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#this week has been Hard and im really struggling
matchakuracat · 2 days
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chronically ill/physically disabled people, how do you deal with doctors appointments? what do you say/do to advocate for yourself? im autistic and not diagnosed with a chronic illness yet and i really struggle to know what to say to get them to listen to me and understand so that i can get the help and care i need. even if i bring someone with me, they also need to know what to say and i don't know anyone who understands well enough to explain to the doctor for me, which means that i have to tell them what to say before going. but that's the problem since i just don't know.
i have chronic joint pain that ive had for years but has only gotten worse over time. i also have hypermobile knees which are the worse they've ever been right now. i'm chronically fatigued and barely have the energy to eat and do basic hygiene. i have a few friends that i talk to fairly regularly and im very thankful for them but i still struggle so much with maintaining a social life when i cant even maintain my own physical wellbeing. i only go outside when i absolutely have to/when my pain is low enough and i have enough energy. on average i probably leave my house about once or twice a week, usually to go to medical appointments, to an internship i have once a week or to go grocery shopping. i usually try to do both at the same time if i can (like going grocery shopping after my internship) but most of the time i have to ask my parents to get me groceries since i dont have enough energy to. all i want is to be able to go outside just to take short walks and enjoy nature and the fresh air but i can't do so without the right treatment/a mobility aid. everything im doing right now is bordering the line of too much. im constantly tired and overwhelmed and everything feels like a struggle, even the smallest tasks most people do everyday without thinking twice about it.
i have almost only had bad experiences with doctors and other medical professionals like physiotherapists, which has given me a lot of extra anxiety on top of my already pretty bad social anxiety. i really struggle to make appointments and even more so to go to them, and when i bring myself to do so i really struggle to express myself and explain how i feel and how i want them to help me. i almost always get shut down and offered no actual help with any of my problems. i just don't know what to do anymore.
if anyone has any advice i'd really appreciate it. i know that i can't give up because my life right now without accommodations is too miserable, but i also don't know how to move forward.
sorry if this was hard to understand. i really tried my best to explain but im having a bit of a hard time expressing myself right now due to feeling worse than usual.
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fortheloveofexy · 6 months
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stepping away for a while. fics are on indefinite hiatus until i come back. queue will run for a while til it's out.
bye.
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my doctor was sooooo fucking worthless and unhelpful im going to masturbate and i hope it fucking kills me
#“no need for follow up”#“yeah you did have several cysts we scrapped off your remaining ovary but. dw about it. idk why they were there. dw about it. oh also your#ovary on that side was freakishly huge but. dw about it. it might go away. dw about it#*doctor shrug emoji* “#“go see a gyno next year maybe. but not me im too important for that. go find and onboard a gyno to your situation. next year maybe idk lol”#he barely even looked at my incision like#this fucking appointment could have been an email. or a phone call. or they just could have let me start driving again. also i forgot to ask#if i can stop drinking ensure now or after the 6 weeks? cause that shit cost $$$$. but he probably would have been super unhelpful if i had#fr fr this guy only wanted to give me the time of day when he thought i might have fun cancer inside and now he's like gtfo!!!! get your#fugly cancerless ass out of here!!!! recover from a major surgery on your own you swagless cancerless loser 🤣 we arent helping your#swagless ass!!!#anyway it seems weird and fucked up that im was never offered to see a physical therapist and i guess am going to have to blindly trust my#abs they sliced thru are healing or whatever and to rawdog my own physical recovery of my muscles? even just dumb shit like. my center of#gravity has drastically changed since the mass removal and my back hurts like shit all the time because all my posture muscles were built up#for when i had an extra 30 pounds of cyst hanging in the front and my posture and walking reflected that. and i lowkey don't know how#hard i am able to be with my healing incision because its really tight and makes me hunch forwards still. like i would really like to know#how much i can safely or maybe should be forcing my skin and incision to stretch. without damage? is that crazy#am i crazy???#this shit is why i didnt see a doctor for 2 years until my problems had snowballed into a 30 pounds ovarian cyst that was crushing my other#organs and had one of my kidneys all backed up with piss. and even getting emergency treatment for it everyone was like. how did you like it#get this bad?? how could you not know you needed to seek medical treatment???? like. bro. seeking medical treatment isnt even a guarantee to#get medical treatment.#anyway he said my “remaining ovary seemed low key polycystic but dw about it. don't quote me on that im not dealing with it.”#bro i dont want to doctor google it i wanted an actual doctor to deal with it. fuck you.#like. maybe even a doctor who knows my situation so i dont have to struggle with getting someone to believe me and take me seriously.#but whatever. back to trying to figure out the daily protein and extra calories my body needs for recovery via doctor google i guess.#its fine 🚬🚬🚬🚬🚬🚬🚬🚬🚬🚬🚬🚬🚬🚬🚬🚬🚬🚬🚬🚬
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softshuji · 4 months
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Sometimes it feels like my mom punishes me for things I can't control and it's actually kinda really upsetting.
