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#HAEMOPHILIA DAY
vishwajagrutingo · 1 month
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HAEMOPHILIA DAY
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HAEMOPHILIA DAY
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eekaconsultancy · 1 month
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HAEMOPHILIA DAY
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bloggingforu · 1 year
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World Hemophilia Day 2023: Know History, Theme, Significance
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World Hemophilia Day 2023
World Hemophilia Day is an awareness day for the world that is celebrated every year on the 17th of April. The first time it was observed was in 1989 and is governed in conjunction with the World Federation of Hemophilia (WFH).
The day’s purpose is to increase awareness of hemophilia and other bleeding disorders as well as promote improved diagnosis, treatment, and treatment for those with these disorders.
Hemophilia is an uncommon bleeding disorder caused by genetics that affects the blood’s capacity to properly clot. It’s caused by insufficient or absent certain proteins that clot the blood. This can result in prolonged bleeding after an injury or surgery as well as a sudden bleed into muscles and joints.
bloggingforu Provides You with knowledgeable and Informational content.
History of World Hemophilia Day 2023
World Hemophilia Day started on the 17th of April, 1989 which was the 20th anniversary since the founding of the World Federation of Hemophilia (WFH). It is WFH an organization that is a non-profit worldwide that aims to improve the lives of people suffering from hemophilia, as well as other bleeding conditions.
The idea of a worldwide day of awareness in order to increase awareness of hemophilia, a bleeding disorder, was originally thought of by Frank Schnabel, a Canadian businessman and advocate for the hemophilia cause. Schnabel became the very first person to start the Canadian Hemophilia Society, and his son was hemophilic.
The beginning of World Hemophilia Day was marked by a myriad of activities and events around the world, including blood drive, education seminars in addition to public-awareness campaigns. Since then this day is held annually on the 17th day of April. The theme for each year is a different one which changes.
World Hemophilia Day 2023: Theme
World Hemophilia Day theme of 2023 is “Prevention of bleeds as the global standard of care“
Here are some past themes of World Hemophilia Day:
2021: “Adapting to Change: Sustaining care in a new world”
2020: “Get+involved”
2019: “Outreach and Identification”
2018: “Sharing Knowledge Makes Us Stronger”
2017: “Hear Their Voices”
2016: “Treatment for All: The Vision of All”
2015: “Building a Family of Support”
Significance of World Haemophilia Day 2023
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World Hemophilia Day is significant due to a variety of reasons:
1. Awareness Raising: This event increases awareness of hemophilia as well as other bleeding disorders that are often misunderstood or not diagnosed. Raising awareness on this day can help educate people on the symptoms, signs, and dangers that are associated with these disorders.
2. Advocacy: The day offers an opportunity for advocacy and activism, which is crucial to improve medical treatment and treatment for those who suffer from hemophilia or other bleeding diseases.
Advocates utilize the day to draw attention to issues like the accessibility of treatment options, funds for research, as well as support for patients or their family members.
3. Education: The event is an opportunity to inform health professionals, policymakers as well as the general public on hemophilia, as well as other bleeding diseases.
This will help promote more accurate diagnosis and treatment as well as a better understanding and support for those suffering from these disorders.
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cbccindia · 1 month
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Supporting World Haemophilia Day: Advocacy for Improved Care and Treatment
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Join us on World Haemophilia Day with CBCC Hospital in Raipur, Trichy, and Agartala. Join us in raising awareness and advocating for better treatment and care for those living with this rare bleeding disorder. Support the cause and help ensure vital resources for our community members affected by haemophilia.
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scotianostra · 3 months
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On February 14th 2003 “Dolly”, the sheep, the first cloned mammal, was euthanized.
When scientists working at the Roslin Institute in Scotland produced Dolly, she was only lamb born from 277 attempts, from those rom 277 cell fusions, 29 early embryos developed and were implanted into 13 surrogate mothers. But only one pregnancy went to full term, and the 6.6 kg Finn Dorset lamb 6LLS, that’s Dolly to you and I, was born after 148 days. She was born on 5 thJuly 1996 but they never announced her birth for six months.
