#midodrine

[atbussysparks]

Shenron when I ask to see Vegeta's balls for the 73rd time in a row (it would've been 101 times but I stopped to ask him for a midodrine real quick)

#shitpost #shitposting #dank humor #fresh memes #dank memes #dragon ball z #dbz #vegeta #shenron #dragonball #dbs #midodrine #fish #flabbergasted #goldfish #sea creatures

[aedemoth]

I know why they can’t, but this is one of those days where I really, really wish PCPs had a 24/hr medical question line.

Is this just a POTS flare up? Should I stop taking my medication? Should I go to the ER? The last thing I want to do is make an ER visit, it just surpasses having to see another new doctor. 

Google is no fucking help, either.

#POTS #medical issues #midodrine #if anybodys heart palpitations got fucking whack after starting on midodrine hmu because my doctor is not talking to me cause its a friday

[reginaofdoctorwho]

SO saw the cardiologist again (np but it was a followup so), cardiologist changed my diagnosis from neurocardiogenic syncope to POTS. not much difference in the lifestyle "changes" they'd want me to make but because it was switched they're prescribing me midodrine, already picked it up from the pharmacy gonna take first dose today (unless i forget)

looking it up on reddit and tumblr it does seem to help a lot of people so hopefully it helps me too :)

kinda scared of being diagnosed with POTS since there are so many people online who have such a horrible time with it but at the same time i'd be having these symptoms whether i was diagnosed or not, i've been having them for a couple years now, and even if the med doesn't work now i know it's not just all in my head

#pots #postural orthostatic tachycardia syndrome #literally if the meds help me that'll be a fucking godsend #a lot of people were talking about how they don't have energy until they take their midodrine and like #goddamn i hope I get energy from it #i hope so badly that it works

[fruitless-vain]

Me: I really want to work out a bit, just like small doses little things, I just want to be vaguely stronger, perhaps exercise would help my medical condition even just a little bit. Just do curls on the couch, something basic, try not to trigger anything.

Me: *takes three steps* *dizzy**vision gone* *headache* *energy zapped away* *sits down*

#I miss Midodrine #why did it have to stop working

[geraskier]

another thing abt sawbones is my mom has apparently tried every fad diet ever, except i didn't know at the time that the diets she was trying have no scientific basis. she's intelligent and disciplined, so i've just always assumed everything she does is well-founded. but sawbones has dissected, and i'm not exaggerating, almost every single "alternative medicine" treatment or diet my mom has ever advocated for.

so it's like, emotionally difficult to confront how often in my life my mom has made poorly informed decisions & refused to re-examine them. but at the same time listening to a casual medical history podcast is the lowest-impact, lowest-stakes way to come to terms with that.

#the gabapentin and the midodrine have helped. that is genuinely it. and honestly? i probably could have gotten those meds with #'traditional medicine doctors' anyway. altho the prescription history is important bc i can say i already know it works #newt needs a text post tag #newt's medical posting

[perdidit-vulpes]

"your blood pressure is low for your age and... size."

#tags are bad ignore #///////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////// #thanks i'm not eating for the next week #'increase your sodium' i'd rather fucking die thanks #not drinking gatorade either #i'll drink 3L of water daily if u want #yeah i KNOW the ana is making it worse #it was shitty to begin with tho #and i swear to god if i just get hit with the ''your blood pressure is low because you're still a pretty young teen'' #girl my RESTING bp is 80/60 WHAT DO YOU THINK THAT'S GONNA DROP TO WHEN I DO JACK SHIT #best case scenario here i get my grubby lil paws on meds (preferably not fludrocortisone tho) #worst case scenario i get an ana dx #worst worst case scenario whatever they tell me doesn't work and i faint when i get back to school #ughhh hoping for a midodrine rx here wld solve so many of my problems

[variantoutcast]

How long should you trial new meds before giving up? I was always told 2 weeks but depends on side effect severity. I can make myself tolerate a lot of side effects, but the question is more so is there a rough timeline in which they will go away? I know this depends at least somewhat on the drug you're taking, too.

#i'm trialing midodrine which has a half life of like 4 hrs and I'm taking 5mg 3x daily (which is half the dose suggested for the average #pots patient) #and I literally feel like I have the fucking flu with no significant increase in bp 2 hrs after each dose #so should I keep trialling it with these deeply unpleasant side effects (in hopes they lessen) so I can eventually up the dose to 10mg #3x daily and maybe see that bp increase? or should I call it since I feel so fucking sick #maybe I'll message my doc but I think I'll give it 1 more day ag 5mg #maybe 2 more days... idk do you guys have any thoughts?

[carmillatism]

nastya has hypotension to me

SO FUCKING REAL. as a taker of meds that raise my blood pressure (but i somehow don't have low blood pressure), she can take midodrine as a treat. i subscribe to her having hypovolemic pots (<has written her with pots so many times). she also has veds AND-

#i can keep going. #autism. bpd. ocd. ocpd. ibs. and etc. #nastya rasputina #the mechanisms #answers #physical disability #hypotension #pots #pots syndrome

[howtobeapersonwithfibro]

Hi so I don’t know if you really take asks but I would like some assistance here. I am a teenager who was diagnosed with POTS a little under a year ago and I’m starting to think I may need a mobility aid. I have never fainted or actually fallen due to my disorder but some days I get worryingly close and I need to sit down quite often after short periods of time out of my bed.

I have brought up the idea of a cane or something along those lines to assist with balance when needed (I don’t leave the house often and when I do it tends to just be on days when I’m not having those walking issues), but my idea was turned down due to the possibility of my body not being able to build up strength and becoming reliant on the aid (mind you I’m already leaning on walls quite a bit and am terrified of going down the stairs without a death grip being had on the rail).

