mybodychoseviolence

[mybodychoseviolence]

this is once again relevant because i am keeping my room at a crisp temperature so i can sleep better but unfortunately the cold makes my joints cry. so.

“surely this will not cause my chronic illness to flare up,” i say, actively doing something that has never failed to flare my chronic illness

[mybodychoseviolence]

standing…..for two hours…….with a condition that means my blood Does Not Do Its Job……..i am not a fan

#chronic illness #chronically ill #chronic fatigue #chronic pain #disabled #disability #pots syndrome #potsie #pots #joint pain #migraine

[mybodychoseviolence]

“surely this will not cause my chronic illness to flare up,” i say, actively doing something that has never failed to flare my chronic illness

#chronic illness #chronically ill #chronic fatigue #chronic pain #disabled #disability #pots syndrome #potsie #pots #joint pain #migraine

[mybodychoseviolence]

me when the chronic pain pains me: body... evil? body... unfaithful?? body... hates me? body evil!! body betrays!!! jail!! jail to body for a thousand years!!!

[mybodychoseviolence]

next time i see someone push in front of a person in a wheelchair to get on the elevator first i am destroying their kneecaps with my cane

#this is a legitimate problem on my campus #when it happens to me it’s annoying af but at least i can take the stairs #it’s absolutely miserable but i can do it #when i see it happen to my disabled friends though?? #i cannot be held accountable for my actions in that situation #chronic illness #chronically ill #chronic pain #chronic fatigue #disabled #disability #pots syndrome #potsie #pots #joint pain #migraine

[mybodychoseviolence]

i really need that dysautonomia specialist to call me back. like. sir please i feel terrible all the time

#chronic illness #chronically ill #chronic pain #chronic fatigue #disabled #disability #pots syndrome #potsie #pots #joint pain #migraine

[mybodychoseviolence]

how does one cope with severe fatigue when going to school full time and working part time. just. conceptually how can that be done

#chronic illness #chronically ill #chronic fatigue #chronic pain #disabled #disability #pots syndrome #potsie #pots

[mybodychoseviolence]

Tumblr: "congratulations for 5 notes!"

The post: "my body hurts and i am suffering"

#every post i make #like. are any of us okay #does anyone’s body work right or…?

[mybodychoseviolence]

using mobility aids is an act of self love, it's something to be proud of. how could you be ashamed when you take care of your health and listen to your body? no shame! we're all here doing good because we don't neglect ourselves

[mybodychoseviolence]

ow my shoulder is throbbing what the fuckkk

#chronic illness #chronically ill #chronic pain #chronic fatigue #disabled #disability #pots syndrome #potsie #pots #joint pain #migraine

[mybodychoseviolence]

pots moment: using your freezing cold feet/hands to cool down the rest of your body and also ease your migraine

#and also i have a latin exam today. so. #chronic illness #chronically ill #chronic pain #chronic fatigue #disabled #disability #pots syndrome #potsie #pots #joint pain #migraine

[mybodychoseviolence]

i’m chronically ill and i haven’t been to a concert since my symptoms started getting worse, but i have tickets to see one of my favorite bands this summer and i really want to enjoy it without having to spend like a week in bed afterward. does anyone have tips for concerts with pots, especially when it’ll probably be hot outside? the venue doesn’t allow bags but i have pockets 👍

#chronic illness #chronically ill #chronic fatigue #chronic pain #disabled #disability #pots syndrome #potsie #pots #joint pain #migraine

[mybodychoseviolence]

hi god this body is fucked and i would like to exchange it for a new one. no i don’t have the receipt can’t you just look me up in your system. i want to speak to your manager

#chronic illness #chronically ill #chronic pain #chronic fatigue #disabled #disability #pots syndrome #potsie #pots #joint pain #migraine

[mybodychoseviolence]

i am in so much random and nonspecific pain

#chronic illness #chronically ill #chronic pain #chronic fatigue #disabled #disability #pots syndrome #potsie #pots #joint pain #migraine

[mybodychoseviolence]

When other people say they’re dizzy, they mean ‘phew! My equilibrium is a bit off! In a just a few moments I’ll be fine!’

When I say I’m dizzy, I mean something very different.

I mean that I can see black spots in my vision, and I can’t tell if this is going to be the time I pass out.

It means that the world is swimming underneath my feet, stretching and distorting like an obstacle course even when it’s just a straight, flat path.

It means there’s so much pressure in my head and not nearly enough.

It means that I can feel my heart speed up and beat harder, trying to adjust to the new gravity, just because I’ve shifted slightly.

It means I can feel the nausea rising in my stomach and the bile come up my throat.

It means that walking is a challenge. Getting a snack is a challenge, going to the bathroom is a challenge. Sitting up is a challenge.

So, when I say I’m dizzy, I’m trying to dumb it down so that you can understand a fraction of what I’m feeling. Not that I’m not feeling it. On good days, it’s a hindrance. On bad days it stops me doing anything. Stop telling me that ‘just being dizzy’ doesn’t make me ‘that disabled’. You barely know the half of it.

[mybodychoseviolence]

the only fun part about living alone with chronic pain is that no one can stop you from cursing loudly the entire time you are getting out of bed

#chronic pain #chronic illness #chronically ill #chronic fatigue #disabled #disability #pots syndrome #potsie #pots #joint pain

[mybodychoseviolence]

ouch

#this post brought to you by joint pain #chronic pain #chronic illness #chronically ill #chronic fatigue #disabled #disability #pots syndrome #potsie #pots #joint pain