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angelsfalling16 · 1 year
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#its been a long while since ive made one of these posts#want to preface it by saying im okay#im just going through a lot#this whole school year has been really awful#its just been constant one thing after the other#most recently i got bit by a student and sent to the hospital bc it swelled so much#im fine its mostly just some really bad bruising now (and no broken skin)#its just been frustrating when i cant do things like normal because of the pain#ive also got other things going on that i wont get into#but im just feeling very emotionally drained and physically exhausting#i keep pushing through and trying to act like everything is fine#but its taking its toll on me#im struggling to keep it together this week but i know i need to#ive cried on the way to work two days in a row now and i have a feeling tomorrow will be a third#its just hard to make myself go there when im surrounded by so much negativity#but i honestly love my job#and i know ill be fine#things are just difficult right now and i have to keep looking for the good things#being out in the sun helps so ive been doing a lot of that#and ive been trying to look at the positive sides of things when i can#i just feel like i shouldnt let my feelings be so big bc it feels selfish right now#anyway#i just needed to put this all down in words somewhere#it helps to get it out#thanks to anyone who actually read this#i hope youre doing well 💙#delete later#late night ramblings#probably delete in morning#this whole thing is a mess
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robyn-goodfellowe · 8 months
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everything has been so fast lately i need time to just stop for a little
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justmaghookit · 1 year
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Something i hate the most about being autistic is when I have to cancel plans last minute because I'm on the verge of a meltdown. I seriously feel like such an asshole but the alternative is having said meltdown in a public place or at a family gathering and both of those options are worse.
Like I don't want to come off as a jerk or inconsiderate but what am I supposed to do. I think its the thing that makes me feel the most shame about my disability, the constant feeling that I'm disappointing people.
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leviathiane · 2 years
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YEEHAW!!!! A BITCH HAS PASSED THEIR SECONDARY LANGUAGE PROFICIENCY EXAM AND NOW DOESNT HAVE TO TAKE A FIFTH FUCKING YEAR OF LANGUAGE!!!!!!!!!! HHAHAHHH H JAKSHDJKBAKJSDBK!!!HAHAHHAHAHHA
IM BEYOND RELIEVED YALL GOT NO IDEA
#depths' talks#this has been SO STRESSFUL#i took ASL bc i have HEARING PROBLEMS and am a LITERATURE STUDENT and struggle with VERBAL SPEECH#and they were like haha COOL but you HAVE to have a WRITTEN LANGUAGE#and my years in spanish didnt count bc i took one in high school and one in college!!!!!#and spanish is fuckign HARD for me#reading it? easy. i translate comics out of spanish sometimes#i can read and write spanish fine#but i cant SPEAK#im not even good at speaking ENGLISH#speaking is SO FUCKING HARD and i HATE IT#if i had to take MORE spanish i would have gone off the deepend. committed murder more than once#trespassed into hell#as one does#im SO GLAD I DONT HAVE TO.... I COULD CRY#and i just finished all my orientation shit-- sidenote i REALLY wish transfers and freshmen got diff orientations#i dont need to know how to do my laundry and taxes thank u#but now i can enroll in classes soon and get my accommodation paperwork in and look into getting a job--!!!#theres always more fucking paperwork for me sigh sigh sigh#and still need to hash out transport details for heading up state next week ahhh#some family died up there so im going up to help handle all his will and shit#and somehow got saddled with figuring out all the transport asjknhbjvjhasbd#my wife was like Why are you doing that??? why isnt someone else doing that#I DONT KNOW JAMES IM JUST VIBING AND NOW I HAVE TO FIGURE OUT LIGHT RAIL MEMBERSHIPS AND TRAIN AND BUS COSTS AND LINES#AHHHHHHHHHH#anyway i havent been writing at all can yall tell
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opens-up-4-nobody · 10 months
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...
