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#i have to ask but is “actually disabled” the tag like
A little bit of a ramble, a lot of a ramble, a trauma dump even
My entire life, I have been disabled
That's it, that's the premise of this ramble, ever since I was young I was in constant pain when I was on my feet and despite me being able to walk and run I never understood why it always hurt. Why I always had to take a break in PE during the daily laps around the yard, or why I couldn't explain why I had to take one when kids made fun of me or the teachers looked down at me
My parents certainly weren't helping, my mom knew exactly what was wrong (she admitted this to me when I got older) but she didn't want to get me help or SSDI or anything like that because she said she didn't want me to become dependent on it and she didn't want me to not get a job or go to college and become complacent over it I'm sure I don't have to say why that's not right As I got older my condition worsened as my weight increased and no help was given, I never even went to see a doctor about my issue despite me becoming cognizant of the pain by the age of 7-8 until I was 15. My mother just refused every time to take me, citing my weight or my "laziness and refusal to walk or run" as the cause of it. My father wasn't much of a help either, he only ever wanted me to be a "real man" and despised that I refused to play sports because of the pain and just wrote me off as weak.
Didn't get much better when I did first go to the doctor, they misdiagnosed my issue off of one X-Ray and then pretty much gave me painkillers and patted me on the back and said "Maybe get some orthopedic inserts" which I have been wearing since I could walk, but they wanted me to get custom ones, which in the long run didn't help with my pain at all
After that I finally got into Highschool and after so long determined myself to get a job my senior year, I knew it would be painful but a part of me held onto the toxic belief that I had to prove that I wasn't incapable of anything just because of my disability, so I applied to McDonalds in my small town and got the necessary paperwork
I didn't last a month, I would walk out of there at the end of my shifts with one of my feet almost facing perpendicular to my other foot, the pain was so much that I had to take a 10 minute break multiple times a shift to just go cry in the bathroom and let my feet rest. It was the only time my father ever showed me respect, my suffering was the only thing that could get him to notice me.
Finally though, I turned 18 and I could finally get the surgery that the doctors had been talking about my whole life, the promised neverland that would let me walk and run and do anything I ever wanted with no pain
In hindsight I should have been a bit more skeptical, turns out it was a surgery normally done on people thrice my age, the surgeon who did it had never done it on someone my age, and could only offer a hope that it would work and a backup surgery that would leave me 100% guaranteed paralyzed in a few years but at least it wouldn't be immediate like if the original surgery fell through and nothing was done For context the surgery was essentially a complete reconstruction of everything below the ankle, a plate on the right side of my right foot, and a lengthening of my calf muscles to meet my new foot
After 6 months stuck in bed and another 2 in a boot, I was finally free to walk, I did a month of some barebones physical surgery (didn't even learn how to properly walk on my new foot) and found out right away it was not all what it was cracked up to be. The pain was a lot sharper now and left aches, it was impossible to walk without shoes or slippers or something on, and forget running.
I had to get a CAT scan (which took literally 3 months) to make sure everything was okay, turns out I have osteoarthritis all over the joints below the ankle (nothing new there), and osteopenia all over my foot (actually surprising there) and the surgery had only refused about 40% of the way, way under the doctors expectancy. So I had to schedule another appointment and deliver the results
I never got the chance, my insurance ran out and due to never getting me help as a kid via SSDI or even a written letter detailing my disability, I was left hung out to dry, I haven't been to a doctors in 6 months with my mother scrambling to rectify everything and get me SSDI and back on insurance and getting her food stamps back in order because I was in the eyes of the state a jobless able-bodied adult and no longer able to be claimed
So now I'm here, honestly this turned less into a ramble and more of a dump of a facet of my entire life, but fuck it, we ball
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spotsupstuff · 9 months
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takin a break from asks a lil with misc. silly oc stuff + some ideas for iterator cleaner fauna. cuz there just ain't enough of variety in those structures yet n i've been thinkin about cleaning methods of the insides for ages now
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kayzero · 5 months
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in the spaces between not working on zwg and not finishing brother’s burden, i’ve been, uh…
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thinking about something new.