Dolly lived a pampered existence at the Roslin Institute, not far where I grew up. She mated and produced normal offspring in the normal way, showing that such cloned animals can reproduce.
Dolly the sheep was produced at Roslin as part of research into producing medicines in the milk of farm animals. Researchers have managed to transfer human genes that produce useful proteins into sheep and cows, so that they can produce, for instance, the blood clotting agent factor IX to treat haemophilia or alpha-1-antitrypsin to treat cystic fibrosis and other lung conditions.
This was a major news story around the world, Dolly even appeared on the cover of Time magazine, although I think they missed a trick and the headline should have been “Will There Ever Be Another Ewe”
Dolly was given a lethal dose of an anaesthetic she lives on though conserved by taxidermists her remains were conserved and she is on display in The National Museum of Scotland on Chambers Street, Edinburgh.
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codemiracle · 7 months
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I am so happy that i am the first one to ask👉👈♡(> ਊ <)♡
Btw i wanted to ask more about Tatsuya and Seth ...they look dangerous but so cool..and does yuuta have haemophilia ..i guess.. and your artstyle is so beautiful and you draw the expressions so intricately... (◍•ᴗ•◍)❤I became your fan...
(~ ̄³ ̄)~ i fell in love with almost all of them..
i am so much interested to know more about them..i will be waiting for other characters' introduction and likes dislikes too..and i found yotsuya cute due to his character introduction stuff but when you told me more about it that's he's not as good actually i was shocked now he's the most interesting character for me...i cant wait for the game ..when will it come out..i will even read a webtoon with these characters...btw don't take a burden i am just asking in a lighthearted manner ..take care of yourself too...thank you !
Btw can i be 🤍 anon???
Aww, you're too sweet!! Thank you so much for your kind words!! <3 (๑>◡<๑) You really boosted my self-esteem hehe. The game will come out probably in a demo maybe next year? it's going to be a really packed game with a lot of content (or so I hope) It's funny because Seth was going to be the protagonist of a webcomic I was planning but I ditched the idea because it really wasn't my thing (I like making short comics though!). But I'm planning to make an RPG maker game with him (˵ •̀ ᴗ - ˵ ) ✧ I can give you some little silly details about Seth and Yotsuya just for the funsies! ✦ ┆・Seth enjoys taking care of flowers because he likes the feeling of caring for something alive (he'd like to get a puppy too.) His favorite flowers are Marigolds and Sunflowers. His least favorite is Roses (he hates the thorns.) ✦ ┆・Seth is really tall, about 1,97 c. m. (about 6,5 feet I think??) He can change his size though. ✦ ┆・Seth Likes to learn about anything and everything and thanks to him being a machine he has an extremely photographic memory, that can be a little dangerous, though he will remember anything you tell him, so you better not lie! ✦ ┆・Seth rarely stops smiling, he doesn't know very well about expressing his emotions. So he tries to smile all the time, it looks a little uncanny and to be honest he likes being a little creepy. When he's not smiling, that's not a good signal at all. ✦ ┆・Yotsuya like a good stressed office worker likes gambling... a lot. Don't worry he's not addicted or anything and he's pretty good at the games he plays, especially poker, his poker face is on point (*wink wink*) ✦ ┆・Yotsuya hates germs, he kinda hates using public transport like trains or buses just because he hates the feeling of being in the same space with other people. He doesn't mind you tough, you're not disgusting to him at all! ✦ ┆・Yotsuya knows a lot about cybersecurity, he worked as a programmer for a company for quite some while, quite dangerous knowledge for a stalker like him if you ask me. (And his house is pretty secure too, he has cameras around all the corners.) Take care of yourself too, anon! Hope you have a great day! <3
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exchangestudentnova · 25 days
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I just read your Yandere vampire OM brothers and I was wondering what about yan vampire Lucifer and MC who has a blood clotting problem like they cut their hand or whatever and the blood keeps pouring nothing you dramatic bit still like Woah u good??? (don't feel forced to do this btw, also I love ur writing!!!)
hey anon!! I sorry for being this late to your request, I hope my writing is a fine apology for that.
