Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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@shadowcovcn ; ❛ have you been standing out in the cold this whole time? ❜ - carol ( x )
ICE SITS IN HIS BONES ; THE SOLES OF HIS SHOES FROZEN TO THE GROUND or it at least feels this way and Tommy is quite sure that none of it is due to the weather or the cold of the night . his fingertips have gone numb a while ago and something close to a nervous tick has his index mindlessly tapping against his thigh . he had mulled the thought of coming here at all over in his head for the majority of the past two hours ; too nervous , too on edge to sleep , eat , even to touch a glass of anything usually comforting , and had eventually decided that staying in bed , staring at his ceiling wouldn’t do him any good either . his life feels wrong . everything about it , down to the core . it feels like a parody , and a pretty bad one at that , of some bizarre counter universe and he utterly fails to wrap his head around it . there’s a small voice in the back of his mind ( some call that reason , but Tommy doesn’t know the concept ) telling him that her decision’s perfectly understandable . that she’d been right about everything she had told him prior to the line we shouldn’t see each other anymore , which still echoes in his head like the cruel voice from the speakers at a fun fair . yes , he had been drinking too much . yes , he had neglected almost anything else in his life . yes , the crowd he had gathered around himself in the past couple of months is shady as shit . and still , despite it all sounding reasonable , he fails to truly put two and two together .
the drive to her home is as natural to him as navigating to his own house is . a refuge from the shitshow that is reality . a place where he gets the chance to be a person he’s still largely unfamiliar with , but has the potential to become one day . Carol is his golden ticket , isn’t she ? warmth , comfort , love , devotion , honesty , home . how can he be expected to just cope with the idea that . . . nope .
Tommy doesn’t dare ring the doorbell but instead just - lingers . the car parked on the curb , lights off ; he’s not sure how much time’s passed since he’d arrived , but it’s been enough for him to shift from inside the car to outside on the sidewalk more than once . he had wasted time balancing on the curb , had kicked rocks into the gutter , and - accidentally - scared a cat , but had not even once considered knocking . I’m not her problem anymore ; a mantra repeating in his head . as usual , it is Carol who decides to make him her problem again . he turns when he hears her voice behind him , the nervous tapping fading in an instant , and his heart skips a beat before it speed – starts into a manic frenzy just for the heck of it. “ I - no ? what ? no . ” his lips curve up into an almost nervous smile . not typical for him at all . “ I - uh - I also . . . sat in the car for a while, look , I’ll just go . ” Tommy nods to himself , lips pressed to a thin line now . “ and you should go back inside . wouldn’t want you to get frostbite again . ”
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there's something deeply gutting about being a writer right now. watching studio execs brag about starving people like you out of your very house just to not pay you anything above the pennies you currently make. watching some people cheer over AO3 being targeted for a DDOS attack. the complete lack of profitability of writing commissions or writing in general in transformative spaces, especially in contrast to fanart. the pivot of so many social media platforms to be video and image based near-exclusively.
I don't know. it just makes me sad to know that the hobby that kept me alive while growing up homeschooled with dial-up internet and local antenna TV... is only ever gonna be a side job with minimal engagement. I know this site is good about supporting libraries and the concept of books but, do me a favor? Reach out to a writer friend you know. Leave a comment on your last five read stories on your favorite website.
Tell us you care.
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*kills it* *kills it again* *kills it again* *kills it again* *kills it aga
[text]
Lamb: This is the new mascot, Narinder. Make sure to feed it 4 times a day it just escaped an eternal prison
Follower: Yes, of course great leader!
Lamb: And if it dissents, just give it snacks and a pat. It'll calm down
Follower: Oooh! So like a pet cat?
Lamb: Exactly.
Narinder: INSOLENT LAMB. I AM STILL HERE.
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kinda wish i didn't have PTSD but then i wouldn't be able to joke that it means Potential To Suck Dick so you win some you lose some
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no cuz i spent half my shift last night thinking about bruise sky/land parallels and how it happens at least twice in the show and then i got home from work and crashed before i could articulate
what do you mean there's two traumatic instances of jay being in the sky while cole is below him what do you mean cole had to watch jay get kidnapped while helpless on the ground and jay had to watch cole plummet to the earth while helpless in the sky. what do you mean their elements are literally the sky and the earth. what do you mean they did that
WHAT DO YOU MEAN THEY DO IT TWICE THEY MAKE ME ILL
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random nico power headcanon of mine is that he can overhear things through shadows, particularly if he really focuses in and listens, and if anyone says his name it'll catch his attention through the shadows no matter where either of them are.
the angsty half of this hc is that it means Nico is unfortunately extremely aware of all the negative things people say about him, because he's forced to hear it constantly even when no one else is around unless he's actively tuning it out.
the funny half is that it means Nico knows way too much gossip, and the shippy portion is that it means Nico is far too aware of when people are saying nice things about him and he doesn't know what to do about it.
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