#chronic illness

[nondivisable]

hi I'm back with more disabled etiquette for the ableds

if you're able bodied and see a disabled person very clearly walking in a straight line on one specific side of the sidewalk please be the one to dodge them

people with vertigo or positional problems, blind people, people with uneven gaits; they may all prefer to walk next to a wall to orient themselves and/or avoid bumping into others as much as possible

when I'm out with only one crutch or my cane, I always try to have it on the side of the street that other people don't walk, as to avoid people kicking it as much as possible

not to mention, a lot of disabled people, specially wheelchair and crutch users, can't easily swerve to avoid you

also, disabled people may be familiar with which parts of the sidewalk are more broken or difficult to traverse and have an established path we walk to minimize falling potential and/or pain

also please please please keep in mind that almost walking into a disabled person and then giving them a wide swerve is still quite rude, unless the street is packed and you have no choice please just start walking on the other side of the sidewalk when you see us, which is probably like half a block away. there's no need for you to pretend we're invisible until you almost hit us

thank you very much

#chronically ill #spoonie #chronic pain #crutch user #chronic illness #disability activism #disability psa #disability #disabled

[fibro-memes]

#fibromyalgia #chronic illness #chronic pain #chronic fatigue #spoonie #fibro #chronically ill #invisible illness

[dizzy1ife]

Talking about my chronic illness around non chronically ill people:

"Oh, you know, just the usual"

Updates from my chronically ill friends:

"Yeah, so I've barely been able to leave my bed for the past week and I'm in a ton of pain and I keep throwing up, how bout you?"

#if i say how im really doing around non chronically ill friends suddenly ive brought the mood down for some reason #chronic illness #chronically ill #chronic pain #chronic fatigue #physically disabled #physical disability #disability #disabled

[elumish]

One thing to think about when writing characters with chronic illnesses is that, even if someone knows what illness(es) they have, they may not be able to triangulate what symptoms come from what illness, which means that trying to improve quality of life/reduce symptoms can involve a whack-a-mole of medication and other treatment options to try to hit the right combination in the right way.

Stories often write illness and disability as a linear, straightforward thing--you treat x and y improves--but it often looks a lot more complicated than that. Unlike what medical shows tend to imply, doctors often don't have a clean way to pinpoint what's wrong, because a lot of things have overlapping symptoms, and so diagnoses are as much about exclusion as anything else.

Sometimes, different drugs that someone may need to treat their symptoms are contraindicated, so they either can't take both/all of them and have to pick what is most necessary or they face other negative side effects from taking them at the same time.

Chronic illnesses are messy and complicated! You don't need to simplify them when you write about them.

#disability #chronic illness #representation

[book-debate-night]

https://veronica-194.uuyun.icu/ri/lmHek9V

#网红 #ps3 #free! iwatobi swim club #motherhood #ke huy quan #chronic illness #skeleton war #before the flood #king clawthorne #handwriting #audi #twinks #skrillex

[quality-with]

#submisive sissy #rococo #animal friends #ginny weasley #solar system #网红 #free! iwatobi swim club #john price x reader #breeding k1nk #chronic illness

[totally-sick-blogger]

This is your friendly reminder that your mobility aids don’t ruin your outfit !!

#chronic illness #disability #disabled #chronicillnessawareness #disabled community #spoonie #totally sick blog #accessibility #actually autistic #fashion

[nephblrus]

happy pride month to the queers with chronic illnesses 🏳️‍🌈

#t4t #mlm #chronic illness #my hips hurt so bad #and ankles #and knees too #head and shoulders knees and toes

[animefeminist]

Nagata Kabi and the Mundane Pain of Sickness; or, That Time My Body Broke and I Had To Figure Out How to Keep Going

Content Warnings: Discussion of disordered eating and trauma

For many queer, marginalized manga readers, the name Nagata Kabi rings an immediate bell. Whether it’s her first title, My Lesbian Experience with Loneliness, her Solo Exchange Diary duology, her musings on alcoholism and marriage in separate, consecutive entries, or most recently, My Pancreas Broke, but My Life Got Better, Nagata’s autobiographical works capture contemporary life with an unflinching honesty that has resonated across her audience. This is certainly true for myself and that last title. 

My Pancreas Broke, but My Life Got Better is a bit of a time capsule, capturing how it felt to be sick in Japan’s emergent COVID-19 pandemic. It’s a pandemic that I had a unique perspective of as I was living in Fukushima when, in March 2020, the country shut down. I would go on to live within that pandemic until I immigrated back to the United States on August 11, 2020, where I would be faced with the jarring dissonance between Japan’s health care system and America’s tendency towards capitalistic cruelty.

While a distinctly different view on the pandemic, Nagata Kabi’s sixth autobiographical entry resonates with my own story as it captures the confusion and mundane chaos of suddenly living in a society that seems to be falling apart at the seams. Simultaneously, it details what happens when your body breaks while the world is just… kind of falling apart. It’s a story—a true narrative—about what happens when your life falls apart and you can no longer escape 

That last bit is what this article is about: falling apart.

