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Seizure med refill? Don't let a lapsed TAR mess with your vibe ⚡️

Hey #epilepsyfam, just a friendly PSA: renewing your Treatment Authorization Request (TAR) matters for seizure meds! This program helps low-income folks afford lifesaving meds, but it's not magic - you gotta update it regularly.

Here's why renewing your TAR is clutch:

No med gaps: Lapse on TAR and your meds could get interrupted. Seizures wait for no man.

Peace of mind: Knowing your next refill's covered is one less stressor. Trust me, your brain will thank you.

Financial stability: TAR can make those hefty price tags way more manageable. Keep your wallet happy, too.

Renewing's usually easy: Check with your pharmacy or insurance company for details. It might just involve some paperwork or a quick call. Boom, TAR renewed, brain happy.

Spread the word, y'all! Share this post with your fellow warriors in the epilepsy community. Let's keep each other covered and seizure-free!

#seizureawareness #medicationassistance #healthcareheroes #dontlettarlapse #epilepsylife #pharmacisttips

Bonus: Tag your favorite epilepsy orgs/advocacy groups! Let's make TAR knowledge go viral (in a good way).

Remember, folks, taking care of our health is a team effort. Let's work together to make sure everyone gets the meds they need to thrive!

#pharmacy #medication #important #TAR #healthcare #health #insurance

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Happy 2024! Let's Spark a Brighter Future for Epilepsy Awareness

As the confetti settles and the echoes of "Happy New Year!" fade, let's step into 2024 with a renewed commitment to understanding and advocating for those living with epilepsy. This year, let's make it a year of illumination, dispelling the shadows of stigma and ignorance surrounding this neurological condition.

Spark hope: Celebrate the resilience and achievements of the millions worldwide living with epilepsy. Share stories of courage, determination, and triumph over adversity. Let's show the world that epilepsy doesn't define a person, and that dreams can still shine brightly.

Spark knowledge: Break down the barriers of misinformation and misunderstanding. Educate your community about epilepsy, its types, symptoms, and triggers. Empower people with knowledge to become advocates and offer support to those affected.

Spark action: Get involved in epilepsy awareness initiatives. Volunteer your time, donate to epilepsy organizations, or participate in fundraising events. Every spark of action, however small, contributes to a brighter future for those living with epilepsy.

Here are some ways you can help make a difference:

Share educational resources: Post informative articles, videos, and graphics on social media using hashtags like #EpilepsyAwareness and #SparkChange.

Start conversations: Talk openly and honestly about epilepsy with your friends, family, and colleagues. Encourage open dialogue and break down the stigma.

Support epilepsy organizations: Donate to research efforts, participate in fundraising events, or volunteer your time.

Be an advocate: Speak up for the rights and needs of people living with epilepsy. Challenge discrimination and promote equal access to healthcare and education.

Together, we can spark a brighter future for epilepsy awareness in 2024. Let's make this year a year of understanding, support, and progress. Shine a light on epilepsy, and let's celebrate the potential and strength of every individual, regardless of their condition.

Happy New Year from the epilepsy awareness community!

#epilepsy #seizures #health #2024 #happy new year #sparkchange #hope #hope2024

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Holiday Hustle, Epilepsy Juggle: Why Hospital Visits Don't Take a Christmas Break ⚡️

Holiday Hustle, Epilepsy Juggle: Why Hospital Visits Don't Take a Christmas Break ⚡️

Hey Rumble Fam,

It's the most wonderful time of the year, right? Sparkly lights, cozy sweaters, and...hospital gowns? Unfortunately, for many of us with epilepsy, the holiday season can come with a hidden side effect: increased risk of seizures.

Here's why:

Holiday Hustle: Parties, travel, late nights, and altered routines can disrupt our sleep schedules and medication routines, all potential seizure triggers.

Sensory Overload: Flashing lights, loud music, and crowded spaces can be overwhelming for the nervous system, another potential trigger.

