#markythehero

[jaquez2010-blog]

The moment Marky asks @pswan33 if he can interview him:) and of course he said yes cuz thats just the amazing guy he is❤ watch the interview on Markys YouTube channel Markytherock Jaquez #wefighteb #markytherock #theworstdiseaseyouveneverheardof @wefighteb @causethewavetohealeb @ebmrf @ebresearch #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #memoriesareprecious #grateful #number3 #nascar #racingwives https://www.instagram.com/p/B2ALwFanKK_/?igshid=1x0lzna9ypxds

#wefighteb #markytherock #theworstdiseaseyouveneverheardof #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #memoriesareprecious #grateful #number3 #nascar #racingwives

[jaquez2010-blog]

Loves from his human makes it all better #adventuresofmarkyandcephas #wefighteb #markytherock #theworstdiseaseyouveneverheardof @wefighteb @causethewavetohealeb @ebmrf #cureeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #bullybreed #bullysofinstagram #bullyblessed #adventuresofmarkyandcephas https://www.instagram.com/p/B1oiFvuHyAc/?igshid=rlmkd1c57jpb

#adventuresofmarkyandcephas #wefighteb #markytherock #theworstdiseaseyouveneverheardof #cureeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #bullybreed #bullysofinstagram #bullyblessed

[jaquez2010-blog]

I know it may seem as if I am always positive and upbeat and constantly happy but the reality is every night I wake up in a sweat not once but several times a night because I haven't heard marky call out for me so I literally hold my breath as I turn the handle on his door until I put my hand on his chest and feel it go up and down and only than do I let myself breath. And its repeated every morning.... this is the reality of having already loosing one child to this horrific disease... I have depression..its just not a depression that can be handled with medication.... special needs moms are a different breed... not by choice but by circumstance... I will never stop fighting for my child..... so when you see me smiling ...see me laughing...see me with all my positivity ..its because God has given me one more day with my child..one more day of loving him..one more day of memories forever imprinted on my heart and mind.... #wefighteb #markytherock #theworstdiseaseyouveneverheardof @wefighteb @causethewavetohealeb @ebmrf @ebresearch #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #memoriesareprecious #grateful #ebawareness #markystrong #markytherock https://www.instagram.com/p/B2y5048n0Ty/?igshid=9j6h8avvmukh

#wefighteb #markytherock #theworstdiseaseyouveneverheardof #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #memoriesareprecious #grateful #ebawareness #markystrong

[jaquez2010-blog]

Excited to share the latest addition to my #etsy shop: Marky The Rock B3001 - Unisex French Terry Crew ! Fall is here y'all! show you're support and join the fight to find a cure! https://etsy.me/2kJ1MtI #wefighteb #markytherock #theworstdiseaseyouveneverheardof @wefighteb @causethewavetohealeb @ebmrf @ebresearch #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #ebawareness #markystrong #joinhandsforeb #weneedacure #brotherstrust https://www.instagram.com/p/B2y186UHbai/?igshid=5zoki567anop

#etsy #wefighteb #markytherock #theworstdiseaseyouveneverheardof #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #ebawareness #markystrong #brotherstrust

[jaquez2010-blog]

These designs will be available in our @etsy store very soon! Designed by @edwardgrossedesign !! But in the meantime dont forget to check out what we have now! And thanks to the amazingly talented @meghanedoak these designs are available not only on tshirts but also hoodies, sweaters, coffee mugs etc.... join in supporting #ebawareness !!! Go to etsy and type in Markystrong... #lovewhatmatters #specialneedsmom #specialbooksforspecialkids #ebawareness #markystrong #joinhandsforeb #weneedacure #markythehero #specialneedsmom https://www.instagram.com/p/B2pPJAlnWwC/?igshid=87vyq5rylcoq

#ebawareness #lovewhatmatters #specialneedsmom #specialbooksforspecialkids #markystrong #joinhandsforeb #weneedacure #markythehero

[jaquez2010-blog]

