#cfsawareness

[lovescats128]

A Third High Stress Week.....But I'm still Here!

Well, hello, everybody! As my entry title says, another high stress week…but I’m still here! Ok, let’s see; last week and the week before, I had a cat so sick, I thought I was going to lose him. He relapsed and relapsed and, finally, he’s seems pretty normal. Last week, I had a serious car problem which led to a serious financial hardship, which led to panic. I was in an impossible financial…

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#Beckie Battles CFS #beckiebutcher #beckieoffershope #beckiesbattle #CFS #cfsawareness #cfsisreal #cfswarrior #Chronic Fatigue Syndrome #chronicfatiguesyndrome #dailyprompt #health and wellness #Inspirational #Spirituality #Wordprompts

[spreadingpositivitynow]

#CFSAwareness #CFSResources #CFSSupport #CFStreatment #ChronicFatigueSyndrome #LivingwithCFS #SupportingCFSPatients #UnderstandingCFS

[pt-hq-xl]

#meawareness #cfsme #cfsawareness #millionsmissing https://www.instagram.com/p/CdcjOI8tq6B/?igshid=NGJjMDIxMWI=

#meawareness #cfsme #cfsawareness #millionsmissing

[chronicallydivine]

#Repost @chronicallydivine ・・・ For a lot the chronically ill, contracting Sepsis when in hospital can be painful, life threatening, scary and life changing. This pin is to raise awareness of this illness. This pin is to raise awareness of this illness. ✨💖✨💕 Handmade from shrink plastic resin, with a coating of dimensional glitter to add that extra sparkle we all need. • Link to purchase is in my bio 💖#sepsis #sepsisawareness #brainfog #chronicfatigue ❤️💜✨💚💙💛🎶🌈🥄💜💖#spoonie #pinstagram #pins #pinbadge #badge #lapel #hatpin #patch #lapelpins #patchgame #pingame #patches #pingamestrong #pinsofig #pinoftheday #pinstagram #spooniethings #sepsis #stoma #endometriosis #cfs #cfsawareness #chronicallydivine

#brainfog #spoonie #chronicfatigue #sepsis #patchgame #pinoftheday #hatpin #cfs #pins #pingame #pinsofig #pingamestrong #cfsawareness #chronicallydivine #repost #pinbadge #patch #lapel #stoma #spooniethings #endometriosis #sepsisawareness #badge #pinstagram #lapelpins #patches

[odrealitycheck]

#dhs #cfsawareness #federalinformants #commonwealthofva. #StopSelfHatredStopRacism. #TooManyForTooLong #youareworthit❤️. #fightingforourfuture CFSA and DHS did not bring up any abuse in this meeting the next day raking my son into custody claiming he is emotionally, mentally ans physically abused and educarion and medical neglect using 2002 case twlling Judge I harmed Shanya M. Hill sexually and physically. While CSFA had contact with all relatives involved in VA and reaxhed out to them during thia time to take custody of Kemontay. Now you tell me the government is not targeting our children. They created lies and had a judfe to go along then move the case to another judge knowing they lied and senied asequate legal services... #MakeAmericaGreatAgain https://www.instagram.com/p/BvtzXedgyuT/?igshid=1gfgq7u35tvku

#dhs #cfsawareness #federalinformants #commonwealthofva #stopselfhatredstopracism #toomanyfortoolong #youareworthit❤️ #fightingforourfuture #makeamericagreatagain

[sarahlena5]

This...this is a sick girl who didn't know how she was going to get in the car to drive to MN let alone get ready and go to a concert. This girl was so sick the night before that she had zero sleep. But through sheer determination get in the car she did. I watch this with tears in my eyes and a huge smile in my heart. I had the BEST time. We had great seats and I danced the night away, sang my heart out and had a few too many 🥃. Which is exactly what I was determined to do. Thank you to my dear friend Bridgette for being there with me and dancing/singing the night away by my side. I have never been happier to say that today I feel like crap because I had way too much fun!🎤🥃🎶🙌🏻🍻💕😁💃🤳🏻🐍⭐😻❤🤓🌜💁🏻‍♀️@taylorswift

#chronicillnesswarrior #taylorswift #dancingqueen #fibroawarness #cfsawareness #rep stadium tour

[qofu]

Holly - "I have chronic fatique syndrome, I'm mainly housebound it sucks, I spend all my energy on my dog, he's my world! I've been ill for 5 years now despite my illness being incurable I hope to get better" #Cfsawareness #InvisbleIllnessawarenessmonth

#cfsawareness #invisbleillnessawarenessmonth

[aliporcelain]