Emotional Rollercoaster: Holiday stress, joy, and even anticipation can throw our emotions into a whirlwind, which can also impact seizure activity.

So, what does this mean for us?

It doesn't mean hiding under the mistletoe and avoiding all the fun! But it does mean being extra mindful and proactive:

Prioritize sleep: Even with late-night festivities, try to stick to a regular sleep schedule as much as possible.

Plan ahead: Discuss holiday plans with your doctor and adjust your medication routine if needed.

Pack smart: Don't forget essential medications and emergency supplies when traveling.

Listen to your body: Take breaks, avoid triggers, and prioritize self-care amidst the holiday cheer.

Communicate openly: Let friends and family know about your epilepsy and how they can support you.

Remember, Rumble Fam, you're not alone in this. Epilepsy doesn't get a holiday break, but neither do we! Let's support each other, share our experiences, and make sure everyone has a safe and seizure-free holiday season.

Here are some ways to spread epilepsy awareness this holiday season:

Share this post: Let your friends and family know about the challenges we face.

Rock your epilepsy swag: Wear an epilepsy awareness ribbon or t-shirt with pride.

Start a conversation: Talk openly about epilepsy and break down the stigma.

Together, we can make the holidays a little brighter for everyone living with epilepsy. Sending you all love, light, and seizure-free vibes! ✨⚡️

#EpilepsyAwareness #HolidayEpilepsy #RumbleStrong #SeizureFreeHolidays

P.S. Don't forget to tag your epilepsy warriors in the comments!

Whoops I did it again! I'm back in the hospital for Christmas😅

Don't fret, the doctors here are amazing though

#epilepsy #neurology #brain #health #hospital #hotel #again #Christmas #Adventist hospital #Adventist

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The whole "it could be worse" comfort phrase honestly pisses me off so much. Yes it could be worse but that doesn't make my chronic illness any better to deal with

abled people really act like if your illness or disability isn’t terminal then you’re not allowed to complain about it or grieve the life you thought you’d have and it’s so fucked up

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**Epilepsy and the Role of Hemispherectomy**

Epilepsy is a chronic neurological disorder characterized by recurrent seizures, which are sudden bursts of electrical activity in the brain. While epilepsy can affect people of all ages, it is most common in children and young adults. In some cases, epilepsy can be effectively managed with medication, but for others, the seizures may be too severe or unresponsive to medication. For these individuals, surgery may be an option to control seizures.

One type of surgery that is sometimes used to treat severe epilepsy is a hemispherectomy. A hemispherectomy is a radical procedure that involves removing or disconnecting half of the brain. This is a major surgery, but it can be very effective in controlling seizures in carefully selected patients.

**Who is a candidate for a hemispherectomy?**

A hemispherectomy is typically considered for children who have severe epilepsy that is affecting only one hemisphere of the brain. The seizures may be severe enough to cause developmental delays, learning difficulties, and other disabilities.

Some of the conditions that may lead to a hemispherectomy include:

* **Hemimegalencephaly:** This is a rare condition in which one hemisphere of the brain is significantly larger than the other.

* **Sturge-Weber syndrome:** This is a syndrome that causes seizures, skin lesions, and eye problems.

* **Rasmussen's encephalitis:** This is a rare autoimmune disease that attacks the brain.

**How does a hemispherectomy work?**

The specific procedure of a hemispherectomy will vary depending on the patient's individual needs. However, the general steps are as follows:

* The surgeon will make an incision in the scalp and remove a piece of bone from the skull.

* The surgeon will then carefully remove or disconnect the diseased hemisphere of the brain.

* The surgeon will close the incision and the patient will be taken to the recovery room.

**What are the risks of a hemispherectomy?**

As with any major surgery, there are risks associated with a hemispherectomy. These risks include:

* Infection

* Bleeding

* Blood clots

* Damage to healthy brain tissue

* Learning difficulties

* Speech and language problems

* Motor problems

**What is the outcome of a hemispherectomy?**

The outcome of a hemispherectomy can vary depending on the patient's individual circumstances. However, in general, a hemispherectomy can be very effective in controlling seizures. Studies have shown that up to 80% of patients who undergo a hemispherectomy will experience complete seizure freedom.

