valkyrie1031

[valkyrie1031]

@makeawishsnv #walkforwishes You can still donate to help make wishes come true. Link in bio! 💙💫 #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation #walkforwishes2020 #makeawish #wishkid #walkwithme #wishwithme #payitforward #townsquarelasvegas #lasvegascommunity #vegas #hendersonnv (at Town Square Las Vegas) https://www.instagram.com/p/B9cLBxVn7h9/?igshid=1m34jjpxj0sbq

#walkforwishes #laurensjourney #acureforlauren #avmawareness #avm #arteriovenousmalformation #walkforwishes2020 #makeawish #wishkid #walkwithme #wishwithme #payitforward #townsquarelasvegas #lasvegascommunity #vegas #hendersonnv

[valkyrie1031]

@makeawishsnv #walkforwishes #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation #walkforwishes2020 #makeawish #wishkid #walkwithme #wishwithme #payitforward #townsquarelasvegas #lasvegascommunity #vegas #hendersonnv (at Town Square Las Vegas) https://www.instagram.com/p/B9cKlChnqaR/?igshid=1kyqs8lturxmr

#walkforwishes #laurensjourney #acureforlauren #avmawareness #avm #arteriovenousmalformation #walkforwishes2020 #makeawish #wishkid #walkwithme #wishwithme #payitforward #townsquarelasvegas #lasvegascommunity #vegas #hendersonnv

[valkyrie1031]

Celebrating #rarediseaseday at the @lmhfoundation #vegasrare5k. #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation #raredisease #showyourrare #showyourstripes #vegascaresaboutrarekids2020 #onehill #littlemisshannah (at Cornerstone Park) https://www.instagram.com/p/B9Kl433Hd4Y/?igshid=13oo60ga1dq5v

#rarediseaseday #vegasrare5k #laurensjourney #acureforlauren #avmawareness #avm #arteriovenousmalformation #raredisease #showyourrare #showyourstripes #vegascaresaboutrarekids2020 #onehill #littlemisshannah

[valkyrie1031]

One of my favorite pictures of Lauren. #throwbackthursday #tbt #pointloma #sandiego #windinmyhair #ocean #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation (at Point Loma, San Diego) https://www.instagram.com/p/Bv3JCWlHouB/?utm_source=ig_tumblr_share&igshid=1czr3xhrxwak0

#throwbackthursday #tbt #pointloma #sandiego #windinmyhair #ocean #laurensjourney #acureforlauren #avmawareness #avm #arteriovenousmalformation

[valkyrie1031]

We hope you'll join us in spring Make-A-Wish's Walk for Wishes! Help us pay Lauren's wish forward by joining our team or donating to help another child's wish come true! Link in bio. 💙💫 #makeawish #walkforwishes #wishkid #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation (at Henderson, Nevada) https://www.instagram.com/p/Bt_x2NpgGyu/?utm_source=ig_tumblr_share&igshid=1s1ckr7xk1jsl

#makeawish #walkforwishes #wishkid #laurensjourney #acureforlauren #avmawareness #avm #arteriovenousmalformation

[valkyrie1031]

Beautiful in any light. #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation #limoride (at Henderson, Nevada) https://www.instagram.com/p/Bt2gDQMgv3W/?utm_source=ig_tumblr_share&igshid=wie2cd9kgr8b

#laurensjourney #acureforlauren #avmawareness #avm #arteriovenousmalformation #limoride

[valkyrie1031]

On our way! #makeawish #Hawaii #maui #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation #onehill @makeawishsnv @makeawishhawaii @makeawishamerica (at McCarran International Airport) https://www.instagram.com/p/BtjDv3Dny3H/?utm_source=ig_tumblr_share&igshid=or4fo15vyhpm

#makeawish #hawaii #maui #laurensjourney #acureforlauren #avmawareness #avm #arteriovenousmalformation #onehill

[valkyrie1031]

Doing spa stuff before we leave for Hawaii....in 33 hours. #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation #makeawish #maui #hawaii #spa #facemask (at Paradise Hills, Henderson) https://www.instagram.com/p/BtfKAKKH283/?utm_source=ig_tumblr_share&igshid=we9pxnswym6j

#laurensjourney #acureforlauren #avmawareness #avm #arteriovenousmalformation #makeawish #maui #hawaii #spa #facemask

[valkyrie1031]

Thank you to all of you that help to spread Lauren's story. I appreciate each and every person that raises their voice with me to find her a safe treatment. Awareness leads to research. Research leads to cures. #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation #mlk (at Henderson, Nevada) https://www.instagram.com/p/Bs55tywHy4o/?utm_source=ig_tumblr_share&igshid=12hjdzqzhlz70

#laurensjourney #acureforlauren #avmawareness #avm #arteriovenousmalformation #mlk

[valkyrie1031]