Haemophilia is one such genetic disorder where the person's blood doesn't clot easily. Although it is a reccessive gene, you were born with one. It did not pose much threat to you due to the advances in medical treatment keeping you alive for so long, so you never worried too much about it.
You did worry about it when you were asked to come to Devildorm for one year. "One whole year?? How am I supposed to survive there!?" You somehow managed to purchase almost months and months of medicines in your little suitcase, but ofc you were bound to run out of supplies in the far future.
Today was one such day. You counted the leafs of medicines left, and all of them were empty. You were being reckless by not keeping an eye on the medicine, and now you have none. Worried, you were trying not to panic in your small cozy room. After taking deep breaths, you came to a conclusion that asking Lucifer to help in this situation would be the best. With that, you went to the kitchen to fulfill Beel's craving of eating your handmade food.
The pot boiling with water and the sound of you cutting the vegetables filled the kitchen. "You called for me? Sorry I was busy with some student council work" you turn your head towards the source of the sound, a soft smile conquring your lips as you meet your eyes with him. He, with a click in his step and his long, black clock hanging from his broad shoulders came up to you and engulfed you in a hug. " how have you been MC?" he spoke in your ear as you continued your chopping. "I am well Lucifer, and yes I did call for you. I need to go back to the human world."
"But why?"
"Because I need to- ouch!"
You took your eyes off of the food to look at Lucifer, which was a bad idea because you now have a cut on your finger from moving the knife wrong. It hurt a bit, but to Lucifer, it seemed as if you have lost half of your body's blood.
"How could you be so careless!? Show me your finger" You could see that his eyes have started to dilate, his fangs have started to appear. Yet he is not even thinking about drinking blood. Instead his eyes, althought appearing to be bloodlustly, are actually filled with concern.
"Did you eat your medicines??"
"Ah, about that...." you told him about not having them, and he sighed. "Well wait here, I have some with me. Don't move from your place and stop cooking" Before he left the kitchen he spoke some words and created magic that collected the blood dripping from your hand. Now you had a small bubble of blood floating in the air that was oozing out.
Lucifer came back within two minutes and handed you the medicine. " Thank you so much Luci, but what will you do with this bubble of blood?" He just gives you a knowing look and brings his tongue near the bubble. You blush slightly as he savours the exotic taste of your blood, the medicine acting fast and stopping the bleeding.
" Why are you blushing MC? Your blood is only for me to taste. Now sit down, grab a dessert from the fridge, and let me finish dinner"
PS: anon you did not mention if Lucifer and MC are in an established relationship or not so I tried to write it in a way that you can insert a romantic/platonic relation between them^^ and also thank you for supporting my writing I appreciate it^^
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haemophilia
On the third day becalmed in the time vortex doldrums, the Doctor vanished.
Or, 8Charley, vampirism, and blood drinking
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How can I help my Time Lady roommate track her artron levels? What can be done to raise or lower artron levels?
Ah, glad to hear of her settled on Earth! I hope you and her will find the following information useful:
🔬 Tracking Artron Levels
If your roommate brought with her from Gallifrey a specialised artron/lindos blood tester, she would be able to test her own levels of artron, much like a diabetic finger-prick check. For reference, levels of artron should be between around 9,000-12,000 mcl for an average Time Lord adult and levels outside of this range could indicate an underlying issue.
Otherwise, an indication in the fluctuation of artron levels are very much symptom-indicated:
👩‍🔬 Artron Deficiency (Hypoartronosis)
Symptoms of hypoartronosis could include (but are not limited to):
Impaired Healing: Slower wound healing and increased susceptibility to wound infections, potentially leading to secondary haemophilia (severely reduced ability to clot blood).
Weak Immune Response: More frequent illnesses due to the weakened state of the immune system.
Lack of Energy: Lower levels of artron result in fatigue or sluggishness.
Decreased Senses: Less sharpness in hearing, sight, smell, taste, touch, somatic and chronopsionic (time and psychic).
Low Mood: Low artron can affect emotional state, causing the Gallifreyan to have persistently low moods.