**What is life after a hemispherectomy like?**

Patients who undergo a hemispherectomy will need to undergo rehabilitation to learn to cope with any new challenges they may face. This may include physiotherapy, speech therapy, and occupational therapy.

Despite the challenges, most patients who undergo a hemispherectomy go on to live fulfilling lives. They may experience some learning difficulties or motor problems, but they can still attend school, work, and participate in activities that they enjoy.

**Conclusion**

Epilepsy is a complex disorder that can have a significant impact on people's lives. While there is no cure, there are effective treatments available, including medication and surgery. A hemispherectomy is a major decision, but it can be a life-changing procedure for those with severe epilepsy.

My experience with:

In June 21st, 2018; I had my last seizure(day of my surgery). So after my surgery to this day I've yet to have a seizure(Nov 8 2023). Except, as previously stated; there can be some"after effects". To put it shortly I was left with "stroke-like side effects"meaning that I do have reduced motor abilities or low ROM (range of motion) sight problems and strength loss. Luckily, I do have more confidence, liberty, "authority" and responsibilities.

Disclaimer: for everyone's unique case it might be different because I have Rasmussen's encephalitis

#epilepsy #seizures #neuro #brain #neurology #seizure #after effects #hemispherectomy #storytime #cause #effect

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Anyone can cook!

 

As chef Gusteau says, "Anyone can cook, but only the fearless can be great." Today, I want to talk about overcoming fear and embracing new experiences, especially for fellow epileptics and their caregivers.

For many of us, the fear of seizing with a knife in hand, turning the gas on without lighting it, or getting burned has held us back from exploring the joy of cooking. But let me share a personal story that might inspire you.

I, too, was once afraid to step into the kitchen. Until one Mother's Day, I came up with the idea of surprising my mom with breakfast in bed. Eggs and coffee seemed like the obvious choice, but I wanted to challenge myself. So, with a little courage, I followed a fluffy egg recipe I stumbled upon on TikTok. And you know what? They turned out amazing!

That one small victory was just the beginning. Only a month later, I found myself confidently preparing a delicious tuna dish using an old family recipe. The excitement and satisfaction were indescribable. And most recently, I even dared to try my hand at making French toast. Thanks to another TikTok recipe, I created a brunch that left everyone craving for more.

The point I want to make is this: You never know what you're capable of until you try. Don't let fear hold you back in the kitchen or in life. New experiences can enhance your mood, raise your energy levels, and unlock hidden talents you never knew you had.

Of course, I always advise safety first. Even as we explore new culinary delights, it's important to be cautious and mindful of potential risks. But don't let fear take away the joy of experimentation and discovery.

So, to all my fellow epileptics and caregivers out there, I encourage you to take that leap of faith and embrace the kitchen. Together, let's conquer our fears and create culinary wonders that bring joy, satisfaction, and a sense of accomplishment.

Fluffy eggs recipe:

1. six eggs whisked

2. then three cups of milk.

3. Add spice of your choice

4. Butter and salt your pan

5. Cook!

Tuna recipe:

1. Three cans of tuna in a mixing bowl

2. Four dollops of mayo

3. Boil two eggs and dice them

4. Dice half an onion

5. Mix it all with salt and pepper

6. Eat!

French toast recipe:

1. Whisk one egg until smooth

2. Add a cup of milk

3. Two drops of vanilla extract

4. Whisk

5. Soak bread in the mix

6. Cook on a buttered pan on medium until golden

That's all! Be brave, have fun and be careful!

#change #courage #health #recipes #recipe #cooking #talent #kitchen

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Playing with chat gpt and made a poem

"The web of life is spun so tight, The spider's trap is hidden from sight. A chaos lurks within the fly. The spider's normal is a lethal high.