Any information you’d be willing to give would be helpful, especially around if my pots is at a point where mobility aids wouldn’t be a longtime detriment (obviously all in your opinion. I haven’t been able to talk to my doctor yet)

Greetings!

I'm glad to hear you've gotten a diagnosis so you can at least know why you're feeling so crappy, but I'm also sorry you have to deal with POTS. I know from firsthand experience how much it can interfere with your life, way more than people can see from the outside.

I am 100% on board with you getting a cane, especially since it sounds like you need and would really benefit from one. My POTS is the reason I use mine. It was really shocking at first how much using it reduced my fatigue and dizziness when walking, just by pawning some of the weight off on the cane.

I know how awkward it is to navigate the mobility aid talk with family, friends, and even doctors, especially if a doctor didn't recommend it necessarily. But you know your body best, you can do what's right for you, and ultimately (unless you need financial/practical help from parents to buy one) the choice is all up to you. It is uncomfortable socially at first but the benefit FAR outweighs the drawbacks in my opinion. I think a lot of people on POTS/chronic illness/spoonie tumblr (search those tags for more info!) would agree that mobility aids are a huge help in their lives, and I honestly haven't heard a lot of stories where doctors have been the one to bring it up.

The fear about you getting weaker is kinda bullshit tbh. You're already (probably) getting weaker from POTS; the worse you feel from it the more you have to sit/lie down and rest. If walking feels better because a cane helps, you're actually more likely to walk more.

(also, if you can see a cardiologist, mine have recommended salt either in diet or tablet form, a medicine called midodrine [didn't work for me personally], and a beta blocker [has made a huge difference for me personally. i've found no one else really knows much about dealing with POTS, doctor wise.)

You are doing a great job advocating for yourself and seeking out information, so keep doing that. I believe in you and I hope you feel better soon. Feel free to follow up and let me know if you get a cane how it goes!

<3 Jenna

(other potsies, feel free to add advice in the comments! multiple opinions are better than one!)

#my post #spoonie #chronic illness #disability #pots #postural orthostatic tachycardia syndrome #ask #answered asks #mobility aids #mobility aid user

[squidong]

update: I’m experimenting with phenylephrine to raise my blood pressure

it has the same mechanism of action as midodrine, which is approved to increase blood pressure & is one of the preferred medical treatments for POTS.

stay tuned for updates

[fursasaida]

dysautonomia is terrible and very strange, but sometimes the strangeness is cool because it involves whole new levels of proprioception.

I went off-routine today for reasons, which means I [gasp] went a whole 5-6 hours without eating a mountain of protein. this would have been nothing to me before and now it is dangerous. so, fueled by two squares of chocolate and a string cheese, I made myself my actual food. in this situation, that is a delicate tightrope between the energy expenditure and upright time spent making the food, and the reward I'll get when it's done. I managed not to fall off the tightrope, and when I sat down:

I felt the immediate lightening that comes with being in a more advantageous position vis-a-vis gravity;

as I started eating, I felt my whole body...I can't think of another word but "bloom." I felt surface capillaries contract. I felt blood more fully reach my skin and the top of my head. (these are not contradictory because my problem is that my veins are generally too loose to move my blood around sufficiently.) light tingles all down the tops of my arms, shoulders, shins, and feet. I felt a general sense of something relaxing and expanding, which is probably some combination of lessened blood pooling and release from postural stress;

95% of the way through my bowl I started to feel Enough. this is not the same as full, because I have to eat small amounts at a time and those amounts are less than what it takes to feel full. but Enough is "the end of this safe amount." I stubbornly took a couple more bites and got the sensation that isn't quite nausea but would be if I kept it up. so I stopped and wrote this, to pass the time until Enough will have passed and I can finish the last few bites.

I can feel my blood moving all the time.

I would absolutely prefer to have a (better) functioning sympathetic nervous system. but sometimes there are interesting experiences in this. it's perhaps a bit like legendary monks who reputedly could control their autonomic processes through meditation, but from the outside in instead of the inside out. it certainly has mystical potential.

I don't know where I'm going with this and probably won't for years. my last dose of midodrine has worn off and I need to get into bed posthaste. back to my last bites of food. goodnight

#galenic hydraulics #i really need to get around to trying acupuncture one of these days

[reginaofdoctorwho]

yesterday would've been our 6 month anniversary. i miss him

#i love that the midodrine helps so much but just #i hate that i took it for the first time and in under an hour the depression i'vw had so long was toned down to normie levels #like i'm able to be happy and see good and be excited #and that was why he broke up with me #because i couldn't #and the brainfog was gone too and just. i was so close to passing last semester #literally one more point on each test #and i know i could have if i had been medicated #i could've been celebrating 6 months and then valentines day with my boyfriend if i'd been medicated #i could be finishing up my nursing degree #it just. i'm glad i have it now but i wish i had him too

[fruitless-vain]

I was ✨ talking ✨

#love that #Midodrine dropped to 2x a day today #super nauseous for the noon salt dose #rough day

[vergak]

Started midodrine yippy! It's a low dose and I can't tell exactly how it effects me yet but my limbs and extremities feel lighter and like I've got less blood pooling. Other than that it's subtly and I don't feel any side effects.

#pots syndrome #chronic illness

[mcatmemoranda]

Pt was seen by cardiology for POTS workup and this was the A/P:

Syncope and collapse

Suspect POTS. Midodrine 2.5 mg bid. Check daily BPs. Tilt table testing. High sodium diet. Aggressive hydration, compression socks, aerobic exercise. Referred to neurology (Dr. Farhad). Will check CBC, thyroid studies, a.m. cortisol, BMP, LFTs.

#POTS