#kay original#game development#kay rambles in the tags#Peccatum#Peccatum: Small Town Heroes#name is a work in progress. as most things are.#you can ask me about this project and the ocs i’ve half-imagined if you want to know more about them#but i’m not at the ‘‘ask me about my setting so i can figure stuff out’’ stage yet.#i do know that it’s an rpg. a LONG one too. and it’ll be mission-based kiiinda like FE3H? but not really?#9 party members. each of them have different elemental alignments and each represent a different Game Stat.#everyone has 1 Best stat—2 Great Stats—3 Good Stats—and 2 Poor Stats—and then the ninth stat is a fixed value#i know that two party members are trans. another two members—including the Box Art Protagonist—are disabled#along with the machine party member there is a Dragon who spends most of their time in bipedal form#there is a Fae who spends a large majority of the story hiding the fact that they are in truth a Fae#one of the party members was experimented on as a child and is now part Monster but they repressed the memory so they have no idea#i came up with a shared MP system that has actual story reasons for existing—and it’s gonna be a pain in the ass to code…#i want a relationship system a la Persona except EVERY party member gets a relationship and not just The Protagonist#every party member will have a relationship gauge with every other party member (i guess this is Fire Emblem?)#and then everyone will have a relationship with an NPC that’s unique and exclusive to them#and then they get four relationships with members of the town that you see frequently as you wander around#but it’s a Small Town remember. so the party has to share. there are four categories with three townspeople each so three party members will#have a relationship with each townsperson. but the relationships will be different because the characters aren’t carbon copies of each other#not. not romantic relationships. like friendships and rivalries and sex buddies and apprenticeships and. possibly also romance? mm.#i have to. learn how to code. idk if RPGMaker has a relationship system so i’ll have to figure something else out. maybe RP as a currency...
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agayconcept · 2 months
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#oh for fucks sake#if i have to listen to my shithead of a mother bitch and whine and moan about me being disabled one more fuckinG time i s2g#she's been going on for 20 mins abt how annoying it is that i had to go lie down for a bit bc i had a migraine and a pain flare up#which meant i guess that she didnt get to make dinner when she wanted to (i told her she could just eat w/o me like who cares)#so now she's on a rampage abt how inconvenient it is to her and how i ruin her schedule and her life all the time etc etc#and when i responded calmly w 'well what would u like me to do- snap my fingers and not be disabled anymore? u TOLD me to go lie down.'#she exploded and is like 'oh noOoo ofc not nothing is ever ur fault u just accidentally do these things'#bitch WHAT THINGS ?????#exist as disabled ??? be in so much pain i spend most of my life these days in bed ??? be unable to function to ur standards ????#do u Hear urself ??#now she's sitting on the couch pouting and fuming like a toddler bc i was in bed for 2 hours instead of 30 mins (bc too much pain to get up)#and throwing a tantrum like that is in any way normal or acceptable behaviour#'u always do this! but nooo u can do w/e u want cant u ?? u dont have to consider others!!'#ma'am...#a) no i dont have to consider others when it comes to taking care of myself and my debilitating illnesses. that's an insane thing to suggest#b) nobody told u u could not do w/e the fuck u wanted while i was out of commission. u just did this to have more to complain abt#c) ah yes bc i 'want' to be bedbound in excruciating pain. that was a choice i made. for funsies. for the bit.#whaT ?????#god someone save me im gonna lose my mind w this shit#not to mention she's also belligerently drunk so like. there's that also. cant have any proper convo bc of it (not that i wanna talk to her)#jesus fUcking chrisT#i gotta get out of here#this woman is so immensely hateful#ya sorry i ruined ur life by being born this way and now ur stuck 'putting up' w me and 'my shit' (<- actual things she has said many times)#fuuuuuck me.#anyway.#negative#ableism#verbal abuse#ask to tag
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better-in-pencil · 4 months
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so tumblr just recommend a terf post to me, supposedly ‘based on my likes!’…. tumblr please tell me what the hell I liked, so I can unfucking like it.
Anyways while we’re here, a reminder, transphobes/terfs/radfems you are not welcome on my blog please fuck off
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vampirebutterflies · 1 year
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actually I’m gonna bitch here for a sec like WHY is being disabled so expensive like I have very good healthcare and thank fuck for rebates but !!! still!!!!
main bullshittery bugging me rn though is the absolutely unrelenting fatphobia (and so many layers of ableism) in anything to do with hashimotos
like it is FUCKING infuriating to have this constant rhetoric of “you have hashimotos?? here’s how to stop being so FAT and UGLY! (:” “here’s how to LOSE WEIGHT with hashimotos!!” “15 tips to drop 15 kilos!!!” “got hashimotos? comment HELP ME or dm to get access to my private HASHI WEIGHT LOSS group!!!” “best diets to lose weight with hashimotos!!”
even the ones that sneak this shit into otherwise decent resources you’ll have a good run of beneficial info punctuated by “oh you’re probably balding and ugly and fat but that’s okay!!! we EMBRACE body positivity here!! by bullying you into being skinny and fitting our beauty standards so you can finally love yourself!!!!” “link in bio for my best selling book HASHI HELL TO HEALED HEAVEN: HOW I SAVED MYSELF FROM BEING FAT AND BALDING AND UGLY AND TURNED INTO THE PERFECT THIN BEACHY BABE!” Violence violence violence murder maiming killing arson destruction FUCK
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people on diets always have a superiority complex about it… like can you be normal?!
