#not to mention me still giving him the benefit of the doubt for using 'asperger' which is literally a nazi naming asd symptoms after himself

[loosenedidylls]

Blessings, Curses, Autism

My earliest memories are of waiting rooms with musty carpets and buckets of donated, broken toys. I guess it was worse for my parents, who had nothing to stare at but walls and trashy lifestyle magazines. Eventually, the professionals decided I had a condition called Asperger’s Syndrome, and there was one thing they wanted me to understand:

“It’s a blessing, not a curse.”

If someone asked me to list blessings off the top of my head, I’d mention 20/20 vision, pitch-perfect hearing, or George Foreman’s chin — not a neurological disorder that transforms the most natural stages of personal development into a confusing struggle. In hindsight, I would have preferred more concrete advice than ‘it’s a blessing, not a curse.’ Something like:

“Watch out for the train!”

…But the quippy slogan is what stuck. My parents dispensed it like a cheap plaster, and I still don’t know whose benefit it was for — mine, or theirs. What I do know, is that I never once believed them: I felt I was being brushed aside, or told to accept something blatantly untrue. Besides, children don’t care to question whether they’re blessed or cursed, so it was an answer to a question that hadn’t been asked. Existentialism is for adults trying to make the best of a bad situation.

Being an Autistic Child.

Autism is not a superpower. Thanks to certain pieces of popular media, you might think of autistic people as quirky-yet-brilliant detectives, awkward-yet-sexy hackers (always female), or nonverbal children with a deep, instinctive connection to whatever animal or alien the protagonists are trying to communicate with. Often, people with severe autism are plot devices in the same vein as a forbidden orb or set of nuclear launch codes. Instead of damsels waiting for Bruce Willis to save them, they’re objects waiting for Bruce Willis to understand them.

A lot of autistic people are brilliant academically, though not for the reasons you might think. A common feature of autism is hyper-fixating on ‘special interests’, obsessing over a subject until one has learned everything about it, before moving on to the next. Very few people become maths geniuses this way; more often they become diehard Sonic fans or start giving lots of money to Games Workshop. Here are a few of the phases I went through:

-          Thomas the Tank Engine.

-          Pokémon.

-          Old English monster myths.

-          Naruto.

-          Peter Jackson’s King Kong (both the movie and the video game).

-          Bleach (the anime, thankfully, not the cleaning product).

Fairly normal interests for a young person, right? Now remember the hyper-fixation part. People with Asperger’s tend to focus on certain interests at the expense of others, and those ‘rejected interests’ are usually vital for social development. Now remember that high school is a psychopathic hellscape crawling with cruel little monsters ready to vent their newfound territorial instincts on anyone who doesn’t fit in. The kid who wants to discuss the depiction of brontosauruses in a sort-of-okay remake of a 1933 movie isn’t doing himself any favours — constant bullying drives him even deeper into reclusive interests and solitary hobbies, and from there, it’s the luck of the draw whether those hobbies resonate with any of the kids around him.

I’ve always known a lot about things no one knows about, and nothing about things everyone knows about. This, along with the fact that a lack of social life makes it easy to focus on one’s studies, creates the illusion that some autistic kids are eccentric geniuses-in-the-making. Parents — especially the parents of autistic children — are quick to latch onto any display of intelligence. They watch intently for any sign their long struggle is paying off, and when it happens, they praise their child endlessly, reinforcing behaviour patterns both good and bad. Because adults told me I was intelligent, I told other children I was intelligent, and you can imagine how well that went.

This misapprehension — confusing a bunch of random trivia for genius — followed me into high school, hurting me all the while, which is ironic, because it was the only positive way I could think about myself.

I’m lucky to have found books and writing as lifelong passions, but that almost didn’t happen; in fact, I used to despise any writing task the teacher set for me, to the point of outright refusing to do the work. In my defence, I was trying very hard to be somewhere else at the time — mentally, that is. The idea of putting my feelings on paper, for all to see? I couldn’t conceive of anything more terrifying.

