A Type One Diabetic's List of No-Nos for Non-Diabetics
This is a guide for non-diabetics to better understand what NOT to do when interacting with type 1 diabetics. This is meant for educational purposes and is based on my opinion and experience. If any T1Ds want to add their own suggestions, feel free!
(Note: The things on this list probably somewhat apply to type two diabetics too, I just have no experience with that so I can't comment.)
Dear non-diabetics, please:
Don't make insensitive jokes. Saying stuff about "getting diabeetus" because you're eating too much junk food is really annoying and simply not how it works. Yes, my friends and I make dumb diabetes jokes, but that's because they've talked to me and know I enjoy specific types of jokes.
Don't act like it's my fault/choice. I didn't get diabetes because I did anything wrong. Nothing about my lifestyle caused me to get diabetes. I was born with it. Implying otherwise really pisses me off, especially if you act like somehow I deserve this.
Don't touch my tech. Please don't touch any of my diabetes technology without my permission. It's literally attached to me!
Don't ask for/steal my food. I'm totally open to sharing snacks, but not after I've counted the carbs and not if I'm eating it because I'm low! In other words, I might need that food for my health, so please don't take it!
Don't pity me and treat me like I'm less capable. I'm not. I can do everything you can do. Yes, the disease sucks. I appreciate empathy and you can totally be mad at it with me, but please, no pity. Just be understanding if I'm struggling or having a bad diabetes day.
Don't compare the things I don't eat because of my diabetes to your voluntary diet. When I say that I don't drink full sugar pop (unless I'm low) telling me that "you understand, you're not drinking it either because you're trying to lose weight" isn't helpful. I totally understand that you're trying to sympathize, but it makes me really frustrated because you get a choice and I don't, so it's not the same in the slightest.
Don't call diabetics "Cyborgs" unless you have their permission or they call themselves that. It's a common label because many diabetics have technology attached to them to help them manage their diabetes, making them, technically, part machine like a cyborg. Some diabetics feel like it's dehumanizing and makes them feel different and disrespected. Others, like myself, (it's literally in my username) fully embrace the title as an excellent and fun part of their identity. Make sure that you know how someone feels before you call them that!
Don't be afraid to ask polite questions! As long as it's not the only thing you ever talk to me about, I'm totally happy to answer questions about my diabetes. There is a lot of misinformation and misunderstandings out there and I would love to try and clear it up and share accurate information!
I'm sure there is way more I'm not thinking of at the moment, but the baseline is: be kind! Being diabetic isn't easy, but interacting with kind people makes it better.
Thank you so much for reading!
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2/21/24 PlyoJam, Strength and stretch
Today was 45 minutes of cardio, a shorter strength session (15 mins), then 30 or so stretching.
Blood sugar does not come down during exercise, it seems, but after, which Dr. Google says is normal... 🤷♀️ Mine seems to go up during sleep, which makes sense, I guess, cos I eat my main meal in the evening... maybe I should go for a walk after dinner or something to reduce that impact?
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Anyone in the diabetes community able to help with a dexcom issue? I'm running my alerts through x-drip ATM because they don't seem to be pinging properly. Sometimes are but it's only a one-off noise, most often it's only a single vibrate, sometimes they aren't showing at all (I was high for 4 hours the other night, didn't get an alert until two hours out of range, then obvs sugars were messed up for the entire day because of it after it took another 2 to drop down - and TBF highs aren't really that much of a worry, I don't want to miss hypos). I'm definitely not going to wake up for a weak vibrate, and I will probably (and probably have) just turn a single noise off and do nothing about it. I basically need the equivalent of an air raid siren to respond.
I've taken my phone off do not disturb and (the horror) put it on loud. Dexcom is set to always override so that shouldn't have mattered anyway but obvs now running the risk of being woken up 20x a night by alerts from other, usually silenced, apps. Tried turning all my other alerts off but it was painstaking and I still managed to miss a load (then fucked up my whatsapp in the process!)
I'm happy to continue running x-drip (though have some concerns about how well it's picking up the data/delays) but just wondering how everyone else manages? Is there a specific ring tone that keeps going? When you click okay on the alert does that make it go away forever? Should I be swiping to snooze? Like what the hell am I doing wrong?
Nothing I do seems to make the slightest bit of difference and it's very frustrating considering people have been raving about the system for years! Can't go back to libre because I need it for closed loop.
Also, on the subject, my x-drip gives me a numeric value in the top bar where dexcom is just a symbol and you have to expand to see the number. Any way dexcom does that? Should I just stop whinging and keep running x-drip because I know I like it? Lmao.
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I do wonder about the utility of a cgm if: 1) it dies before its 14-day period is up (sometimes within 24 hours); 2) it has continual sensor errors that prevent it showing any reading at all; 3) compression lows due to sleeping position, even though there's only one approved location on your body for it—alarms blaring (with no volume control) because of inaccurate readings in the middle of the night—and once it's there, you can't move it for the 14-day period, so are you going to be dealing with false lows for 2 weeks?
it feels like more hassle than it's worth. how the fuck did this thing get approved for use?
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Etoiles and I have the same CGM #twinning
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My blood sugar has been in range (the very high end of range) for like 10 minutes all day. 😴
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3/1/24 PlyoJam/Strength HIIT style with stretch at end
This was interval day with cardio, then some weight work, then cardio, etc. She added in some new weight moves that were challenging, making the workout feel extra hard today. 🥵
My blood sugar went UP during this, which is apparently a thing with strength training... (all this was in fasted state, no food)
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idk how to describe it, but the sticky bit was stuck to me and the plastic bit wouldn't release the sensor at all. tried pressing the button a few times, smacking the applicator, just pulling, etc.
ended up with bloody spot on my arm and calling the pharmacy for a replacement. they wouldn't deliver it, so now I gotta scramble for some cab money tomorrow.
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