#they were really sweet and gave me food because i had no money abd they practically adopted me

[juuls]

I keep falling asleep everywhere and it’s only been a few days. Any Spoonies of the Fibro kind have any experience with this..:….? : Basically on Wednesday my body started hurting everywhere and not just in the trigger points. No new meds, no new habits. But it got so unbearable that my brother dropped me off at the hospital (he had to pick me up about a half dizen hours later because of Raid, which I said was wonderfully fine (I used to raid, myself lol)).

I kept falling asleep everywhere. Waiting room, doctor’s room before he got in, doctor’s room after, and then at the coffee shop I waited at for my brother (the staff were so sweet and basically adopted me).

Had to fight (well, I gently pushed, not fought) for even 3 days of the lowest form of ‘narcotic family meds. It helped but I’ll definitely talk to my regular doc about it on June 1st.

Doc was a little worried about a blood-borne virus or another type of virus that starts eating st the joints. Which actually jives with what my physiotherapist said on Tuesday when she noticed arthritic nodules at the base of my fingers that weren’t there a year ago. Sigh. Would be a shame if I had gout. :P

And yet he still didn’t draw blood or seab or anything fir other samples???

People hear ‘fibromyalgia’ and seem to just close off half their brain. Ridiculous.

But yes. Mostly my question is: have any of you experienced excessive lethargy and sharp pain everywhere on your body, not just triggers? Any hints or clues from your own life experience?

Medical side of Tumblr, I call upon you with this ring of—wait, wrong script. 😂

But yeah, any and all advice would be loving. When it’s just my trigger points hurting, I do know how to lie down to minimize the pain. This, though? Far more widespread snd the lethargy is likely because of not sleeping well.

*violently shakes magic 8 ball* GIVE ME A CLEAR ANSWER, YOU HUNK OF JUNK

And before you ask: yes I had a fully normal (besides herniation and degeneration) MRI done in 2018, osteoporosis check every few, pap every 3, somewhat regular blood tests (unless they look at the wrong things…

So hey! It’s great I’m not nauseous nearly as bad as those 8 months were but oh lookie, a new problem. Or one I was ignoring on purpose while dealing with the nausea.

Sad part is I can only have a ~1km walk a day and it’s been so lovely out. I can sit on the comfy deck chairs but everyone else has to walk Yg noe. My baby. 😢🥲🥰

Off to go fall asleep outside since I just now crossed “fall asleep in shower” off my list. Jeebies H. Crab.

Any help is great, even commiserating! Love all y’all and thanks for listening to me be all upset. Time for some fanfic I’ll likely get a paragraph into then zzzzzz. :P

💜💙💜❤️🧡💙💜

#fibromyalgia #spoonie #disability #spoonie advice #disability advice #hospital #ER visit #emergency room #incompetent staff #seems like it but yesh they were reslly nice too) #at least it was a quick stay so I had time to walk over to the pharmacy #then asked if I could use an out if the way booth at Tim Horton’s #they were really sweet and gave me food because i had no money abd they practically adopted me #hope i run into them again in a better circumstance #:) #myofascial pain #SUCKS SO MUCH #thank you for listening to me rant #even if no one replies (i hope you do though!) it’s just nice to vent eh? #oh yeah this is in Canada #love y’all and stay safe and be well. muah! 💋