Tumgik
#monogenicdiabetes
thewitfire ยท 10 months
Text
Unraveling the Mysteries of Monogenic Diabetes
Unraveling the Mysteries of Monogenic Diabetes. #MonogenicDiabetes #sciencenews
Monogenic diabetes is a form of diabetes resulting from a single pathogenic genetic alteration, is the focus of a recent study published in Nature Reviews Disease Primers. This form of diabetes typically has an early onset and provides a unique window into the epidemiology, pathophysiology, diagnosis, and treatment of these conditions. The study also delves into the quality of life of patientsโ€ฆ
Tumblr media
View On WordPress
0 notes
theediabeticwonder-blog ยท 6 years
Photo
Tumblr media
#fightingt1dfriday What's been your biggest T1D struggle or hurdle this week?! . . . Find out mine on my blog! ((Link in bio)) ๐Ÿ’™ Would love some advice and thoughts!! . . . #t1dwarrior #t1d #type1kids #typeonediabetes #type1diabetes #diabetictoddler #weneedacure #neonataldiabetes #neonatalmonogenicdiabetes #monogenicdiabetes #diabetesblog #momswhoblog #mommyblogger #t1dlife #insulinpump #insulindependent https://www.instagram.com/p/BokEfPIhyUM/?utm_source=ig_tumblr_share&igshid=6tbldn7q1p2j
0 notes
theediabeticwonder-blog ยท 6 years
Photo
Tumblr media
Carter has been accepted to the #dexcomwarriors program!! ๐Ÿ˜ He's been on a Dexcom since about a week after diagnosis in November 2017 at the age of 6 months. It has literally saved his life in countless occasions. We couldn't live without #dexcom ! . . . #warriorup #dexcom #dexcomwarrior #dexcomg6 #dexcomg5 #infantsandinsulin #insulindependent #neonataldiabetes #neonatalmonogenicdiabetes #monogenicdiabetes #typeonediabetes #type1diabetes #babieswithdiabetes #type1kids #t1dmom #weneedacure https://www.instagram.com/p/Boj-rXjh4t9/?utm_source=ig_tumblr_share&igshid=uhsjwcwfhnae
0 notes
theediabeticwonder-blog ยท 6 years
Photo
Tumblr media
To go along with my earlier post... This whole "cutting down on coffee" hasn't been a thing since we all got sick nearly 2 weeks ago. Combine that with diabetes and legit coffee isn't a choice, it's my lifeline. . . . #โ˜• #coffeeislife #fightme #mommyneedscaffeine #caffeinefordays #tiredasamother #tiredmom #t1dmomlife #t1dmom #neonataldiabetes #neonatalmonogenicdiabetes #monogenicdiabetes #type1kids #typeonediabetes #type1diabetes #baddays#gooddays #stressed #happyday #inspiredday #coffeeallday #coffeeaddict #starbuckscoffee https://www.instagram.com/p/BohcC6Lht8r/?utm_source=ig_tumblr_share&igshid=1bu80imbz2xl9
0 notes
theediabeticwonder-blog ยท 6 years
Photo
Tumblr media
Couldn't resist! ๐Ÿ˜‚๐Ÿ˜‚ My favorite are the "natural cures" I keep reading and being told about. Listen ... Cinnamon isn't going to cure Carter. Thanks though! โœŒ๏ธ๐Ÿ˜‚๐Ÿ™„ ๐Ÿ‘ฃ ๐ŸŽ—๏ธ ๐Ÿ‘ฃ #diabetesmemes #funnymemes #thereisnocure #neonataldiabetes #neonatalmonogenicdiabetes #monogenicdiabetes #typeonediabetes #type1diabetes #raredisease #chronicillness #blogger #diabetesblog #momblogger #diabetesawareness #diabetesproblems #infantsandinsulin #mommywarrior #t1dtoddler #t1dlookslikehim #t1dyoudontsee https://www.instagram.com/p/BnWu9_4Hbg8/?utm_source=ig_tumblr_share&igshid=jbdr2dktirse
0 notes
theediabeticwonder-blog ยท 6 years
Photo
Tumblr media
Remember that blog posting promised you about my epic mistake?! ๐ŸŽ—๏ธโœŒ๐Ÿป It's here! Link in bio! ๐Ÿ‘ฃ ๐ŸŽ—๏ธ ๐Ÿ‘ฃ #infantsandinsulin #momblogger #momofthree #momwarrior #t1dmom #typeonetoddler #typeonediabetes #type1diabetes #neonataldiabetes #neonatalmonogenicdiabetes #monogenicdiabetes #mistakeshappen #liveandlearn #typeonestrong #diabetesawareness #diabetesproblems #diabetickids #diabetictoddler #lifewithchronicillness #thisislifewithdiabetes
0 notes
theediabeticwonder-blog ยท 6 years
Photo
Tumblr media