This, ladies and gentlemen, is what a Fibromyalgia flare looks like. I am in bed resting and every muscle in my body still aches. My heart rate is up and breathing is difficult. So here I lay monitoring my blood pressure and oxygen level. Most days I look and act "normal". You'd never know that I suffer from three invisible but incredibly debilitating illnesses. However, on nights like tonight, I am reminded that i am different. I have to rely on Josh and hope it passes quickly. Thank the universe for amazing husbands, pain meds, and technology that lowers my anxiety level and sweet babies who bring me joy. #fibromyalgia #thisiswhatinvisibleillnesslookslike #CFS #CFSawareness #fibromyalgia #fibrowarrior #cfswarrior #panicdisorder #panicdisorderawareness #panicdisorderwarrior (at Liberty City, Texas)

#thisiswhatinvisibleillnesslookslike #panicdisorderwarrior #panicdisorderawareness #cfs #cfsawareness #fibromyalgia #panicdisorder #cfswarrior #fibrowarrior

[buttonshed]

35mm rose gold ribbon crimps all ready to make those chokers #jewelrydesigner #jewellerymaker #chokernecklace #chokerchain #chokers #rosegold #rosegoldfindings #businesswoman #supportsmallbusiness #womeninbusiness #workingwithillness #cfsawareness #workingwithme

#chokerchain #chokers #rosegold #businesswoman #chokernecklace #jewelrydesigner #workingwithillness #cfsawareness #workingwithme #rosegoldfindings #jewellerymaker #supportsmallbusiness #womeninbusiness

[lovescats128]

Happy Friday!

Yeah, I know, I’m a little late again, but, as is how it goes sometimes, another HORRIBLE week. Anyway….. This has been a seventeen year journey for me, and throughout this journey, I have often wondered, is this fair? How can this be fair to anybody? How can this be good for anybody? Someone once told me, God is fair and just; how is this kind of suffering fair and just? I’m not just talking…

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#Beckie Battles CFS #beckiebutcher #beckieoffershope #beckiesbattle #CFS #cfsawareness #cfsisreal #cfswarrior #Chronic Fatigue Syndrome #chronicfatiguesyndrome #dailyprompt #health and wellness #Inspirational #Spirituality #Wordprompts

[maripilibarreda]

#FYI La diferencia. Viviendo con #EncefalomielitisMiálgica #SFC Living with #MyalgicEncephalomyelitis #CFS 💪🏻 --> #Repost @chronicfatigueawareness (@get_repost) ・・・ Do you agree? #chronicfatigue #chronicfatigueawareness #chronicfatiguerecovery #chornicfatiguesupport #chronicfatiguewarrior #chronicfatiguesyndrome #hiddenillness #chronicpain #cfs #cfsawareness

#sfc #chronicfatiguewarrior #chronicfatigue #cfsawareness #fyi #encefalomielitismiálgica #chronicfatigueawareness #cfs #chronicfatiguesyndrome #chronicpain #hiddenillness #chornicfatiguesupport #myalgicencephalomyelitis #repost #chronicfatiguerecovery

[pt-hq-xl]

Quick cross stitch started on ME/CFS awareness day this week #meawareness #cfsawareness #crossstitch https://www.instagram.com/p/CdicUlRticx/?igshid=NGJjMDIxMWI=

#meawareness #cfsawareness #crossstitch

[odrealitycheck]

The government agencies waited over 15 years to falsify records of sexual abuse to assist Senior Supreme Justice Millette Jr. and Commonwealth Attorney Paul Ebert. How many for how long???? No one is that dimb to believe after having rights protected for children in 2002 to 2015 when government started hate crime using federal informants that for over two decades bo children was in danger yet there is no signs of abuse with the mother and any concerns expressed to agencies ignored to target children! New DMV THUG LIFE. MAKING AMERICA GREAT AND TARGETING CHILDREN TO SEXUALLY ABUSE DENYING LEGAL DUE PROCESS AND ADEQUATE LEGAL SERVICES ALL SO YOU CAN MOLEST CHILDREN OUT IN THE OPEN AND PRETEND TO BE UPSTANDING... #StephanieSquires #lanalopez #dhs #federalgovernment #StopFederalGovernmentfromTargetingChildren #aliceharris #ParchellaBrooks #TiannaMoses #AfauManu #ValerieWenhold #johnniebrown #BarryRaymond #LarryHanderhan #DrSheilaArmstrong #JerrainneAnthony #RhondaBrundage #tcp #cfsawareness #DrMynte https://www.instagram.com/p/B5UW2QHlkfz/?igshid=dmsqb0sa1set

#stephaniesquires #lanalopez #dhs #federalgovernment #stopfederalgovernmentfromtargetingchildren #aliceharris #parchellabrooks #tiannamoses #afaumanu #valeriewenhold #johnniebrown #barryraymond #larryhanderhan #drsheilaarmstrong #jerrainneanthony #rhondabrundage #tcp #cfsawareness #drmynte

[nailsbyannemariner-blog]

