#just chronic illness things

[bealikethebug]

the past couple months ive had like zero interest in reading/writing fan fics and i was like fuck is the passion gone was it really just a phase i grew out of?

NO i was simply suffering from very bad mold exposure that triggered a number of autoimmune responses and i guess one of them was no longer caring about my gay little blorbos

idk what kind of homophobic mold got in my system but im so fucking back

#ao3 #ao3 writer #spideypool #just chronic illness things

[arctic-hands]

Oh my fucking God if this pain in my right side sends me to the hospital again and it isn't finally appendicitis I'm tearing out my ileum myself. I cross-stitch now, I'll sew my abdomen back up with some pretty embroidery floss don't fucking tempt me, body

#getting might tired of your shit small intenstine. i swear to fucking God #just chronic illness things #crohn's disease

[thisperfectmonsoon]

don’t let the hornyposting fool u: I feel like hammered shit and want to cry but I contain multitudes baybeeeee ✨

#personal #how do I trade in my body for a newer better model that fucking works right? #asking 4 a friend. #I’ve got no spoons left and still need to get home and cook and clean #just chronic pain things #just chronic illness things

[fromthemouthofkings]

I know I'm rather late to this particular train but in light of the new wave of Covid kicking back up again, I just want to express

that I am incandescently furious about these past few years of watching many of my fellow humans, friends, family, coworkers, hypocrites who claim to care about accessibility without lifting a finger to actually do anything about it, and most especially those doctors and policymakers whose duty it is to care for their people and provide a clear example and leadership, decide that my life is expendable and not worth even the minor inconvenience of wearing a piece of paper over their face some of the time.

I'm so tired of being treated like I'm crazy for still taking precautions against a disease that could further disable me if not worse, and that has already caused serious effects on my life, and more tired of being locked out of the public life and my own community on pain of death or debilitating illness. I know you can't control other people's actions, but it still feels insane to be pleading for my life and have most of my community, the same people who took me in and loved me when my family of birth and my religion shunned me for being queer, utterly refuse to do even the most minor fucking thing to help me (and themselves!)

and yes some people are still taking precautions. and more people would probably do more if the CDC recommended it or if the guidelines were built around something other than politics and the economy and just accepting that abled people will get Covid once or twice a year and the rest of us will just have to die about it. And lots of people simply don't know any of this and have no reason to, and would be doing more if they did

but I'm still mad. And, more than that, betrayed. And helpless, because how do you fight apathy without looking like the fun-hating, party-spoiling paranoid? How do you cope with your options being go to work and the grocery store and see your family and let all the people around you put you into grave danger, or lose access to those things altogether? it's not sustainable, and I'm looking ahead at this fall and winter, and I am already so tired

#just chronic illness things #covid #doomposting #sorry this is a very bitter rant but it needs to go somewhere other than my brain so that i can sleep and stop turning it over and over #vent

[blueapplesiren]

“Why do young people hate phone calls so much these days?”

I was just forced to schedule an appointment while sitting on the toilet, Suzan.

#low key getting a phone call always feels like a jump scare #just chronic illness things #autism #audhd #adhd #tagging my mental illnesses because they probably contribute to my dislike of unexpected phone calls

[unfilteredrealities]

Today was a very resting day. I slept 8h from yesterday to today and then today in the afternoon I napped like 3-5 hours 😌 and guess what?

I am still exhausted, tired and fatigued oh and included now special offer: brain fog 😩🥲

Oh well. Good thing that I have one more day to do the tasks I wanted to do today before work starts again.

Hope I’ll manage to wash the laundry tomorrow or else I’m screwed bcs no clean clothes 😅😖

#everyday echoes #unfiltered realities #echo rambling #echoes echo of today #unfiltered life #chronic fatigue #chronic pain #cpunk #just chronic illness things #chronically fatigued #daily struggles

[hillbillyoracle]

The tough thing I've noticed about my particular brand of chronic illness is that if I always try to rest when I'm overwhelmed, then progressively smaller things will become overwhelming to me. To the point where just getting out of bed will feel like too much. So I have to like plan times to push myself/get exhausted and or risk losing any bandwidth I have at all. It's gotten worse since the pandemic since fewer people are willing to work with me on my limitations and are dead set on "returning to normal" even if it means abandoning accessibility that was previously commonplace prior to the pandemic.

