#I was told (in a nonprofessional capacity) that I should be screened for ehlers danlos syndrome

[feverdreamsandlucidnightmares]

God I swear I’m not trying to be all doom and gloom talking about my health I know it’s annoying I just really need a break and everyone irl is already done with my shit bc I’ve been too anxious to go back to the doctor bc the last one told me I’d just have to deal with it and potentially get more surgeries and I’m 23 dude. It took nearly 3 years before my doctor even agreed that that surgery was necessary and it didn’t even fully fix my shit it just lessened the pain — which I’m grateful for, don’t get me wrong! But I haven’t had full limb function in my left arm since I was 15 and they made it sound like the surgery would fix it and then acted like I was overreacting when it didn’t. And my left leg has been deeply fucked for nearly as long, and at least slightly fucked at least since I hit double digits, and has gotten progressively worse. So like I know, I get it that I need to go to a doctor, but why would it go better now? What’s going to make a doctor take me seriously now?

I want to be angry, but I’m too tired.

#chronic health #chronic pain #cpunk #cripple punk #tw surgery #I was told (in a nonprofessional capacity) that I should be screened for ehlers danlos syndrome #which matches a lot of my symptoms #and my parental units want me to get screened for pots #and a heart murmur #and mitral valve prolapse #and asthma but I’ve been tested for that within the last 5 or 6 years and seem to be fine in that regard at least #I don’t want to keep doing this man #I would really like to be healthy #I miss ballet a fuckton #and martial arts #and just being able to go places with my friends without having to plan out how to avoid fainting or pain flares #maybe hEDS #I don’t want to clutter up the actual tags with my hypothetical shit #tw vent #fever’s vibe check #feverdreamsandlucidnightmares