#ugh. the fucking struggle of a thing i will not talk about. its just an off shoot of one of my many#obessive compulsive tendencies. it just makes me think of my dad. like hes also a fucking anxious person but hes like. i have the thoughts#but then i dont let them control me so its not an issue. and he knos i get caught up on the structure and identification of problems so#hes always like. its only an issue if its like ruining ur life. and hes right and i definitely meet the standards of both of those things#bc im fucking thinking abt these things constantly. its in my head literally all the time. every second of the day#and i mean i guess this specific thing isnt ruining my life but it certainly isnt helpful and in combo with everything else my quality of#life is not what it could b. idk it just feels all empty which is y i became a fucking workaholic#bc i just get so fucking bored stuck in these stupid patterns that at least i can make myseld useful as i drive myself nuts#it also doesnt help that im still trying to unfuck my leg and not being very successful bc theres this fucking voice in my head like#keep moving. u cant sit down. walk around. dont stop. dont stop. dont stop. i can feel the muscles getting irritated again#its unbearable bc it doesn't really even hurt. i just kno im fucking it up for myself and i have all this excess energy that i cant get rid#of bc i cant run. anyway its just irritating#i probably triggered myself by watching the bear all day lol. its so good but it reminds me of working in a shitty banquet hall when my#brain was on fire. and theyve got that toxic workahoism that i so desperately cling to. and in a weird way i can relate tho their fucked#up mom when everyones just trying to help but shes so fixated on this thing that's clearly causing her distress but shes just screaming at#them. like i mean i have insight into my issues and i try not to let them affect anyone but me but its so hard when its like. i have to do#this thing. i have to do it. i kno its bad. i kno its fucked up but shut the fuck up and let me do this. u dont fucking understand#but i wouldn't say that bc i kno its irrational. ugh. i also have to go to a lab dinner tomorrow. maybe#no time has been listed so idk. its for my leaving so im technically the focus. hate that for me. whatever. itll b fine#at least the place is within walking distance and its like less than 3 weeks until i leave#unrelated
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pineapplething · 1 year
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🧮
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sensazioneultra · 1 year
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every day i thank heaven that i like my job
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tinypuppysoul · 9 months
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(I need to vent about this but pls check the tw tags at the end before reading cause it might be triggering for you. Stay safe and ily! <3)
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izhape · 2 months
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hi...i could really use some help
im trans, gay, indigenous, and my ankle is. very much broken
i had an accident and broke all of my ankle and the back of my leg, resulting in a plate and 4 screws being put in. i have 5 weeks until i can begin physical therapy to walk again and up to three months (around May) before i can continue my usual job which is hard labor.
here's the problem: unemployment denied me and i don't have short term disability insurance with my job. this means i have absolutely zero money coming in at this time.
i have roommates which is a good thing but i need money for my car, my phone bill, and moving when my lease is up in june. my living situation right now is pretty difficult, it's a long story that i can explain in dms to anyone curious but tldr my roommates don't really want to sign another lease to give me more months to work and get back on my feet (physically and metaphorically) enough to move out. living here has been a mental struggle that has left me exhausted and genuinely suicidal. i need to get out
im trying to find remote work and if you have tips for that, that would be awesome, but im also in need of donations.
a single dollar would help. i can do tarot card readings (i have well over 8 years of experience) for cheap pricing, and i have some furries on sale over on toyhouse if that's your sort of thing.
my paypal
my venmo is @/hylian
i do not have a cashapp at this time but could figure something out if that's your only way of donating
donate what you can really mean just that! even $2 can matter
reblogs help!! thank you 💖
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binary5tar · 2 years
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It's 2:30 in the morning and I can't sleep... deleting in the morning...