So this isn't a nail related post, but it's something very close to my heart. Today is M.E/CFS and Fibromyalgia awareness day. I have both of these, and struggle with them every day. I know that so many other people do as well. Please don't ever judge someone who's in a wheelchair one day, and walking okay the next, it's called having an invisible illness. And Fibro and CFS can fluctuate from hour to hour. Please be kind to those who aren't as fortunate to be able to walk for 5 minutes pain free like you can. Thank you. 😊 #fibromyalgia #me #cfs #chronicillness #chronicpain #chronicfatigue #chronicfatiguesyndrome #fatigue #invisibleillness #dontjudge #fibro #cfsawareness #fibromyalgiaawareness

#chronicillness #fatigue #invisibleillness #fibromyalgiaawareness #chronicpain #cfs #cfsawareness #dontjudge #fibro #fibromyalgia #chronicfatiguesyndrome #me #chronicfatigue

[youniquebylana-blog]

Good Morning... how are you doing? #raceday #nascar #PIR #PhoenixInternationalRaceway #88 #dalejr #daleyeah #sundaymorning #sundayvibes😎 #friends #fibro #fibrowarrior #cfsawareness #cfs #fibroawareness #fibroandchronicpainsupport #howareyoudoing #zoomtown #phoenixraceway #phoenix #goodyear #avondale #arizona #nascarfan #nascarfriends (at Phoenix Raceway)

#phoenixraceway #sundayvibes😎 #nascar #howareyoudoing #raceday #cfsawareness #cfs #zoomtown #avondale #nascarfan #daleyeah #sundaymorning #fibroandchronicpainsupport #pir #goodyear #nascarfriends #fibrowarrior #fibro #friends #phoenix #dalejr #88 #phoenixinternationalraceway #arizona #fibroawareness

[spooniemumoftwo]

Life with a Dash of Accompaniment

Life with ME is unpredictable at times, and frustrating in equal measure. It has been a learning curve to the extreme so far, with twists and turns along the way. Some days are almost 'normal' based on my experience pre-ME, and other days are a completely new experience.

Since April 2020 when I had Covid-19, my level of daily fatigue has increased significantly, my ME CFS symptoms have increased in severity, and my energy levels have reduced in an almost constant reduction. More concerning for me though, is the apparent deterioration in my legs and my mobility.

For nearly a year now, I have found myself stumbling regularly, losing my footing, and experiencing what I can only describe as my legs 'giving way' or 'going numb'. With two young children, this has proved difficult on many levels. Living through a global pandemic, and the only reason for leaving the house being to go for a walk, means my decreasing mobility has limited this option for us significantly.

In recent months, I have seen a physiotherapist, albeit via Zoom, an occupational therapist, and a therapies assistant who advised that the use of crutches, as well as bathroom rails and an extra stair rail to support me was something I needed to consider! Where do I start to comprehend that at 33 I needed aids at home? My first thought of "I'm not old, I don't need grab rails" was followed closely by "how on earth can I be an active Mum on crutches?" Obviously, if they would help me to remain steady and increase more mobility, it was a no brainer decision, but I didn't want to rely on aids of any description. I reluctantly agreed to all of the recommendations, and am now the slightly reluctant owner of more grab rails than I've ever seen in a 'younger' person's house, a 'perching stool' for the kitchen, and a pair of (recently 'glammed up' thanks to a lovely friend of mine) crutches.

Since receiving the crutches, I've learned to use them and live with the idea I need them. Accepting help (or even asking for it) has never been a strong point for me - my husband and close friends may even say I make excuses as to why I don't need the help, but its definitely something I'm learning. The frustration of having to take my crutches everywhere including work, and the much slower pace we take when I'm using them is something we are adapting to as a family. The 'novelty', for my children, of me being on crutches, appears to have lessened somewhat over the last months, though I suspect this links with the extra jobs they now have including carrying a basket for one of my 'short shops' in a supermarket! Apparently, my shops are never short!

I have found accepting I have a chronic illness and being open about this a challenge, and to me, the use of my crutches drew attention to that. Initially, I felt self-conscious of my crutches and felt people were staring at me, but in fact, they've opened up really useful conversations about my condition, and the conditions others may be living with also. Its been a learning curve, and we aren't done yet. I do see the obvious benefits of using them: I'm much more steady on my feet with them; they slow me down which doesn't necessarily have to be a bad thing in terms of managing my ME CFS; my energy levels are more managed when I'm using the crutches as I don't have to concentrate on staying upright. My children named them so that they could accept them more easily, so we now have Connie and Clara as 'Mummy's aids' which apparently helped them appear less scary and daunting for my children. I still often feel significant frustration that I have to have support, and that I'm not currently the person I was a few years ago, but I am starting to accept and use the help I have available to me. Some would say I'm stubborn... well, maybe just a little ;) but I've ways liked my independence and doing things at my pace, often too quickly.

I'm learning that its not a sign of weakness to ask or accept help thats offered and needed.

#cfsawareness #cfs #chronicfatiguesyndrome #chronicfatigue #chronicillness #MECFS #CFSME #pwme #ME #MyalgicEncephalomyelitis #spoonie #spoonielife #spooniemumoftwo