tem32-blog
Registered Nurse-Health
is my world-IC friendly
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Hiatus
So, I have been away for a while now because we were having a family emergency. My grandfather (I call him Pepere) got sick with COVID and was in the ICU on a ventilator for a couple weeks. He fought the COVID but his lungs were just too damaged. The doctors gave us no hope that he would ever come off the ventilator or have a good quality life. We gave him time to recover and heal, and said lots of prayers. We decided to put Pepere on hospice at a hospice home because he would need 24 hour care. They didn't think he would last more than 2 hours off the ventilator at hospice. He wasn't expected to last the weekend. On that Monday after the weekend, he seemed to be making a recovery where he was alert, talking for 4 days, then on Saturday morning October 1st he passed away. During all this time he kept saying he didn't want to die and he sure fought a good fight. He has joined his wife of 65 years in heaven who had passed 1 year 5 months prior to him.
During this time I haven't exercised (has been about a month now). I have been in a bout of depression and didn't have the energy or determination to exercise. It took almost all I had to just get out of bed and to work. I slacked on everything including house work and cleaning. But if there is anything I have learned, is you have to take time for you and take care of yourself. If I had done it all with all the stress and sadness and worry I was going through I really do think I would have literally lost my mind and had a break down.
I feel better now and I actually exercised for the first time today in about a month. It was rough and tough but I got through it. I am exhausted. It's going to be small steps at a time but I will get through this and get back to my normal exercising routine.
I'm telling you there seems to always be something that gets in the way of my exercise regime. Illness, now this. I just need time.
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Exercise
Yes, I'm a nurse. Does that mean I know better than to let myself go? Yes. However, I am also a human with flaws. I used to be so much healthier and could withstand exercise a lot better. I let my life and stress dictate what I did in my spare time. Because of this, I decided, like so many other people, that relaxing was more important than exercise and health. Covid certainly didn't help. It just pushed me further to not exercising...I was afraid like so many others to be around anyone other than my family. And that fear lead me to be a recluse where the only time I left the house was for groceries and doctor appointments. I am now so deconditioned that this is going to be a long road to reconditioning. It will be a slow process I suppose. And it will be process that requires devotion, commitment, and support. To anyone who is struggling to keep on keeping on with the exercise, take it one day at a time. Start slow even if it is once a week at first, then slowly increasing to twice a week, then more. I'm currently mostly at twice a week, with the exception of this week and next week as this week my family is dealing stress and worry over my grandfather (Pepere) being in the ICU with COVID so I skipped one of the usual days I exercise. He is doing much better but still in the ICU fighting. So today I exercised. Next week, I can only exercise once due to only having one day off that week. Don't be discouraged, and give yourself some credit. Get back on the horse and don't be too hard on yourself, you will get there as long as you are committed to it.
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alkaline water filter
https://www.amazon.com/gp/product/B07V9PGSPV?ie=UTF8&psc=1&linkCode=ll1&tag=amberhealth-20&linkId=88d9312c63a85c86a9616531d48fb1e7&language=en_US&ref_=as_li_ss_tl
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https://www.amazon.com/gp/product/B015SY3VGM?ie=UTF8&psc=1&linkCode=ll1&tag=amberhealth-20&linkId=8c7a594c789855184145e97a7c2d83d9&language=en_US&ref_=as_li_ss_tl
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Interstitial Cystitis
Interstitial cystitis, aka IC. What is it? it's a chronic medical condition that causes bladder pressure, bladder pain, and pelvic pain. The Pain ranges from mild discomfort to severe pain. Exact symptoms can be very different from one person with IC from another. The condition is a part of a spectrum of diseases known as painful bladder syndrome. For me, and I really don't like advertising this, symptoms include bladder pressure and if I'm having a problem or what I call a 'Flare", I have episodes of severe pressure, urethral spasms, bladder spasms, urgency, frequency, and incontinence if bad enough. Diagnosis is basically ruling out EVERYTHING else, and often official diagnosis has to be surgery where they insert a camera into your bladder (cystoscopy). They look for these spots (ulcers) on the bladder wall that are basically little bleeding points from all the irritation.
