#Crohn's Disease

[chaos-and-ink]

Hurts if I eat, hurts if I don't; hurts if I sleep, hurts so deep.

#chaos #vent art #my work #chronically ill #disabled #physically disabled #chronically sick #gi issues #idk how to tag this so Ill just do a ton #chronic pain #irritable bowel syndrome #irritable bowel disease #ulcerative colitis #crohn's disease #pots #pots syndrome #ehlers danlos syndrome #indigestion #digestive issues #digestive disorders

[existennialmemes]

Something I haven't seen spoken about a lot is the psychological impact of being chronically ill and experiencing horrific symptoms, and knowing that literally no one can help you.

I could call a doctor, but I already know what's wrong. There's literally nothing they can do for me. And I can't afford to go just for reassurance.

I'm just in a flare and sometimes it's Like This. And you just have to swallow symptoms that live in the nightmares of well people, because you can't just have an emotional breakdown every time you're in a flare.

So I'm in horrible pain and distress, and I can't call for help, because no one can help me, and I have to act like it's fine, so I don't worry other people who get Very Upset that I can't just Fix It

And there's just a deep psychological burden in that, that I don't think well and able bodied people ever really think about.

#rant #chronically ill #chronic illness #crohn's disease #spoonie

[longreads]

A Life Without Eating 

“Inflammation from Crohn’s disease had connected the tissues of my small intestine and my bladder together via fistula, and I did not want to pee out a roast chicken.”

Eating is about more than just nutrition. Eating makes us human. Read Andrew Chapman’s powerful new essay on living without food here. 

#longreads #crohn's disease #crohn's problems #autoimmine disease #autoimmune #writing #food #starvation #nonfiction

[alphacrone]

i don't trust healthy people. everything in your body is working like its supposed to? suspicious.

#chronic illness #crohn's disease

[waitingforthesunrise]

I love you people with autoimmune conditions. I love you people with visible bodily symptoms. I love you people with invisible symptoms. I love you people explaining their interesting diets at every dinner party. I love you people struggling to explain what’s happening to them. I love you people with brain fog and fatigue and sleeplessness and pain. I love you people who have a bag full of medications and I love you people who don’t have any. I love you people with Hashimoto’s disease and psoriasis and celiac disease and crohn’s disease and everything else. I love you people battling for their mental health. I love you people making peace with their bodies. I love you people at war with themselves. I love you people discovering how to love a body that is trying desperately to love you back. I love you.

#autoimmune #autoimmune disease #hashimoto’s disease #crohn's disease #celiac disease #autoimmune disease positivity

[hannahcrazyhawk]

We live in a world where chronically ill and disabled humans seeking help are treated like criminals. No one should feel like they need lawyers to litigate for their bodies and minds.

#chronic illness #spoonie #disability #sick and tired #neisvoid #human rights #hidradenitis suppurativa #eds zebra #autoimmune #medical trauma #rheumarthritis #crohn's disease #cfsme #chronic pain

[earlgraytay]

...I wonder how much of the "Real Men Don't Eat Vegetables" malarkey is driven by undiagnosed Crohn's disease/IBD.

#gender #general malarkey #crohn's disease #ibd

[arctic-hands]

I'm like a bad role model for disabled and sick people. I know, rationally, that my response to people asking invasive questions about my cane, my scars, my frequent and long potty breaks, my still wearing a mask, whatever the fuck the nosey assholes are interrogating me on, should be "Mind Your Own Damn Business"

But also I've been grieviously ill since I was three and on death's door on multiple occasions since, and I'm so used to doctors and probing questions from people of authority and being forced to give school presentations on every condition I developed (protip for teachers, making a nine year old explain to their peers that they have I Shit Too Much disease is not the destigmatizing learning experience you somehow think it is), and having every aspect of my life scrutinized by professionals and lay people alike,

and I am completely immune to feeling embarrassed about anything and will gladly and enthusiastically talk about the state of my bowels or how I had my head cracked open and became a cyborg, or how my periods are more painful than my kidney stones, or the how I got my heart zapped and short-circuited just a few months after my heart stopped when I was eight, or how this medicine has this side effect, or how my eczema flares so bad in winter that sometimes it oozes, or how my immunocompromised body is prone to various skin infections so my skincare routine is solely about powdering every fat roll with lotrimin, oh and speaking of have I told you how my brain surgery went smoothly except for the fact that I acquired a staph infection on my breasts in the recovery ward?

The lesson here being: don't ask people about their medical conditions. Either you're going to be told off for the asshole you are, or you're going to meet someone who has been sick twenty-seven years out of their just barely thirty year life span who no longer Gives A Literal Shit about anything medical and is just going thru life and constant doctor's appointments and will gladly answer all the questions you ask, loudly and in public

#this isn't even mentioning the misadventure with the menstrual cup #chronic illness #disabilty #Crohn's disease #cpunk

[chronic-gastro-illness-culture]

undiagnosed chronic gastro illness culture is idk whats wrong w me but i think its trying to kill me

#digestive disorders #chronic illness #gastroesophageal reflux disease #food intolerance #food allergies #irritable bowel syndrome #irritable bowel disease #stomach ulcer #crohn's disease

[genzforbettergenerations]

Since I’ve never seen any kind of positivity post for this:

Shout out to people who get IV infusions weekly, biweekly, monthly, multiple times a year.

