pixierainbows - Tumblr blog

pixierainbows · 11 hours

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Today's clouds … <3

#original photography #seattle #washington #clouds

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pixierainbows · 18 hours

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#original photography #seattle #washington #clouds

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pixierainbows · 20 hours

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#original photography #flowers

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pixierainbows · 3 days

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Survey About Support Needs Labels

Hi all! I have autism with level 2 social-communication difficulties and level 3 restricted repetitive behaviors. I mostly post in Reddit MSN/HSN autism communities, but I was recently made aware of this community.

I like surveys a lot, and the Reddit communities that I'm in have recently had several surveys that touched on support needs labels. It got me thinking about what people mean when they say they have "low support needs" or "moderate support needs." For example, what kind of daily life support needs do people have? How is it affected by their autism symptoms? What about their overall support needs, taking into account co-occurring health conditions?

I created a survey to see what other people think! I'll share the results when I have them. I'm curious if Tumblr and Reddit autism communities tend to agree on support needs labels or if the different communities have different ideas of what the labels mean. I'm also really curious if people who are undiagnosed, those with level 1 diagnoses, and those with level 2 or 3 diagnoses (or those from countries that don't use the level system but have LSN compared to MSN/HSN) all respond differently. I'd really appreciate if people could take the survey and especially if you could also show it to people that you know!

If you already took the survey on Reddit, you don't need to retake it here (it's a different link but the same questions), but I'd still appreciate you reblogging it!

Thank you!

#actually autistic #autistic #autism #survey

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pixierainbows · 4 days

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@the-flowing-river :) :) :) ��️

🧚‍♂️+🧙‍♂️ 📝 “ I want ice cream please “ ➡️ ♿️👩‍💻 !

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pixierainbows · 5 days

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#original photography #seattle #washington #orange moon #full moon #moon

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pixierainbows · 5 days

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“one example of something that is itself a disability is autism. Autism is a spesific set of things, and in order to be diagnosed with autism, each one has to negatively affect your own life. “

I don't understand why some people don't think that some things should be disabilities. I think maybe it comes from a lack of understanding of what it means to be disabled. What it results in, ultimately, is the silencing and erasure of what so many disabled people have fought for.

Disability (at least where I am) is when you are unable to preform ADLs this can be a complete inability to preform one even with accommodation, or, difficulties with several, which results in an inability to preform ADLs or it taking 3 times as much effort and/or time to preform them then the standard.

If you don't exprience that then I am confused as to why you are diagnosed with a disorder/condition/syndrome that is in itself a disability (not every disorder/condition/syndrome is itself a disabilty but can result in disability) one example of something that is itself a disability is autism. Autism is a spesific set of things, and in order to be diagnosed with autism, each one has to negatively affect your own life. Not the lives of others around you. If you are not negatively impacted then you don't have autism? Like why is that label being applied to yourself if you claim that it doesn't? If autism doesn't negatively impact you then it isn't autism. You can have the same behaviors and traits as those with autism but just having them doesn't mean you have autism.

There is a difference between a autistic(?) person saying that it isn't a disability, and the deaf community not viewing being deaf as a disability.

Deaf/hh people can't hear. They may have other things going on that cause them disability related to their deafness but being deaf is not (unlike autism) inherently a disability. That is because being unable to hear does not negatively affect the person who can not hear. It may be hard on those around them, but how others are affected is not what makes something a disability. (I'm not (D)eaf or HH so correct me if I said anything wrong)

Autism isn't just a set of behaviors, it's a description of how those behaviors cause the person difficulties.

I think some of this comes from a place of not interacting with higher support needs individuals, as well as the labeling of normal behaviors as meaning someone has autism.

Autism is not the only condition people do this with, but it's one that more people are likely to see it happening with. It happens with a lot of different disabilities, even physical disabilities.

I would ask those who think this way to reflect on why they want to distance themselves from other disabled people and talk over those who are more affected by their condition. You are shutting us down and erasing the recognition that so many of us have fought so hard for.

#disability #actually disabled #disabled #disabilties #actually autistic #actually nonverbal #nonverbal #severe autism

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pixierainbows · 5 days

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