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#i will fo everything i can to make insulin affordable for everyone if its the last thing i do
redtailhawk19 · 5 years
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Diabetes rant
Been awhile since I posted but I'm just really sick of having to pay x amount to live. I need to vent or the urge to off myself will win and i'm not going to let the assholes win. So ignore if you want I just want to vent. My bg is five hundred currently so yeah. I'm just kinda pissed.
Diabetics in America, type 1 and type 2 have to make do by buying insulin from other companies, paying out of pocket prices that can range from 200 to 1500 for a month supply. Relying on Diabetic Facebook support groups where other Diabetics donate extra supplies, copay cards that only work half the time, and fiancal assistance programs that you only qualify if you're in the lowest possible income bracket. This is the fault of Pharmacy benefit managers, insurance companies, the top three pharmaceutical companies, Eli Lily, sanofi and novonordisk that own the patents. Then all three blame each other for the high price, blame the pbms and insurance companies who into blame each other as well. Fun fact Eli Lily came out with a generic insulin. Insulin lispro it's basically humalog. Not that they have been advertising it, the bastards. I've been told at my pharmacy an out of pocket price of humalog is $546 for a month's supply of vials, what's is insulin lispro's out of pocket price for a month's supply? $180 per vial. Had anyone had any luck finding out what it cost the companies to make their analog insulin? I've been looking for that data for 8 years still haven't come across a legitimate source. I heard once from a novonordisk drug rep that Eli Lily makes one vat of insulin for $50 dollars. Lol representative was trying to make the other company look bad but they all do it. So you have insurances that pick which insulins get to be on their formulary. BCBS for example favors humalog. So good luck unless you're allergic to humalog they will deny any prior authorization for another fast acting. My BCBS ins doesn't care that fiasp and novolog work better for me. Now I'm using humalog u 200 which is working for now thank God. Let's now get started on Continuous Glucose monitors, dexcom g6, freestyle libre and guardian sensors.
Having a CGM literally saved my life, I have a 'good insurance plan' I have an 800 dollar deducible, 5000 out of pocket. Met my 800. Dollar ded at the first of the year. Wanna know how? I had to drop $1000 to pay for a 3 month supply of dexcom g6. So I met my deductible so now everything is great? Wrong! I still have to pay %20 coins. So if I want 3 month supply I have to pay $367 dollars of my portion. I don't know about most people but I find it difficult to come up with that sort of lump sum of cash. It's September and I'm only 2000 in on my 5000 out of pocket. Why because I don't go to the doctor unless I have no other choice. I have enough trouble just paying for my diabetic supplies let alone the copays, and remaining balance left over at the end of doc visits. Only doc I see regularly is my Endo. Then BCBS had the gall to keep making me use dme (durable medical equipment) companies that charge a hell of a lot more than pharmacy benefits do. Supposedly bcbs is going to let commerical insurance patients use pharmacy benefits in October so if you have BCBS and use a dexcom CGM have your doc or Endo send prescription to community Walgreens who also has a $120 coupon.
Freestyle libre is at least trying to do something, funnily enough because they market their CGM as a meter and for type two diabetes. Out of pocket price is 75 using e vouch for a month supply, sensors last 14 days, 1 hour warm up time, no alarms but they are working on it. You can use a smart phone and save some money by not getting a reader. Guardian don't know much about but I tried one and sensor died on day one. If the senors work then it does have some advantages. transmitter lasts a year and is rechargable, and you can restart sensor fairly easily.
Pumps Omni pod, tandem and Medtronic.
Gotta Omni pod hands down even though I got a tandem tslim x2 pump. Omni pod is tubeless, Omni pod pods can be potentially pharmacy benefits. So go omnipod also because you can hack the classic pump with the open aes algorithm and get a artifical pancreas because #we aren't waiting. FDA approval takes forever!
Good news on dexcom front, G7 supposedly will come out in end of 2020. It will last fifteen days, 1 hour wait time and transmitter is inside senors so you throw whole unit away. Why is it going to be less expensive? They want to market it towards type 2s.
Did you know you can restart dexcom g6 transmitters and senors. Well you can check out YouTube for fellow Diabetics' instructions. It will save you money and stick it to the assholes trying to monetize diabetes.
It sickens me that Sir Fredrick Banting and his cohorts sold the patent for insulin for a dollar each, total sale being $4 dollars to Ontario college. They sold it so it would be affordable and accessible for everyone.
Back in 1942 Eli Lily and two other companies got in trouble for price fixing insulin. What's the difference between then and now? The government actually did its job and stepped into to stop them.
Everyone who price gouges insulin and Cgms and pumps should be ashamed.
I'm sick of being taken advantage of for an autoimmune disease I don't have a choice in. I'm pissed. I want justice.
I want a healthcare system that won't bankrupt me. I want a system that actually focuses on preventive care and not being for profit. Fun fact our healthcare has not always been for profit. You can thank president Nixon for that.
"Nixon signed into law, the Health Maintenance Organization Act of 1973, in which medical insurance agencies, hospitals, clinics and even doctors, could begin functioning as for-profit business entities instead of the service organizations they were intended to be."
Also fun fact that is when the big top three insulin producers starting raising the prices of insulin and they haven't stopped since.
So the solution to fix our healthcare system is pretty damned simple. Go back to having it be non for profit.
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