#cost of T1D

[12percentspider]

Do you or someone you know need insulin?

Is there someone in your inbox asking for money because clearly they don't know there's help out there? *winkwinknudgenudge say no more say no more* Well, if it's you or anyone else, here's some links to resources for almost anything you could need that relates in some way to being diabetic.

^Long, is a huge list for pretty much ANY complication you could have with diabetes in general. It does explain different kind of insurance plans, would be good for long-term needs. Seems very US based, but there may be equivalent resources in specific other countries that you could probably find with a quick search using these options as search terms. [I did link a couple of worldwide (give or take) sites below]

^US-based list of resources that cover so many different complications that can arise from being diabetic as well as some veterinary resources if your animals need care (if someone in your inbox needs it, point them in that direction?).

^ US-based, exactly what it says on the tin plus more.

Outside of US:

^ Global (mostly). Lists countries that have restrictions, but gives you an application to fill out. They check to see if you're eligible, but it could very well be worth a shot.

^Lists specific countries that have financial resources.

#refdesk #diabetes resources #diabetes financial aid

[raysletters]

2023 Character Wrapped

Rules: share your top 9 characters of 2023

tagged by the lovely @suseagull04 (like, so long ago, but i had forgotten to do it so here i am)

1. Alex Claremont-Díaz (RWRB)

i wish i could explain to you the deep connection i have to this fictional man. he is me and i am him. he probably has been my favorite character since i first found him on 2021 (which is the longest hyperfixation ive ever had, funnily enough) and has actually shaped me to be more confident in myself and all that mushy stuff, so yeah, im just missing a henry kinnie that wants to put up with this mess.

2. Percy Jackson (Riordanverse)

i binge read pjo and hoo these last months, and the way ive become attached to this kid is something else. i want to protect him from anything.

3. Nico di Angelo (Riordanverse)

like with percy, i became attached to him from the moment he showed up, and i would protect him with my life even from rick riordan. he cant do no wrong ever.

4. Henry Fox-Mountchristen-Windsor (RWRB)

henry has specially gained a piece in my heart lately, but i have to be honest, when i first read about him, i thought nothing of him more than the perfect companion and love interest in alex's story. i have to say that getting a glance to his mind through both the bonus chapter and really fucking good fics gave me the insight i needed to comprehend him: his actions, his motivations, and everything in between that made him who he is and made me realize how many things we have in common and how many things i could learn from him, which is always a beautiful experience

5. June Claremont-Díaz (RWRB)

theres nothing i wouldnt do for her. even though i absolutely HATE how i wrote the fic that has june's pov, im still in the process of learning about her and comprehending her more. still, she reminds me so much of my own sister, even though i should kin her more than alex because of the whole sapphic latina journalist who loves her sibling very much, even when they annoy the shit out of you, but alas, im a younger sister and june has so much vibes of my own sister except with my tastes, so yeah, nothing i wouldnt do for her

6. Iris West-Allen (The Flash TV)

in case you didnt know this about me, i had a not-so-recent hyperfixation on the flash (and it can absolutely be seen in my sky high au), and she was half the reason of it. i wish i could put into words how much i fucking love her in every sense of the word. like, i'm in love with her but i also want her to be happy and protected at all costs and i would do anything for her to actually get those things. she can also step on me and i would thank her, but that is unrelated

7. Annabeth Chase (Riordanverse)

what you dont get is that for her i would become like a rabid feral gremlin or maybe that dog that takes a sword in its mouth and starts swinging carelessly. thats how ready i am to protect her from absolutely everything, even spiders, no matter how fucking scared i am of them

8. Imogen Heaney (Heartstopper TV)

yes, i am absolutely biased because the actress also has t1d and my hc is that now imogen also has t1d, but also because i, too, affirmed with my whole chest how i was an ally and totally straight and then slowly realized i was sapphic bc of one cute girl in my friend group that called me out on my bs 💀

9. Barry Allen (The Flash TV)

yes, we dont acknowledge that other version by that other actor. yes, he's last because i had a love-hate relationship with the way he was written. but season 8!barry became one of my favorite versions of him, and i absolutely thank grant (the actor) for the way he made me love the character once again

i missed so many characters that i love but just not like i love these ones. the only one who could easily take barry's place on the list would be nick nelson my absolute beloved, but since flash tv ended this year, it had me in my feelings and i couldn't not put him there, so yeah

DISCLAIMER: i am at the moment reading trials of apollo (im just like 1/4 of the first book) and if somebody spoils me anything i WILL become a rabid feral gremlin, this is your only warning, thank you very much.