At this time on this date in 2013 we were sitting in a hospital, getting ready to be transferred via ambulance to another hospital. All we knew at that moment was that Lauren suffered a large seizure and the CT was showing something in her brain. As adults you remember the date, the time, the sights and sounds. And then there's the nervousness and the fear. Lauren remembers some of it but not the date in particular. In AVM and aneurysm support groups today is called her "annieversary". On this day 6 years ago, Lauren woke up as a regular 6 year old. Hours later everything changed and this journey started. My stubborn little 6 year old has proven herself to be kind, empathetic, and wise beyond her years over the last 6 years. She's experienced stuff that no kid should go through. She understands that the AVM can kill her....and she smiles and lives her life. In short, she's a bit of a bad ass and we could all learn something from her. GoFundMe link in bio if you'd like to donate to Lauren's Journey. #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation #onehill (at Paradise Hills, Henderson) https://www.instagram.com/p/BsuFWjsnjbH/?utm_source=ig_tumblr_share&igshid=1xcae5zsorww9

#laurensjourney #acureforlauren #avmawareness #avm #arteriovenousmalformation #onehill

[valkyrie1031]

6 years ago today. 5 days before a seizure would change our lives. I'm not sure how it can seem so long ago and also feel like yesterday. #flashbackfriday #fbf #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation (at Henderson, Nevada) https://www.instagram.com/p/BsgI3r9HJyk/?utm_source=ig_tumblr_share&igshid=a29j2eq814rf

#flashbackfriday #fbf #laurensjourney #acureforlauren #avmawareness #avm #arteriovenousmalformation

[valkyrie1031]

Lauren got her first pair of glasses today. 👓 I'm biased but I think she did a great job picking them out....she looks so good in them! #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation #onehill #vegaslife #hendersonnv (at Henderson, Nevada) https://www.instagram.com/p/BsXS9cXHnPa/?utm_source=ig_tumblr_share&igshid=1ujdar9659gye

#laurensjourney #acureforlauren #avmawareness #avm #arteriovenousmalformation #onehill #vegaslife #hendersonnv

[valkyrie1031]

Less than a month away. Come join Lauren's team for the 1M walk. #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation #RareDiseaseDay #raredisease #vegascaresaboutrarekids2019 #onehill (at Paradise Hills, Henderson) https://www.instagram.com/p/BsPbeO0nano/?utm_source=ig_tumblr_share&igshid=ydkq4sad0xtm

#laurensjourney #acureforlauren #avmawareness #avm #arteriovenousmalformation #rarediseaseday #raredisease #vegascaresaboutrarekids2019 #onehill

[valkyrie1031]

#LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation #onehill #vegaslife #hendersonnv #community (at Paradise Hills, Henderson) https://www.instagram.com/p/BsHwg-HH_il/?utm_source=ig_tumblr_share&igshid=18cxyo6s88re9

#laurensjourney #acureforlauren #avmawareness #avm #arteriovenousmalformation #onehill #vegaslife #hendersonnv #community

[valkyrie1031]

Have you signed up to walk the 1K with Lauren yet? Hoping to have a decent size team for her to show her how much support she has. Plus, all funds raised will benefit the Little Miss Hannah Foundation.....which means you're helping Vegas valley kids with rare and/or life threatening diagnoses. Please join us on 2/2. (You can do a virtual walk too!) Sign up by 12/31....registration rates raise in January. Go to www.VegasCaresAboutRare.org and join Lauren's Journey. #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation #vegascaresaboutrare2019 #littlemisshannahfoundation #hendersonnv #vegaslife #onehill (at Paradise Hills, Henderson) https://www.instagram.com/p/Br3rBjPnWG-/?utm_source=ig_tumblr_share&igshid=ty83to0phdua

#laurensjourney #acureforlauren #avmawareness #avm #arteriovenousmalformation #vegascaresaboutrare2019 #littlemisshannahfoundation #hendersonnv #vegaslife #onehill

[valkyrie1031]

Just a reminder....join Lauren's team for the #vegascaresaboutrare2019 5K and 1M fun run and walk on 2/2/19. Anyone who joins our team automatically saves $5 at registration. Prices go up in January so join us now 😊 #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation #littlemisshannahfoundation #raredisease @lmhfoundation (at Henderson, Nevada) https://www.instagram.com/p/BrmKzTlnNti/?utm_source=ig_tumblr_share&igshid=nnshd6g789i2

#vegascaresaboutrare2019 #laurensjourney #acureforlauren #avmawareness #avm #arteriovenousmalformation #littlemisshannahfoundation #raredisease

[valkyrie1031]

We're not a little excited or anything....😁 Lauren and her sister keep asking how many more days. They were pretty excited to know that we would need to go get swimsuits in January. #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation #makeawish #wishkid @makeawishsnv @makeawishamerica @makeawishhawaii (at Henderson, Nevada) https://www.instagram.com/p/Brk7UNTnVvm/?utm_source=ig_tumblr_share&igshid=1bn6hhexxd8vg

#laurensjourney #acureforlauren #avmawareness #avm #arteriovenousmalformation #makeawish #wishkid