Very Red Blood: Gallifreyan blood has an orange tint to it due to the artron. If it's very, very red, this indicates low artron levels.
Urine Changes: Urine output will decrease and will be more yellow in colour (normal Gallifreyan urine is more orange).
🔋Artron Excess (Hyperartronosis)
Symptoms of hyperartronosis could include (but are not limited to):
Hyperactivity or Irritability: Heightened energy or emotional fluctuations, similar to bipolar disorder.
Delusions or Confusion: Reduced cognitive clarity.
Vomiting or Nausea: Gastrointestinal discomfort.
Increased Appetite: Unusually frequent hunger pangs.
Urine changes: Urine output will increase severely and be extremely orange.
🔄 Normalising Artron Levels
Artron levels will normally stabilise over time due to homeostasis and compensatory mechanisms, though several home remedies can help.
TARDIS Partnership: Forming a bond with a TARDIS will naturally help to maintain good artron levels through constant energy exchange.
TARDIS Support: In addition to a TARDIS connection, spending a few days in a bonded TARDIS can help to normalise levels.
Meditation: Meditation techniques are also considered effective in the treatment of these conditions.
(To Increase Levels) Do Some Time Travel: Absorbing background radiation from the time vortex increases artron and can be an effective and quick solution to hypoartronosis.
(To Decrease Levels) Expelling Energy: Expelling excess energy through the mouth or skin will help to lower levels. However, this should be done in a controlled environment and away from humans.
🏥 In some cases, medical intervention could be required:
Artron therapy: There are several medical devices and medications on Gallifrey which are regularly used in the treatment of these conditions.
Assisted healing coma: A healing coma can help to stabilise artron levels. However, this should be done in a safe environment with medical professionals who can assist in the sleep-wake cycle.
Regeneration: In extreme cases, a Gallifreyan medic may suggest a regeneration, as this resets artron back to default levels. However, this should never be done without consultation, as there are usually simpler ways to treat hypo and hyperartronosis.
🏫 So ...
Any excessive or prolonged changes in artron levels should be investigated further as they may be caused by other conditions. If you or your roommate are particularly worried about her artron levels, please encourage returning to Gallifrey for a checkup with a Gallifreyan medical professional as soon as possible, as there is currently no medical centre in the Sol system.
Hope that helped! 😃
→🫀Gallifreyan Anatomy and Physiology Guide (WIP) →⚕️Gallifreyan Emergency Medicine/Monitoring Guides →📝Source list (WIP)
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playfulkittn · 1 year
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please reblog if you vote
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otmaaromanovas · 1 year
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Romanov myths part one: Alexei being injured by sledding down the stairs
Although Alexei was given more freedom than is assumed by many people, and certainly had a rambunctious personality, the long-standing story of him sledding down the stairs and then crashing, causing a haemophilia attack in Tobolsk is a myth.
Both Nicholas and Alexandra do not mention this in their diaries, and surviving letters from the Grand Duchesses also do not record Alexei’s rumoured ill-fated sledding adventure. This especially is unusual, as their letters from Tobolsk included a lot of detail about them having fun sledding and on the snow mountain they constructed, so this omission is telling. Alexei did, however, have a sled and a boat which he, his friend Kolya Derevenko, and sister Olga sometimes rode down the stairs and onto the pond (which appears to be mostly small pools of water with a lot of imagination) outside (Olga apparently lost her balance and then fell out once!)
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From Alexei's diary (note how he does not mention crashing or having a haemophilia attack):
Sunday 25/7 March [1918]
At eight o'clock there was a religious service, Mama and the sisters sang because the choir was busy. Kolya came at two o'clock. We played in the garden in the afternoon. We shot at a target with bows and arrows [there is a photo of this - see below]. It's very interesting. After tea, we played hide and seek. I received a sleigh and a boat as a gift from a local trader, models of the sleds and boats of the region. Kolya and I played with them a lot and we went down the stairs in the boat. He left at nine o'clock.