anyway, you can consider this an open tag and do this and tag me in it bc i always love to read about yalls favorite stuff. still, no pressure, but im still tagging beautiful ppl so i can read about your favorite characters @anincompletelist @inexplicablymine @read-and-write- @sherryvalli @14carrotghoul @formorewishes

#tag game #2023 character wrapped

[nochiquinn]

The Ongoing Situation, updated and revised with new developments:

my kid is type 1 diabetic. she uses a constant glucose monitor. this involves a small sensor attached to her arm that lasts for about two weeks that we scan with a reader. she has insurance coverage, but the cost of the sensors have been creeping up each time we refill, around $40 for two (so far), and that’s a monthly purchase if they don’t break or fall off or what have you - then it’s twice in one month. the reader has decided that test strips are for other people, so we had to purchase a separate finger-stick tester for when we need to double-check her sensor readings.

the other reality is the cost of insulin. she takes two kinds, a rapid-acting for meals and to correct highs, and a slow-release at night. each of these comes in a pack of 5, and with insurance each of those packs costs ~$75. the rapid-acting disappears faster bc we have to send one to school with her - she’s not allowed to carry it back and forth. so that’s two pens in active use at the same time.

her dad, my partner, is also t1d, and requires all the same supplies she does (sans the sensors/monitor). so they draw from the same pool of alcohol swabs, pen needles, etc, but he has his own test strips he has to purchase, ~$25/50, and we've been having to buy them more often thanks to the aforementioned fuckery with kiddo's reader. he also has to buy his own insulin, which is ~$50/5 pens (since he can thankfully use the knockoff walmart kind), x2 because he also needs a long-lasting dose for overnight. kiddo also has her own stash of supplies at school - a pack of test strips, syringe heads, alcohol swabs, etc - and her dad has one at work. this necessary doubling-up of supplies adds up. school is starting back, so we have to replenish her school kit as well.

so just sitting here and doing the math, sensors + test strips + insulin for them both = $315. and that’s before swabs and glucose tabs and what have you. insulin-dependent diabetic care in the united states is a fucking racket.

this wall of text is to say: helping us buy medical supplies for them both would be a huge weight off our shoulders. ways to do this include:

amazon list, to buy supplies directly. (needles are no longer on here, because for whatever reason amazon has stopped shipping them to our address. I don't know if this is true for everyone or just us, but we're now reliant on the walmart pharmacy and the pip website for needles.)

gofundme

ko-fi/ko-fi shop

tipping

redbubble

teepublic

on the larger scale, please vote for and support politicians in favor of expanding medicaid/medicare, capping the cost of insulin, or universal healthcare in general. voting is not enough etc etc but it's a start. also, as always, burning down the pharmaceutical industry. 💙

#type 1 diabetes #chronic illness #fundraising #signal boost #sorry this is still long #I just want people to understand Why So Much #bc it's not just insulin #(though that's a big part of it)

[beautyandthebetes]

✨oops I did it again✨

After only having the Dexcom G7 for about three months, I took the plunge a little over a week ago to try the Eversense E3. As a T1D on pen injections, having an accurate and stable cgm is literally a lifesaver, and the g7 just wasn’t cutting it.

The doctor who implanted the sensor actually came to my house, everything was super sterile, and the most painful part was just getting the lidocaine injections to numb the area. After a week, I noticed that my calibrations are nearly identical to what the sensor was telling me, and even though the transmitter is more visible than other cgms, it vibrates on my arm instead of my phone screaming at the most inopportune times. The app, while looking dated, has so many more features and is more customizable than Dexcom’s, and even includes a notes area when I’m inputting my data.

I think the best part for me was the price - after insurance it costs the same as a 6mo supply of dexcoms, but now I don’t have to fight with the pharmacy and change everything out every 10 days - just one sensor and one rechargeable transmitter for the next 6 months. And on top of that, when I asked them where I buy the reusable silicone adhesive patches (couldn’t find them anywhere online) they said “Oh no we give you the entire supply you’ll need from the start!” - so for the first time in five years, I don’t have to pay extra money for supplies on top of all the other equipment I use. Oh, and the adhesive being reusable means I can take it off and shower like a normal person, which I can’t believe how much I missed!

All in all, I’m super happy I made this impulsive choice without consulting my endo, we’ll see what she says about it in a few weeks!

