#not decimating my health by doing minimum body care responsibilities isn’t freeing. occasionally i have a good day which is freeing but tha

[iliveinprocrasti-nationn]

one thing abt being disabled/chronically ill that some people don’t get is that sometimes body maintenance that ensures you have the absolute minimum amount of function can also be something that takes away a lot of control and autonomy. you can argue till the cows come home that making those decisions to try and help yourself (or realistically to try to make sure things aren’t worse than they already are) is something that exhibits control and autonomy and stuff, but they can be so limiting in practice because they’re things that take up so much time but have to be done to do anything else

#i have to sleep a lot. i’m at the point where functioning requires 8 hours of sleep if not more #I should probably be getting 10+ but i’m a student and i work so 8 is the minimum. but then also getting ready for bed is a whole process s #the whole thing can take 10-12 hours depending how much im sleeping. just to make sure i can do anything #that is time in my day i cannot use for anything else. it’s not ‘oh but i can push through it’ because i can’t without spending the next da #lightheaded and nauseous and vaguely dizzy and with such intense brain fog I can’t think with my fatigue so bad i genuinely don’t know how #get myself to work a lot of days. my abled peers don’t have to deal with this at all. they have unlimited study time if they want to #and yeah it is a choice i’m making that’s true i could just not do. except i would lose my job and fail out of college because i would not #be able to get to classes or do my homework or think. but being told ‘but you are making choices about your life’ when i have lost so much #of what i used to be able to do because i am spiralling down and continuing to get worse is so. #literally last year i would wake up at 6:30 and then go to school till 3 and then go to my internship until 10 and get home at 11 and be in #bed anywhere from midnight to two in the morning and then wake up the next day and do it all again. i graduated with a 3.9 gpa and made it #into my top college while dealing with my cancer symptoms and then the two surgeries about it #but now i lose half my day to just making sure i can get out of bed. i can’t go anywhere because my body is physically too exhausted #any extra time goes into doing homework or occasionally time to myself #not decimating my health by doing minimum body care responsibilities isn’t freeing. occasionally i have a good day which is freeing but tha #usually goes into just. other things outside class or work or eating. I don’t go do something for myself or go do something fun on good day #because I still can’t. good days just mean i don’t want to lie down on the pavement when i’m going somewhere #I just. I don’t magically have control over my life because i try to get enough sleep. i lose half my day to doing that and ultimately it’s #just a bodily function that would have to happen anyway #this is a vent post im just having a really hard time right now because it feels like im in exponential decline. it was nowhere near this #bad last semester. my grades are tanking and i have no free time because anything outside of sleep is either work or school #vent tw #yall can rb this just ignore my tags completely #disability #chronically ill #i keep trying to explain to people how pots works because that’s all logical but there’s no way to explain what it’s doing to my body or ho #i feel all the time. the last time i felt this bad was when i had a bad flu or immediately after surgeries because i don’t react well to #anesthesia and always come out of them feeling like shit. and now i just feel like this all the time and it’s only getting worse #I can’t even stay up late anymore because my body feels like it isn’t counting the sleep even if I get 8 hours #I can deal if I have a free day the day after but that just leaves Friday and Saturday nights and I usually still have to do homework