#partially its cuz my 2yo is a bed hog so im perched on the edge of the bed and its killing my back#but its also cuz a former friend finally got around to blocking me#...which admitedly i only know cuz i would check their blog every few days/weeks#i dont really know why i did? it always made me feel like a creep and like i was poking a bruise or something#but maybe thats why..? i dunno... its giving me feeeeeeeling#and making me thinking about the last few weeks before we stopped talking#i have so many different versions of what happened in my head and i dont really know the truth...#with this sort of stuff is there even a truth?#it is true that im the one that stopped talking in the end but its also true that they had stopped responding mostly before that#so who really ended it?#i think about how i interpreted some thing and whether they were inteded that way...#and i think about stuff that i said and how it could have been interpreted...#i want someone/something to blame... so i end try to blame myself...#im certainly not blameless... I'm not good i think at not yucking someone else yum#its a shitty thing to do but i struggle to just sftu... i should probably work on that#and its part of the reason we had less to talk about#but at the same time it felt like i was clinging to hard and trying to desperately to save something that was important to me#but didn't carry the same weight to the other person...#and maybe its cuz i was a shitty toxic friend... my self loathing which has been in high gear recently says thats probably the truth#but the reasonable side of me says thats one area of being shitty no ones perfect and i wasnt as horrible in everything else...#i dunno this is getting really pitty party ish and they say not to believe anything your brain tells you in the middle of the night#its just... some times i want the truth... sometimes im scared of the truth... but lost of the time im not sure there is a truth#i dont think trying to talk about it with the person would go over well for either of us...#i feel like it would devolve into you should/could have type stuff and at this point it doesn't matter#i dont wanna be the crab dragging someone back into the mess#and i dont think im ready to hear yet that it actually was cuz im just a shitty friend
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roosterr · 9 months
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white flag ✹ ch 4
note: i had to rewrite this chapter TWICE. im sick of it so pls enjoy. also forgot to mention on here that I have been away this week on a little holiday. didn't stop me writing tho lol.
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pairing: ghost x gn!reader
wc: 2.3k
no use of y/n
readers callsign is 'stingray'
summary: while you're gone on a mission, ghost has time to ponder your relationship, and comes to a long awaited realisation
warnings: ghost's pov, mentions of blood and injury, lil bit of angst
ao3
【prev】 || 【next】
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ghost never knew how to feel about you.
at first, he really did hate you; you were the bright-eyed new recruit with seemingly endless optimism, he simply couldn't help but be annoyed by you. honestly, he half expected you to tap out a week into the job. you were just so… normal, he found it hard to believe you were cut out for this line of work.
of course, he trusted price's decision to hire you, and deep down ghost knew he wouldn't have recruited you if he didn't think you could handle it, but he looked down on you anyway. it didn't matter how good price thought you were, you'd have to earn ghost's respect.
it was infuriating, the way you fit so easily into the dynamic of the team. they all liked you right off the bat, even the captain, who was notoriously hard to impress. he observed you from afar, watching how you easily broke down their walls and fell into place next to them like it was nothing.
if he was honest with himself, he might have even called it jealousy. it seemed that everything was so natural to you; everything that he struggled with, you did with such ease you made it look like child's play. he especially hated the way you could just be a person. you didn't lock up every time someone spoke to you, you didn't need to sit with a visual on every available exit, and you didn't need to analyse every person you met in the fear that the second you turn your back they'll stab you in it.
you pissed him off, but what was worse than anything else about you, is that ghost had to fight with himself not to like you too.
it was the first time he got sent on an assignment with you that he began to understand why everyone seemed to get along with you so well. the ruthless efficiency with which you did your job was almost shocking to see. he couldn't have predicted how well the two of you worked together; like a well oiled machine, by the end of the mission he didn't even need to communicate verbally, you could just tell what his next move would be.
he finally understood why price fought so hard to get you on the one-four-one – and he finally found it in himself to respect you.
but that didn't change the way he felt about you beyond the field. you were soft, too kind, and too optimistic, you weren't hardened by the job like him. so he went out of his way to be tougher on you than he was with the others, and he rationalised it by telling himself he was helping you; that without a little toughening up, this world would break you, and for some reason, he couldn't stand the thought of that.
when you started to resent him back, it made his stomach feel heavy in a way he'd never felt before. it was new, and uncomfortable, and it scared him. he wasn't sure when he first noticed it, but it only got worse when he came to the realisation that you didn't care for him like you did for gaz and soap.