#t1d #t1diabetes #t1dlookslikeme #beauty and the betes #t1diabetic #type 1 diabetes #actually diabetic #diabetes #t1dlife #eversense #cgm #continuous glucose monitor

[racheltps]

After 19 years on this #t1d journey, decided to embark full-time on the continuous glucose sensor for the convenience it affords. Only just a year or so back when I decided to get started on the insulin pump too, as I've avoided it for the longest time due to my dislike of having devices, needles, or tubing stuck on me. Somehow, I caved. Despite it being a rather tricky first few months, my body finally stabilised and got used to the pump (sort of), and it has helped to relieve some of the daily mental calculations, test and insulin jab preparations etc. Honestly, the convenience and support it provides does outweigh its higher costs, at least for now while I can still afford it. And look where I am now, not one but two devices stuck on me! On a side note, it does in its little way provide opportunities for me to help raise awareness when people notice the sensor and ask about it. So am more than happy for this added positive too! Decided to note down this moment as a reminder of how far I've come in this journey. Perhaps also as a helpful throwback in future when things get a little wonky again, and there are some hoops to push through. Meanwhile, here's to working towards better blood glucose control, and hopefully an easier and happier journey for health! #diabetes #awareness #healthiswealth (at Singapore 新加坡) https://www.instagram.com/p/CkLfnBRSsjsheBE0rjTOcWja_XiD1IBxh4zmq00/?igshid=NGJjMDIxMWI=

#t1d #diabetes #awareness #healthiswealth

[type1diabetesinfandom]

There’s really something to be said about how t1d affects your entire identity and sense of self when you’re diagnosed young.

Like, this IS my normal. I know it’s wrong. I hate it. I constantly feel like I’m standing locked in the mirror room in a carnival funhouse, watching everyone around me live in an alternate reality I can never step foot in. I’m trying to reach through the glass that no one else even sees but I can’t. Because this is MY normal and I’m stuck with it.

I love fantasy, and there are so many coming-of-age or welcome-to-the-hidden-magical-world stories where the main character, at some point, wants “the cure” and to be normal. They want to go home and forget this all ever happened. My tastes for this trope have changed somewhat over time, but you know what?

I love it. I live it.

You can argue that it’s cool to be a werewolf or a wizard or a demigod or whatever, but there’s always a price with it in 99% of stories, because conflict fuels fiction. There’s always a reason someone wants to close that door: someone got hurt, a lost opportunity, broken trust from withholding secrets, traumatic events, fear of change, a loss of control. Sometimes the benefits outweigh the costs, but sometimes they don’t.

But the characters can’t go back. They have to deal with the issues and the dangers or face even worse consequences.

Sound familiar?

Every time a character experiences that Rejection of the Hero’s Journey (i think that’s the official term for it), it just clicks with me. So. It’s never even about diabetes. It’s about wanting what you can’t have when you’re alone with your problem.

#t1d #type 1 diabetes in fandom #type 1 diabetes #t1d problems #going through my drafts #i don't know how I originally planned to finish this but I think it's good as is #anyway it's nice to have diabetic characters to portray my problems sometimes #but also it's not always needed #everyone is human underneath everything and it all echoes if listen #and also boy am I projecting in this one

[s1l4s-l1k3s-t0m4t03s]

Hello! Apologies for interrupting. I'm a diabetic and have been waiting for over 6 months for my unemployment claim to be processed. I need help purchasing insulin, which costs $450. Any contribution or sharing of my pinned post would be greatly appreciated.

ill rb ur pinned post! i wish i could contribute but i cant even afford my own d1sabl1ity care, and my bf also has t1d and struggles to afford that :[ i wish you luck on contributions!

#silas tag! #oke :3 #will rb #silas answers!

[envychosen]

09. the hermit: how introspective is your muse? how often do they self - reflect?

Thad is an overthinkiner to the extreme. He's lost many nights to that kind of worrying. He'll spiral, too, one memory leading to the next, until he's down a hole he's going to have to bleed to crawl out of. More often than not, he's planned and plotted his entire day and every move he intends to make in it ahead of time. This kind of decision-making is exhausting on top of the strain of juggling the 200 or so extra decisions he makes a day due to the T1D.

When he's in a particularly terrible spiral, anyone who tries to pull him out of it had best be prepared for a level of viciousness that has cost him many acquaintances over the years. He'll lash out. It's one more thing to reflect on later, one more thing to loathe himself for.

---

Major Arcana questions

#answered ask #lore #ooc: thanks anon!

