autisticincontinence

[autisticincontinence]

Incontinence isn't gross. It's still just peeing and pooping. We all do it. And it's not more gross and unsanitary just because a disabled person needs to use different tools and strategies than most people

[autisticincontinence]

Shout out to autistics who:

Don't know much about their special interests

Likes food commonly disliked by other autistics

Dislikes food commonly liked by other autistics

Enjoy social settings

Use sign language as their primary form of communication

Use diapers or have troubles with toileting

Like childish things or age regress

Are unable to work

Are unable to figure out their gender

[autisticincontinence]

tw unsanitary : i think youve posted about it before but is there a connection between autism and incontinence?

for lots of people there is! autism can lead to struggles with interoception, or being able to understand your own body's messages. this can mean things like not realizing when you're hungry or tired or in pain or full. so a person who struggles with interoception won't necessarily know when they have to use the bathroom. also for some of us, the steps of the process of like. walk to the bathroom. open the door. pull down pants. sit down on toilet. is hard to memorize or can't be done independently.

in my case, my incontinence is directly caused by a physical health issue, but incontinence and difficulties with toileting generally aren't uncommon in autistic people.

[autisticincontinence]

Has the incontinence anon noticed the circumstances under which it happens? As it could be stress incontinence, which AFAIK is not related to autism specifically.

—————————–@ the person who is having toilet issues, since I was around 8-12 that was an extremely common thing for me. My mother took me to see a doctor many times for tests but we found out it was a sensory thing and it should hopefully ‘pass’ as I got older or too try and find distractions like humming a catchy tune etc. (note: I am professionally diagnosed)

———————-

To the person asking about bladder incontinence, I have had problems with that, and have a diagnosis of autism, but for me it’s that I’m supersensitive to feeling I need to urinate, because it’s too uncomfortable. I may also have IBS though.———————–

I have a similar thing to the anon talking about bladder incontinence. I always make it to the toilet now but I never realize I have to go until I’m like “oh, fuck, I have to pee like right this second” and run to the bathroom. I think it’s a hyposensitivity thing like you said

[autisticincontinence]

I've been diagnosed with Autistic Spectrum Disorder. I've had a bit of an incontinence problem my entire life, which my mother often mocks me for. It leaves me feeling pretty down, tbh. Is there anything you could suggest to help?

Your mother is bullying you by mocking you. Please try not to let her words affect you. Whilst I have never had this problem I do know that lots of people with autism can struggle with toilet training as children, and might be in nappies later than other children, and that problems with using the toilet might continue into adulthood. Some people with autism don’t recognise the sensation of a full bladder/bowels, or might find using the bathroom difficult for sensory reasons. Her attitude might actually exacerbate the issue by increasing any anxiety you might experience.If you are able to explain to her why you have this problem, or show her that other autistic people do too, perhaps she will be more understanding. Also make sure she knows that when she mocks you it gets you down, and if you feel that she may actually be making the problem worse, or making it harder for you to deal with it, make sure she’s aware that she’s being counterproductive. If there are any ways you feel she might actually be helpful (reminding you to use the toilet at set times, or changing the bathroom/toilet to be more sensory-friendly), also make her aware of those things.If there is any possibility that the problem is physical then it might be worth having that checked out, just to make sure, as I know there are surgical options and also exercises that you can do to help.Here are some other ideas (obviously I’m not sure whether you’ve already tried some of these things/use some of these things, or whether they will actually be relevant to your situation):- Adult incontinence pads (to wear permanently or just in situations where you are likely to struggle to hold it/recognise that you need the toilet/find a toilet/use a toilet).- Similarly you might also be able to try pads for people who are menstruating if an incontinence pad is not always (or ever) necessary, and that might help protect your clothing or offer you some peace of mind (if the problem is more of a ‘dribble’ than a complete voiding…- Try to get into a toilet routine. If you struggle to recognise that you need the bathroom, it might be better to have set times to go to the bathroom. You might not always need to go at that time, but having those reminders might mean that you do have more chance of going in the toilet and not having accidents. You could set alarms on a phone, or use a timetable.- If you have sensory issues, try to make the bathroom a less stressful place to be (you can buy softer toilet seat covers, have stim toys in there, you could also think about mats for the floor or some kind of footstool to help you maintain a more comfortable position, have/take some kind of lightin there with you if the ceiling light is too bright and you need to leave it off (or if you can’t stand the sound of the extractor fan), headphones and possibly even music to listen to if the noises (such as a fan) or the quiet is difficult for you to stand,  sunglasses if it’s too bright in there, put up a poster/s somewhere you can see them, or have books in there to look at).- If you forget the steps of using the toilet, have timetables that remind you of those steps.- When using the toilet, also try to practise holding it in. This might help you to recognise certain sensations, or your body to recognise the sensations.Do our followers have any suggestions?