Shout out to people whose hands/arms/elbows/feet/legs are covered in scars and scar tissue. Shout out to people whose scar tissue hurts or locks up joints. Shout out to people who are covered in bruises after getting an IV.

Shout out to people whose veins roll or disappear, people who need multiple sticks or digging to get a vein. Shout out to people whose veins blow when getting IVs or during infusions. Shout out to people who feel like their veins have no more to give.

Shout out to people who cry or need someone to hold onto when getting an IV. Shout out to people who have anxiety or panic attacks when getting or thinking about IVs/infusions.

Shout out to people who will continue to need IV infusions into the foreseeable future. Shout out to people who will continue to need IV infusions for the rest of their lives. Shout out to the people who leave their IV in for several days, and thus need to cover it and continue with school, jobs, chores, etc, and sleep with it in.

Shout out to the kids and teens who need IV infusions.

Shout out to people who feel self-conscious about their IV scars. Shout out to people who worry about someone noticing them and treating them differently (though no one should be shamed for their scars, no matter how they got them).

Shout out to people who are traumatized from IVs/infusions. Shout out to people who have terrible memories associated with IVs/infusions.

Shout out to people who go to the hospital for infusions. Shout out to people who get infusions at home. Shout out to people who lose hours of their days while getting infusions.

You are no less worthy of love and positivity because you need IV infusions.

--

Anyone can reblog (and please do!), but only people who need (or have needed) regular/intermittent IV infusions should add on.

#infusion #IV #iv infusion #iv therapy #chronic illness positivity #disability positivity #chronic illness #disability #needles #scars #scar tissue #positivity #autoimmune disorders #dysautonomia #POTS #Postural Orthostatic Tachycardia Syndrome #crohn's disease #cancer #arthritis #cfs/me #myalgic encephalomyelitis #gastrointestinal disorders #<-- these are just a few of the conditions that can benefit from iv infusions #if this post applies to you please add on if I missed anything! #needle mention #scar mention #hospital mention #medical mention #ask to tag

[pelipper]

My friend got me a congratulations card for my hysterectomy

tysm @holahallo!

#hysterectomy #yeeterus #spoonie #disability #disabled #crohn's disease #we out here being feral but sterile #i hope my crohn's flare ups will be a lot less frequent now that i don't have to deal with periods anymore

[existennialmemes]

Me: [in a flare] Ok Organs, how's it going?

Digestive Tract: [screaming obscenities]

Joints: [sobbing uncontrollably]

Brain: Uhh, what is THAT supposed to mean?? Seriously, I refuse to process any of those words, but I WILL take them as a personal attack!

Me: ... Yeah

#shitpost #shitposting #spoonie memes #chronic illness memes #chronically ill #spoonie #crohn's disease

[h-the-scientist-not-from-steps]

IBD problems

#crohn's disease #ibd #chronic illness

[alphacrone]

ppl with chronic illnesses, rb and put in the tags the most annoying medical advice you get from randos trying to “cure you”

#ok to rb #mine is: have you tried taking probiotics? #wow no doctor in the whole world has ever recommended that to me you’re a genius #also I find that probiotics often make my flare ups worse so you’re not even close to being correct #chronic illness #crohn's disease

[hallmarkchrismasmovie]

so ive been having a flare up for 3 whole weeks now, symptoms include:

intense upper abdominal pain after eating

vomiting most solids*

intense back pain at the same height as the stomach pain but at different times

headaches

fevers

dizziness

fatigue

weight loss

*this has lessened since i went to the hospital a week ago and they gave me a new round of pantaparazole (which ive been on before because i have a gerd diagnosis)

ive had flare ups before with similar symptoms but this level of vomiting is new and its never gone on this long. the hospital confirmed its nothing viral and nothing super visible like a stomach bleed or something with my kidneys. does this seem familiar to anyone?

i should note that my doctor is adament its not crohns or colitis because of the stool tests shes done. ive had a colonoscopy, a gastroscopy, and a ct and the only thing they found was enlarged lymph nodes in my large intestine and acid reflux burns in my esophagus.

#im sick of my doctor saying its anxiety so im outsourcing #chronic illness #gastrointestinal #ibs #ibd #crohn's disease #ulcerative colitis #chronically ill #chronic pain #disability

[crohnschronicals]

#ibd #crohn's #crohn's disease #inflammatory bowel disease #chronic illness #ulcerative colitis #autoimmune #invisible illness #autoimmune disease