[chaotic-neutral-medstudent]

raise your hand if you’ve ever had a breakdown at the pharmacy because we live in a capitalistic dystopia

#I HAVE INSURANCE THIS SHOULD NOT COST THIS MUCH #whhhyyyy #i mean i can afford it #the price of insulin should be criminal #this is not optional #type one diabetes #T1D #this is why we cant have nice things #literally #because i spend all my money on diabetic things #my insurance does not like novolog #but my diabetes likes novolog... so...

[wormcozy-blog]

Figuring Out How to Move Forward!

(Type one diabetes financing rant)

Hey guys. So I’m working on future life goals for myself (seriously, never done it before), and I’m doing research right now on ways to earn a living while being a type one diabetic, as well as the basic costs of living.

Living cost is insane for the average person, including: gas, food, car insurance, basic grooming tools, rent, as well as others like transport, utilities, etc. Besides all of this, we as T1D patients have to struggle with the cost of test trips (around $1 per strip, supposed to test a minimum of 8 times per day, not including when we go low or high, which requires more treatment costs, as well as medication), the glucose meter itself (usually ranging between $20-$100), insulin (Its dependent on the type, but all true insulin is upwards of $100 per vile without insurance, and if you’re not on a pump, you have 2 different types to purchase. You are required to take a shot of short acting each time you have a meal, and for high blood glucose correction. The basal is dependent on the person, but its usually given one time per day at a higher dosage), glucagon (an tool to use in case of critically low blood glucose, usually between $50-100), needles, ketone strips, lancets, and those are just a few of the BASICS.

Then there are tools such as the CGM (continuous glucose monitor), pump, A1C monitor, etc. Don’t even get me started on their pricing, nevermind the tools necessarily to utilize the devices themselves, however the benefits of owning such devices are drastically life altering.

These are all things the average person wouldn’t need to consider when accounting for their weekly, monthly, and yearly spending. For a type one diabetic, the tools and medications listed above are as secondhand and necessary as the average persons’ grocery shopping. That being said, even this comparison isn’t completely accurate, while a T1D patient isn’t as in control of their usage of these products, such as one simply eating certain meals to avoid higher spending costs. Maintaining a regular A1C and glucose reading is imperative to a type one diabetic, as not only is it reliant on how much he or she spends, but also on their basic health, their longevity of life, and in critical cases; life or death.

Now, we begin on health insurance. Some insurances will make a person with a preexisting chronic illness pay more, as their cost of living is higher. Nevermind the mental strain this has on someone dealing with T1D, as they may need to accommodate for nutritionists, meal plans, mental health experts, and medications as many experience dramatic highs and lows brought on from the instability of his or hers own body.

Personally, I’m disabled due to other health complications brought on by my weakened immune system, stress of living, and basic care requirements. I’ve been called a “brittle” type one diabetic since I was diagnosed at 6.

That being said, I’m determined to not let this hold me down, so back to the drawing board! I want to travel, explore, and experience new things in life. Getting my health under control is check number one, then accommodating for my illness with my goals and dreams...well, that we’ll just have to figure out.

Rant for today!

#T1D #type one diabetes #type one diabetic #T1Dstrong #T1Darmy #dexcom #pump #cost of T1D #T1Dcost #T1Dliving #typeoneliving #diary #observation

[diabets]

i rly want a pump but in australia if you don’t have private health insurance, they retail at like 5-10k and i do not be having that, but private insurance at the level to get a subsidised/cheaper pump is 40-$50 PER WEEK so basically i’ll be on injections for the rest of my life

the only saving grace is my cgms used to retail at $95 + shipping per sensor but now they’re zero dollars bc the gov finally subsidised them for students

#t1d #f #actually diabetic #australia can suck my toes #wish i was not diabetic bc DAMN the cost for some sexy diabetes equipment is the equivalent to a politician’s salary #piper speaks

[nochiquinn]

so here is the ongoing situation:

my kid is type 1 diabetic. she uses a constant glucose monitor. this involves a small sensor attached to her arm that lasts for about two weeks that we scan with a reader. she has insurance coverage, but the cost of the sensors have been creeping up each time we refill, around $25 for two (so far), and that's a monthly purchase if they don't break or fall off or what have you - then it’s twice in one month. there are also test strips for her reader, and these are ~$25 per box of 50.

the other reality is the cost of insulin. she takes two kinds, a rapid-acting for meals and to correct highs, and a slow-release at night. each of these comes in a pack of 5, and each of those packs costs ~$100. the rapid-acting disappears faster bc we have to send one to school with her - she's not allowed to carry it back and forth. so that's two pens in active use at the same time.