Take your best shot, we will come out standing and stronger every time! I was made for this sh*t ! ๐ŸŽ—๏ธ๐Ÿ‘ฃ๐ŸŽ—๏ธ #t1dmom #t1modsquad #parentsofdiabetics #parentingdiabetes #wearestrong #survivor #neonataldiabetes #neonatalmonogenicdiabetes #monogenicdiabetes #type1diabetes #typeonediabetes #typeonetoddler #keepfighting #weneedacure #hellandback #ourbestlife #infantsandinsulin #takeyourbestshot
0 notes
theediabeticwonder-blog ยท 6 years
Photo
Tumblr media
Ha, if this isn't true idk what is! Anyone else get a "shot" of insulin upon placing a new pod? Carter does! ๐Ÿ™‹๐Ÿผโ€โ™€๏ธ๐Ÿคท๐Ÿผโ€โ™€๏ธ So when he went to eat last night we had to factor in some sort of insulin dose that would be given in the new site, subtract that from what dinners bolus would be and go off that. Oh, and it was almost bed time so we erred on the side of caution as always but then he also needed a bath and the warm water makes him drop quickly ๐Ÿคฆ๐Ÿผโ€โ™€๏ธ so you tell me, oh mighty God of Insulin... What the hell dose am I supposed to give Carter? ๐Ÿคท๐Ÿผโ€โ™€๏ธ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚ #diabetesproblems #neonataldiabetes #neonatalmonogenicdiabetes #monogenicdiabetes #t1dtoddler #diabetickids #diabetictoddler #type1diabetes #typeonediabetes #insulindependent #omnipodder #omnipod #thisislifewithdiabetes #t1dlookslikehim #infantsandinsulin #blogger #momblogger #chronicillness #invisibleillness #t1dyoudontsee #diabetesblog
0 notes
theediabeticwonder-blog ยท 6 years
Photo
Tumblr media
HA, isn't this the truth! One of the biggest parts of diabetes that I had to accept was that there is never going to be an "aha" moment. And if there is, it's going to be very brief. Every day is a new journey with new battles and new learning opportunities. Every day is trial and error and even if we get it right today, there's a 95% chance things will be different tomorrow. May your day be filled with the good kind of trial and error ! ๐Ÿ’ž๐Ÿ™Œ๐Ÿป๐Ÿ˜˜๐Ÿ˜†๐Ÿ˜ #t1dmom #t1dparent #diabetictoddler #diabetickids #insulindependent #typeonediabetes #type1diabetes #neonataldiabetes #neonatalmonogenicdiabetes #monogenicdiabetes #infantsandinsulin #parentingdiabetes #t1dlookslikehim #invisibleillness #chronicillness #momblogger #momblog #blogger
0 notes
theediabeticwonder-blog ยท 6 years
Photo
Tumblr media
๐Ÿ™„๐Ÿ™„๐Ÿ™„๐Ÿ™„ ... Had a low of 41 and then another low at 72. Pod changed tonight to find he had a bleeder under the cannula... My husband says that's why his graph looks like this??! Dexcom was also crazy off this am... Telling us Carter was 144 when he was 89. It took 48g of apple juice to get Carter's sugar back up ๐Ÿ˜ซ๐Ÿ˜ซ But yeah... Diabetes had a killer laugh at my expense today ๐Ÿ˜ฃ๐Ÿ˜ฃ๐Ÿ˜ฃ ๐ŸŽ—๏ธ๐Ÿ’™๐ŸŽ—๏ธ #infantsandinsulin #diabeteswontoday #dexcomg5 #dexcom #typeonediabetes #t1dtoddler #t1dmom #hypoglycemia #lowbloodsugar #applejuicetotherescue #omnipod #omnipodder #neonataldiabetes #neonatalmonogenicdiabetes #momsofdiabetics #monogenicdiabetes
0 notes
theediabeticwonder-blog ยท 6 years
Photo
Tumblr media
Most diabetics would freak at this kind of graph... But not us! A few months ago, this same chart showed us only โ€in range" 17% of the time. To have 56% of Carter's day be in range is nothing short of a miracle. Not sure if this really is getting easier as he gets older or if we are just lucky, but either way, this gives me a little more confidence that I'm starting to know what I'm doing. ๐ŸŽ—๏ธ๐Ÿ’™๐ŸŽ—๏ธ #diabeteswillnotwin #infantsandinsulin #diabetictoddler #t1dparent #t1modsquad #t1mom #t1warrior #wearegreaterthanthehighsandlows #lifewithdiabetes #parentingdiabetes #dexcomg5 #dexcomclarity #inrange #neonataldiabetes #neonatalmonogenicdiabetes #monogenicdiabetes #diabetesawareness #diabetesmanagement #diabetickids
0 notes
theediabeticwonder-blog ยท 6 years
Video