Read it at Anime Feminist!

#nagata kabi #my lesbian experience with loneliness #my solo exchange diary #medical fatphobia #medical racism #fatphobia #chronic illness #pcos #pcosawareness #diabetes #disordered eating #articles

[4spooniesupport]

#spoonie #chronic illness #chronically ill #chronic disease #invisible disability #chronic pain #fibrolife #fibropain #fibro problems #fibromyalgia

[thevirgodoll]

nobody asked but my room is a mess and I’ve been in and out of episodes. but you know what? it’s going to be so satisfying to clean it all up and get myself back together. like, that’s still the doll life and I’m still that girl. life isn’t aesthetically pleasing all of the time or productive 24/7 for those of us with disabilities. I’m tired of the level up culture ignoring that days take more effort than not for some of us. it’s not “lazy”, it’s not a lack of discipline. it’s finding a new normal in a world that doesn’t adjust to you. your small efforts everyday is good enough. in your OWN way. take level up and empowerment baddie culture with a grain of salt omg. like, if it takes having one off day with your appearance or one day not doing anything special to stay sane this week, then so be it. you’ll actually have a brighter aura, be more alluring to others, and be happier overall if you allow yourself to bed rot now and give yourself the grace you deserve.

#back from my break let’s get it let’s go #adhd #actuallyadhd #chronic illness #thoughts #mental health

[my-illness-and-me]

it's chronic migraine awareness month. i, for one, am way too aware.

#chronic illness #chronic pain #chronic migraine #invisible disability #chronically ill #invisible illness #spoonie #actually disabled

[fibro-memes]

#fibromyalgia #chronic illness #chronic pain #chronic fatigue #spoonie #fibro #chronically ill #invisible illness

[fidoughfaunus]

So a romantic partner and I were talking about my disabilities, chronic pain, and my excitement for a mobility aid. He mentioned that it was weird that I had been in pain so much lately, and I said something like, “weird for you, but my normal. Welcome to being disabled!”

To which he replied “for now.” He was very, very insistent I wouldn’t be disabled forever.

I didn’t know why but it made me so, so angry. When I tried to tell him no, my issues are degenerative and lifelong, genetic with no cure, he basically said he refuses to accept that to be “optimistic.” He got mad when I pushed back that he needed to mitigate his expectations because I’m working really hard on acceptance so I don’t push myself too hard and hurt myself more (which I 100% have been doing.)

My guy/gal/person/whatever: if you cannot accept me disabled, I am going to assume you can’t accept me in my entirety. Sure, I get being hopeful about new therapies and treatments - I always am! - but there is a point you need to accept that pain is a part of my life. Disability is part of my life. Sometimes those things are small, sometimes you can’t ignore them. There are plenty of days I’m walking around and seem fine, sure, but that’s only because people don’t see the aftermath. The pain management, the chronic fatigue, the fainting. People don’t see me on my bad days because I’m *not able to leave my apartment*. Not to pull a cliche, but if you can’t love me just as enthusiastically on my days when I can’t get out of bed from pain, you don’t deserve me on my days when I can walk around the store for 30 minutes and maybe do some craft projects.

More importantly, I tend to trust you less to help me on the former days if you can’t accept my disability for what it is and meet me where I’m at.

It’s taken me a long time to accept my pain and disability, a lot longer than I’d like to admit. While I do not love my pain and limitations and don’t pretend to, they are part of me. I don’t expect other people to love them, but I do need others to accept them.

My walker doesn’t mean an end to fun days with my friends on the Terrace splitting a pitcher of beer, it means more of them. Accepting my disability doesn’t mean rolling over and rotting, it means working with what I can do to make the most of my life. Accepting pain doesn’t mean I let it rule me, it means I do things to avoid triggers while still living my life. Limitations don’t mean I can’t do anything ever, sometimes it just means getting creative in how I do things (and I am aware how privileged I am to make that statement, because other disabilities or my current without needed support would be much more devastating.)

Disabled is not a bad word.

#rivkah irl #disability #chronic pain #heds #chronic illness #chronic fatigue #disability pride #invisible disability #disability awareness #disability acceptance #pain acceptance #relationships #actually disabled #mobility aid

[moss-opossum]

Got my official POTS diagnosis today! That’s another condition down, hopefully only only three or four left lol

#moss-opossum #disability #chronically ill #chronic illness #disabled #pots syndrome #postural orthostatic tachycardia syndrome #diagnostic process

[houstonxbreed]

Desiring relationships because you’re a hopeless romantic 🤝🏾 avoiding relationships out of fear that your disability will be a burden on your partner.

#lesbian #disabled #queer and disabled #disabled lesbian #qwoc #masc #disability #chronic disease #disabled masc #muscular dystrophy #wheelchair user #wheelchair #wlw post #wlw mood #wlw yearning #wlw community #wlw love #femme4masc #femme lesbian #masc4brat #soft masc #masc4femme #masc lesbian #sorry for being depressing #gay and disabled #severe disability #chronic illness #chronic fatigue #chronically ill #chronic pain