Harry Potter changed things. I was gifted The Deathly Hallows when it was first published, and even though I had no idea what was going on in the story (I hadn’t even seen The Order of the Phoenix yet), I thought it was wonderful — maybe because I was getting a sneak peek into a future movie. Since then, I’ve always had a book close at hand, and it wasn’t long before I started writing my own novels (more on those another time).

 Voracious reading was, technically, another un-social activity that would consume my waking hours, but at least it was productive. My grades improved dramatically. I got good at writing essays. I became better at expressing myself, and I started to consider other people’s points of view. I made friends, lifelong bonds. I wouldn’t say I was happy at that stage of life — bullies tend to push back against things like improved mental health — but at least I was growing.

Looking back, I can’t help but wonder how close I came to disaster. I was 13 or so. If I’d left it any later, I doubt the outcome would have been so peachy. There are plenty of autistic adults with no friends, no employable skills, no human contact but ageing parents and rare, fleeting therapy sessions. Many of these people are quirky and brilliant, but there’s no happy ending for them.

Being an Autistic Adult.

Autism never goes away. It never gets ‘better’. It isn’t curable because it’s not a disease, despite what the vaccine deniers might tell you; autism is an intrinsic part of my neurological makeup, and living with it is a process of compromises.

I had to accept, early on, that I’m not the same sort of human being as the people around me. My brain is a different brand of brain: it makes different connections, processes different bits of data at different speeds. Things that seem obvious to you, need to be explained to me. I struggle to read a room, and I’m never quite sure if the person I’m talking to would really rather I shut up.

Put simply, my childhood experiences made me keenly aware of myself as an outsider. I need to watch for people’s reactions to anything I say or do, all the while navigating a maze of social cues and left-unsaids — but sooner or later, I’m always going to slip up. When you are differently-brained, it’s easy to misinterpret instructions, or to misjudge which thread of discussion is most important; and when you’re processing so much data at any one time, small-yet-vital points are going to slip under the radar. The result is being told off, being laughed at (‘laughing with you, not at you’ is another fun slogan I’ve learned to endure), and generally feeling stupid or useless for overlooking one point of data among hundreds.

 As I grew into an adult, I got better at performing normal. Nowadays, only those who spend a lot of time around me can spot the signs of my condition: I seem confident, funny, sympathetic, and I make friends easily. As I write this, I can’t help but feel uneasy: it makes me wonder, and not for the first time, how much of my personality is genuine. In high-stress situations, the generic piece of advice is ‘relax and be yourself.’ Succeeding in life as an autistic person means learning not to be yourself, or at least creating a version of yourself that can exist in public — so, where does the real me end, and the performance begin? Are they one and the same? I’ll never know the answer to that question.

Being an autistic adult, then, means pretending I’m not autistic for the benefit of other people. It’s a lifelong, often exhausting performance, and the temptation to retreat into my shell is ever present. But, just like anyone else, I long for human contact, so the compromise is a necessary one.

Blessings & Curses: Redux.

Terry Pratchett wrote that humans need to learn to believe the little lies so they can believe in big ones. There’s something I wish I knew during the bad years; that I was far from the only person suffering from my condition. My parents were stumbling in the dark just like me, except they had to pretend everything was under control.

My dad confided in me, recently, how he used to cry — a lot — during those days when I would return from school after another worst day of my life, talking about footballs thrown at my head, being cornered and verbally abused, or being removed from class after another tantrum. These were practically daily occurrences, and they’ve left their lifelong marks on me, but I’ve never lacked for brilliant people willing to help, people who were alongside me in my suffering. Raising a child is hard, and raising a neurodivergent child is even harder. Can I blame my parents for wanting to believe in blessings, and not curses?

Most of the time, those bad years seem like a distant memory. I don’t see autism as my blessing or my curse; it’s just a part of me — a frustrating, limiting, often embarrassing part of me, but one just as vital as my eye colour or ethnicity. I’ve come to accept it and be content despite it, and I suppose that’s the best outcome I could hope for.

#autism #neurodivergent #mentalwellness