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neonacidtrip · 1 year
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You could tie your hair in low bunches on the sides and then maybe braid the low bunches if you feel like it? That way sleeping on your back they're not uncomfortable and the hair isn't pulled!
Oh, that's actually a pretty good idea! If the braids don't work, I could probably try loosely twisting the bunches as well. Tonight, I'm going to be seeing the dog who likes to hop on my hair while I sleep, so this is perfect timing for me to test it out!
Thank you, anon!
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mosspapi · 1 year
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I can't tell if I'm just having a massive costo flare or if I've actually dislocated and/or cracked my ribs somehow.
I know I need to ask my parents abt it but I had a massive argument with my mother about it earlier today because apparently the reason I have chronic pain is because I don't take Advil (absolute bullshit on many levels and she knows this but she refuses to admit when she doesn't know something), so I don't want to have to deal with her again but also I don't want to leave this if it IS a bigger issue ya feel.
Like it feels like just a really bad flare, but they don't normally last for 3+ days in a row, 24/7, at the "sharp, hard-to-breathe, plus aching, plus reduced mobility" level. That type of flare usually lasts at most a couple of hours. So I'm concerned it's a bigger issue than that, but I'm also paranoid about health things so idk if I'm overreacting ya feel?
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cistematicchaos · 1 year
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I’m so tired of going to see doctors. I’m so tired of talking about medicine. I’m so tired of talking about being in pain. I’m so tired of trying to convince people I’m ill. I’m so tired of talking about my mental illnesses. I’m so tired of BEING mentally ill. I’m so tired of being ill. I’m so tired of being in pain. 
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loveofastarvingdog · 2 years
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it’s all ‘ohhhh my long covid symptoms don’t count’ because parosmia doesn’t matter and getting body aches like you never used to before doesn’t matter and debilitating brain fog doesn’t matter and having even more sleep problems doesn’t matter and having fucked up lungs even worse than before doesn’t matter. so when does it fucking count??????? at what point does it matter?? babey get your gears checked ‘cause you’ve got to figure things out sometime
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cowlovely · 2 years
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huh
#ivy.txt#personal stuff in the tags (not vent technically! positive vent?)#i think my mom has really gotten better in regards to mental health/disability shit?#and i’m honestly very pleasantly surprised#like. last week she and i got into kind of an argument#where she was asking me if i want a job in the future/when i think that might happen etc#and i was like well. i mean technically no i don’t WANT a job that’s actually the last thing i want#but if that’s the requirement for living at home then i will get a job eventually yeah. with therapy i will get to that point eventually#and she got. idk flustered i guess? like i think she interpreted that as me being like antagonistic towards her? i’m not sure#and she basically just lectured me for a few minutes until i got upset and left#i thought we were kind of just going to ignore it until we inevitably had the same argument months down the line#but earlier tonight she actually apologized to me?#she was like ‘your mental health is always my number one priority#and i don’t want you to feel like i’m pushing you into things when you’re not ready—if you ever even are ready!#i don’t know that you’re ever going to have a typical job and that’s okay. you’re fine where you are.#and i know sometimes i fall into the trap of what society expects of you and of me as a parent#but i don’t need to pass that onto you. i know you’re dealing with enough as it is and that isn’t fair.’#that wasn’t even all of it but that’s like. practically verbatim?? and idk i’m just shocked like.#i’m crying a bit rn ngl because i’ve been so stressed about this 😭#uh. this week she and my dad also finally accepted that i’m autistic (and that my dad is also autistic) so i am! overwhelmed!
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senadimell · 2 years
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look, I’m tech stupid and so admittedly I don’t know how this would work, but it would be incredibly FANTASTIC if there were secure text-based/non-phone call-based ways to communicate remotely with doctors that didn’t require giving non-HIPAA-bound companies access to my personal medical data
because frankly, it sucks but yeah, I do give them access because if I have to call by phone to request each thing individually and keep track manually of when I need refills of everything (and they’re on different refill cycle lengths and from different pharmacies), I will mess up sometimes and suffer the consequences. I’m lucky, I won’t die or have my health and survival endangered or anything. I’ll just be in pain. Patient portals and communicate-via-text plans are such a wonderful sounding idea for accessibility reasons but I wish they were more secure and private...
