#autism parent

[zebulontheplanet]

Thought I’d talk about my care today since a lot of people don’t talk about care they get from families and outside sources.

I am completely cared by my family. They 100% care for me in every way.

My siblings and parents take care of everything for me. From making meals, to making sure I’m safe, making sure I’m bathed, to making sure I’m handling everything correctly and just generally comfortable.

My family is not my caregivers though, and they make that very clear. They do not want the title of being my caregiver. Does that mean they do things that a caregiver would do? Yes. However, I will not force that title upon them if they do not want it. And I will not force them to act as my caregivers either.

My mother is especially the one to thank. She goes to every doctor appointment, every big outing, everything. She takes care of me in every way and I am extremely grateful for that. I get care that I like to call “support needs care” that means that they do what I can’t, and I do what I can. And that’s how it works.

Will I need a part time caregiver from the state in the future? Probably. And if I wasn’t leaving for a college program in April then I would be in the process of getting one. But I’m not at the moment.

Talking about care that autistic people get is so important, and talking about what they do is so important. They are here for me. They advocate for me when I cannot. They help me with so much, and they deserve recognition for that. Caregivers and parents are a vital part of the autism community. Do they overstep sometimes? Yes. But that doesn’t mean that they shouldn’t be talked about. Not talking about them leaves out a big part of the community, and leaves out a big part of higher support needs people. Our caregivers and parents are vital parts to us. They are vital parts to our lives.

Caregivers and parents do things that people couldn’t even imagine. And everyday it’s a battle for them. This is not a “boo hoo, poor caregivers and parents” post. This is a post bringing awareness to something that is vital to a lot of peoples lives.

Recognize caregivers and parents. Recognize what they do. Listen to them. Listen to the people they are caring for.

#zebrambles #long post #autism #actually autism #medium support needs #actually autistic #autistic #caregivers #caregiver #autism caregiver #autism parent

[thearticulateautistic-blog]

#autism #autistic #actually autistic #neurodivergent #autism mom #autism dad #neurodiversity #autism parent #autistic child

[scarypuff]

exhaustion

the exhaustion i feel after masking and pushing past being burned out is indescribable. it’s not tiredness in the normal sense, it’s not feeling sleepy or ready for a good night of sleep.

it’s throughout my body, it’s right down to my bones, it’s a deep ache in my soul that cripples me. i try to push through it, push through the brain fog and the tears in my eyes, but the exhaustion is just too strong.

i try to form a logical thought, but my brain is running at a million miles an hour, a thousand voices all screaming at once but none of them can be heard.

i look with my eyes but i cannot see, it’s almost as if there is a wall between my vision and the part of my brain which processes things. nothing can break through and all information just turns into visual soup.

things that bring me joy or relax me are too much to cope with. music sounds like nails on chalk boards, textures i usually love feel too intense, sensations that bring me comfort just make things worse. a hug feels like a million needles being stabbed into my skin.

i lay in the dark but i cannot sleep. i close my eyes but my brain displays manic pictures in front of my eyes of all the things i should be doing. i should be working, cleaning, cooking, being with the family. i should be able to cope. i should be able to carry on like everyone else, be social and be around people, be normal.

but i can’t. i never will be normal. spending time with those i love will exhaust me and days spent masking will halt me in my tracks and bring me to my knees. i used to destroy myself, i would hate myself and hurt myself and tell myself over and over that i was inherently broken in some way. no one else felt or acted like this, i must be doing it for attention or doing it to be lazy and get my own way.

but time and time again the same thing would happen. and those around me would start to notice patterns and anticipate the exhaustion after the activities. yet each time i’m surprised.

i suppose it’s because each time i hope that it wont happen, that this time i wont burn out and melt down, that this time will be the time i “get better” and i never fall down again. but that’ll never be the case, because autism is how my brain functions, and forcing myself past my limits over and over again is like trying to tell a blind person to see and then yelling at them when they cannot. it’s like expecting a dog to perform surgery and then kicking it when it’s just a dog. it’s like putting ice out in the sun and then being angry when it melts.

#autism #autistic #autistic adult #autism parent #actually autistic

[dumpster-druid]

neurodivergent and queer people how are we feeling?

#dimension 20 hitting me deep in the chest again #d20 #dimension 20 #neverafter #brennan lee mulligan #the beast #d20 the beast #la bete #neurodivergent #adhd #autism #queer #lgbt #my fucking parents fr fr

[thewildeflipper]

#autism parent #autism #ms #multiple sclerosis #author #artist #life stories

[bli-o]

hey autistic people who get overwhelmed by large groups or noise or conversation or etc etc etc you’re not evil for wanting to leave a family gathering. just so you know.

#additionally hard when you have no diagnosis #people just think im “antisocial” and “rude” #while im over here completely burnt out #because the whole room is talking and the tv is loud and all the lights are on and every kid in the house is shrieking about something #and whoever you came with(looking at you parents) acts like you’re evil and hate your family when you even ask when you’re leaving #autism #actually autistic #autistic #autism spectrum disorder #autistic things #asd #autistic community #undiagnosed autistic #undiagnosed neurodivergent #undiagnosed autism #neurodiversity #neurodivergent #neurodiverse stuff #neurospicy #neurodivergence #neurodivergencies

[pumpkinspicedmochi]

Dear parents

Pretending that your kid isn't disabled and getting mad at them for needing more help and support than your other kids and wanting them to "try harder" and also pretend that THEY aren't disabled by ignoring their OWN needs as well doesn't make them less disabled by the way