[autisticincontinence]

Incontinence anon again. My mother used to punish me when I made a mess in my underwear, sometimes severely. It's as if she thought fear of punishment might make me stop. She once banned me from playing video games for a year and would constantly check up on me to make sure I wasn't playing them. She also tried "toileting at set times", but that just resulted in me sitting on the toilet for what felt like hours because she'd refuse to let me get off until I'd done something. It didn't work.

The difference is that if it’s self-directed you can make adjustments and decide what works for you, which removes the anxiety attached to it and also gives you the opportunity to try different things and make alterations.You can choose to sit on the toilet for as long as you want to sit there, and you can have distractions to make waiting less distressing, or you can choose to sit for very short periods (but regularly check back, ‘just in case’).However, if nothing works, it might just mean that you need to exclusively use incontinence pads. There is some stigma surrounding incontinence and it’s treated like a shameful/embarrassing problem, but it’s also quite a common problem among various groups of people. It’s just taboo so is rarely spoken about and I would imagine that lots of people who have that problem hide it as best they can. I recall reading about one person (I’m sorry but I think they may have mentioned it in a post or on a forum and so I cannot locate the post) who said that they preferred to wear incontinence pads because they liked how it felt to wear them and because it made them feel safer knowing that they didn’t have to rely on their body sending the signal that they needed to use the toilet, or on their brain processing this information and prompting them to act accordingly. The way it was worded was as if they didn’t really need to wear them, at least not all the time, but it was preferable and so they chose to.In that case, if the problem is mostly your mothers attitude, as mentioned you could try to communicate to her that it’s not something you can help and that it’s a common problem. If her attitude cannot be swayed, it might be worth trying to avoid mentioning the issue to her at all (if that’s possible, depending on how much you rely on her for care purposes and whether you are able to access products for incontinence without her input), or considering whether you might be able to access support (a social worker who might help you access incontinence products/support so that your mother doesn’t have to be aware of it and has no reason to mock you), or even some kind of alternative arrangements (whether that’s living with someone else, finding some kind of supported housing, or getting support to move into independent accommodation). This might be something that’s quite difficult to obtain and so would probably be easier if you have/can get a social worker/advocate of some kind to help you with this kind of stuff. 

[autisticincontinence]

Price of medication is more than wearing protection.

Mybetriq = $437 a month

Vessicare = $378 a month

Tovias = $369 a month

Botox injections = $617 a dose

NorthShore Suppreme = $127 for 45, 3 diapers a day would need 90 diapers which would be $254.

#incontinence #medication #price #affordable #inclusive healthcare #diapers #normalizeincontinence #endthediaperstigma

[autisticincontinence]

Wearing Incontinence-Underwear can give you an unique sense of comfort, confidence and freedom. It also ensures safety from leakage and moisture. Incontinence products are designed using the most innovative technology that makes them harmless and comfortable to wear for long hours.

Using adult diapers is extremely convenient and cost-effective option. It helps you stay relaxed and feel sense of security both emotionally and physically.

Yet there are many people out there who find it quiet difficult to overcome their dilemma or all misconceptions about wearing adult diapers.

[autisticincontinence]

"Knowledge is like underwear. It is useful to have it, but not necessary to show it off." - Bill Murray, American actor

#incontinence #normalizeincontinence #underwear #knowledge #quote

[autisticincontinence]

A common experience I've found for people is struggling to afford incontinence products!

If you don't have Medicaid/insurance covering your supplies, help is still out there!

Check out Aeroflow Direct! They also accept Finance with Monthly Payments. *Located in the United States

Also sign and share the petition!

#incontinence #incontinence autism #autism #incontinent #autistic advocacy #endthediaperstigma #normalizeincontinence #autisticdiaperedandproud #not sponsored #Aeroflow Health

[autisticincontinence]

I can relate with a lot of stuff here. When I was toilet trained (Even up to age 8.) and had to fart, I didn't know if it was a shart or not and often ended up choosing wrong due to not knowing what was normal or not, so I just stopped farting. It also was made worse by me ignoring my bathroom needs while distracted by something else.

I actually was wanting to wear diapers at that time and even later and didn't know why, just that I thought they were more comfortable than underwear and offered protection and peace of mind, I guess. Even though it didn't seem like I felt shame when I had a messy accident in my underwear and I just went back to what I was doing.

It was only when I came across the joke/phrase/proverb, "If you have to force it, then it's probably shit.", much later in life that I actually somewhat understand what was going on with my body.

