s good news, the highlights include:

IDF soldiers can fly for free on Israel’s National Airline.

Some “amazing but true” stories from Gaza.

Clinical trials show Israeli ALS therapy slows cognitive decline.

Three Israeli ag-tech innovations that could prevent world hunger.

Europe is investing in Israeli green technology.

Israel had international success at swimming, weightlifting and 4 more sports.

A 2000-year-old stone box was unearthed on Jerusalem’s Pilgrim Road.

Read More: Good News From Israel

In Israel, we're slowly seeing the country emerge from one of the darkest times since the Holocaust. Evacuees are returning to their homes in the South as the threat from terrorists in Gaza is being eliminated. The transformation from darkness to light is reflected in much of last week's news. The dark days of displaced Israeli families have been made a little brighter thanks to donations and kind hosts. A wounded Fauda TV star has been able to see the light of day after being discharged from hospital.  A Hamas terrorist emerging from a dark tunnel shaft with a bomb was seen just in time. And from the dark despair after seeing Hamas murder his wife, a brave, stateless Bedouin and his nine children can have a brighter future as permanent residents of Israel. The usual weekly Israeli medical breakthroughs give brighter prospects for ALS and PTSD sufferers, heart patients, and pregnant mothers in Brazil. The winter sun is shining on Israeli agricultural innovations with climate-resistant seeds, plant propagation breakthroughs, and sun-dried tomatoes on the vine. Meanwhile, Israeli technology is revolutionizing the taking of photos in poor light. Finally, Israel celebrated some shining sporting results; a 2,000-year-old unique stone box, found near the ruins of the Temple in Jerusalem, is now seeing the light of day; and an Israeli fashion designer played the Israeli National anthem Hatikvah in New York, to accompany the showing of his Autumn collection, aptly entitled "Illumination of Hope".  Let's hope that the rest of the world also "sees the light". The photo (TY Sharon) is of an illuminated Jerusalem street during the Shaon Horef (Winter Noise) festival.

#ALS #Bedouin #Brazil #climate #diabetes #El Al #Ethiopians #evacuees #Fauda #Gaza #good news #Hamas #Houthis #IDF #Israel #Jewish #PTSD #Qatar #Teva #volunteers

[allthecanadianpolitics]

Sathya Dhara Kovac, 44, chose to die this week, even though she didn't want to go just yet.

The Winnipeg woman's death was facilitated by professionals through Manitoba's medical assistance in dying program.

Kovac lived with amyotrophic lateral sclerosis, a degenerative disease that took her mother, grandmother and uncle. Her condition was worsening, but she felt she had more life to live — just not enough home care support to do so.

"Ultimately it was not a genetic disease that took me out, it was a system," Kovac wrote in an obituary to loved ones.

"There is desperate need for change. That is the sickness that causes so much suffering. Vulnerable people need help to survive. I could have had more time if I had more help."

Continue Reading.

Tagging: @politicsofcanada

#MAID #ALS #cdnpoli #canada #canadian politics #canadian news #canadian #Eugenics #Homecare #Ableism #Healthcare #death tw

[newyorkthegoldenage]

On May 2, 1939, Lou Gehrig took himself out of the Yankees' lineup, ending his consecutive string of 2,130 games. He was suffering from amyotrophic lateral sclerosis (ALS), a neurodegenerative disease that would take his life two years later.

Photo: Associated Press via MLB.com

#vintage New York #1930s #Lou Gehrig #NY Yankees #baseball #ALS #2 May #vintage baseball #baseball streaks #May 2

[mindblowingscience]

Important signaling molecules called phospholipids are active throughout cells in small compartments called condensates, rather than functioning primarily in cell membranes as previously thought, according to a study from researchers at Weill Cornell Medicine. The finding helps open a new avenue of investigation in cell biology and may also be relevant to the study of neurodegenerative diseases such as amyotrophic lateral sclerosis (ALS) and Alzheimer's disease. Condensates in cells, also called biomolecular condensates, behave like oil drops within water. They are made of proteins, and often RNA molecules, that have weakly conglomerated to form distinct globules in the cell. These globules form compartments with chemical properties that differ from those of the surrounding, watery interior of the cell.

Continue Reading.

