very bad and biased video description-
Interviewer: *french* thank you very much roland and curt from tears for fears for this interview
Curt: ...welcome
Interviewer: do you particularly like being a part of the festival or?
Roland: th-this is a fantastic organization i mean the fact is that we've come here a day early we've had all the time in the world to sound check and we-we're gonna go out for a meal tonight we don't have to play til tomorrow. So its great. so its not really- we’ve done-
Curt: *cuts him off* we’ve done other festivals where its nowhere near as organized as this
Roland: *looks at curt, nods* no. this is a walk in the park
Roland: *smirks, leans towards curt and holds mic away. Says something i don't understand*
Curt: *understands, laughs lightly, smirks too*
Interviewer: *french* for the majority of all people-
Roland: your- you in the
Interviewer: oh sorry. *moves hair out of way of mic and sits straighter*
Roland and Curt: *sit up straighter too, then laugh and slouch again*
Interviewer: for the majority of all people. Um, we've never. We'll never be able to know the sensation of being on stage in front of thousands of people. Do you think you could describe it?
Curt: *rubs arm as he sits up straighter, ready to give a bullshit answer*
Roland: its um, its a bit like being-
Curt: *joins him, make eye contact* being on stage in front of thousands of people
Roland: its a bit like being on a stage-
Curt: *tries to cover laughter*
Roland: with one person in the audience, times thousands
Curt: *laughs*
Roland: *looks at him, grins*
Interviewer: ha. I guess so. Okay. *more french*
Interviewer: and what do you do just before going on stage?
Roland: drinking
Curt: *at the same time* drink an excessive amount
Roland: i cant really- yeah he drinks i actually um-
Curt: *helps him out* you do yoga
Roland: yeah… yeah yoga. I do the yogi toe lock
Curt: *smacks lips, looks away and laughs*
Roland: with boots on
Interviewer: with boots?
(sorry thats what your hung up on??? Wrong thing to focus on sweetheart)
Roland: yeah so. Thats- a lot of us sort of stretching, you know
Curt: *loosing it, has to look away to laugh*
Roland: *starting to laugh at his own bullshit* and you, trying to get our legs behind our heads *breaks, laughing*
Interviewer: *stone faced, even more french*
Roland: *laughing because he understands french*
Curt: *also laughing, i think he knows some french from roland* we are kidding tho
Roland: *hahaha* im not!
Interviewer: *you know the drill; french* okay and wheres the after party?
Roland: in.. your…. Apartment
Curt: *laughter*
End of video
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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