I've noticed since I transitioned into wearing pull-ups, I feel more confident accepting the urge for gas, and needing to poop if it can't wait. I still care about being responsible and cleaning up after myself. Acceptance is my way of choosing kindness and my own feelings for myself. I would feel ashamed for going in my regular underwear too. Thank you for sharing your message!

Holding in gas is bad, and I'm still learning to accept accidents and when it's better to let it slip out.

Speaking from my own experience, it can cause more pain and cramping, the more you try to hold it back, it can feel harder to walk. I also learned that's why I get heartburn, belching, and acid reflux.

Holding in gas can lead to a bowel accident! 💩

Don't wait!

#inbox #incontinence #bowel problems #gas

[autisticincontinence]

thx for making this blog it's really helped me :]

Happy to help!

#inbox

[autisticincontinence]

I guarantee you there is one manifestation of disability that almost everyone on this planet has actively laughed at and made fun of. yes, even you

can you guess what it is?

it's something there are constant gags about in media, something people mention in passing as a joke

something that if it presented itself in a public space i guarantee in most situations would be openly and loudly mocked (and if not humour, most people would at least express disgust)

don't believe me, do you?

✨ incontinence ✨

yep, it's incontinence. (get your giggles out now folks)

I am partially incontinent due to a fun cocktail of mental and physical disabilities and i know for a fact this is where people will stop reading, have a little laugh, and move on thinking this isn't worth the read anymore

but please, if you want to be a true disability ally, stick around and listen.

5% of the world population is estimated to be incontinent to some degree. 1 in 20 people (and no, that is not just elderly people)

so yea when you're in the grocery store, or at the gay bar, or seeing your college theatre's rendition of Grease - chances are there's a good handful of people in the crowd who struggle with incontinence.

it might be just someone who has minimal stress incontinence - something very common in people who have been pregnant - or someone who has adhd and forgets to go to the bathroom, missing the cues from their body that they are desperate, or yea it could be the 85 yr old grandma who wears diapers.

the point is, all of these people deserve respect for their bodies. everyone does. and this includes bodies that malfunction sometimes.

'omg thats so funny im gonna pee myself' 'reddit boys can go piss in ur little baby diapers' - great comeback bestie, but can we move on from them now? im gonna be honest these don't offend me personally, but it's worth being aware of where the humour of these comments comes from. its rooted in ableism

but something that does offend me and something that genuinely triggers me to have panic attacks and can push me into an anxious depressive state for days at a time, is when a character wetting themself is used as the butt of a joke on screen.

i'm thinking season one of stranger things. yeah, most of us know the scene right? when eleven forces a bully to pee his pants in front of the whole school? yep, triggers my ptsd right good that one does. and my siblings ptsd. and im sure many many many more ppl with incontinence (or even ppl without it who had the unfortunate experience of an accident in school)

if you found it funny, i dont care at this point. keep doing you. i dont blame you, okay? but i just want to ask that you reconsider WHY you laughed. 'because he pissed himself' okay but WHY is that funny? 'older kids and adults arent supposed to piss themselves' yea well it happens sometimes to most people at least once, and to 1 in 20 people much more often than that. so WHY is that funny?

keep asking why why why... and if in the end you can't think of WHY, then maybe there isnt a reason for you to laugh at it except that you've been taught to by osmosis. because everyone else laughs

dont give up here, because this is where i want you to really think. is it worth it?

is it worth laughing at something just because everyone else is, and risk 5% of the population going into a self conscious spiral, a panic attack because of your mocking, making them think they will never be accepted?

obviously u making a "im gonna piss myself" comment while laughing does not put 1 in 20 ppl into a panic attack, but u get where im coming from now i hope

so if you're still reading, im guessing you want to reconsider some of your behaviours and comments about this subject. thank you! now that you've realised where these jokes are rooted, you're going to start noticing a lot more often just how much this disability is mocked in society.

but what else can you do to help?

consider sticking up for us because understandably incontinent people dont tend to stick up for themselves lest it out us as incontinent. because admitting that is still met with laughter and disgust. help us jumpstart the incontinence acceptance by speaking up for the silent minority whenever an incontinence joke comes up in class/family gatherings/general conversation (this is my opinion, any other incontinent folks are v welcome to challenge this if u would rather ppl didnt for whatever reason!)

another thing you can do is - you won't like this - dont call ppl disgusting for buying adult diapers with silly animal characters on. unpopular opinion here on tumblr dot com, i know

but listen: incontinence products are disability aids! pullups, incontinence pads/pants, adult diapers, these are all disability aids. not products of k!nk, not things to snigger at in the pharmacy.