#Science #Biology #Chemistry #Cells #Medicine #Alzheimers #ALS

[bpod-bpod]

Neurotoxic Relationship

Lab-grown neural network model bearing dysregulated TDP-43 protein – a feature of neurons in certain neurodegenerative diseases – reveals accumulated NPTX2 protein, that is confirmed in the brains of patients with amyotrophic lateral sclerosis and frontotemporal lobar degeneration. NPTX2 could thus represent a novel therapeutic target

Read the published research article here

Image from work by Marian Hruska-Plochan and colleagues

Department of Quantitative Biomedicine, University of Zurich, Zurich, Switzerland

Image originally published with a Creative Commons Attribution 4.0 International (CC BY 4.0)

Published in Nature, February 2024

You can also follow BPoD on Instagram, Twitter and Facebook

#science #biomedicine #immunofluorescence #neuroscience #biology #brain #ALS #lou gehrig's disease #motor neurone disease #mnd #amyotrophic lateral sclerosis #neurons #organoid

[pinkelotjeart]

hi so a few days ago I came up with an Idea and I came here to share said idea >:3

And with Recent Developments (jack, celia waking up in the middle of the night and being unaware of herself, all the lying, etc) I am Very Intrigued where this is going

YESS!!! I’ve been associating Celia with Agnes from the beginning because of the Fire ghost thing.

The thing is, Agnes died because she needed to pass on the flame so they could retry the ritual. This then never happened to our knowledge- but what if the flame was actually passed on to Celia after being in contact with the fire ghost (who was hanging in her apartment)

Like there’s definitely SOMETHING there. And I am FOAMING AT THE MOUTH.

#thank you for the asks btw!! #als #the Magnus protocol #tmagp #Celia Ripley #agnes montague

[sleep-safe]

people who need assistance to use the bathroom are cool and normal and awesome and i mean this genuinely with no exceptions.

#disability pride #disability #activities of daily living #support #high support needs #als #cp #mine

[whumperer-86]

Angels Fall Sometimes ep15

#Chen Guang Pu #whump #whumper #asian whump #emotional whump #drama #suffering #whumpee #asian whumper #bromance #chinese drama #medical whump #whump prompt #whump tropes #medical procedure #ALS #disease #angels fall sometimes

[floridaboiler]

Lou Gehrig Day will be held on June 2, the date in 1925 that Gehrig became the Yankees starting first baseman, and the date in 1941 that he passed away at the age of 37.

#Lou Gehrig Day #June 2 #Lou Gehrig #ALS #Baseball

[mihqorio]

Got permission from @achilleanwizard to upload the gift art I made of his Sidestep for the Winter exchange!

I really enjoyed getting to draw this beautiful villain, thank you for letting me have my fun with this 🥰❤️

#FHR #Fallen Hero: Rebirth #Sidestep #my art #I have a soft spot for the colorfully haired sidesteps #very fun to draw #als #gorgeous head of hair #my favorite thing to draw #really happy with how that hand turned out too!!

[newyorkthegoldenage]

The Luckiest Man on the Face of the Earth bids farewell to a sold-out house of Yankee fans, July 4, 1939.

Photo: Murray Becker for the AP via TimeGoggles

#vintage New York #1930s #Murray Becker #Lou Gehrig #NY Yankees #ALS #baseball #vintage baseball #Gehrig farewell #vintage NYC

[oldbutnotyetwise]

Saying Goodbye 

    I’ve been thinking a lot lately about goodbyes.  Good goodbyes, bad goodbyes, unspoken goodbyes and final goodbyes.  I am sure there are other kinds of goodbyes but right now those are the one that come to my mind.

     People leave their home every morning to go to work and expect to return at the end of the workday, and almost all of them do.  However there are some who don’t.  A car accident, a workplace accident or some sort of health issue could all stand in the way of that safe return home.  Maybe they said goodbye to their loved ones, or maybe they left with no words, or even worse, angry words.  It is sad when people don’t get the chance to say goodbye, when suddenly someone is ripped out of their life never to be seen again.  The chance for a final goodbye stolen from them.  I know this has happened to me, and I suspect it has happened to you as well.  When someone is part of your life and then one day they are suddenly stolen away never to be seen again.  They are gone, you had unfinished business with them  that will never be finished.

     Some folks outlive their friends, end up in a nursing home alone, lost amid all those other old folks. Children or grandchildren busy with their own lives may visit occasionally but most of their days are filled with emptiness.  Most of their friends long gone now, and the one or two who remain have been abandoned by their minds and live in a world where strangers act like they are family and friends.  Some people dream of a long life but these people are tired of being alone with all these other old people. They don’t fit in anymore, they have seen and lived through things that the others haven’t.  They miss having a best friend, or really just any good friend. They sit there with their eyes closed, staff think they are sleeping but they are rummaging through the attics of their minds, searching for happy memories, or searching for their way back to a happy place. So they sit and wait until their time comes, awash in loneliness and despair.  It is like they are sitting on a bench at a bus stop. Waiting for that long overdue bus to come and take them where they need to go, wherever that may be.  They have come to the time to say goodbye, but they don’t have anyone to say goodbye to.  

