amplified-pain-culture-is

[amplified-pain-culture-is]

AMPS culture is not being able to stand for more than 15 minuets without being in crazy pain

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#no for real!! does anyone get crazy shin splints too?? #amps #amplified musculoskeletal pain syndrome #amplified pain culture is #amps culture is #crps #crps/rsd #amplified pain #complex regional pain syndrome #rsd #anonymous

[amplified-pain-culture-is]

when it starts getting cold and ur joints are like:

#thank you for the id!!! so sorry u forgot

[amplified-pain-culture-is]

Amplified pain culture is getting complementary IBS symptoms

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#oh same! i developed gastroparesis from my amps 🙃 #its so much fun /s #amps #amplified musculoskeletal pain syndrome #amplified pain culture is #amps culture is #crps #crps/rsd #rsd #amplified pain #complex regional pain syndrome

[amplified-pain-culture-is]

holding every newly dxd amps patients hand you are in real pain you are not making it up do NOT let doctors tell you otherwise

[amplified-pain-culture-is]

I have. Amps symbol idea.

Phoenix! A powerful creature that rises through the ashes of a flaire and flourishes. (And…yk…the classic “up down up down up down of our lives)

And organge is amps color! And fire…yk…pain!

Idk I think it’s cool!

I also feel like yk…whbe I’m in a very bad flaire and I do my amps workout or get something off my chest and the flare disapates. It so feels like raising form ashes and flying! And being free! Skipping and jumping after months in a wheelchair.

That being said I know amps treatment is basically non existent for many, and I’m so lucky(literally, lucky) to live near a very good amps center. Maybe this symbol could be like call to action. Call to help make sure EVERY amps person can raise form ashes. No matter where they live or how much money they got. To be free from pain and misery.

What to y’all think?

[amplified-pain-culture-is]

to all fellow AMPS patients: you are not making up your pain. your pain is real. taking breaks because something is too painful is a good thing. dont let doctors tell you otherwise

[amplified-pain-culture-is]

ER docters @ me

[amplified-pain-culture-is]

I don't have arthritis but sometimes "I have a complex neurological disorder that causes malfunctions in my sensory processing, predominantly in the form of chronic pain, and this can cause me mobility issues, fatigue, temperature sensitivity, and skin discoloration, plus the easiest thing to do would be to call it fibromyalgia but the misconceptions from the 90s that this isn't a real diagnosis are still so prevalent that if I say that term I risk you not taking me seriously" is a lot more drawn out than "oghc my rheumatism"

#amplified musculoskeletal pain syndrome

[amplified-pain-culture-is]

Amps cultrue is having no idea if you are injured/sick so you jsut have to make an educated geuss and hope your next decision based on taht won’t make it demonstrably worse

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[amplified-pain-culture-is]

AMPS culture is... where are my legs?? Why cant I feel them??

[amplified-pain-culture-is]

Amps culture is trying to find relatable things online and ending up with a bunch of stereo pictures

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[amplified-pain-culture-is]

Hello, this isn’t an Amps-cultrue-is thing, but it is about amps culture, I guess you could say.

I’ve been thinking about a possible symbol for amps

It’s a phenix!

I’m putting in ask box bc I wanted to know what you and your followers think, bc, you knwo, amps cultrue.

(Also I don’t mean for thsi to be like self promotion I just really like this idea!)

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#epic-sorcerer #amps #amplified musculoskeletal pain syndrome #amplified pain culture is #amps culture is #crps #rsd #i think its neat!

[amplified-pain-culture-is]

amps culture is primary care telling you it’s growing pains

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#YUP #amps #amplified musculoskeletal pain syndrome #amplified pain culture is #amps culture is #crps

[amplified-pain-culture-is]

CRPS/AMPS culture is absolutely feeling like you are on an island with how rare the condition is, the closest I can get to someone else who understands slightly is people with fibro and even then I've had some who just don't even want to begin to understand amps and it's just another nerve disorder to them

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#i feel it dude #amps #amplified musculoskeletal pain syndrome #amplified pain culture is #amps culture is #crps

[amplified-pain-culture-is]

AMPS culture is having to explain to someone that the lightest touch hurts because I have Allodynia. AMPS culture is chronic fatigue making you unable to hang out with friends. AMPS culture is telling yourself you are faking it, or not sick enough.

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#chronic fatigue #allodynia #amps #amplified musculoskeletal pain syndrome #amplified pain culture is #amps culture is #crps #rsd

[amplified-pain-culture-is]

my rheumatologist told me that her treatment plan will "cure" my AMPS, do you think that's true or BS lmfao (i definitely think the treatment could HELP but cure is a strong word,,?)

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#sorry i havent been active on this blog! college and health has been rough #thought id at least pass this along to someone more knowledgeable #i personally think the idea that AMPS can be cured is BS #you can definitely get better and/or find ways to cope with it that improve your quality of life #things get better #but theres no for sure cure #amps #amplified musculoskeletal pain syndrome #amplified pain culture is #amps culture is #crps #rsd #crps/rsd

[amplified-pain-culture-is]

some people think i learned braille for Cool Points but i actually learned it bc my medicine holder has the days printed in braille and i forget to take my medication a lot. i didnt feel like turning on a light one night just to see my medication so i learned braille out of spite. now everytime i go anywhere i have to read the braille signs and i have seen “woman” misspelled as “noman” SEVERAL times.

#rb