Yep. About how our night went last night, again. Spent the day chasing high and was up twice last night treating lows. Ever tried to give a toddler glucose gel in their crib while they're sleeping? Let me fill you in- it sucks. All his blankets, pillowcase and even his hair are sticky from the drooled gel. And each time he has a low I spend at least a half hour awake in bed watching #dexcom ๐ŸŽ—๏ธ๐Ÿ’™๐ŸŽ—๏ธ #infantsandinsulin #insulindependent #wearegreaterthanthehighsandlows #hyperglycemia #hypoglycemia #lowbloodsugar #highbloodsugar #glucosegel #t1dmom #t1dtoddler #neonataldiabetes #monogenicdiabetes #fudiabetes #duckfiabetes #weneedacure #hestooyoungforthis
0 notes
theediabeticwonder-blog ยท 6 years
Photo
Tumblr media
December 2, 2017, we finally left the hospital after Carter's diagnosis 31 days prior on 11/1/17. We didn't hold his hand, because he was just shy of 7 months old and was in a stroller. But I'll never forget that feeling of leaving Boston Children's with him. I was so happy to be leaving the hospital after such a long stay but also so, SO scared and anxious thinking about how I'd manage this tiny little man's blood sugar without the constant supervision of doctors and nurses. All those feelings will never, ever leave me. Do you remember leaving the hospital with your T1? How did you feel? ๐Ÿ’™๐ŸŽ—๏ธ๐Ÿ’™ #t1dlookslikehim #t1dyoudontsee #bostonchildrenshospital #diabetesdiagnosis #neonataldiabetes #monogenicdiabetes #infantsandinsulin #type1d #t1dbaby #t1parents #t1dmom #insulindependent #typeonediabetes #type1diabetes #7monthsold #nostalgia #chronicillness #invisibleillness
0 notes
theediabeticwonder-blog ยท 6 years
Photo
Tumblr media
My stressful reality as a #t1dmom. Every decision has the potential to be a life or death one without constant monitoring and checking. The same drug that I inject into my son via pump has the potential to both save his life or kill him in the wrong quantity. And for Carter, at just 15 months old, his dosing needs change about every 3 days due to his constant growth. So quite literally, nearly every dose of insulin is an educated guess with our fingers crossed. #lifewithdiabetes #t1dyoudontsee #t1dtoddler #kidswithdiabetes #parentingdiabetes #parentsofdiabetics #typeonediabetes #type1diabetes #type1toddler #typeDONE #weneedacure #infantsandinsulin #neonataldiabetes #monogenicdiabetes #chronicillness #invisibleillness #insulindependent #insulinpump #omnipod #dexcomg5 #dexcom #jdrf #kovlerdiabetescenter #findacure
0 notes
theediabeticwonder-blog ยท 6 years
Photo
Tumblr media
Couldn't get Carter to sleep tonight for ANYthing. Instantly, my mind went right to omg he's got ketones or his sugar is gone whack, even though Dex says it's ok. So I go get him, test him, change his diaper just for the hell of it. Gave him some water etc etc. Put him back down after determining it was nothing medical, hand him his elephant binkie and he instantly starts screaming. I took the elephant back only to finally realized why he's screaming. Take a closer look at the elephant pacifier... He bit the top right off! Getting him off the pacifier eventually is gonna be a living hell - tonight proved that! ๐Ÿ’™๐ŸŽ—๏ธ๐Ÿ’™ #typeonediabetes #typeonetoddler #t1dtoddler #neonataldiabetes #monogenicdiabetes #infantsandinsulin #omnipod #elephantwubbanub #wubbanub #boyloveshispaci #binkie #genteel #strongwilledchild #parentingdiabetes #t1dmomma #t1dmom #momofthree #blogger #momblog #lifewithdiabetes
0 notes
theediabeticwonder-blog ยท 6 years
Photo
Tumblr media
I cannot WAIT to see Carter's endo tomorrow. This sh*t is crazy! The only steadiness we get is at night, but last night his typical basal ran him a little lower than we like at night (goal 150). And then during the day something is so crazy off the mark I can't even deal. My poor son. So, so thirsty and then trying to take a nap and he's super restless from being so high. I'm sorry, buddy, I am trying so hard to get the numbers right for you!! #momfail #yousuckdiabetes #t1dtoddler #t1dwarrior #momofadiabetic #t1dmomma #infantsandinsulin #dexcom #omnipod #neonataldiabetes #monogenicdiabetes #ifeellikeafailure #sos #hyperglycemia #highbloodsugar #wtfisgoingon
0 notes