#along with the poor proprioception from autism the dizzyness and weakness from the dysautonomia

[caffeinatedopossum]

I feel like I have an unacceptably low level of control over my body. Like obviously there are some things that no one can control but I have like actual big problems because of it. I'm not really sure how to describe it but it's not just me being really clumsy (although that is an effect of it) or even the tics I have.

It's like I can feel my body moving wrong constantly but I can't correct it and it hurts and it sucks and I'm tired. I'm tired of hurting myself, making mistakes, breaking things, acting like it's fine when in reality I'm constantly afraid of how much any movement I make next could hurt me. I need to move to stay sane, I want to workout and get stronger and go on walks with my friends. I wanna get better. I can't even roll over in bed without pain and I'm just so tired.

#opossums chronic illness rants #seriously though this sucks so much and idk if theres anything i can do about it but i wanna try #its probably a combination of a lot of different things #like muscle weakness and instability from ehlers danlos syndrome both making each other worse #along with the poor proprioception from autism the dizzyness and weakness from the dysautonomia #the fact that i cant really see and even possibly inner ear damage (thats a new one that ive been suspecting more and more recently) #im not sure if the ear damage would be just from built up ear wax or maybe or something else #but im really not having a good time because it brings back bad memories #when i was a kid (8 i think) my mom was convinced i had compacted ear wax but given that she refused to ever #take me to doctors she decided she had to fix it herself #which led to a lot of excruciating trials where she stuck wires and que tips stripped of their cotton into my ears #and tried to scrape out whatever she could. even though i wanted her to stop because it hurt so bad i would start crying everytime #im also mildly suspicious that might be what damaged my ears in the first place... but i really have no way to know that at the moment #all i know is i dont want anyone looking in or putting things in my ears ever again #it doesnt even matter how much i trust them because now anything put in my ears hurt #like even when im just regularly cleaning them with que tips it hurts and im reminded that might not be normal #idk if you read these tags let me know if cleaning your ears is supposed to hurt i guess? #im honestly not sure. like i just always assumed i wasnt being gentle enough or something but it doesnt matter what i do #its not super painful either just a little bit so i ignored it because i assumed it was normal #since a lot of 'normal' things hurt for me. which i now know to my surprise isnt normal at all but i didnt figure that out #until i actually got people to believe that these things were hurting me #apparently its very hard to find anyom #who believes that opening bag clips or trying to lift a jug of milk are actually quite painful for me #they usually just say im way overreacting and when i was a kid i just believed them i guess