merthyrcurlhorn

[merthyrcurlhorn]

Chapter 2: Never-ending Medication

One thing i feel isnt spoken about enough with chronic illnesses is the volume of medication we get put on. I feel like my entire life is dictated by when i have to take my medication. I remember years ago when i only had 1 or 2 a day but i think my doctors have gone a bit overboard (jk i know they help) im on 26 tablets a day! It takes a full hour just to organise one weeks worth of meds not to mention multiple trips to the pharmacy, they know me by name in there now! its mental. I sometimes like to imagine what would happen if i went a day without my medication??? Then i come down from my dream cloud as i know that it would just end up as hospitalisation..... again. I wish the dream world was real, but alas its just how some people need to function, and the reality is that its not that bad having to take medication weather that's tablets or through an inhaler or cental line or ng, because at the end of the day its not because random people see you and think the worst or take pity its that we have just as much, if not more, fight in us which keeps us going and is why we will never stop.

sincerely Lexi.J

#chronic illness #chronically ill #medication #ng tube #central line #iv infusion #prescription medication #ehlers danlos type 3 #eds zebra #ehlers danlos zebra #fnd awareness #pots syndrome

[merthyrcurlhorn]

Chapter 1: Meet Jefery

So everyone with a chronic ilness wishes there was a way to get rid of it or blame it on something.. Well at least i do. That's where i met Jefery, he is all my chronic illnesses all my neurological conditions and mental health problems, we are one in the same but then it gives me something to pin everything on when it all gets too much, you're sat on your bedroom floor overwhlemed its too much WHYYYY! It's simple its just Jefery he cant help it its just what he be doin'. So then instead of sitting screaming at yourself wondering why it all ended up the way it did, say a swift and nasty "FUCK YOU!" to Jefery . Punch a pillow or smash a plate allow yourself to get angry if you need it. lets face it, if you cant get angry at him who else can?! Nobody knows Jefery like you do, nobody knows the sting of him quite like you do.

Yours truly Lexi.J

#ehlers danlos type 3 #eds zebra #probably heds #hypermobile ehlers danlos #ehlers danlos zebra #ehlers danlos awareness #ehlers danlos syndrome #hypermobile eds #chronic illness #adhd #autistic spectrum #fnd awareness #chronically ill