#lowkey a vent oop #neurodivergent #ableist parents #ableist #ableist mother #ableism #physically disabled #disability #actually autistic #disabled #physical disability #actually disabled #autism #chronic pain #actuallyautistic #internalized ableism

[crispydinosaurstrawberry]

20th February 2023

Back to School Today the boys went back to school after the half term. Was half expecting there to be kick offs as both boys have anxiety regards going to school, but they surprised us both and couldn’t wait to get to school. Our velvetiser from hotel chocolat stopped working this morning for no reason. We tried everything to get it working and nothing helped. Thats another thing to try and get…

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#ASD #Autism #Autism mom #Autism mum #Autism Parent #diaries #england #honest parenting #Mum blog #Mum blogger #mum diaries #Mum life #SEN #unfiltered parenting #unfilteredparenting

[my-autism-adhd-blog]

Life in an Autism World

#autism #actually autistic #adhd #autism & adhd can be passed down through parents #neurodivergesity and genetics #feel free to reblog/share #source: life in an autism world (Facebook)

[sailing-ever-west]

Sooo sick of meeting autistic and adhd people who were diagnosed at a young age but know absolutely nothing about their own condition because their parents and doctors decided that instead of teaching them the different ways their brains work, they would just shame and correct them for the behavior and slap the diagnosis label on as the name for what needs to be Corrected. I met a whole college adult recently who said that he thought he was having dementia because he would forget things randomly all the time. He was diagnosed with adhd as a child. I had to be the one to tell him that's literally one of the most common symptoms. From the rest of the conversation I'm pretty sure he was told nothing about what he might experience mentally, only why he was too hard for other people to handle. It's so gross to me and I'm just collecting beef with a bunch of random people's parents. As a demographic we have been so neglected and it kills me.

#autism #adhd #actually autistic #actually adhd #actually audhd #disability #parenting

[raynedayys2]

Transphobes hate us whether or not we go by neopronouns. You are not quirky or cool because you hate neopronouns & the people who use them.

We will never meet their expectations, so accusing certain trans people as being the problem makes you just as bad as transphobic people.

You don't have to understand it to be respectful. Calling someone "xe/xem" or "bun/bunself" isn't going to make you combust into a million pieces. As long as they aren't hurting anyone, let them live.

#text post #lgbtq #lgbt #trans #neurodivergent #transgender #autism #neopronouns #pronouns #some of y'all are 35 with 2 mortgages worried about what other people are doing with their lives #and usually the people in question are either neurodivergent or minors or both #I hope your parents are proud you like making fun of minorities so much

[thearticulateautistic-blog]

I'm so excited to announce that my book, "What Did I Do Wrong?" will be available for pre-order in ONE MONTH!! I'm so excited to share this work with you all.

Click on the link below to join the mailing list to get the latest updates.

#autistic #autism #actually autistic #neurodivergent #neurodiversity #autism mom #autism dad #autism parent #teacher #special education #SPED

[scarypuff]

yelling into the void

autistic step-parent to neurotypical twin boys aged six. partner is also neurotypical but does his best to help.

this blog is 100% annonymous and all names of people involved, plus locations, have been changed to protect both myself and my family as i don’t want these little boys to have an internet presence before they’re even really aware of what the internet is.

here i will be yelling into the void about the things i struggle with and try to figure things out along the way.

started this blog because i’m so fed up with all my Google searches coming back as “ways to help your autistic child” or “coping mechanisms for your autistic child”. fed up with autism seemingly stopping in the general media when kids reach adulthood - it doesn’t just go away, and before you know it you’re nearly thirty, surrounded by noise and a chronic lack of personal space.

anyway, that’s all really.

#autism #autism adult #autism parent #step parent #autistic parent

[causalityparadoxes]

Love how Maomao isnt the 'spawned out of the ether' kind of autistic you often see in media. She is very clearly the daughter of two autistic (& otherwise neurodivergent) people. As well as having, at the very least, an autistic grand uncle.

Like thats some real autistic rep right there. Got a family history of autism, accociated trauma and all. I love it.

#realising her dad had face blindess and both her parents were traumatised (likely low empathy) autistics. like yeah damn that tracks #also her grand uncle / dad who stepped up. that is an autistic man right there #kusuriya no hitorigoto #mao mao #the apothecary diaries #Happy autism awareness / acceptance month everybody #Like hands up who has stories of an eccentric family member in the family history who was totally autistic in hindsight

[theconcealedweapon]

"How am I supposed to tell the difference between a child challenging my authority and a child asking for clarification because they have a disability?"

You're not. If you expect anyone to submit to your authority, you're inherently ableist. The system was designed to exclude disabled people and you're upholding the system.

You're always justifying your authority by saying that it's your job to teach them right from wrong. If you actually believe that and it's not just a bullshit excuse to justify your abuse, then you should be encouraging them to ask for clarification and reasons.

#ableism #actuallyautistic #autism #child abuse #authoritarian parenting

[chinelacanta]

at risk of losing his ‘red haired’ title from how green jealousy makes him

#rat haired shanks theory is only acceptable if he rattles dragon to be luffys sole father figure #he’s my little failgirl #dragon is so happy to co parent and that luffy met someone who he could trust and love #and then shanks is just. like that #also RAWRR ILL NEVER STOP MAKING CRACK SHIP PROPAGANDA!!! #RISE UP BENN X DRAGON ENTHUSIASTS #RIIIIISE #also dayuummmm yasopp is slayiiin just saying #like son like father fr fr #also roux <333 he’s my fav from the red hair pirates #monkey d dragon #shanks one piece #yasopp #lucky roux #benn beckman #(only mentioned but like he’s drawn so im counting kanidnje #also will never give up my autism creature dragon propaganda #my art!!