you could joke around so easily with them, but you go quiet when he enters the room. you never meet his eyes, and make sure to never be physical with him. when he addresses you over comms, you answer with a quick 'yes sir' and that's the end of it. ghost would never admit it, but the distance between you hurt – even if it was by design. 
as he lay awake that night, he thought about what it would be like if you treated him the same way you treated the others. he couldn't stop the tiny smile that pulled at his lips as he imagined laughing with you, sitting next to you, touching you.
he imagined you, taking his calloused hand into your own, so gentle and kind like you always were, and the way his pulse skyrocketed scared him into staying up the rest of the night.
after that, the way he saw you changed. where he used to think you were soft – and therefore weak – instead he saw the way you chose to be kind. when once your constant jokes with the others was an inability to take things seriously, now it was your specialty way to keep up morale, and ghost actually found himself chuckling at a few of your quips.
it was like his entire perspective had shifted, everything about you that used to annoy him gradually became something he appreciated about you.
it took him a while, but he finally came to the conclusion that he… liked you. 
but it was bittersweet, because he already knew you didn't want him, and he doubted you ever would. you'd never see him in the same light, he'd ruined his chances before he even knew he wanted one.
maybe it was for the best, though. you deserved better, someone who would treat you right, someone normal. he already knew you didn't want him, and he could never blame you for that. people like you don't fall in love with people like him, that's just the way it is.
so he resigns himself to burying the feelings he harbours for you. you never had to find out, if you did you'd surely be disgusted by someone like him being interested in you. he couldn't handle rejection like that, not from you.
when price told him he'd have to take you in when your house burned down, he was fucking terrified. it shook him to his core, how much he liked the idea of the two of you living under the same roof. he did his best to avoid you, leave you in peace like he assumed you wanted; but you – wonderful, kind you – wouldn't just leave him to his misery.
you were being nice to him, and he couldn't figure out why. he assumed it was because he was doing you a favour by letting you stay with him; he couldn't even trick himself into believing that you might be doing it because you liked him.
every night, he'd go back to that fantasy of existing with you, by your side instead of at arm's length. you were so close, just a single door separating you, his hands started sweating every time he passed by the living room.
he knew he was a goner the morning you woke up before him. he'd scarcely ever seen you in a casual setting, but walking into the kitchen and being greeted by you sitting at the table, the domesticity of it all hit him like a bullet to the chest.
it was exactly what he wanted, and it scared the shit out of him, so he panicked. he needed to stay away from you, for your own good, so he did what the ghost does best.
he ran away.
he didn't even consider what you'd think, he just had to get away, before he said something he'd end up regretting.
when you came through the door, soaking wet, and laid into him – which he knew he deserved – he immediately regretted leaving you behind. seeing you cry, knowing it was because of him, it made him feel sick. he knew he never wanted you to feel that heartache again, especially if it was because of him.
he'd give anything to start again with you, go back to the beginning and do it all right this time, but the only thing he could do was try and make up for what he'd put you through.
the hot chocolate was a peace offering; he knew you loved it – he even knew about the stash you had of it hidden in price's office, away from the other soldiers. he half expected you to just tell him to piss off, but when you accepted it, he felt his heart soar.
it ignited a spark of hope within him. more than anything, he just wanted you to like him, it didn't matter if you never saw him the way he wanted you to.
he intended on waking you up the next evening, before he left for the pub, but when he saw how peaceful you looked while you slept, he couldn't bring himself to disturb you. 
you stayed with gaz and soap most of the night, and he spent the night watching you from the bar and dimly lit corners, assuring himself that you were okay. when it came time to drag you home with him, he had never been so nervous. taking care of people was the exact opposite of his strong suit, especially when they started crying at him.
he almost couldn't believe his ears when you said you liked him.
he'd dragged you home with an arm wrapped around your waist, his head feeling light as a feather. by all accounts, he should've been annoyed at having to look after you in your inebriated state, but he found himself smiling under his mask the whole way home – even when you almost threw up on him.
when you rested your head on his shoulder on the bathroom floor, he might've actually short-circuited. all thoughts except for you evacuated his mind, and a wonderfully warm feeling blossomed in his chest that made his stomach flutter like never before.
he came so close to spilling his guts to you, but then he remembered that you were drunk, and you most likely wouldn't remember it if he did. so he resigned himself to tucking you into bed with an uncharacteristically gentle touch.