To the fly, the spider's ways, A nightmare born of fear and haze The web's embrace, a final fate, A normal turned to twisted hate.

The spider's dance, a deadly game, a world of shadows without shame. Normalcy is an illusion, In darkness dwells this confusion.Beware the web that weaves in stealth, for in its grasp lie death and wealth. a normal world, but for the few, A world of spiders is waiting for you."

This hit hard

#poem #chatgpt #deep

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Super Mario movie 2024 spoiler alert

The upcoming Super Mario Bros. movie is an animated film produced by Illumination and Nintendo and will feature the voices of Chris Pratt as Mario, Anya Taylor-Joy as Peach, Charlie Day as Luigi, and Jack Black as Bowser.

The story will follow Mario and Luigi as they journey to the Mushroom Kingdom to rescue Princess Peach from the clutches of Bowser. (SPOILER ALERT) Along the way, they will encounter familiar characters and locations from the Super Mario Bros. game series.

However, it's important to note that the movie contains scenes that may be triggering for photosensitive individuals. There are soft lightning flashes and flashlights, which can be uncomfortable for some viewers. More concerning are the scenes where the green "warp pipes" are used. These scenes contain bright colors, flashing lights, and rotating visuals that can be highly triggering for people with photosensitivity. It's advisable for viewers to consult a doctor or specialist if they have concerns about photosensitivity before watching the movie.

#photosensitivity #photo sensitive #super Mario movie #health

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A poem Neurological Storm: Epilepsy's Struggle for Hope

The mind is a universe, vast and complex, where neurons dance and thoughts connect. But for some, this dance is interrupted by a force that leaves them abruptly awake.

Epilepsy, a condition of the brain,  A challenge that tests and strains, The courage and resilience of those it affects, And the neurologists who work to perfect.

Seizures come and go, like a storm that rages and blows. The body trembles and shakes, and consciousness fades and breaks.

But amidst the struggle and pain, there is hope that remains in the advances of neurology and the dedication of those who study.

Through medication and surgery and the pursuit of new discoveries, we inch ever closer to a cure and a future that is bright and pure.

For those with epilepsy, know this, You are not alone in the abyss, Your struggles are seen and heard, And together, we will rise like a bird.

#poem #neurology #seizure #epilepsy #health #deep thoughts #deep

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Unveiling the Secrets of Intravenous Access: Expert Tips and Innovative Technologies for Finding Those Tricky Veins"

Healthcare professionals often encounter difficulty when locating accessible veins for intravenous (IV) insertion. However, there are several techniques that can be used to aid in this process. Staying hydrated is one of the easiest ways to increase blood volume, which can make veins more visible and easier to access. Additionally, applying warmth to the area, such as through a warm compress or towel, can cause the veins to dilate and become more visible. Holding the arm below the level of the heart can also be helpful, as it causes blood to pool in the veins, making them more prominent. Light exercise or movement, such as clenching and releasing the fist, can help increase blood flow and make veins more visible as well.

In addition to these techniques, vein finder technology has also been developed to assist healthcare professionals in locating veins. These devices use infrared or other light to detect veins under the skin, which can be especially helpful in locating veins that are difficult to see. Ultrasound is another technique that can be used to visualize veins in real-time, making it especially useful for patients with difficult-to-access veins or who require frequent IV access.

In conclusion, locating accessible veins for IV insertion is a crucial component of medical care, and there are various techniques available to aid healthcare professionals in this process. From simple measures such as hydration and warmth to advanced technology such as vein finder devices and ultrasound, these techniques can help to ensure that patients receive the necessary treatments and care.

Techniques to assist with locating accessible veins for IV insertion:

Staying hydrated to increase blood volume and make veins more visible

Applying warmth to the area to cause veins to dilate and become more visible

Holding the arm below the level of the heart to make veins more prominent

Light exercise or movement to increase blood flow and make veins more visible

Vein finder technology that uses infrared or other light to detect veins under the skin

Ultrasound to visualize veins in real-time, especially useful for patients with difficult-to-access veins or who require frequent IV access.