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Alexei’s sister Anastasia writes about the boat and ‘pond’ here:
4/17 April 1918
Thank you very much, dear Dalechka, for the letter. It took a long time to get here – since December! But it is good it arrived. How are you? We think of you often. It is more or less quiet here. The weather has been divine, but not very warm the last few days. We continue to chop and cut up firewood, and it turns out pretty good. We fixed up our swing, and started to use it again, but probably the ropes will break soon as it has been done poorly. Our garden is a mass of water and mud. My brother has a little boat in which we, so to say, take a ride (it is a big imagination.) There is still not enough water, so we push it of the tracks with sticks and of course get completely soaked. Well, it is a little bit of fun! And how do you pass the time? Well, we are off for a walk so I must finish. I wish all of you the very best. Big greetings to all! I kiss you firmly. Greetings to your Papa and Seryozha.
Anastasia.
In reality, Alexei injured himself after contracting a bad cough. This was most likely caught off one of the visiting children to the house who kept him company, probably Kolya. The repeated coughing unfortunately triggered internal bleeding, leading to a haemophilia attack which left him unable to walk.
It was this attack that meant Alexei, Olga, Tatiana, and Anastasia were not moved to Ekaterinburg with their parents and sister Maria, as the Heir was too ill to move across the country. However, he did make some sort of recovery, at least to the point of being able to be safely transported to Ekaterinburg, and he is photographed sat upright on the Rus steamer, although looking thin. Despite this slight recovery, he was still unable to walk for the rest of his life. The night of the execution he was given a chair to sit on due to being unable to stand independently for any length of time.
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A staircase at Tobolsk
So - where did this myth of Alexei sledding down the stairs causing his last haemophilia attack come from?
Robert K. Massie’s 1967 book ‘Nicholas and Alexandra’ appears to be the origin of the story in popular history. On page 490, Massie wrote:
‘[Alexei] was devising new and reckless games which no one seemed able to inhibit. One of these — riding down the inside stairs  on a boat with runners which he had used on the snow mountain — led to calamity. He fell and began to bleed into the groin.’
Whilst Massie’s book is a cornerstone in Romanov historical works, it was released 56 years ago, when there was still a fair amount of mystery and rumour surrounding the Romanovs and their final months. The 1971 film, also named ‘Nicholas and Alexandra’, adapted the book into a three-hour epic film dedicated a whole scene to re-enacting this myth, giving it more publicity.
VIDEO CREDIT: Nicholas and Alexandra, Franklin J. Schaffner, 1971, Columbia-Warner Distributors, Archive.org, uploaded by Olga Movie Man on December 26, 2019, https://archive.org/details/1971nicholasandalexandra. Alexei played by Roderic Noble. They make Tobolsk look a LOT rougher and barren than it actually was!!
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A floor plan of the Governor's Mansion, Tobolsk, drawn by Prince Vasily Dolgorukov. Translated in red by Helen Azar.
To summarise: although Alexei did have a boat and a sled whilst at Tobolsk and did ride them down the stairs, these games never caused a haemophilia attack and he never crashed them to the point of causing serious injury. Rather, he contracted a cough which caused internal bleeding. Robert K. Massie mistakenly put this in his book 'Nicholas and Alexandra', and the myth became more popular due to its inclusion in the 1971 film of the same name.
SOURCES:
Diary and letters quoted available here
Alexei: Russia's Last Tsesarevich - Letters, diaries and writings, by George Hawkins
Anastasia Romanov: The Tsar's Youngest Daughter Speaks Through Her Writings (1907 - 1918), by Helen Azar and George Hawkins
Nicholas and Alexandra - film, directed by Franklin J. Schaffner - free to watch here
Nicholas and Alexandra - Robert K. Massie - free to read here
Floorplan of Tobolsk - Helen Azar's website
Tour of Tobolsk in its current form as a museum - (Russian language!)
Photos: public domain, toptyumen
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The Ohioans suggested it to me.
So say hello to Valravn, a fiesty young king of the streets {or wherever you want it to be!} who's ready to show rivals who's boss!