her dad, my partner, is also t1d, and requires all the same supplies she does (sans the sensors/monitor). so they draw from the same pool of alcohol swabs, pen needles, etc, but he has his own test strips he has to purchase, ~$25/50, and his own insulin, which is ~$50/5 pens (since he can thankfully use the knockoff walmart kind). kiddo also has her own stash of supplies at school - a pack of test strips, syringe heads, alcohol swabs, etc - and her dad has one at work. this necessary doubling-up of supplies adds up.

so just sitting here and doing the math, sensors + test strips + insulin for them both = $325. and that’s before swabs and glucose tabs and what have you. insulin-dependent diabetic care in the united states is a fucking racket.

this wall of text is to say: helping us buy medical supplies for them both would be a huge weight off our shoulders. ways to do this include:

amazon list to directly purchase supplies paypal (choose "friends and family" to avoid fees) my redbubble shop my teepublic shop ko-fi tipping

much appreciated, much loved, burn down the pharmaceutical industry. 💙

#type 1 diabetes #chronic illness #support #signal boost #I know this is long but I always want to explain what our needs are/where the money is going #and maybe a little bit to shine a light on the actual cost of being diabetic #it's not just jacked-up insulin prices #(though that's a big part of it)

[beautyandthebetes]

Living in Florida with t1d is wild because in the sun too long? High. Swim in the ocean? Low. Walk on the sand? Urgent low. There’s a higher diabetic population so maybe there’s some program to help mitigate the rising cost of insulin? Fuck you you’re not old enough.

#fuck desantis #t1diabetes #t1d #t1dlookslikeme #florida life

[arretoskore]

Hi! For the ask game - 10, 11, 20, 29 & 31? Sorry there are so many, I'm just very curious :D You can answer only some of them, if you want to!

Aaaah don't worry it's a nice distraction from all the studying I'm procrastinating lol

10 - I’m one of those people that tends to recharge with alone-time BUT with a very big exception for my closest friends. Also I tend to get trapped into my own head if the situation is particularly stressful, so no I wouldn’t want to go alone, even more so if I could choose who to go with (and let’s be real, I hate to do things alone usually bc my social anxiety goes through the fucking roof)

11- this is soooo difficult....I don’t think I have anything in particular? Like at this point I hope people are done being scandalized by kinks so not that. Maybe my easygoingness (is that even a word??) about dying? Like it’s probably tied to T1D but I had to accept at 11 yrs old that one slip up with insulin could easily cost me my life so I reached the conclusion very early that death was not something I had to be scared of. Otherwise, it being a very real possibility, I wouldn’t be able to live my life. I think a lot of people with t1d, when they accept the illness, make this reasoning (more or less consciously) but I never heard anyone talk about it. (also as dear Epicuro said, why be scared of death if you won’t experience it while alive and conscious?)

20 - hopeful! I’m a sucker for science and space!!! like I would go nuts just if we found like very weird bacteria on other planets, let alone intelligent beings! Also being a philosophy student I can’t wait to see how we’ll have to re-think what “life” means when we inevitably find something that doesn’t fit in our parameters. the only sad thing is that it probably won't happen in our lifetime... :(

29 - hmmm I probably know more than this one but “Il Gorilla” by De André (the greatest Italian songwriter ever). Like I get the metaphor ( it’s a social commentary about how the justice system -and those who enforce it- doesn’t think twice about condemning someone to death. Also it's not his song, the original is from the 50's).  I really do but... it’s about a gorilla raping a man. It's upsetting to say the least.

I sure there are other but right know this is the first that comes to mind

31 - eh I try to breathe. I’m not frequently scared... usually just very stressed/anxious. Generally, when I’m distressed I try to use some techniques my therapist thought me years ago. otherwise I just... cry. Lol I almost never cry but sometimes it works really well. Just like a few tears when I’m really frightened usually get me back in check ahahaha

#ask #bea answers #me #about me #simuran

[nurse9001]

Venting

It is both cheaper and easier to buy illegal drugs than it is to buy life sustaining insulin. Wtf world? Just sayn.

#actually diabetic #diabetic #t1d #cost of insulin #diabetic problems #diabetic community #insulin #pissed off

[ravensmuse]

My very good friend @theoglanalee has T1D and needs help paying her health insurance premiums. If she can manage that, they cover her medical costs at 100%. Losing her health insurance means her medical costs will skyrocket.

Please donate/boost/share or whatever you can. Thank you.

#type 1 diabetes #gofundme #medical care #help #signal boost #t1d