#i'd say 'back to our regularly scheduled ql programming' but it was a take in the ql community that prompted this so-

[liyazaki]

"specially abled" and "disabled" are absolutely, unequivocally not interchangeable terms. & yeah, it actually is that deep.

I wish my autoimmune disease made me specially abled instead of regularly ill. I'm a pro now at managing constantly-changing treatment regimens, coordinating monthly (if not more) doctor visits & endless bloodwork, but alas- that's not a superpower. it's the day-to-day reality of living with a disability.

I can only speak as a someone who was relatively healthy before I got sick, but the mourning period I went through was brutal. getting diagnosed with an incurable disease brings a metric fuckton of grief with it, requiring a huge perspective shift.

I'm an intensely independent, self-reliant person- sometimes to my own detriment. unsurprisingly, coming to terms with this new reality was no small task.

when I was finally diagnosed, I made a playlist (my go-to coping mechanism). I played one song on a loop because of its namesake line, & it still packs an emotional gut-punch for me: "I needed to lose you to love me."

I was angry at my body for 'failing' me- for having zero control over such an all-important outcome (my health). I had to reconcile myself to the reality that my life was different now. I had to lose my old view of myself to love the new version that needed more sleep, more sick days, more accommodations.

it took me years to get comfortable using the term "disability" to help describe what's now a big part of my lived experience (especially since mine is invisible). it went from being a foreign term I could've never imagined using for myself to my bridge to self acceptance.

(note: I have my own complex relationship with the term, as do most people. I’m talking about the harm in equating terms here, not implying that anyone should use these words to describe themselves. that’s entirely up to the individual.)

there's nothing romantic about my disease- a quality that "specially abled" imbues for me. do I- & all disabled people- have special abilities, valuable experience & unique skills? you bet your ass we do. one has absolutely nothing to do with the other.

every person has the right to choose the terms they're comfortable with to describe their experience. for me? treating "disability" like a dirty word 1) glosses over (if not entirely erases) the very real, life-altering struggle inherent to my condition, & 2) muddies the waters, potentially making it even more difficult for disabled people to get the accommodations we need when we need them.

using terms like "specially abled" isn't some evil, awful thing, though. if anything, it tells me that the person is trying to be delicate & respectful with their word choices. I genuinely appreciate that, even if it's misguided (in my opinion).

when in doubt? listen to how people describe themselves. honor them by using the same descriptors (unless they tell you otherwise). choose to believe people when they tell you how terms affect them.

forgive yourself if you don't always get it right- who does? perfection isn't the point- effort is the point. kindness is the point. respect is the point. how we get there is as varied as people, but it starts with the words we use.

#disability #disabled #disabilities #autoimmune #autoimmune disease #i'd say 'back to our regularly scheduled ql programming' but it was a take in the ql community that prompted this so- #back to kind respectful programming (manifesting) #mor rambles