#i have intense opinions on the usage of propranolol

[salt-baby]

POTS Medication Vocabulary

after about the third time a doctor prescribed a medication that made my POTS drastically worse, and about three doctors visits past giving up on being an easy patient, i started asking my doctors the following questions whenever they prescribed a new long term medication:

is this medication a hypotensive? (will this medication lower my blood pressure?)

does this medication have a risk of tachycardia? (can this medication raise my heart rate?)

is this medication a diuretic? (will this medication dehydrate me?)

can this medication cause hyponatremia? (will this medication cause my body to lose salt?)

your doctor likely doesn’t know all of this off the top of their head for every medication, but they should know the most common adverse reactions. some may simply tell you they have no clue. i still think it’s worth asking to force them to consider these mechanisms.

for additional consideration:

your pharmacist likely knows the answers to these questions better than your doctor does. 

an additional list of types of drugs which should be avoided is available here, in the table on the fourth page. (note that propranolol, a beta blocker, is often prescribed for POTS but is discouraged by this paper. as someone whose taken it, it’s worth trying to see if it will improve symptoms, but didn’t for me. Additionally, these are just guidelines, and in those with, for example, both hEDS and POTS, the benefits of opiates for pain relief may be worth the risk of worsening POTS.)

regardless of what the doctor says, I always look up the FDA info sheet before taking a medication. these can be found pretty easily on google (your med + “fda pdf”), and list most of the adverse effects. I’m happy to make a post about reading these info sheets.

there’s a reason prescribing medication is left to those with years of medical training - it’s a complicated and difficult process. but oftentimes those who do this work are so overworked and burnt out, they don’t have the ability to read someone’s entire medical file, or be aware of an adverse event that only affects those with an uncommon condition. I find asking these questions forces my doctors to think about my chronic conditions, and after so many adverse events, I always check a medication for myself before taking it. 

remember that you can and should refuse to take a medication that is making your life worse or harming you. even pediatric patients have the right to refuse a medication, and often times, I’ve found nothing other than a very firm “no, I refuse” will get a doctor to consider other options. and even though its against the norm, remember that you have the right to ask your doctor why they’ve chosen that medication for you.

as always, feel free to ask questions, they make my day!

#i have intense opinions on the usage of propranolol #also your doctor will not like being asked these questions #i did this to one once and their eyes got as big as dinner plates #then they ran out of the room presumably to google things or ask their supervisor #that medication did work for me tho #i also dont usually ask for short term medications or extremely common ones #ie like antibiotics #salt baby talks #pots #Postural Orthostatic Tachycardia Syndrome #dysautonomia #ableism #disability