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lesenbyan · 30 days
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you know, I might be Stepping In It, but I really hate people's tendency to "you're lucky" when finding out someone's naturally skinny really piss me off.
I'm not saying there's not privilege to being skinny, there absolutely is in this fatphobic world. But as someone who has spent literally over half my life wishing I could gain any fucking weight ever it makes me so fucking mad. I've tried working out, I've had physically demanding jobs, I've tried, back when i could afford it, eating as much as I could handle. I have literal dysphoria about being skinny.
and then when I Go Off at a coworker for being the second person in a week to tell me I'm lucky- while wearing braces digging into my joints bc I am physically too small to wear them right but they don't get smaller- I'm told "oh but you have to realize we never considered the other side" sure! but I'm still allowed to get pissed! you would be too!
#personal;#i get it i GET IT we're not allowed to talk about skinny shaming.#I know this is nothing compared to what fat people have to go through#I know. I get it. I know.#but it's also so fucking invalidating to have to caveat my every complaint with 'other people have it worse'#like fuck maybe no one should be shamed for their bodies#maybe no one should be making off hand comments and assumptions about weight high OR low#like yeah the movement's not about me and i hate when ableds point out how accessibility can help THEM TOO so like#i get what I sound like#but I'm SO tired. I'm 29 and I've been trying to gain weight since i was like 13-15#I've never even managed to hit 130#I got close and then all my disabilities kept getting worse so then i couldn't work as much#and thus I can't afford food#so what i had built has been burnt#and I'm back to 120 and clinging with both hands to the hope I don't end up back at /115/ (I am 5'7". you can see my ribs)#like. I am NOT lucky. I can't sit or lay on a hard surface bc it hurts my bones#I can't cuddle well when I DO want to bc i'm just sharp bits#my proportions are so fucked that it's hard to find clothes that actually fit#like#I get it#I get what you're trying to say#but it hits trauma (ignored (JOKED ABOUT) eating disorder bc I'm skinny so it's Fine; repeated skinny shaming; etc)#and it's so exhausting not being allowed to be mad about it#If i had three wishes with no downsides the first would be to gain 50-100lbs and i've been saying that for over a decade#I'll probably regret posting this#ask to tag;
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bambinification · 2 months
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Hey does anyone else with BPD feel like things online are like.. way tougher when it's a voting year??
Like, I get that this is an America-centric point of view, but I swear there's this trend where people are needlessly catty, bitchy, and passive aggressive in ways they usually aren't the rest of the time. And instead of being able to brush it off and go "Well, that person's having a bad day. How weird and poorly-adjusted of him to respond to a Normal Tumblr Post as if some great wrong has been committed."
Instead you're getting catty/bitchy/passive aggressive responses almost exclusively and you get like 3 a week, and your follower list and general posting style haven't changed at all in the last 4 months so?? Where are all these comments coming from?? Why am I attracting this kind of behavior?? If you don't like what I have to say go home?
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kurv4 · 11 months
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#vent in the tags#WARNING: VENT IN THE TAGS!!#tbh its really hard to find disability community irl#at least in my country the amount of other disabled people i met is minimal and finding other disabled peopld my age?? impossible#ive been trying really hard to actually start accepting and defend my disability and try not to hide so much#but it feels really lonely not knowing anyone who is in a similsr situation as me#even tho im part of the lgbt community in my country and in my uni it doesnt erase me being disabeled and that 98% cant really understand#like yea i have few friends at uni who are neurodivergent but i still feel lonely in this regard#with that im not trying to say that they are any less disabled or have it easier or anything like thst#but its still pretty lonely being one of the few physically disabled people in my uni#and being almost all the time the only disabled person my friends even know#im kinda scared of also applying for jobs cause i dont even know if any minimum wage jobs would accept me#i wish i knew someone who is also phys disabled so i can ask them these things and get advice cause rn im so scared#how am i supposed to be even an adult person in society if i cant even get a minimum wage job? where am i supposed to live? what can i eat?#im really lucky my parents are supporting me rn at uni but what do i do after uni#also weird thibg is. why the fuck does it feel like i have to come out 3 separate times??#like why me having to tell someone im disabled feels like im coming out?? girl just look at me for 5 minutes#like. my previous clasmate of 3 years didnt know. WHAT DO U MEAN??#like we were friends. we saw each other 5 times a week for hours. u flirted with me when we were 16. are u dumb??#this is not even the tip of the ice berg. about like 70% of my friends dont know or didnt know until i told them.#like its pretty noticable and visible😭😭 it sounds almost fake that they would be that oblivious but sadly its true lol#anyways lol
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