One of my favorite pictures of Marky and daddy @markthehammer1 ....Markys still layed up with torn corneas...which means days in bed in the dark with lubricant over the eyes for healing.... but all he's worried about is his brothers birthday and showing his dog in Oklahoma..... he never worries about himself always others.... my #superhero #wefighteb #markytherock #theworstdiseaseyouveneverheardof @wefighteb @causethewavetohealeb @ebmrf @ebresearch #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #bullybreed #bullysofinstagram #bullyblessed #adventuresofmarkyandcephas #abkcbullies https://www.instagram.com/p/B2o_2vSnux2/?igshid=yluawx4uwa54

#superhero #wefighteb #markytherock #theworstdiseaseyouveneverheardof #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #bullybreed #bullysofinstagram #bullyblessed #adventuresofmarkyandcephas #abkcbullies

[jaquez2010-blog]

I told Marky this morning..My love you are so amazing still smiling after waking up in so much pain from your scratched cornea..and said " Mamma at least I woke up".... #lovewhatmatters #wefighteb #markytherock #theworstdiseaseyouveneverheardof @wefighteb @causethewavetohealeb @ebmrf @ebresearch #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #ebawareness #markystrong #specialneedsmom #momofahero https://www.instagram.com/p/B2mTKLfn_QJ/?igshid=1bu2zfgthkigd

#lovewhatmatters #wefighteb #markytherock #theworstdiseaseyouveneverheardof #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #ebawareness #markystrong #momofahero

[jaquez2010-blog]

Caught Marky smiling at me while I was blasting my voice to praise music🤣🤣🤦‍♀️ #wefighteb #markytherock #theworstdiseaseyouveneverheardof #livingforJesus #beinspired #joy #choosejoy causethewavetohealeb @causethewavetohealeb @wefighteb #ebangel #cureeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #joinhandsforeb #ebawareness https://www.instagram.com/p/B2j2-aIHxK3/?igshid=8cbs2m4oifkb

#wefighteb #markytherock #theworstdiseaseyouveneverheardof #livingforjesus #beinspired #joy #choosejoy #ebangel #cureeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #joinhandsforeb #ebawareness

[jaquez2010-blog]

So were in the beginnings of our morning routine and Marky asks " momma since I'm 19 now can I please try and take my blankets off and turn over on my own like A big boy?" And as hard as it Is I'm trying to honor that request..eventhough I hear him struggling and making noises of pain. I started getting up and he saw me and said " no momma I'm doing it ..it just hurts but I still want to keep trying "! 😢 my heart....... my strong boy...forever my baby.... if only we all had his perseverance.... #joinhandsforeb #wefighteb #markytherock #theworstdiseaseyouveneverheardof @wefighteb @causethewavetohealeb @ebmrf @ebresearch #beinspired #godislove #grateful #cureeb #weneedacure #markythehero #markystrong https://www.instagram.com/p/B2jmV8EHiuO/?igshid=15w9i1gj9zeci

#joinhandsforeb #wefighteb #markytherock #theworstdiseaseyouveneverheardof #beinspired #godislove #grateful #cureeb #weneedacure #markythehero #markystrong

[jaquez2010-blog]

Loved giving this to my dad today been waiting almost two weeks to see his face❤❤❤ huge grateful shout out to @johnny_inspired @austindillon3 and @pswan33 ....... not enough thanks in the world.... #austindillon #NASCAR #markystrong #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #ebawareness https://www.instagram.com/p/B2aaX5kH1zr/?igshid=cya3na1829cp

#austindillon #nascar #markystrong #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #ebawareness

[jaquez2010-blog]

#truestorybro #fighteb #markystrong #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #ebawareness #wefighteb #ebmomsquad #ebsucks #ihateeb #beinspired #theworstdiseaseyouveneverheardof @wefighteb @causethewavetohealeb @ebmrf #cureeb #weneedacure https://www.instagram.com/p/B2XqVtPnNB4/?igshid=1uvy6uiijtqp4

#truestorybro #fighteb #markystrong #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #ebawareness #wefighteb #ebmomsquad #ebsucks #ihateeb #beinspired #theworstdiseaseyouveneverheardof #cureeb

[jaquez2010-blog]