#assistance #intravenous #tips and tricks #nurses #emergency room #post needle prep #blood

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Understanding the Dangerous Connection between Epilepsy and Alcohol"

Epilepsy is a neurological disorder that affects millions of people around the world. It is characterized by recurrent seizures, which are sudden, uncontrolled bursts of electrical activity in the brain. While the causes of epilepsy are varied and complex, one factor that can significantly impact the condition is alcohol consumption. In this blog post, we will explore the effects of alcohol on epilepsy and the potential risks that individuals with epilepsy should be aware of.

Alcohol is a central nervous system depressant, which means that it slows down brain function and can cause drowsiness, impaired judgment, and coordination problems. For people with epilepsy, alcohol can trigger seizures or interfere with seizure medication, potentially leading to serious health risks. Here are some ways in which alcohol affects epilepsy:

Alcohol can lower seizure threshold: One of the most significant risks associated with alcohol and epilepsy is that it can lower seizure threshold, which is the level of brain activity required to trigger a seizure. Alcohol can disrupt the delicate balance of brain chemicals and increase the likelihood of a seizure occurring.

Alcohol can interfere with medication: Many people with epilepsy take antiepileptic medication to control their seizures. However, alcohol can interfere with the effectiveness of these medications, making it more difficult to control seizures. This can be particularly dangerous for individuals who are prone to frequent or severe seizures.

Alcohol can cause dehydration: Alcohol is a diuretic, which means that it can cause dehydration by increasing urine output. Dehydration can be a trigger for seizures, and individuals with epilepsy should be particularly careful to stay hydrated.

Alcohol can increase stress and anxiety: Alcohol is a known trigger for stress and anxiety, which can exacerbate seizures in individuals with epilepsy. Stress and anxiety are common triggers for seizures, and alcohol can amplify these effects, making seizures more likely to occur.

Alcohol can cause sleep disturbances: Alcohol can interfere with sleep patterns, which can be particularly problematic for individuals with epilepsy. Sleep deprivation is a common trigger for seizures, and individuals with epilepsy should strive to maintain a regular sleep schedule to minimize this risk.

In conclusion, alcohol can have a significant impact on epilepsy, and individuals with the condition should be cautious about consuming alcohol. If you have epilepsy, it is important to speak with your doctor about the potential risks associated with alcohol consumption and to develop a plan for managing these risks. This may involve avoiding alcohol altogether or consuming it in moderation under careful supervision. Remember, staying informed and taking steps to minimize risks is essential for living a healthy and fulfilling life with epilepsy.

Alcohol can be dangerous for people with epilepsy, as it can trigger seizures or interfere with medication. Alcohol can also cause dehydration, stress and anxiety, sleep disturbances, and lower seizure threshold, making seizures more likely to occur. It's important for people with epilepsy to talk to their doctor and develop a plan to manage the risks associated with alcohol consumption, which may involve avoiding alcohol altogether or drinking it in moderation.

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TikTok now has a photosensitivity blocking feature!!

#photosensitivity photosensitive

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YAAAAAAAAAAAAYYYYY!!!

I would've been so pissed if it was a photosensitive movie it is moderately photosensitive

So to infinity and beyond it is😁😁😁😁😁😁😁😁😁

#photosensitive #neuro #brain #neurology #seizure #health #lucky

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Feeling the sticky spots where your EKG leads use to be

Caption This!

Caption this! Without context, how would you caption this painting? Reblog to reply.

#satt #show and tell time #satt-prompt #satt-medea #show and tell #caption this

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Blood type and epilepsy

I've never been informed about how my blood type might affect my epilepsy. Buuuuuuut... I found this and it piqued some interest. Btw I'm A+ positive

#blood #brain #neurology #seizure #health #A positive #themoreyouknow #interesting #knowledge