A little bit of a ramble, a lot of a ramble, a trauma dump even
My entire life, I have been disabled
That's it, that's the premise of this ramble, ever since I was young I was in constant pain when I was on my feet and despite me being able to walk and run I never understood why it always hurt. Why I always had to take a break in PE during the daily laps around the yard, or why I couldn't explain why I had to take one when kids made fun of me or the teachers looked down at me
My parents certainly weren't helping, my mom knew exactly what was wrong (she admitted this to me when I got older) but she didn't want to get me help or SSDI or anything like that because she said she didn't want me to become dependent on it and she didn't want me to not get a job or go to college and become complacent over it
I'm sure I don't have to say why that's not right
As I got older my condition worsened as my weight increased and no help was given, I never even went to see a doctor about my issue despite me becoming cognizant of the pain by the age of 7-8 until I was 15. My mother just refused every time to take me, citing my weight or my "laziness and refusal to walk or run" as the cause of it.
My father wasn't much of a help either, he only ever wanted me to be a "real man" and despised that I refused to play sports because of the pain and just wrote me off as weak.
Didn't get much better when I did first go to the doctor, they misdiagnosed my issue off of one X-Ray and then pretty much gave me painkillers and patted me on the back and said "Maybe get some orthopedic inserts" which I have been wearing since I could walk, but they wanted me to get custom ones, which in the long run didn't help with my pain at all
After that I finally got into Highschool and after so long determined myself to get a job my senior year, I knew it would be painful but a part of me held onto the toxic belief that I had to prove that I wasn't incapable of anything just because of my disability, so I applied to McDonalds in my small town and got the necessary paperwork
I didn't last a month, I would walk out of there at the end of my shifts with one of my feet almost facing perpendicular to my other foot, the pain was so much that I had to take a 10 minute break multiple times a shift to just go cry in the bathroom and let my feet rest. It was the only time my father ever showed me respect, my suffering was the only thing that could get him to notice me.
Finally though, I turned 18 and I could finally get the surgery that the doctors had been talking about my whole life, the promised neverland that would let me walk and run and do anything I ever wanted with no pain
In hindsight I should have been a bit more skeptical, turns out it was a surgery normally done on people thrice my age, the surgeon who did it had never done it on someone my age, and could only offer a hope that it would work and a backup surgery that would leave me 100% guaranteed paralyzed in a few years but at least it wouldn't be immediate like if the original surgery fell through and nothing was done
For context the surgery was essentially a complete reconstruction of everything below the ankle, a plate on the right side of my right foot, and a lengthening of my calf muscles to meet my new foot
After 6 months stuck in bed and another 2 in a boot, I was finally free to walk, I did a month of some barebones physical surgery (didn't even learn how to properly walk on my new foot) and found out right away it was not all what it was cracked up to be. The pain was a lot sharper now and left aches, it was impossible to walk without shoes or slippers or something on, and forget running.
I had to get a CAT scan (which took literally 3 months) to make sure everything was okay, turns out I have osteoarthritis all over the joints below the ankle (nothing new there), and osteopenia all over my foot (actually surprising there) and the surgery had only refused about 40% of the way, way under the doctors expectancy. So I had to schedule another appointment and deliver the results
I never got the chance, my insurance ran out and due to never getting me help as a kid via SSDI or even a written letter detailing my disability, I was left hung out to dry, I haven't been to a doctors in 6 months with my mother scrambling to rectify everything and get me SSDI and back on insurance and getting her food stamps back in order because I was in the eyes of the state a jobless able-bodied adult and no longer able to be claimed
So now I'm here, honestly this turned less into a ramble and more of a dump of a facet of my entire life, but fuck it, we ball
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actually I’m gonna bitch here for a sec like WHY is being disabled so expensive like I have very good healthcare and thank fuck for rebates but !!! still!!!!
main bullshittery bugging me rn though is the absolutely unrelenting fatphobia (and so many layers of ableism) in anything to do with hashimotos
like it is FUCKING infuriating to have this constant rhetoric of “you have hashimotos?? here’s how to stop being so FAT and UGLY! (:” “here’s how to LOSE WEIGHT with hashimotos!!” “15 tips to drop 15 kilos!!!” “got hashimotos? comment HELP ME or dm to get access to my private HASHI WEIGHT LOSS group!!!” “best diets to lose weight with hashimotos!!”
even the ones that sneak this shit into otherwise decent resources you’ll have a good run of beneficial info punctuated by “oh you’re probably balding and ugly and fat but that’s okay!!! we EMBRACE body positivity here!! by bullying you into being skinny and fitting our beauty standards so you can finally love yourself!!!!” “link in bio for my best selling book HASHI HELL TO HEALED HEAVEN: HOW I SAVED MYSELF FROM BEING FAT AND BALDING AND UGLY AND TURNED INTO THE PERFECT THIN BEACHY BABE!” Violence violence violence murder maiming killing arson destruction FUCK
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I can't tell if I'm just having a massive costo flare or if I've actually dislocated and/or cracked my ribs somehow.
I know I need to ask my parents abt it but I had a massive argument with my mother about it earlier today because apparently the reason I have chronic pain is because I don't take Advil (absolute bullshit on many levels and she knows this but she refuses to admit when she doesn't know something), so I don't want to have to deal with her again but also I don't want to leave this if it IS a bigger issue ya feel.
Like it feels like just a really bad flare, but they don't normally last for 3+ days in a row, 24/7, at the "sharp, hard-to-breathe, plus aching, plus reduced mobility" level. That type of flare usually lasts at most a couple of hours. So I'm concerned it's a bigger issue than that, but I'm also paranoid about health things so idk if I'm overreacting ya feel?
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Hey does anyone else with BPD feel like things online are like.. way tougher when it's a voting year??
Like, I get that this is an America-centric point of view, but I swear there's this trend where people are needlessly catty, bitchy, and passive aggressive in ways they usually aren't the rest of the time. And instead of being able to brush it off and go "Well, that person's having a bad day. How weird and poorly-adjusted of him to respond to a Normal Tumblr Post as if some great wrong has been committed."
Instead you're getting catty/bitchy/passive aggressive responses almost exclusively and you get like 3 a week, and your follower list and general posting style haven't changed at all in the last 4 months so?? Where are all these comments coming from?? Why am I attracting this kind of behavior?? If you don't like what I have to say go home?
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