DM me which shirt you'd like to order today and let's join the fight to spread EB awareness!! These shirts were generously designed by the incredibly talented @refuge_mountain company!! @wefighteb @causethewavetohealeb @ebresearch @ebmrf #cureeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #ebmomsquad #ebawareness #markystrong #joinhandsforeb #theworstdiseaseyouveneverheardof #wefighteb #markytherock #ebresearch https://www.instagram.com/p/B2MX2zyHv5f/?igshid=1tv2s59u5ctfy

#cureeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #ebmomsquad #ebawareness #markystrong #joinhandsforeb #theworstdiseaseyouveneverheardof #wefighteb #markytherock #ebresearch

[jaquez2010-blog]

@johnny_inspired @anthony_rumble @sicily234_t_d_s_bullies @mzbullymomma #wefighteb #markytherock #theworstdiseaseyouveneverheardof @wefighteb @causethewavetohealeb @ebmrf @ebresearch #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #ebmomsquad #ebawareness https://www.instagram.com/p/B2J1tXZHbFO/?igshid=10c5fhcd1myxo

#wefighteb #markytherock #theworstdiseaseyouveneverheardof #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #ebmomsquad #ebawareness

[jaquez2010-blog]

If everyone could keep Marky in you're thoughts and prayers.. after an incredible week we came home to him not feeling well and now vomiting ....poor guy a week of fun and now he feels like crap...😢😢😢 #ihateeb #ebsucks #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #joinhandsforeb #ebawareness #markystrong #markytherock #theworstdiseaseyouveneverheardof @wefighteb @causethewavetohealeb @ebmrf @ebresearch # https://www.instagram.com/p/B2JwrErHR_7/?igshid=33ncfsmwupah

#ihateeb #ebsucks #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #joinhandsforeb #ebawareness #markystrong #markytherock #theworstdiseaseyouveneverheardof

[jaquez2010-blog]

Vacation was finished off by an over night in Nashville and sightseeing at the parthenon and Jack Daniels general store and museum..and the cherry on top Dale Jrs tweet:) what an amazing week y'all.....@markthehammer1 @causethewavetohealeb @wefighteb #ebmomsquad @ebresearch @ebmrf @comesayhitoeli #markytherock #theworstdiseaseyouveneverheardof #wefighteb #cureeb #truestorybro #fighteb #markystrong #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #ebawareness #ebawareness #PARTHENON #memoriesareprecious #grateful #livingforJesus #loveGod #lovenothate #beinspired #godislove #johnnyinspired https://www.instagram.com/p/B2GeyIkH-lv/?igshid=dsbu9at7w1nm

#ebmomsquad #markytherock #theworstdiseaseyouveneverheardof #wefighteb #cureeb #truestorybro #fighteb #markystrong #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #ebawareness #parthenon #memoriesareprecious #grateful #livingforjesus #lovegod #lovenothate #beinspired #godislove #johnnyinspired

[jaquez2010-blog]

Let me introduce you to Amazing Shannon Laub..who opened her doors and life to my family sight unseen ..she so graciously went out of her way while she was in the middle of shooting her videos for her cross yoga to make sure Marky had exactly what he wanted for his bday party..she decorated she made sure he had his cheesecake..she sang to him she made sure our family felt as comfortable in her home as if she had known us our whole lives .. thank you Shannon for being not only a part of Markys wish but helping to ensure it happened and making it a thousand times better with your beautiful spirit.... #wefighteb #markytherock #theworstdiseaseyouveneverheardof @wefighteb @causethewavetohealeb @ebmrf #cureeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #memoriesareprecious #grateful #ebawareness #markystrong #joinhandsforeb #crossyoga #beinspired #joy #choosejoy causethewavetohealeb #livingforJesus #loveGod #lovenothate (at Hyatt House Nashville at Vanderbilt) https://www.instagram.com/p/B2EarmxHbdE/?igshid=1dv2upb25ilqw

#wefighteb #markytherock #theworstdiseaseyouveneverheardof #cureeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #memoriesareprecious #grateful #ebawareness #markystrong #joinhandsforeb #crossyoga #joy #choosejoy #livingforjesus #lovegod #lovenothate