Additionally, just like with day 8, please don't get rid of their Haemophilia! It's more of a genetic condition than a disability of course, but still I want this guy to keep their clot-less swag since I chose to give them this as a nod to how actual Valravn are born from ravens feasting upon those slain in battle!
Once again, Offer to Adopt. Valid offers can be art, designs, and/or Money {min £10/usd equivalent} so may the best win!
THE LINEUP
Day 1 - X-Press: Platform 13 Day 2 - Spinball Whizzer Day 3 - Baron 1898 Day 4 - The Walking Dead: The Ride Day 5 - Creek Freak Massacre Day 6 - Hyperia {Project Exodus} Day 7 - The Dragon Day 8 - The Wickerman Day 9 - Mr Monkey's Banana Ride Day 10 - Mamba Day 11 - Valravn Day 12 - Maximus Day 13 - Th13teen Day 14 - Kondaa Day 15 - Luna
More Coming Soon...
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bbygirl-aemond · 1 year
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i feel bad bc i feel like im harassing you but this is the only thing keeping me sane during finals so i was trying to map out the family tree of stormbreak (as if rhaenyra and aemond’s not yet kid) and it is so wild.
like just right off the bat your parents would be your parent and your aunt/uncle. stepdad daemon? great uncle. brothers? first and third cousins. step-sisters? first cousins once removed and third cousins. mother’s sons’ with your stepfather? brothers, cousins AND first cousins once removed.
i know it’s to be expected with the whole marrying your siblings thing that they have going on it’s just so funny to me. again sorry for bugging you with my random thoughts.
no no you're right and you should say it. these bitches' family tree is a circle. we should thank god every day that they defy all logic by being hot despite the targaryen incest :')
i actually wonder if certain traits aside from the dragon magic have been concentrated in the targaryens. like, irl the hapsburgs all had the sex-linked genetic disease haemophilia bc of their incestuous practices. haemophilia impairs blood clotting, leading to more excessive bleeding from injuries, etc. interestingly, i've written that aemond bruises really easily, which could technically be a symptom of haemophilia. the more you know!
also, i really don't wanna know why george r r martin was so determined to make incest okay in his fantasy universe. i feel so badly for his poor family bc that would be so awkward lmaooo
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waystelandmoved · 9 months
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@amygone: you're just making it worse.
the sky was empty, your prayers had gone unanswered now for months. come flood or famine, [or the dead rising from their graves; familiar faces now bloodied foes] there was an answer, somewhere between the lines of pages you had read for years in the aftermath of father's sobriety. the truth could be found, the answers you were so desperately searching for as to why, why palms bleed with solemn prayer, splintered wood of bat dug into tender flesh as if the front pew of the old church, worn away from years of use and growing pressure. heaven's children murmur about your loss of faith, a growing vacancy in the rattling of your ribcage. what is there to do now with all that empty space? the oblivion now inside you that was once golden turned black. you do not know how to carry on like this, the mantra telling yourself that you were in fact strong, that you knew how to navigate this changing world was dying on your tongue, shrivelled moth in the back of your throat the sign of decay in pit of stomach. there are cracks growing in the sidewalk, and you think that you could spend the seasons watching as flowers attempt to split it further, sprouting in the spring before the fall chill brings the cycle to a natural end; and you will watch as the weeds thrive, how they will quickly outnumber the flowers and grow beyond the asphalt. there is something in that that you almost find funny, but it is lost as you name the newest bloom after yourself, and you will return each day praying for its survival as if the flora was inexplicably linked to your own still beating heart.
and so amy's words proved frustrating, you didn't know what you could do; untapped potential could be just beneath the surface, waiting for skin to break and reveal your true self, hidden strength beneath the first layer of flesh. fingers fidget with weapon, still heavy and unfamiliar in your hands— no one had trusted you before. naivety of youth bled into your words, into your hope as if incurable haemophilia. “i'm trying to help. just—tell me what to do. please.” you wanted to go home, not that the walls still stood, the embers had burned long through that night and the smoke carried on til winter. but the people fashioned into comfort, into something you could call home— they were out there. “if you just tell me what you need then i can do it instead of blindly guessing and doing it wrong. i want to help.”
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