This condition can be debilitating and disabling. I have had many missed work days because I have "peed on myself", or have to run to urinate every 30 minutes.
Treatment for this condition is kind of dismal. The first thing you must do is alter your diet. There is an IC diet to follow. Here is the link to see this diet: https://www.ic-network.com/downloads/2012icnfoodlist.pdf
Basically, strong spices, acidic foods, spicy foods, caffeine, and fermented foods are food to avoid. There are some foods that you can try, and foods that are considered bladder friendly that won't cause problems. I recommend for foods to try, to only try one thing and wait a couple weeks before trying another. Sometimes you have an immediate reaction within 24 hours, others, can be a delay over a few days or weeks. Before being able to do this trying foods, you must do an elimination diet where you only eat foods from the bladder friendly list for at least 2 weeks, then you can start introducing. So far, diet has worked great for me and if I'm eating a questionable food (like I've gone to family or friends and they don't make an IC friendly meal, I take Prelief to help offset any possible no no foods I'm unknowingly eating).
Other than diet, treatment entails medication, physical therapy, bladder training, guided imagery, acupuncture, nerve stimulation, and surgery.
Medications:
Prelief
NSAIDS like ibuprofen, Aleve to relieve pain
AZO to relieve burning, urgency, frequency
Tricyclic antidepressants to relax the bladder and block pain
Antihistamines including Claritin and Vistaril
Ditropan for bladder spasms/frequency
Elmiron
Medications instilled into the bladder at the urologist office
Surgery:
Bladder distention where they instill enough liquid to expand your bladder
Fulguration where they burn off ulcers
Resection where they cut around any ulcers
Bladder augmentation where they increase the capacity of the bladder by putting a patch of intestine on the bladder
Removal of the bladder where you would hold urine outside your body in a pouch-though not performed often and only when all other treatments fail.
This is my life and the life of millions. It is severely underreported and undiagnosed due to the embarrassment people feel having these symptoms let alone telling their doctor about it. Anyone who thinks they may have this disease, please don't be embarrassed to talk to your doctor about it. It's the first step to changing your life and controlling this disease.
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Living a life with IC, diabetes, obesity
In this world, I have developed Type II Diabetes after having trouble with my weight and being obese for years. Was that the only contributing factor to getting diabetes? Of course not.
1) A high carb diet, including alot of sweets/desserts...pretty much a sweet at every meal except breakfast and a sweet after dinner before bed.
2) Sedentary lifestyle-I somehow thought it was "cool" to not exercise (other than exercise needed for the softball I played in high school), or thought that I didn't need to. How very wrong I was.
3)Hereditary/genetic aspects
Because of these three factors, I have struggled with my weight for as long as I can remember. I can remember as far back as 10 years old feeling out of place because of being overweight. Since my teenage years I have been on countless weight loss programs/diets. It started with a diet of not eating any red meat and progressed to not eating hydrogenated oils. I have tried weight watchers (which worked well for a while, i lost at least 50 lbs on it), Mediterranean diet, and a diet that included medifast food, then nutrisystem.
1) Weight watchers was the one that worked best where I felt good while on it. However, once I hit a plateau, I never could get back to losing weight again so I tried something else.
2) Mediterranean diet made me feel like crap for a couple weeks when I wasn't getting very many carbs because all you're allowed to eat in that timeframe are basically veggies and protein. I lasted maybe a month on this diet before ditching it.
3)Medifast diet was super expensive and at the time that I started it I could afford it because I was living at home for free. I felt okay on it, better than the Mediterranean diet. I eventually had to stop it because of money when I moved out. Plus I've tasted better diet food to be honest.
4) Nutrisystem is super convenient but also expensive...not as expensive as medifast though. What I liked about it is that it is shipped to you door and there is a program where you can choose all your meals and all you had to do was heat the meal in the microwave. These meals weren't the only thing you eat on this diet, you can also eat fruits and veggies.
After being on all these diets, I still managed to gain all the weight back. I have been trying to have a more non-sedentary lifestyle but have been struggling with that especially over the last 2 years.
What happened over the last two years that caused me to struggle?
