I’ve finally gotten to try my first insulin pump! So far it’s been really great, although there’s a lot to learn and take into consideration, but I’ve always found it interesting to learn more about my illness and find ways to improve my treatment, so I don’t mind at all. Though I’d share something a little more personal, since it’s something I’ve been looking forward to for over a year now, and, well, I’m pumped to see how this will impact my day to day life! ☺️
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In my lifetime, I've been on a decent number of insulin pumps, starting with Animas, the Medtronic, then Tandem before switching to a new insurance company that didn't cover Tandem supplies. I saw the Omnipod offered a 30 day trial and figured, what the heck, and having lived with multiple systems with a lot of unique quirks, I thought I'd share the quirks of this system too.
Having been a tubed pump only person for the first 14 years of my diabetic life, I was a little hesitant with the Ombipod, and initially, I was blown away. The cannula insertion was easy, the cannula was about as comfortable as you'd expect any cannula to be, and despite being a fairly large piece of tech taped directly to your skin, I didn't feel like it got in the way. I did enjoy not having to worry about tubing getting stuck in things, or finding a pocket to shove the pump into or a waistband to clip it to. For anyone who struggles with these aspects of the pump life, this pump may do pretty awesome things for you.
However, these were really the only positive sentiments i had towards the system, probably because I'd lived so long with tubed systems, they never bothered me like they do some people. Those annoying little quirks though really turned me off to it.
For starters, you cannot control the pod without a phone or the Personal Diabetes Manager (PDM) they send you. If you forget the pdm, or if you wish to escape from your phone for a bit, you will have no control over your blood sugar. I realized this once after going to work and realizing I'd left the pdm at home. I had my phone though, and hoped I could switch control from the pdm to my phone, in the same way that with the dexcom you can get readings and manage the system, but no such luck. Once you start the pod on one device, you are stuck with that one device for the 2 to 3 days you have the pod inserted.
The pods themselves cause a number of problems as well. There is no way to recycle them, as they are medical waste, meaning every 2 to 3 days, you have to trash a small computer. That might not be a big deal to you, and absolutely no shame if it isn't, but for me it felt incredibly wasteful. The comfort I'd experience in my first days didn't let long either. If you've ever dropped a tubed insulin pump and had your infusion site catch it, you'll know these jarring movements can be pretty painful. The pod isn't quite that bad at first, but after a few days with a wrench directly attached to your site, I did find myself hurting pretty badly. Also, if your pod fails for any reason, it will s c r e a m. It'll produce an extremely loud, high pitched, and continuous beep until you can get onto your phone or pdm and deactivate it, and for the life of me, no matter how quickly you can get that to turn off, it still takes too long. Your results will also vary, particularly if you feel less strongly about the cleanliness of your insulin, but once the pod expires, which is a maximum of 3 days plus 8 hours where it beeps hourly, there is no good way to salvage that insulin. Yes, you can draw the insulin back up from the port you put it in, but once that's in your new pod, if it starts to seem infected, you'll lose that insulin and the pod when you remove it.
Compared to the tandem, I did actually really enjoy the site tracking feature. When you insert a new pod, it gives you the option to track where you've placed it in a limited number of spaces, including the back abdomen (typically known as your back, but ok), and directly on your ass cheek. If you can handle the omnipod, or really any infusion site in your ass cheek, you are far, far braver than me. On the other hand, I desperately missed the calculator feature on the tandem that allowed you to add up the cards you were eating.
As for the app, it does its job, but still has these quirks that drove me a bit nuts. You can't turn off the security feature. Whether you use your phone or the pdm, you'll always have to enter a pin to be able to do anything. This could definitely be a problem if you have neuropathy or other dexterity issues, and even as someone without these issues, I still got pretty annoyed with it. This also presents a problem when you're trying to get the screaming to stop. I didn't love that in my furious effort to get this overwhelming noise to stop, I was impeded by a fucking pin. It also made the lack of calculator kind of annoying, because if you needed to use your calculator to total your carb count, you had to exit out of the app, do your calculations, and then throw in your pin all while not forgetting the number you just came up with.
I also struggled a bit with picking sites with this pump. My abdomen is relatively unusable as a pump site after nearly 2 decades of pump therapy, so I usually use it for a cgm site and then will place my infusion site elsewhere. However, because the omnipod doesn't have an intermediary between it and the cgm, it has to stay "within line of site" of the cgm. So, if the pod is on the back of your arm, your cgm can be on your flank, or on your leg, but not on your abdomen because they're on opposite sides of your body, and even though I got it to work on the opposite arm, even that isn't recommended. So, wherever your cgm is for 10 days, all your sites have to revolve around that one spot through multiple changes. The small upside though is that, even though you can't bolus without a pdm or phone, the pod can still read your cgm and increase or decrease your basal rate based on your blood sugar. However, these treatments for high blood sugar in particular are painfully slow because as compared to other systems, the omnipod can change your basal rates but it can't offer you even small boluses, unlike tandem or medtronic.
That said, everyone with diabetes is different, and I know this system has been a godsend for a lot of people, just not me. While I can't say I'd recommend it broadly, I've definitely met some people who I think would have loved this system. Regardless, I hope this helps, and may the A1C or Time in Range, depending on which one your doctor still uses, smile upon you.
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I know there's an adjustment period / tweaking the rates and whatnot but why is my blood sugar constantly high with my pump?
Yesterday, it was at about 11 for 6 hours and I felt awful. It crescendoed around 12-13 in a staff meeting and it was incredibly difficult to pay attention
I basically got too frustrated and doubled what I knew the carb count to be for dinner just to lower the height of the rise and descent.
here's hoping it works out because I really do like the benefits of my Tandem vs. MDI. Stuff like time investment in general is lower, and I'm not constantly having to treat myself like a pin cushion
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