#just chronic illness things

[dapperenby13]

Ugh, my legs are being all heavy rn. I know it will clear up in a few minutes, but it’s fucking annoying

#just chronic illness things #pots #postural orthostatic tachycardia syndrome #eds #ehlers danlos syndrome #v says things

[arctic-hands]

Fucking can't sleep bc every time I lay down I wake up an hour later about to throw up but I'm fine upon standing?? I've got shit I need to do today and tomorrow this is the worst time for this

#body why #just chronic illness things

[raplinesmoon]

i am hungry but everything I’ve eaten over the past two days has made me violently ill

#just chronic illness things #what is a girl to do #isi rambles

[thisperfectmonsoon]

it’s raining and I’m in the middle of two flare ups 🥲

#lowkey am in so much pain I want to die #just chronic illness things #just chronic pain things #I stg I fucking hate my body so much #personal

[bealikethebug]

i’m trying to do the chronic illness egot where i get every scan possible one one part of my body

current stats:

(✓) MRI

(✓)x-ray

(✓ )ultrasound

#just chronic illness things #chronic illness #autoimmine disease #i have a ​grandma body at 22

[tawnyisacolor]

i’m in such a bad place mentally and physically and i’m just like at a loss of what do to because it seems no matter how hard i work on making things better i just end up in the same place and it’s so exhausting having a body that is constantly working against me when all i’m trying to do is exist preferably comfortably instead of in constant pain and trapped in a brain prison

#think I’m just going to have to give up working on my mental health for a while if it’s just going to make me physically ill #it’s just extremely counterproductive if it’s only causing me to be incredibly depressed from being so sick lol #I’m at such a loss lol #I don’t know what to do #just chronic illness things

[hope-ur-ok]

I don't think I told you guys but on Tuesday one of my coworkers told me to take turmeric pills to fix my connective tissue disorder

#just chronic illness things #the turtle speaks

[ofdinosanddais1]

Me, thinking: maybe I don't have dysphagia. I just have days where it's easier to eat soft food and my throat spasming is just a weird reaction to carbonated drinks and maybe I'm just overreacting and trying to seek *immediately begins choking on my tamale*

#dysphagia #medical trauma #medical gaslighting #just chronic illness things #digestive condition

[iplaywithstring]

Back in November I was trying to get my prescription refilled (the one that keeps me from being in debilitating pain due to endometriosis). I was on the ball, still had a couple months of pills left, no problem. Called my Dr, they said to get the pharmacy to fax over the refill request - since I've been on it consistently there was no need for an appointment. Easy.

Took me about a week to call the pharmacy because of life stuff, but again, I had lots of pills on hand. A 5 minute phone call, they said they'd take care of it. Done

Waited two weeks, nothing. Called the pharmacy again, they hadn't gotten anything back from the Dr. Called the Drs office, took about a week to get through, oh, they didn't get it, I'll have to get the pharmacy to fax again.

Called the pharmacy, no problem they sent it again.

Waited, nothing

Called the pharmacy again just after Christmas, they sent the request again

waited, still nothing

just talked to the Drs office again - their fax machine was off over the holidays, need to call the pharmacy - again, no, sorry, they can't just send it, they need the request - to get it taken care of

Called the pharmacy - they promised if they don't get the refill by tomorrow they will contact the office for me, because this is just silly.

Thankfully I still have another pack of pills, but now I won't have such a big buffer if the same thing happens next time!

#this is my life #chronic illness #just chronic illness things #my dr is amazing #the office is just over worked #and the pharmacist could renew month to month if necessary #but then it's more expensive because of processing fees #this whole thing was an unneccesary hassle