#low blood pressure feels like the room is spinning and im unsteady on my feet and i get so nauseous

[salt-baby]

one of the really fascinating things about chronic illness and ableist doctors is how little they trust me to distinguish things about my body

I think for them it's very easy to say 'okay pain caused by nerves is a dull diffuse pain and pain caused by joint dislocation is also a dull diffuse pain so I need to do further testing to distinguish them'

but for patients who live with it it's very easy to distinguish the two! in fact with as much time as I spend with it I'm very good at telling what my body's symptoms mean! they're important warning lights for managing my condition!

nerve pain feels different than joint injury pain and they respond to very different treatment! it's extremely beneficial for me to learn the difference so of course I have!

it's just so frustrating for my doctors to go "oh your wrists hurt? let's do a nerve assessment" and for me to say "I don't tend to get nerve pain in my hands and that's not the pain I want addressed" and then have the doc go "ehhhhhhhhh let's run the test"

i feel like I'm constantly having my personal experience on this dismissed, on everything from distinguishing low blood sugar and low blood pressure to differentiating the types of fatigue and sleepiness I experience

disabled people tend to know their own bodies best, and the bulk of management of their conditions will be done by them alone, and I just really wish doctors would listen to them a little more.

#like bestie low blood sugar feels like im starving and my hands are shaking a mile a minute #low blood pressure feels like the room is spinning and im unsteady on my feet and i get so nauseous #i refused the nerve test fuck that doc #im not undergoing carpal tunnel testing for pain clearly caused by the VISUAL distension of my wrist bones #the joint looks fucked from the outside (to an expert eye) how are they this bad at their job #took my wrist braces off and my pt just goes YOUCH #i keep telling them my blood sugar is uncontrolled and they keep going 'its not that bad but also never leave the house without a high carb #...snack and also eat every two hours or else mmkay?' #it drops out like three times a day it is the most frustrating symptom ive dealt with to date #ugh #disability #ehlers danlos syndrome #postural orthostatic tachycardia syndrome #chronic illness #chronic pain #ableism #chronic fatigue #salt baby talks