#essential tremor

[bluemandycat]

a zine i made on my essential tremor for a class! figured i'd post a copy here too!

it's printed on copy paper and glued to cardboard for accessibility in turning pages, and the page that just says "FUCK" has a big coffee stain, but I can't do that digitally.

if you want a physical copy, message me, and we can work it out!

#essential tremor #tremors #disability #crip punk #zines #zine #disabled zine

[chronicallye]

This Barbie feels like she has been thrown down a flight of stairs.

#barbie #chronic pain #disabled #babe with a mobility aid #hypermobile ehlers danlos #hip dysplasia #pots syndrome #essential tremor #chronic illness #ableism #chronically ill #mental health #eds zebra

[heardatmedschool]

“You had more coffee than usual, huh?”

Surgeon to resident, due to resident’s worsened essential tremor.

#medicine #medblr #surgery #medical residency #essential tremor #neurology #caffeine

[madame-fear]

Small rant about my essential tremor. I swear to god these days have become worse with my tremors.

It might sound stupid, but I feel extremely frustrated to have 24/7 my body shaking for no reason, to the point I can barely eat without making a mess or spilling myself as if I were a baby. My hands shaking worsened, my arms and legs tremble, and my whole body wobbles; and that just makes me feel exhuasted.

I had to change my neurologist because the pills he gave me for my migraine made my tremors even WORSE, and now that I stopped taking them a few days ago it also encourages my body to keep quivering.

I feel embarrassed to spill myself when eating or drinking, or even to lay in bed and do nothing only because I feel weird to be shaking all the time. I cant even take a pill for it to be less worse because in general terms my trembling isnt as bad as others, but if this keeps on going istg I will have to take anti-tremor pills or something.

That will be all for now

#thx for ur attention #i can barely write coherently without shaking ajdjkfkfkfk #essential tremor #essential tremors #et #tremors #✧.* amiraverse #rants

[kawamagi-crow]

Anyone else feel guilty of not being "disabled enough"? like, i feel like I can't call myself disabled bc "well, my autism does affect every aspect of my life buttt I'm high functioning and have low to medium support needs!" or "My essential tremors arent that bad, I just can't write sometimes, I'm probably exaggerating stuff."

Ik this is some internalized ableism, and i should sort it out but its just... ik. very hard. same thing with asking for accomodations. sometimes i want to, i really do, but something just makes me think I'm stealing from people who actually need it and its not even that bad, I'm just exaggerating for attention

#essential tremor #internalized ableism #tw internalized ableism #tw ableism #Low support need #high functioning autism #Actually adhd #actually autism #actually essential tremors #i also apparently have a slight hypermobility (which would explain my thumb being weird and able to bend backwards) #actually audhd #neurodivergent #Legally disabled (?) #disabled #but not really ??? #idk i don't feel ok calling myself that #bc again internalized ableism (yay!) #It feels wrong and right at the same time

[ub-sessed]

Bujo for spoonies?

Punk bujo?

I'm an effort to put my life back together and recover from a major illness and massive emotional losses etc., I've started using some of the techniques I have seen in bullet journalling.

The problem with all the bujo ideas I see on Pinterest etc. is that they seem to put way too much emphasis on the aesthetic aspect of it. Like I get if people find the artistic side of bullet journalling rewarding, but I have limited manual dexterity and a tremor, so my pages are never going to be pretty. And I have limited energy and time, so I just can't put that much time and energy into creating something pretty. Also, all those flourishes and stuff take up a lot of space that I could be using for practical content! My tremor keeps me from being able to write small or neatly, so I need a lot of room. Like, I want my pages to be pleasing to the eye, but that's for usability reasons.

I also am really turned off my the obsession with productivity that I see in a lot of online bujo. It all seems to be about achieving more! Pushing yourself harder! Meeting goals! All these trackers and stuff seem to be designed to set up expectations for you to live up to. This is the exact opposite of what I'm striving for. I'm trying to learn to accept my limitations, stop pushing myself so hard, value myself even if I don't fill in all the little boxes

So I'm wondering, is there a spoonie bujo community? Like, bujo that recognizes that we don't all have the capacity to make our journals look like Live Laugh Love decals? That we don't all have the time/energy/motivation to fill in a load of trackers every day? Bujo that is badass instead of beautiful? Punk bujo?

#bujo #spoonie #spoonie bujo #bullet journalling #bullet journaling #punk bujo #recovery journal #time management #setting realistic expectations #tracking progress #tracking symptoms #celebrating progress #recognizing accomplishments #visualization #journalling #i have been keeping a journal for 41 years #creating order #bujo for spoonies #essential tremor #bujo that says Fuck your obsession with being pretty and productive

[katrinaftw44]

The only small drawing I've done this upload spam

*Before anyone tells me this sucks, I know my lines are bad and my colouring is bad, I have a hand tremor and I do art just for fun*

#art #my art #drawing #my drawing #flowers #abstract art #essential tremor

[tremor-culture-is]

Essential tremor culture is having a personal vendetta against those digital signature devices with a tiny screen you can't support your hand on.

♥

#they're so horrible :(( #essential tremor culture is #essential tremor culture #invisible disability #neurodivergent #neurodivergent culture #essential tremor #disability #disabled

[alizardjae]

Me: Please, I just want to draw smooth lines My hands: Hehe, check out my impression of an angry chihuahua in the cold

#hand tremors #essential tremor #i wanna draaawwwww

[ineffable-gallimaufry]

*my hands start shaking* oh right. the horrors

#essential tremor #like idk i always forget about it and then it's hilarious to me #well kinda #samwise speaks

[corbinscrawdadz]

Anybody else with a hand tremor get the fear of god put in them every time they try to carry a hot bowl of soup?

#tremor #hand tremor #essential tremor #disabled #actually disabled #soup #soup problems

[chronicallye]

Me finding a new recipe I like: This is really good!

Also me, a Potsie: Now, how much salt can I hide in this?

#potsie #potsie problems #pots syndrome #pots #chronic pain #disabled #hypermobile ehlers danlos #babe with a mobility aid #essential tremor #hip dysplasia #ableism #chronic illness #chronically ill

[willgaham]

@ people with essential tremor or similar movement disorders, i need advice lol

does anyone have experience with meds that help against tremors which aren't beta blockers? if so, what are they and what side effects did/do you experience while on them?

#i'm starting a new job soon and i would really really REALLY like to not have severely shaky hands for that one lmao #i've tried beta blockers (propranolol) but they just make me so horribly drowsy whenever i'm not standing upright or walking around so yeah #also i have no idea if any of my followers even have tremors but here's to hoping 🤞🏻 #essential tremor #vic talks

[madame-fear]

today at the doctors office i got diagnosed with essential tremor on my hands, help

#its pretty mild though but noticeable. sometimes its frustrating how much and badly my hands shake #essential tremor #diagnosis #✧.* amiraverse

[parkeryangs]

save me primidone.... primidone.. primidone save me

#this post is brought to you by ET gang #(it is not saving me. btw) #finch chirps #essential tremor

[daltongraham]

So with my essential tremors, and the fact that we eat every meal on our bed, I frequently spill food on myself. Especially soup. Damn you, soup.

So it occurred to me: what I need is a bib!

Does anyone have a recommendation for an adult bib? Snazzy would be nice but is not required.

#essential tremor #spoonie life #spoonie hacks