the next day, sitting on that park bench with you, laughing with you like he'd wanted to for so long – it was everything to him. it sent his pulse through the roof, it was complicated, and it was so pleasantly warm.
the logical part of him knew that this would only end painfully for him, but found himself willing to risk that if it meant more of these moments with you.
but of course, he'd fucked it all up at the first opportunity. he'd screamed in your face and he had yet to even apologise for it – for any of it. he felt immeasurably guilty, but he was so scared he couldn't even force himself to be around you.
even price had yelled at him for how he'd treated you. you were traumatised, you had a very real phobia as a result of the house fire, and he felt like a fucking fool for not noticing. he swore to himself he'd make it up to you, he'd grovel at your feet for the rest of his life if he had to, and if you never forgave him he still wouldn't blame you.
he regretted it – of course he did. he let his fear consume him; the fear of you getting hurt, of losing you, and not being able to do anything to save you.
almost as soon as the words had passed his lips, he realised what he was doing, he heard himself. the anger in his voice, the fearful look in your eyes as they glistened with tears, it was everything he didn't want to be.
he felt just like his–
no. he refused to even entertain that thought. he'd never be… that. you deserved so, so much better than the broken husk of man that he was. no matter what he did, he would never deserve you; and it was selfish, but he still hoped that you could somehow forgive him.
it's only been a few days since you left on that assignment for laswell, but he's found that being alone in his house didn't bring him the same comfort it used to. the silence never bothered him before, in fact he greatly preferred it, but now it just felt empty. like there was something missing, leaving a hole in the space it used to occupy.
deep down, the rational part of simon knows that it's you, of course it is, but you wanted nothing to do with him right now. he knew he had to fix things, he would never get over the hollow feeling in his chest if he didn't. that's why he was currently standing at the edge of the runway in the middle of the night, watching the ramp of the helo lower to reveal you, gaz, and the captain.
you looked shattered, like you hadn't slept for days – which was probably true – and he was suddenly overcome with the urge to gather you into his arms and not let go. he wondered if the remnants of dried blood that were visible on your hands and face were yours.
he felt his heart rate pick up as you made your way closer to him, his icy stare softening when he sees how you drag your feet across the tarmac.
when you were close enough, he reached his hand out to grasp your arm, opening his mouth to speak, but he never makes contact.
you sidestep him, and he feels his heart break in his chest. any words he was planning on saying die on his tongue as he turns to watch you slip through the doors without a hint of acknowledgement to him.
price gives him a rough pat on the shoulder as he and gaz pass by. "fix it, simon." he murmurs, before disappearing through the doors as well, leaving him alone outside the building.
he will fix it – he'd do whatever it takes because simon doesn't just need you, he's come to the alarming conclusion that he loves you – he just has no idea how.
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taglist p1: @sofasoap , @siilvan , @mockerycrow , @i-love-ghost , @projectdreamwalker , @achelois-is-here , @adamsloverboy , @thatchickwiththecamera , @chickensandwich69 , @batmanunicorns523 , @tiny-kasper , @dezibou , @pampeop , @cumbermovels , @goth-boi-atlas , @berryjuicyy , @guiltgoreglory , @postmodernrevolutionist , @untoldshortsofthefandoms , @delilah-grimes , @sunflowerqueen1416 , @luvssemma , @ghostslittlegf , @imonmykneessir , @kenz-ee , @eistro-phobia , @rzmarona , @alanalanalanalanalanna ,
@cathnoneofyourbusiness , @madsothree , @geisterfvhrer , @lazyninjaphilosopher , @aliilium , @koi-feish , @chaoticgoblindev , @clear-your-mind-and-dream , @thrivig-n-jiving , @lesterous , @glitterypirateduck , @slu77ym4nw415ts , @livelaugh-light , @trulylavendedarling , @stateofcatatonia , @rivalriotrenegade , @yoichiislovie , @nirvanaaaonly , @ameliaamareeee , @batmanunicorns523 , @sapientiia , @thesecretwriter , @susanmukami , @ryze1113 , @stars-andfreckles , @spya1 , @tunaa-luvchrm , @tzutology , @kuruksenshi
if your name is crossed out, i can't tag you for whatever reason, sorry! ༼ つ ◕_◕ ༽つ
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