1)COVID happened
2) Lost my grandmother (I called her Memere). Why was this significant for me? She wasn't just my Memere, she also raised me.
With these things occurring, it was difficult to exercise and when I had stopped exercising, it was so difficult to get back onto the wagon again. And after losing my Memere, I gained 30 lbs in just a few months from going back to emotionally eating. And now I can't seem to get the weight off. During that time I also struggled with controlling my blood sugar. I have been doing my best to exercise, but that has proven difficult when I had a stint of vomiting every weekend for a couple months, getting a couple colds, then getting COVID. When you are sick you can't really exercise, especially when you are exhausted and exercise causes you to go into a coughing fit. Just when I get into a rhythm of exercising, I get sick and fall back into the rut.
Just before COVID hit, I then found out I have Interstitial Cystitis (IC). So not only do I have a diet I have to follow for diabetes, I now have a diet I have to fit into my diabetes diet, which is very difficult to do. It's difficult to follow an IC diet in and of itself, it has been a huge challenge to follow both and I'm still trying to figure it all out.
I'm sure there are so many others out there with similar stories. All I can say is to keep trying, don't give up, you and I will get there eventually.
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TV binge of the day
After working out yesterday, I'm taking a recuperate day. I have been watching Resident Evil the TV series despite having heard bad reviews of the show and honestly I am really liking it. I miss seeing the lead character from the movies, but it works.
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Something that people don't know about me, is that I tend to get alot of dandruff and head itchiness. I don't have dandruff if I wash my hair daily, but i get itchiness regardless of how frequent I wash my hair. I previously had tried many different dandruff shampoos, none work by themselves. I currently shampoo with a coal tar shampoo twice a week and it keeps my dandruff under control. with using this twice weekly, significantly reduces my scalp itchiness. If you are having problems with dandruff/itchiness and you have tried every other product for dandruff, try this coal tar shampoo.
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What I love about this is that the leather makes it firm, which makes it easier to put in your supplies. It holds a "normal" glucose meter, a slim glucose meter like the contour next one, a bottle of test strips, and has a pouch for your lancets. I just keep the lancet device loose in the case.
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These hydrocolloid acne treatment dots are amazing. I put them on before I go to bed at night when I have a problem zit, when I wake up I take it off and the zit is usually completely gone. Gone are the days of using harsh acne pads/cleansers for just a couple zits on your face.
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Echinacea. A wonderful plant/herb that can help boost your immune system. It can be taken as a preventative but also at the first sign that you're feeling unwell.
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As a person who suffers with Interstitial cystitis (IC), I like many others are affected by Soy sauce. This is a must have in my pantry to replace soy sauce. I use it as a marinade with some herbs/spices I can have for pretty much any protein. It still contains Soy, so if you are sensitive to soy this isn't for you. The difference between soy sauce and liquid aminos is that aminos isn't fermented, which alot of people with IC have problems with fermentation. Hot tip: be careful of which liquid aminos you purchase as some do have vinegar in it. This one doesn't.
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this is a medicine that every person who has interstitial cystitis (IC) needs in their medicine cabinet. numbs the urinary tract when you are having what I call an "IC flare". It helps with pain, burning, pressure, frequency, and urgency.
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Sumac...a citrusy, smoky flavored spice. It's an alternative for those with Interstitial Cystitis (IC) for citrus flavor without the acid from lemon juice
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As someone who has Interstitial Cystitis (IC), this spread is amazing. There is no acid in it and is red peppers and eggplant. I use this as spaghetti sauce and ketchup.
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For multiple reasons, this was one of the best buys I have purchased in a while. It allows for you to get cardio as well as work on certain muscle groups inside in a temperature controlled home. Very important when you don't have the money to dish into gym membership, or don't want to go to a gym to exercise. I personally am sensitive to heat when i'm exercising, so being able to work out from home with AC is really important to me. I, like alot of people, am getting back into exercising after COVID and this is perfect for someone who is a beginner or intermediate with exercising. It isn't for someone who actually wants to lift weights though. You can also adjust the difficulty to suit your needs though :)
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I don't take a bath often, but when I do, I use this. nice and relaxing aromatherapy.
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