     I know that these days with access to modern travel that as long as you have the money you can go back and visit family no matter where they are.  There was a time when family members would move across the world, where the young married couple would say goodbye to their parents before they got on a boat and crossed the ocean, never to see family again.  Chasing their dream of a better life in a far away place.  Imagine how the parents felt  saying goodbye to their child knowing that it was likely they would ever see them again.  What words would you say to your child, or your parents in those circumstances?

     Goodbyes are never easy, but I think some of the hardest goodbyes are the last goodbyes.  I remember caring for my Mom as she lay dying from cancer.  We knew the end was getting near and I had been sleeping in a LazyBoy chair I had dragged into her makeshift bedroom.  I needed to take a night off to study for an exam, I remember it was a Thursday night.  Some believe that a loved one often waits until they are alone to die, maybe that is what my Mom did dying in the company of a hired nurse rather than with her son sleeping at her bedside.   Although I don’t think we ever actually said the word goodbye, I think we lived our goodbye by sharing our love, stories and smiles over the last days and weeks of her life.  I suppose that was an unspoken goodbye.

     I remember getting up early one morning and driving four hours south to see my close friend Dave who was dying in a Cancer Hospital.  As soon as I saw him I knew it was the last time I would see him, and it broke my heart to seeing this proud man struggling like he was.  We said our Goodbyes, both knowing that this would be our final Goodbye, we hugged, said we loved each other and then I walked out of the room.  I stopped and stood in the doorway, my hand over my heart, tears streaming down my face and then I tipped my hat and walked out of his life.  Dave died a few weeks later, all this time later I can still picture my friend laying there in that hospital bed, both of us knowing that his story was nearing its end, and the last chapter wasn’t a pretty one.  

     So the goodbye I have been pondering a lot lately is the Final Goodbye, in this case my own.  I know it is coming, and to be quite honest I really didn’t expect to still be here now.  The fact that I am seeing spring flowers is a rather unexpected gift.  My best before date is long past. If I was a car I would have long ago been taken to the scrap yard.  I’m not sure how much longer that Robin and I can keep this wreck of a human body going.  I’m not sure how much longer I want to keep fighting.  I’m tired, Robin is tired and I’m not sure I can keep asking her to do everything that she has to do to keep me going.  Sooner or later the music has to stop, the dance has to end, the lights come on and the couple has to uncouple.  

     Friends have come from near and far to see Robin and I, and say their goodbyes.  Their love, affection and support is enough to make me think maybe I didn’t mess up this thing we call life too badly.  For the friends who came from a distance we just generally accept that this will be the last time we will see each other in person.  As the time for them to leave is approaching I feel sadness and apprehension at the final goodbye.  When you know it is your last in person goodbye you want to get it right, but what is right?  I know there will be tears on my side, my tough guy persona no longer exists.  I want to say the right words, speaking them clearly without mumbling, and say it all with shedding a tear, but it appears I am not capable of that.  Instead I say goodbye and hope that the person I am saying goodbye to knows how much I love them, despite my mumbling, despite the words not being said and despite the abundance of tears flowing down the sides of my face.

     For me personally there can be no harder goodbyes than saying goodbye to my daughter Elizabeth and wife Robin.  I am not convinced that the greatest authors or songwriters would be able to weave together a tapestry of words or music that could adequately do the job, because I just don’t think the words exist.  Even without the words I know that there is no doubt in Robin or Elizabeth’s mind about how much I love them.  

    And for those who couldn’t make it here, it’s okay….I know…. and I hope you know as well.  

“How lucky I am to

have something

that makes saying

goodbye so hard.”

A.A. Milne

#als #goodbye #final goodbye

[bespokeredmayne]

How to make Eddie’s birthday a happy one

Fans’ annual fund drive for Eddie Redmayne’s Jan. 6 birthday, is on! It’s your annual chance to support Eddie +a cause dear to him for more than a decade now, since his Oscar-winning portrayal of Stephen Hawking in The Theory of Everything.

Even if you can’t donate, please share our posts to help create awareness of this deserving organization + those affected by this devastating disease. The JustGiving link +QR code are in the graphic + below.

#eddie redmayne #happybirthdayeddie2024 #happy42ndeddie #MND Association #MND #MND VIP Team #@JustGiving #Stephen Hawking #TheTheoryOfEverything #motor Neurone disease #ALS