and would you complain about someone putting hello kitty stickers on their walking cane? would you think it gross for someone to doodle little stars and affirmations on their wheelchair armrest? is it wrong if someone wants pink hearing aids instead of a nude coloured ones? no?

then don't laugh if someone wants lil hearts on their pullups, and don't fake gag if you happen to see purple patterned adult diapers on ur dash. sometimes humans just like to decorate their bodies and extensions of their bodies. this is just that. and lets be real, plain white nappies just aren't the vibe sometimes

~ while we're at it, ppl with stoma bags are beautiful and deserve to wear whatever they want to feel comfortable and handsome as hell 😘 ~

and let me address the elephant in the room. yeah, some people have a f3tish for this stuff (just like anything can be made into a f3tish). whatever. if ur against that stuff then idc pls dont talk abt it in the tags and comments. anyway it is NOT an excuse to find actual disabled ppl disgusting for needing these aids.

and heres the funny thing: you usually can't tell if someone uses diapers for a f3tish or for their disability, or possibly both!

so you're gonna have to not attack random ppl on the internet bc you don't know what their life is like (what a shocking new hot take)

if a 46 yr old balding man with a beer belly and chest hair who isn't visibly disabled mentions he uses diapers, don't assume he's a creep and its a k!nk. it might be, sure, but it might be a condition or disability that you have no right to comment on or judge him for.

so if youre squicked by it just block and move on, don't send anon hate, dont make a post about how these types of people make you sick. you might just lose a valued mutual who was secretly incontinent and thinks you hate them for it now (whether this is right or wrong, its often how these things come across)

(btw if anyone fuckin talks abt k!nk on this post im going to scream directly in ur ear :) make ur own posts and don't bring any f3tish discussion onto mine)

had to get that out of the way unfortunately because this is a condition that is so unfortunately overrepresented by the f3tish side. i wouldnt have to talk abt k!nk on many other posts about disabilty aids but this one unfortunately was necessary

it's exhausting

imagine having a disability that requires aids thats almost EVERYONE winces at, laughs at, mocks loudly. and then to come on tumblr, the place that is meant to be full of acceptance from strangers in similar circumstances, queer and disabled and poc - but the moment your aid is brought up in discussion its seen as something disgusting and the property of freaks and creeps and people who are evil and want to do children harm

it's exhausting, like i said

i dont have much else to add honestly, im shit at writing cohesive posts (especially when im physically shaking with anxiety bc woohoo announcing to possibly thousands of ppl that im incontinent) but if anything i just hope you will question yourself if you laugh at this stuff in future

im going to go back into my little anxiety hibernation hole and never open up about this condition again ✌🏼

as for the incontinent population, we’re pretty silent about this condition so it’s easy to forget abt us. but please just keep us in mind and stick up for us when u can

— for clarity: incontinence is not ALWAYS a disability, it is a condition that can affect ppl on a sliding scale. for some it is a mild inconvenience, for some it severely impacts daily life. for some it is the only physical condition their body experiences, for some it is a symptom of a predetermined mental or physical disability such as generalized anxiety disorder or paraplegia. whether or not it is considered a disability, acceptance of ALL incontinence is a good step to eradicating this source of ableism —

no one has to reblog this but pls consider it if this has opened ur eyes a lil and u wanna open some more

[autisticincontinence]

I really wish that diapers were more accepted/normalized and I felt safe wearing one, instead of having accidents and being super uncomfortable and embarrassed. I wish I had more family support family support with my needs that make me more visibly disabled. I wish being visibly disabled was safe.

[autisticincontinence]

Hi. I'm wondering if any other people who are "high functioning" have problems with not realizing you have to pee. I often find it difficult to realize when I have to go and I often end up going without realizing it. I find it really embarrassing that even though a lot of people don't instantly realize I'm autistic, and can for the most part take care of myself, I'm still "one of those autistics" who have to wear diapers.

This is another example of why functioning labels aren’t actually useful or accurate. Lots of people who are less obviously autistic could have issues with incontinence, and lots of people who are more obviously autistic won’t.http://askanautistic.co.uk/tagged/incontinencehttp://askanautistic.co.uk/search/incontinence

[autisticincontinence]

For my transgender and non-binary allies 🏳️‍⚧️🏳️‍🌈

With my partner being MtF and I'm questioning my identity over time myself, I found this helpful.

#incontinence #transgender #normalizeincontinence #endthediaperstigma #AeroflowUrology

[autisticincontinence]

#incontinence #incontinence autism #normalizeincontinence #endthediaperstigma #asd #autisticdiaperedandproud #autism #autistic advocacy #social media #censorship #terms and conditions