I just reread a post I made the other day and
Knowing I’m never going to get better doesn’t make my head hurt any less.
I want to scream and shake people until they understand that the chronic part of my illness doesn’t make it hurt any less; you don’t stop feeling the pain, you don’t stop suffering, you don’t hurt any less than anyone else.
You just learn to live with it cause you don’t have a fucking choice
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why is religious Christmas imagery all so joyful and pleasant? where is the inherent horror of the birth of Christ? A mother is handed her newborn child, wailing and innocent. Her hands come away sticky. Red. Simply by giving her son life she has already killed him. He is doomed from the beginning. Her love will not save him from suffering. Because the thing cradled in her arms is not a baby, it is a sacrifice: born amongst the other bleating animals whose blood will one day be spilled in the name of what demands it. the night is silent with anticipation. Mary, did you know? That your womb was also a grave?
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genuinely i think it's important for adults, especially in the plague times, to play pretend in our day-to-day lives. when i rub my back down with tiger balm so i can sleep without pain, i imagine i am a valiant knight tending to an old injury i received from a dragon. when i go to the store to pick up eggs and milk, i am a lone cowboy riding into town on a mission. when i turn my collar up against the wind i am a femme fatale who's killed 4 husbands and is scoping out a 5th. when i stomp around in the snow i am a doomed polar explorer. if being a little bit silly about my walk to the pharmacy helps me remember that life can be full of joy and whimsy, then so be it.
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Thinking about them still and always
So I was trying to do a meme redraw and halfway through realised that I mixed two memes up into one so now this is the result lmao. But either way I was thinking of these:
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Living with a chronic illness has made me develop a mix of a wistful way of looking at life itself at the same time I have a whimsy feeling about surviving despite of my condition which is something that still makes me look at the world with wonder.
Yes, I do struggle with a lot problems that a lot of people my age don’t, and yes, I have suffered way too much from my illness. But I still have hope. And I still keep going, even when things are hard, despite how difficult it can be to accept the fact that I will have to be dealing with this for the rest of my life. I am well aware of all the challenges of living with a chronic illness when the world is not always welcoming to people who have disabilities. But I’m going to keep going. Despite the pain, despite cruelty, despite the differences that sometimes made me feel isolated.
I’m still fighting. I’m still here. I’m still alive in the face of everything, and it’s very exhausting to keep trying, but I am here. And life itself can be so beautiful even when I’m in pain. Those two things can and do coexist. And surviving so much it’s a statement that my body might be different, but I can be strong in other ways.
So if you’re dealing with a chronic illness, I’m telling you I am so glad you’re in this world and that being different does not make you any less worthy of being here, of taking space, and that you deserve happiness. And that happiness is not something you have to earn by enduring pain and pushing yourself past your breaking point, but because you’re just as human as everyone else, and as equally valuable.
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Do you ever have that feeling where, despite your distance with your religion, there's still moments where sparks of what you were bought up with, return?
I'm from a religious family, but I'm not in touch with my own religion. Yet there's me calling in the name of the Lord before and after I eat. It's like this lingering piece that I never turn to look at but somehow slips into my ordinary life.
I don't really know you that much, or your religious status. But seeing your religious talks made me want to bring this up.
I don't even know if I make sense here- just- ignore this if you want to, I don't know.
Hmmm I think so. My whole thing with it is really complicated haha. I still go to church every Sunday, though I prefer doing volunteer work with the kids over listening to the sermon. I pray before I eat out of habit. I find myself quoting the bible more often than I open to read it (though this is changing because of all the times I look for references lol). There's a resentment that I get whenever it's brought up, especially around my family. I find myself immediately on guard the minute it becomes subject of conversation. Sometimes at night I'll pace around and just talk. I don't know if I'm talking to myself or to god or whoever but. I'll talk. I think I still believe in him. I definitely believe that there's something out there. I don't think the question is of belief as much as it is of care. Do I care enough to try?
I'll say this though. Whatever I'm doing right now has gotten me to think more about bible and religion than I have in the past few years. So. That's fun! Who knew trying to explore something your own way instead of the way forced onto you by your environment gives your room to feel everything out without any preexisting pressure?
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